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Pernicious anaemia
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Book I just bought about Vitamin B12 Deficiency
In order to better prepare myself for my next visit with my GP, I bought the book "Vitamin B12 Deficiency in Clinical Practice" by Dr Joseph Chandy. My GP has been renewing my B-12 prescriptions for a few years and I self inject every 2 weeks. For some reason this year he tested my B-12 level and
In order to better prepare myself for my next visit with my GP, I bought the book "Vitamin B12 Deficiency in Clinical Practice" by Dr Joseph Chandy. My GP has been renewing my B-12 prescriptions for a few years and I self inject every 2 weeks. For some reason this year he tested my B-12 level and
prillyb12
in
Pernicious Anaemia Society
1 year ago
T3 much better but feeling worse again!
I'm on a high dose of levo, 200mcg per day (I weigh 80kg right now), and just got test results back that show my T3 levels are much improved. However, of course, my TSH is now below range and my T4 way over. My ferritin, etc, is as bad as it's ever been, despite taking 210mg of ferrous fumarate each
I'm on a high dose of levo, 200mcg per day (I weigh 80kg right now), and just got test results back that show my T3 levels are much improved. However, of course, my TSH is now below range and my T4 way over. My ferritin, etc, is as bad as it's ever been, despite taking 210mg of ferrous fumarate each
crabapple1
in
Thyroid UK
10 months ago
B12 / PA roller-coaster and further tests
They then did an intrinsic factor test and it's been confirmed that I have
Pernicious
Anaemia
. The nurse told me my B12 levels were extremely low - they came back as under 100pg/mL (apparently they don't get more specific readings under a hundred).
They then did an intrinsic factor test and it's been confirmed that I have
Pernicious
Anaemia
. The nurse told me my B12 levels were extremely low - they came back as under 100pg/mL (apparently they don't get more specific readings under a hundred).
TheSunshineSanctuary
in
Pernicious Anaemia Society
10 months ago
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letter from consultation
just had my letter from my meeting last week … still awaiting diagnosis but please I welcome your thoughts on this….. I note the serial blood counts that you kindly sent through from a number of different laboratories. These demonstrate a mild thrombocytosis, normal renal and liver function tests,
just had my letter from my meeting last week … still awaiting diagnosis but please I welcome your thoughts on this….. I note the serial blood counts that you kindly sent through from a number of different laboratories. These demonstrate a mild thrombocytosis, normal renal and liver function tests,
Carthe
in
MPN Voice
1 year ago
Tummy
Everytime I eat I get short of breath I have pain under sternum I don't no if it's lung n heart related ot it's my tummy I'm due endescopy in 2 weeks...I've had chest CT scan n 12hour holter test just waiting on results any one av any ideas?
Everytime I eat I get short of breath I have pain under sternum I don't no if it's lung n heart related ot it's my tummy I'm due endescopy in 2 weeks...I've had chest CT scan n 12hour holter test just waiting on results any one av any ideas?
Purple_1963
in
Lung Conditions Community Forum
1 year ago
Iron. So confused.
Hi all, I'm going crazy with trying to understand what is going on with my iron levels right now. I recently got a NHS iron panel test that came back high - suggesting iron overload to which my GP panicked, but critically they missed off serum ferritin as there was a national reagent shortage. Following
Hi all, I'm going crazy with trying to understand what is going on with my iron levels right now. I recently got a NHS iron panel test that came back high - suggesting iron overload to which my GP panicked, but critically they missed off serum ferritin as there was a national reagent shortage. Following
Ebx_design
in
Thyroid UK
1 year ago
blood test results
I have a multi nodular goitre and am awaiting ENT assessment. I had bloods redone as I’m feeling extremely fatigued and have symptoms such as breathlessness, tremors. my results were: Total white cell count: 5.2 X10^9/L (normal range: 3.9 - 11.1) Red blood cell (RBC) count: 3.97 ×10^12/L
I have a multi nodular goitre and am awaiting ENT assessment. I had bloods redone as I’m feeling extremely fatigued and have symptoms such as breathlessness, tremors. my results were: Total white cell count: 5.2 X10^9/L (normal range: 3.9 - 11.1) Red blood cell (RBC) count: 3.97 ×10^12/L
Kellyellen
in
Thyroid UK
1 year ago
Blood Tests for Children
Hi all Finally managed to get blood tests for my children but annoyingly, my daughter was not tested for all cofactors - just B12. Son is being tested tomorrow and I want to give him a list to give to the nurse, but I can’t remember all the cofactors. Not one off my best days today! B12 Vitamin
Hi all Finally managed to get blood tests for my children but annoyingly, my daughter was not tested for all cofactors - just B12. Son is being tested tomorrow and I want to give him a list to give to the nurse, but I can’t remember all the cofactors. Not one off my best days today! B12 Vitamin
Wwwdot
in
Pernicious Anaemia Society
1 year ago
Anemia question
Hello there, I've been tested multiple times over the years and gets results similar to my most recent results which follow. I am hypothyroid and have psoriatic arthritis and Drs say that these results are typical for people with these conditions and not to worry about them overly. I have chronic insufficient
Hello there, I've been tested multiple times over the years and gets results similar to my most recent results which follow. I am hypothyroid and have psoriatic arthritis and Drs say that these results are typical for people with these conditions and not to worry about them overly. I have chronic insufficient
EchoWS
in
Thyroid UK
1 year ago
Postherpetic Neuralgia and B12
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
helvella
in
Pernicious Anaemia Society
1 year ago
HELP Low B12 low ferretin, low folate and low iron
I have had issues with my iron levels for quite a few years. I have tried several supplements and am on iron liquid ferrous fumurate at the moment but still causing me stomach discomfort. I am trying to increase my doses slowly, currently taking 6ml twice a day, i know its not enough but i cant tolerate
I have had issues with my iron levels for quite a few years. I have tried several supplements and am on iron liquid ferrous fumurate at the moment but still causing me stomach discomfort. I am trying to increase my doses slowly, currently taking 6ml twice a day, i know its not enough but i cant tolerate
mabs79
in
Pernicious Anaemia Society
1 year ago
augmentation pregabilin
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Hi I have been taking pregabilin 150 mg early evening which has been very effective up until recently, for my RLS. I have complex medical issues and have recently had an iron infusion. I have a 12 hour abdominal surgery due on 26 th September. I would just like clarification that augmentation is
Esme2007
in
Restless Legs Syndrome
10 months ago
Please help with blood results for iron status
Hi everyone, I hope someone can tell me what's going on with my iron status and whether I need iron supplements ( hair loss, fatigue).My GP isn't that attentive and I was told all was OK with now explaining about markers. Serum Tibc 45 umol/l (range 53-85) Serum iron level 27 unol/l ( range 12-36) Serum
Hi everyone, I hope someone can tell me what's going on with my iron status and whether I need iron supplements ( hair loss, fatigue).My GP isn't that attentive and I was told all was OK with now explaining about markers. Serum Tibc 45 umol/l (range 53-85) Serum iron level 27 unol/l ( range 12-36) Serum
sasha_nico
in
Thyroid UK
10 months ago
A case study post bariatric surgery
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
helvella
in
Pernicious Anaemia Society
10 months ago
Buprenorphine
I am writing this to highlight how miraculous Buprenorphine has been for me and many others on this site. My sleep app shows how good my sleep is. I had never heard of buprenorphine until Shumbah posted that it had resolved her severe, refractory RLS. No neurologist has ever mentioned it. Like Shumbah
I am writing this to highlight how miraculous Buprenorphine has been for me and many others on this site. My sleep app shows how good my sleep is. I had never heard of buprenorphine until Shumbah posted that it had resolved her severe, refractory RLS. No neurologist has ever mentioned it. Like Shumbah
Joolsg
in
Restless Legs Syndrome
1 year ago
Hello and any advice for withdrawal?
I've been an RLS sufferer since I was 13 and I'm now 56. I've done all the good lifestyle stuff and nothing much helps. After 14 years in clinic with Professor Chaudhuri, told at every 6m appointment there have been no breakthroughs or new developments, have learned about iron infusion. I have requested
I've been an RLS sufferer since I was 13 and I'm now 56. I've done all the good lifestyle stuff and nothing much helps. After 14 years in clinic with Professor Chaudhuri, told at every 6m appointment there have been no breakthroughs or new developments, have learned about iron infusion. I have requested
familynash5
in
Restless Legs Syndrome
1 year ago
Query
E.T. Jak2 positive since 2018. On Hydroxicarbamide since autumn 2019. Bloods every three months and platelets reduced and more or less stable. This last six months, HCT has crept from 0.44 where it usually stays to 0.46.Dr suggested increasing HU to two tablets, four times a week and one tablet three
E.T. Jak2 positive since 2018. On Hydroxicarbamide since autumn 2019. Bloods every three months and platelets reduced and more or less stable. This last six months, HCT has crept from 0.44 where it usually stays to 0.46.Dr suggested increasing HU to two tablets, four times a week and one tablet three
Mcrg
in
MPN Voice
1 year ago
GP refusing to offer IFAB Test
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
cloudspotting
in
Pernicious Anaemia Society
1 year ago
8 week bloodtest
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
After my last bloodtest I reduced my levothyroxine dose to 137.5mcg, i am still supplementing with B Complex, 1 ferrous fumarate iron tablet a day with vit c capsule, 5000iu vitamin D and a magnesium capsule. These are my latest test results after 8 weeks, i stopped the B complex and iron tablets a
catpurple7
in
Thyroid UK
10 months ago
Ferratin level
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
Hi. Probably in t he wrong section but all thoughts welcome. My ferratin is in the 'normal' range but low and dropping, even though I have been taking oral iron spray daily, liquid iron supplement given by my doctor, high iron foods in my diet. I get days of complete fatigue, other days I can cope but
fiftyone
in
Thyroid UK
10 months ago
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