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INTENSIVE CARE - Covid-19
Hi all, My Dad is very sadly in intensive care on a ventilator with Covid-19. Very difficult as obviously can’t visit and reading the news and stats his prognosis is not good. I thought I’d read on here about other conditions with similar presentation in terms of what’s going on in ICU. He currently
Hi all, My Dad is very sadly in intensive care on a ventilator with Covid-19. Very difficult as obviously can’t visit and reading the news and stats his prognosis is not good. I thought I’d read on here about other conditions with similar presentation in terms of what’s going on in ICU. He currently
Heartgal151
in
ICUsteps
4 years ago
Your help is needed
We are looking for people from the UK who have ANCA Vasculitis and have personal experience of plasma exchange and/or dialysis. This is to help an international research study led by researchers in Canada. If you think you maybe able to put yourself forward as a possible candidate please can you write
We are looking for people from the UK who have ANCA Vasculitis and have personal experience of plasma exchange and/or dialysis. This is to help an international research study led by researchers in Canada. If you think you maybe able to put yourself forward as a possible candidate please can you write
John_Mills
Vasculitis UK
in
Vasculitis UK
4 years ago
Any PD Patients Reluctant to Visit Clinic?
Is anyone else having a problem trying to convince their dialysis clinic -- with State and County shelter-in-place orders -- that coming into the clinic, with hemodialysis patients present (some of which have been diagnosed with covid-19) is something you would like to put off for at least a month of
Is anyone else having a problem trying to convince their dialysis clinic -- with State and County shelter-in-place orders -- that coming into the clinic, with hemodialysis patients present (some of which have been diagnosed with covid-19) is something you would like to put off for at least a month of
TaffyTwoshoes27
in
Kidney Dialysis
4 years ago
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I Need Suggestions
I am at end Stage kidney Disease. With PKD on Dialysis at Clinic 3 Days a week. On the Transplant list since March 2018. And on Dialysis since April 2019. Besides this Group is there support groups or Groups that help you with ideas of finding a living Donor. I have had 6 perfect matches but they were
I am at end Stage kidney Disease. With PKD on Dialysis at Clinic 3 Days a week. On the Transplant list since March 2018. And on Dialysis since April 2019. Besides this Group is there support groups or Groups that help you with ideas of finding a living Donor. I have had 6 perfect matches but they were
Cyndimae
in
Kidney Disease
4 years ago
Nocturnal Dialysis Problems
Well, I've finally started nocturnal dialysis and much to my chagrin it is not what I thought it would be. It is torture. The first couple of dialysis sessions were only two hours long and were uneventful and went by rather pleasantly. However, I'm now doing twice a week, nocturnal dialysis (6 hours
Well, I've finally started nocturnal dialysis and much to my chagrin it is not what I thought it would be. It is torture. The first couple of dialysis sessions were only two hours long and were uneventful and went by rather pleasantly. However, I'm now doing twice a week, nocturnal dialysis (6 hours
steve680
in
Kidney Disease
4 years ago
New to dialysis
Hello all.. my name is Can and I am a diabetic. I had a stroke about 2 years ago and have since been on disability l icing in my sister's basement. I have been having ytroubles. When I eat. I sometimes throw up what I just ate. This annoys my mother and sister to know end. Can someone help me with this
Hello all.. my name is Can and I am a diabetic. I had a stroke about 2 years ago and have since been on disability l icing in my sister's basement. I have been having ytroubles. When I eat. I sometimes throw up what I just ate. This annoys my mother and sister to know end. Can someone help me with this
New2dialysis
in
Kidney Disease
4 years ago
Pain
Another night and I can’t make it off the initial drain part on my pd machine because of pain I really don’t want to end up iN the hospital during this pandemic .Im not gonna finish dialysis today it’s been hours and my machine keep beeping n I’m still in initial drain no way to bypass it
Another night and I can’t make it off the initial drain part on my pd machine because of pain I really don’t want to end up iN the hospital during this pandemic .Im not gonna finish dialysis today it’s been hours and my machine keep beeping n I’m still in initial drain no way to bypass it
Acardet
in
Kidney Disease
4 years ago
Nutrition and vitamins post-transplant??
Hey guys, anyone have any tips/advice for nutrition post-transplant? I was on dialysis for 2 years and had a very restricted diet. Is there any foods or nutrients that are important after a transplant? I am vegan 70 percent of the time and don't eat red meat.. should I take B12? Any one take supplements
Hey guys, anyone have any tips/advice for nutrition post-transplant? I was on dialysis for 2 years and had a very restricted diet. Is there any foods or nutrients that are important after a transplant? I am vegan 70 percent of the time and don't eat red meat.. should I take B12? Any one take supplements
Sunflowerlady1
in
Kidney Transplant
4 years ago
Understanding Test Result numbers
I recently had a telemedicine call from my kidney doc about my recent labs. I asked him to please send me a copy of the labs. I am looking at some of the numbers and have a few questions. (My doc seemed really anxious to get off the phone and get to the next patient, so didn't seem to have time for many
I recently had a telemedicine call from my kidney doc about my recent labs. I asked him to please send me a copy of the labs. I am looking at some of the numbers and have a few questions. (My doc seemed really anxious to get off the phone and get to the next patient, so didn't seem to have time for many
RonZone
in
Kidney Disease
4 years ago
INFORMATION ON COVID-19 FOR KIDNEY PATIENTS
Kevin Longino (NKF’s CEO) addresses some of the questions we’re receiving from patients and care partners regarding continuing in-center dialysis and precautions the centers are taking to keep patients safe. TO ACCESS THE BLOG, past this in your browser: https://nkfadvocacy.blog/2020/03/26/challenges-unusual-opportunities-and-a-new-respect-for-lace-ups-during-covid
Kevin Longino (NKF’s CEO) addresses some of the questions we’re receiving from patients and care partners regarding continuing in-center dialysis and precautions the centers are taking to keep patients safe. TO ACCESS THE BLOG, past this in your browser: https://nkfadvocacy.blog/2020/03/26/challenges-unusual-opportunities-and-a-new-respect-for-lace-ups-during-covid
DavidF_NKF
Administrator
in
C3 Glomerulopathy
4 years ago
Is Nepro High Protein safe to take for a 76 year-old that recently started dialysis?
My dad just started dialysis. Is Nepro High Protein a safe and good supplement to take? How about Low Protein? Our city went on lockdown and we can't even contact our nephrologist. He was also treated for gout and contracted pneumonia a few days after leaving the hospital, so got hospitalized again for
My dad just started dialysis. Is Nepro High Protein a safe and good supplement to take? How about Low Protein? Our city went on lockdown and we can't even contact our nephrologist. He was also treated for gout and contracted pneumonia a few days after leaving the hospital, so got hospitalized again for
jaimekings
in
Dialysis Support
4 years ago
Nepro
My dad just started dialysis. Is Nepro High Protein a safe and good supplement to take? How about Low Protein? Our city went on lockdown and we can't even contact our nephrologist. He was also treated for gout and contracted pneumonia a few days after leaving the hospital, so got hospitalized again for
My dad just started dialysis. Is Nepro High Protein a safe and good supplement to take? How about Low Protein? Our city went on lockdown and we can't even contact our nephrologist. He was also treated for gout and contracted pneumonia a few days after leaving the hospital, so got hospitalized again for
jaimekings
in
Kidney Disease
4 years ago
What a Blessing You Can Be
I am a PD patient in the Midwest and new to the new community. We buried my Father In-Law yesterday. The funeral home had been given a directive from the state to limit the number of attendees. Thankfully, I was able to be there with my wife, my primary caregiver. She needed me for a change. Bless her
I am a PD patient in the Midwest and new to the new community. We buried my Father In-Law yesterday. The funeral home had been given a directive from the state to limit the number of attendees. Thankfully, I was able to be there with my wife, my primary caregiver. She needed me for a change. Bless her
82mf
in
Positive Wellbeing During Self-Isolation
4 years ago
Getting a letter?
Am I receiving a letter or not, according to the government guidelines I am, unfortunately the scottish government don't detail it enough so I'm unsure. Having SLE, on steroids, had rituximab in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really
Am I receiving a letter or not, according to the government guidelines I am, unfortunately the scottish government don't detail it enough so I'm unsure. Having SLE, on steroids, had rituximab in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really
Hidden
in
LUPUS UK
4 years ago
Mum sudden death due to renal failure and nald
My beloved mum passed away 2 days ago due to non alcoholic liver disease alongside renal failure been taken to hospital on saturday evening with symptoms of diarrhoea, irregular heartbeat (she was chronic ihd and high BP patient) told in A&E after initial diagnose she has renal failure and scarred liver
My beloved mum passed away 2 days ago due to non alcoholic liver disease alongside renal failure been taken to hospital on saturday evening with symptoms of diarrhoea, irregular heartbeat (she was chronic ihd and high BP patient) told in A&E after initial diagnose she has renal failure and scarred liver
kss1573
in
British Liver Trust
4 years ago
is there any way i can talk to a dietician online? can anyone share a website?
my father is a 67 year old hemodialysis patient with diabetes and hypertension. We are on our first month of dialysis and im still abit confused what of food and the portions to give him.
my father is a 67 year old hemodialysis patient with diabetes and hypertension. We are on our first month of dialysis and im still abit confused what of food and the portions to give him.
Jonesss
in
Kidney Disease
4 years ago
Should I isolate for 12 weeks
I hope everyone is staying well both mentally and physically at this difficult time. As the spread of Covid-19 and the actions we are advised to take accelerate and change daily, I am still unsure if I come under the vulnerable or very vulnerable group. As a result, I an uncertain whether I should be
I hope everyone is staying well both mentally and physically at this difficult time. As the spread of Covid-19 and the actions we are advised to take accelerate and change daily, I am still unsure if I come under the vulnerable or very vulnerable group. As a result, I an uncertain whether I should be
Lr1968
in
Cystinuria Support
4 years ago
Help my mum only got told last yr ckd stage 3
Hope you can help my had really high bp which got worse after losing my dad 4 yrs ago it was over 200 then last year she was struggling breathe and i had get her ambulance an she was diagnosed with af but when they went to give her meds for af they said her kidney gfr was only 15 tk which worried us
Hope you can help my had really high bp which got worse after losing my dad 4 yrs ago it was over 200 then last year she was struggling breathe and i had get her ambulance an she was diagnosed with af but when they went to give her meds for af they said her kidney gfr was only 15 tk which worried us
bunker1
in
Kidney Disease
4 years ago
Can we switch to Hospice Care after dialysis has been started?
Hi, My father is 81 years old and had a renal failure. We started dialysis but his health has become quite fragile. From the last 10-12 dialysis, we have to rush to the hospital due to infection or chills, high fever, shortness of breath, etc, admit him for 1 or 2 night and somehow bring him back after
Hi, My father is 81 years old and had a renal failure. We started dialysis but his health has become quite fragile. From the last 10-12 dialysis, we have to rush to the hospital due to infection or chills, high fever, shortness of breath, etc, admit him for 1 or 2 night and somehow bring him back after
KCRG
in
Kidney Disease
4 years ago
Discontinuing Provenge in lieu of Covid 19; 2 out of 3 treatments.. still effective?
My dad and I were set to go to Cleveland today for his final Provenge treatment. However he received a call last night from Dendreon (the lab that makes Provenge) that his cells did not meet quality standards and would not be shipped. I called his oncologist in Cleveland and she was very emphatic that
My dad and I were set to go to Cleveland today for his final Provenge treatment. However he received a call last night from Dendreon (the lab that makes Provenge) that his cells did not meet quality standards and would not be shipped. I called his oncologist in Cleveland and she was very emphatic that
Lynsi13
in
Advanced Prostate Cancer
4 years ago
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