What it is like to get an AV fistula, My jo... - Kidney Disease

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What it is like to get an AV fistula, My journey

Bassetmommer profile image
BassetmommerNKF Ambassador
22 Replies

I am writing this for those who are heading to dialysis and want to know what it is like. As RonZone did with PD, I am talking about home hemodialysis, HHD. My lab numbers are at the point to "get-er done." The first step: I was scheduled for an AV fistula; first-stage left brachiobasilic fistula creation in the left arm. Sometime later I would have a second surgery to complete the fistula.

On Monday I went for my pre-op consult. It was quite lengthy. Most of the questions were for the anesthesiologist. However, they thought I would only be getting a regional…. Or in other words, they were going to numb just my arm and not put me out. There were questions about my medications and lifestyle. They took blood and since I needed labs done for my nephrologist and rheumatologist, they ran those too. Funny thing, they ran two separate tests on many of the 12 or so I had done and they did not match.

On Wednesday, I called the number to find out when I was going to be scheduled for the next day and was told to be there at 12:30 pm. NO food or water after midnight. Super! I had to take a shower the night before and the morning of and use a special soap on my arm, which I did.

Got to the hospital at 12:15 and they brought me back at 12:30 exactly. I was told to change out of my clothes and wait in bed. Around 1pm, the nurse came in and asked me a bunch of questions. I asked when they thought I would go to surgery, and she said 2:30.

Around 2pm, it seems everyone and their brother came in to see me. The Surgeon, a couple of anesthesiologists and more. The Surgeon signed my arm with his initials. I was autographed. Then the nurse started to do an IV. Well, she had terrible luck. She put one in my hand, and it did not work. She pulled out the needle and walked away. My hand immediately turned blue and puffed up. I was going to have a nasty bruise there. She stopped the leak and proceeded to finally find a vein and hook me up. By now, it was 2:30.

Well, it was not to happen. I got bumped. So around 3:20, the Block team came in to put the nerve block shot in. They brought an ultrasound. They injected the needled in my shoulder, and except for a quick pinch, I felt nothing. They applied several doses in different spots. It was amazing that the blurry lines meant something to them. I thought I felt my arm on my stomach, but nope…. It was on the bed like a dead fish. No sense of it at all. Very unusual feeling. The other anesthesiologist came in and said he was going to put a bit of lala juice in my IV. Sure, I said. They bundled up my hair, and off I went to the operating room.

They inflated the pad I was laying on and slid me over to the table. The Anesthesiologist said he was going to put a bit more lala juice in. I remember them putting a mask on my face and then nothing.

Almost four hours later, I woke up in what they call PUCU. It is the second recovery room area where you are no longer hooked up to anything. I was there for about an hour, listening to my neighbor whine and moan. I wanted to smack him. Then they wheeled me to the “ go home recovery area.” This is where you have to get your totally messed up body off the bed and into a chair. “Ah Lady, I just was flat out knocked out less than two hours ago. I can’t feel my arm and you want me to hop off this bed? Yeah, Right.” Yes, that was what they expected. I swung my legs around the best I could and fell backwards and was done. I could not sit up. As I am flailing like a beached whale, she finally grabbed my good arm and pulled me up. I got off the bed and into a chair. It was after 8:30pm. She got me a ginger ale and some crackers. I finally had to pee and managed to walk to the bathroom and void. Got back to the room and my hubby had eaten the remaining crackers. It was ok, I was not hungry.

We got home at 9:30. I had an English Muffin and went straight to bed. My next entry I will tell about the next few days of recovery.

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Bassetmommer profile image
Bassetmommer
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22 Replies
SN23 profile image
SN23

Thank you for doing this🙏 May your journey be smooth. My very best to you. You are an inspiration💐

Jamok profile image
Jamok

Thank you Bassetmommer! This will help so many to know what to expect, and take the fear out of the process. Praying for your quick recovery.

jodaer profile image
jodaer

Thanks for sharing your story... this will help many people to know what will be happening.

Dana66CKD profile image
Dana66CKD

I hope all goes well for you lady. You are brave and seem unwavered by these decisions to continue with the process of living life the best you can.I still get anxious over little changes...

I was on dialysis with a CVA device on left side of chest. Was in-patient at that time.

Be well. Thank you for sharing your experiences. I hope your journey continues with positive outcomes for you and family 🙏🙂

CKDnomore3953 profile image
CKDnomore3953

Bassetmommer,

Thank you for your great good humor in being able to take some of the fear out of a procedure that many of us are facing in our futures. You are a continuing inspiration to me and I am so thankful for your generosity in sharing your experience with all of us.

Best wishes to you for a rapid recovery,

Lynne

drmind profile image
drmind

Wow. Thanks, Bassetmommer. You're a warrior. Your post has helped me so much in appreciating how things will go with HHD. Praying, hoping, wishing a speedy recovery and an easy entry with dialysis if and when it is needed. God bless.

Beachgirl32 profile image
Beachgirl32

Thanks for sharing your story educated me. I do pd I had no idea you had to go through surgery like that with hemo. Hope your journey is smooth sailing .🙏

Hily profile image
Hily

Sounds as upsetting as I thought it would.

Lawks knows how it will go in my local hospital where they have yet to scan me or employ a competent vascular surgeon. I will be having hospital HD as I live on my own-no support.

No idea how I will cope with looking after myself until I can drive or do it myself again.

Good Luck.

KidneyCoach profile image
KidneyCoachNKF Ambassador in reply toHily

Speak with your social worker as there are transportation services available for most in center dialysis patients. Blessings

Hily profile image
Hily in reply toKidneyCoach

What social worker? I have no support. I live 20 miles away from the intended hospital and after the fistula creation will be unable to drive for a few weeks. Do I just live on breakfast cereal perhaps. Thanks anyway.

bumblebee_tuna profile image
bumblebee_tuna in reply toHily

Why do you think you won't be able to drive for a few weeks? This is not necessarily a complicated surgery. Bassetmommer, is having it done in two phases so there is obviously some complications there.

My fistula was done under full anesthesia, I couldn't drive the next day but that's about it. I didn't use any pain medication.

Dialysis, even in-center HD requires you to be somewhat independent or have a care giver.

Have you ruled out PD? If you have trouble getting to the center and back then doing it home might be a better option.

Hily profile image
Hily in reply tobumblebee_tuna

Previous abdominal surgeries have wiped that alternative dialysis out. I am very independent but sometimes even the most independent of people need help.

Hily profile image
Hily in reply tobumblebee_tuna

Previous abdominal surgeries have wiped that alternative dialysis out. I am very independent but sometimes even the most independent of people need help.

Bassetmommer profile image
BassetmommerNKF Ambassador in reply tobumblebee_tuna

I was told I could drive the next day..... and btw, I was lucky. They got it done in one surgery.

KidneyCoach profile image
KidneyCoachNKF Ambassador in reply toHily

The intended clinic you will potentially be doing dialysis at has a social worker. You can easily give a call and get help for resources. As for driving, I was only restricted from driving for 24-48 hours, and I've had 14 arm accesses. You're not required to have a care partner to do any dialysis. Many dialysis patients live alone.

If anything, ask your vascular surgeon for clinic numbers so you can reach social worker.

I can try to find resources if you need.

Hily profile image
Hily in reply toKidneyCoach

The hospital has no vascular surgeon - a big worry. The Local senior Coroner has asked the Welsh Government to explain their lack of action, but no reply. I have not seen my Neph since February despite him saying I would b scanned in 2 months for veins. My egfr is 11. The Neph did not order those bloods, my haematologist did a month ago. I spoke to the Neph's secretary over 2 weeks ago to ask what is happening - still no response or action let alone a return phone call. And people ask why I worry?

Hello Bassettmommer! I've had a handful of thoracic outpatient surgeries and several of them mirror your experience. Sometimes not a fun ordeal. I also had several surgeries on my left hand for trigger finger and for one of them, they did the whole arm numbing and yes it is weird having this hunk of flesh hanging off of your body flopping around. I wish you well going forward.

Bassetmommer profile image
BassetmommerNKF Ambassador

Here is the link to my recovery post healthunlocked.com/nkf-ckd/...

barbara55109 profile image
barbara55109

Very similar to me. Though I got general anesthesia. They expected me to dress myself. I couldn't. So they got my hubby to help me. It was a comedy scene. I don't know how I got dressed since this is not a skill he has. I was shocked there was no assistance. Hospital life has sure changed from 30 years ago when my colon tried to kill me.

RonZone profile image
RonZone

Ok, I'm late to this party, but have REALLY enjoyed your post, really helped have a mental picture of that process that I did not have before. Awesome details and great attitude! Keep inspiring! Now I'll go ready some of your other post recovery posts.

Thank you for this post! And I'll try not to be mad at your hubby for eating your crackers!😂

OldTownhammock profile image
OldTownhammock

I love to read yoir posts and I also love how you share information. Thank you

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