Should I isolate for 12 weeks - Cystinuria Support

Cystinuria Support

Should I isolate for 12 weeks

Lr1968 profile image
2 Replies

I hope everyone is staying well both mentally and physically at this difficult time.

As the spread of Covid-19 and the actions we are advised to take accelerate and change daily, I am still unsure if I come under the vulnerable or very vulnerable group. As a result, I an uncertain whether I should be isolating for the full 12 weeks or not.

Thank you Matt for the post you put up a few days ago. I have looked at the links you suggested also.

I have one kidney and the aggressive form of the disease having had numerous surgeries over the years, many of which have been performed by yourself and Kay.

I am told I am classed as stage 3 CKD due to my reduced kidney function.

Most advice understandably is aimed at dialysis or transplant patients.

The kidney care uk website which accessed though the get website advised that people who are stage 3-5 of CKD should isolate for 12 weeks but this is not noted on the government website.

I am aware that letters will be sent to high risk people. I got a text advising that I am on the CKD register and should therefore avoid a long list of medicines but it did not give any advice about if I am classed as high risk or isolation so I know which advice to follow.

I am lucky enough to be able to work from home at present but do not know if I will need to prove that I am in a vulnerable group to my employer at some stage to maintain this especially as we are now effectively on lock down making more people nervous abous travelling to the office when the restrictions are lifted.

Apologies for the very long message and hope you are all ok.

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Lr1968
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AwesomeAT profile image
AwesomeAT

our local doctor rang us(I’d messaged)as I was half expecting a letter to class us as vulnerable but no apparently not, but we are still isolating, mind you now we are on so called lockdown we cannot go anywhere apart from the essentials, keeping busy watching live streams from certain organisations, quizzes, lucky to have a garden so can sit out & watch the wildlife(we do live in a village)& enjoy this bit of sun we are having

Lr1968 profile image
Lr1968 in reply toAwesomeAT

Hi AwsomeAT

Thank you for reading my very long post and taking the time to reply. That is good to know.

I hope you and everyone else on here is staying well.

Many thanks

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