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Pelvic nerve damage
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Vagus nerve stimulation'
I've posted here a few times to discuss gut health for those of you suffering from PA who also have gut issues. In my quest to find some relief from visceral hypersensitivity and massive intolerances (leading to malabsorption) I began acupuncture treatment this year. I am very lucky to have an anethesist
I've posted here a few times to discuss gut health for those of you suffering from PA who also have gut issues. In my quest to find some relief from visceral hypersensitivity and massive intolerances (leading to malabsorption) I began acupuncture treatment this year. I am very lucky to have an anethesist
expatkerry
in
Pernicious Anaemia Society
7 months ago
Therapulse - Do I really need to scale up slowly the way the maker says to?
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
I've had RLS for decades & currently take Horizant, methadone, and a small amount of Mirapex (I ran into trouble when I tried to drop the Mirapex completely so my specialist suggested leaving a small amount in for now). To help further lower my med doses, or to help with handling flareups without increasing
UsableThought
in
Restless Legs Syndrome
6 months ago
November Webinar
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
Shewulf
Administrator
in
LDN Research Trust
8 months ago
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First consultant’s appointment - any tips?
Hi everyone, After a 5 month wait, I finally have my first (telephone) gynaecologist appointment tomorrow since 2019 for suspected endometriosis. I have never had any surgery or anything to properly prove this yet. I have had 3 ultrasounds this year between February and June, which showed one of my
Hi everyone, After a 5 month wait, I finally have my first (telephone) gynaecologist appointment tomorrow since 2019 for suspected endometriosis. I have never had any surgery or anything to properly prove this yet. I have had 3 ultrasounds this year between February and June, which showed one of my
KiwiCookie
in
Endometriosis UK
7 months ago
Vagus Nerve Stimulation for RLS
https://pubmed.ncbi.nlm.nih.gov/37846650/ An interesting study on Vagus Nerve Stumulation on 15 drug resistant RLS patients showed significant improvements in quality of life scale and that 2 of the 15 reduced their IRLSS below 5. The study doesn't say what meds the patients were taking. Sadly, they
https://pubmed.ncbi.nlm.nih.gov/37846650/ An interesting study on Vagus Nerve Stumulation on 15 drug resistant RLS patients showed significant improvements in quality of life scale and that 2 of the 15 reduced their IRLSS below 5. The study doesn't say what meds the patients were taking. Sadly, they
Joolsg
in
Restless Legs Syndrome
9 months ago
painful heavy legs …. This has helped me!
I have RA, I also had a DVT 8 years ago following surgery. I have a job which keeps me on my feet all day and I’m in my mid 50s. I had started to get very heavy aching legs. Compression socks helped, but on a whim I bought an electronic circulation booster (the type of thing advertised on TV by
I have RA, I also had a DVT 8 years ago following surgery. I have a job which keeps me on my feet all day and I’m in my mid 50s. I had started to get very heavy aching legs. Compression socks helped, but on a whim I bought an electronic circulation booster (the type of thing advertised on TV by
girli1111
in
NRAS
7 months ago
Constant uncomfortable feeling
I'm hoping anyone out there can reach out. I was diagnosed with endometriosis 10 years ago and had 3 laparoscopies with the last one removing my left ovary and tube over 3 years ago. For the past month or so the pain is gradually getting worse. I'm worried that this will be the norm as its feels too
I'm hoping anyone out there can reach out. I was diagnosed with endometriosis 10 years ago and had 3 laparoscopies with the last one removing my left ovary and tube over 3 years ago. For the past month or so the pain is gradually getting worse. I'm worried that this will be the norm as its feels too
Marvel-
in
Endometriosis UK
7 months ago
Tetanus booster while on prednisone?
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Spartans1
in
PMRGCAuk
9 months ago
Human Rights Day - 75th Anniversary
Today marks the 75th Anniversary of Human Rights Day. This year’s theme is
Freedom, Equality and Justice for All
. Please remember this. In 2010, Dr Matt Jameson Evans (Chief Medical Officer) and an entrepreneur, Jorge Armanet founded HealthUnlocked. They wished to reshape how data and information
Today marks the 75th Anniversary of Human Rights Day. This year’s theme is
Freedom, Equality and Justice for All
. Please remember this. In 2010, Dr Matt Jameson Evans (Chief Medical Officer) and an entrepreneur, Jorge Armanet founded HealthUnlocked. They wished to reshape how data and information
Narwhal10
in
Pernicious Anaemia Society
7 months ago
Back Pain Advice and Meds
Hi I posted this in a different forum as unsure which one to use? Anyhow, for the past 6 months I have had very bad back pain which is impacting daily life. I have no idea what triggered it but my physio says she sees it all the time and it is degenerative disc disease. I have paid for a dozen physio
Hi I posted this in a different forum as unsure which one to use? Anyhow, for the past 6 months I have had very bad back pain which is impacting daily life. I have no idea what triggered it but my physio says she sees it all the time and it is degenerative disc disease. I have paid for a dozen physio
Jo198919
in
Cloudy with a Chance of Pain
7 months ago
Back Pain Medication/Advice
For the past 6 months I have had very bad back pain which is impacting daily life. I have no idea what triggered it but my physio says she sees it all the time and it is degenerative disc disease. I have paid for a dozen physio sessions and several osteopath sessions which have not been helpful unfortunately
For the past 6 months I have had very bad back pain which is impacting daily life. I have no idea what triggered it but my physio says she sees it all the time and it is degenerative disc disease. I have paid for a dozen physio sessions and several osteopath sessions which have not been helpful unfortunately
Jo198919
in
Pain Concern
7 months ago
What it is like to get an AV fistula, My journey
I am writing this for those who are heading to dialysis and want to know what it is like. As RonZone did with PD, I am talking about home hemodialysis, HHD. My lab numbers are at the point to "get-er done." The first step: I was scheduled for an AV fistula; first-stage left brachiobasilic fistula
I am writing this for those who are heading to dialysis and want to know what it is like. As RonZone did with PD, I am talking about home hemodialysis, HHD. My lab numbers are at the point to "get-er done." The first step: I was scheduled for an AV fistula; first-stage left brachiobasilic fistula
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
Shingles jab
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shot👍
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shot👍
Ovingite
in
MPN Voice
9 months ago
Shingles vaccine
Hi, has anyone had the shingles vaccine, I have had shingles 5 times over the years and have been advised to have the vaccine, bit worried about possible reaction?Thanx
Hi, has anyone had the shingles vaccine, I have had shingles 5 times over the years and have been advised to have the vaccine, bit worried about possible reaction?Thanx
Den73
in
PMRGCAuk
9 months ago
Just goes to show nothing is risk free for everyone
This was posted on Face Book Parkinson's Alternative Healing (with permission of the author.) "I am a participant in the OHSU study of the tactile vibrational Parkinson's glove. I am pleased to be a part of this promising research. Unfortunately the experience of wearing these gloves 4 hours everyday
This was posted on Face Book Parkinson's Alternative Healing (with permission of the author.) "I am a participant in the OHSU study of the tactile vibrational Parkinson's glove. I am pleased to be a part of this promising research. Unfortunately the experience of wearing these gloves 4 hours everyday
MBAnderson
in
Cure Parkinson's
7 months ago
Shingles vaccine?
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
I unknowingly (until after) had shingles in March 2023 which I believe, triggered first episode of Afib. Now thinking about having the vaccine, concerned that it will trigger Afib. What are people's experiences of having the vaccine? Do I need it yet. Maybe still have antibodies in my system? Will
sunlovah
in
Atrial Fibrillation Support
9 months ago
Endo on the bladder
Anyone else have the bladder and bowel endo? Willing to try anything, for any kind of relief. I have endo on and going into my bladder and now also effecting my bowel. It's triggered normally about day 3 of my period and last for a good 3 weeks. The first few days I just have to be near a toilet, when
Anyone else have the bladder and bowel endo? Willing to try anything, for any kind of relief. I have endo on and going into my bladder and now also effecting my bowel. It's triggered normally about day 3 of my period and last for a good 3 weeks. The first few days I just have to be near a toilet, when
Country-Girl100
in
Endometriosis UK
7 months ago
Posting again. No help found.
am a 68 year old, once very active female who started having anal, rectal, vaginal, clitoris pain in April of 2021. Since that time I have had 15 months of pelvic floor therapy, a colonoscopy, Defecogram X-Ray and MRI, Pelvic ultrasound, several trigger point injections, several prescription meds, several
am a 68 year old, once very active female who started having anal, rectal, vaginal, clitoris pain in April of 2021. Since that time I have had 15 months of pelvic floor therapy, a colonoscopy, Defecogram X-Ray and MRI, Pelvic ultrasound, several trigger point injections, several prescription meds, several
LNLPANDORAS
in
Pelvic Pain Support Network
11 months ago
Posting again. No help found.
am a 68 year old, once very active female who started having anal, rectal, vaginal, clitoris pain in April of 2021. Since that time I have had 15 months of pelvic floor therapy, a colonoscopy, Defecogram X-Ray and MRI, Pelvic ultrasound, several trigger point injections, several prescription meds, several
am a 68 year old, once very active female who started having anal, rectal, vaginal, clitoris pain in April of 2021. Since that time I have had 15 months of pelvic floor therapy, a colonoscopy, Defecogram X-Ray and MRI, Pelvic ultrasound, several trigger point injections, several prescription meds, several
LNLPANDORAS
in
Pelvic Pain Support Network
11 months ago
Posting again. No help found.
am a 68 year old, once very active female who started having anal, rectal, vaginal, clitoris pain in April of 2021. Since that time I have had 15 months of pelvic floor therapy, a colonoscopy, Defecogram X-Ray and MRI, Pelvic ultrasound, several trigger point injections, several prescription meds, several
am a 68 year old, once very active female who started having anal, rectal, vaginal, clitoris pain in April of 2021. Since that time I have had 15 months of pelvic floor therapy, a colonoscopy, Defecogram X-Ray and MRI, Pelvic ultrasound, several trigger point injections, several prescription meds, several
LNLPANDORAS
in
Pelvic Pain Support Network
11 months ago
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