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Here to answer questions you might have about home dialysis and kidney transplantation. I was on dialysis for. A year and recently received a kidney transplant.
Here to answer questions you might have about home dialysis and kidney transplantation. I was on dialysis for. A year and recently received a kidney transplant.
Mirna67
in
Kidney Dialysis
6 years ago
Hrdroxychloroquine
My dermatologist has prescribed me with Hydroxychloroquine 200mg one bd. Im also on Tacrolimus and Mrcophenalte Mofetil for my Lupus and to protect my renal transplant. The chemist just gave me the cheapest Quinoric. I've just read on here that Quinoric is bad for lupus and for skin. It's because of
My dermatologist has prescribed me with Hydroxychloroquine 200mg one bd. Im also on Tacrolimus and Mrcophenalte Mofetil for my Lupus and to protect my renal transplant. The chemist just gave me the cheapest Quinoric. I've just read on here that Quinoric is bad for lupus and for skin. It's because of
MandaM
in
LUPUS UK
6 years ago
MPN RESEARCH FOUNDATION LAUNCHES STEM CELL TRANSPLANT TIMING TOOL FOR MPN PATIENTS WITH MF
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a
Mazcd
MPNVoice
in
MPN Voice
6 years ago
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After transplant - be very careful of your knees
I’m a kidney transplant patient who is extremely blessed and want to pass on info I just learned about that others don’t really talk about. I’ve had my kidney from a deceased person for 6 years. The other day after going on vacation, I came home because of leg pain in both legs primarily my knees. Went
I’m a kidney transplant patient who is extremely blessed and want to pass on info I just learned about that others don’t really talk about. I’ve had my kidney from a deceased person for 6 years. The other day after going on vacation, I came home because of leg pain in both legs primarily my knees. Went
mtwskk
in
Kidney Transplant
6 years ago
Getting there,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Almost 9 months since my stem cell transplant tho still breathless getting stronger and being more positive daily,!!
Topteam
in
Leukaemia Support
6 years ago
Aml.
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
In 2014 I was diagnosed with aml was lucky enough to go into remission after two cycles of chemo but still needed bone marrow transplant which I had in the August 2014.after few set backs mainly with gvhd of the skin things are going well .
Islay55
in
Leukaemia Support
6 years ago
Creatinine is 0.86 but protein in Urine found
Hi folks! Happy Saturday! I am 18 months post cadaver kidney transplant patient and I recently completed my monthly fasting blood test and urine test. I was told that my creatinine and tacrolimus numbers are great but they are concerned about protein in the urine. Has anyone experienced this before
Hi folks! Happy Saturday! I am 18 months post cadaver kidney transplant patient and I recently completed my monthly fasting blood test and urine test. I was told that my creatinine and tacrolimus numbers are great but they are concerned about protein in the urine. Has anyone experienced this before
ClarissaR_12032016
in
Kidney Transplant
6 years ago
Blood pressure
Hi can anyone tell me if things such as diabetes, high cholesterol or high blood pressure are contradictions to a liver transplant
Hi can anyone tell me if things such as diabetes, high cholesterol or high blood pressure are contradictions to a liver transplant
Teds123
in
British Liver Trust
6 years ago
Fed up
I'm new on here tonight came upon the site by accident, I have severe rls and don't really know which way to turn now, I'm on pregabalin already aswell as tramadol and oromorph, I've had a liver transplant last year and I'm also type 2 diabetic, I really need help, my GP has never acknowledged I've got
I'm new on here tonight came upon the site by accident, I have severe rls and don't really know which way to turn now, I'm on pregabalin already aswell as tramadol and oromorph, I've had a liver transplant last year and I'm also type 2 diabetic, I really need help, my GP has never acknowledged I've got
Hidden
in
Restless Legs Syndrome
6 years ago
Interesting comment
"I had a routine medical last month, which I was sure would be OK. But the blood test results showed that I have chronic kidney disease, stage 3a. I'm 60. Will I eventually need to have dialysis and a kidney transplant? Do I need treatment to prevent my kidneys deteriorating further? I have never had
"I had a routine medical last month, which I was sure would be OK. But the blood test results showed that I have chronic kidney disease, stage 3a. I'm 60. Will I eventually need to have dialysis and a kidney transplant? Do I need treatment to prevent my kidneys deteriorating further? I have never had
Cruze44
in
Early CKD Support
6 years ago
Difficulty dealing with Heart problems and related issues
I am new here. However have had a heart problem since 2013. I was told I had cardiomyopathy and after 2 weeks in hospital had an ICD fitted. I went home he day after my operation. I struggled to come to terms with what had happened (only being 44 at that time). The following year 2014 I was diginosed
I am new here. However have had a heart problem since 2013. I was told I had cardiomyopathy and after 2 weeks in hospital had an ICD fitted. I went home he day after my operation. I struggled to come to terms with what had happened (only being 44 at that time). The following year 2014 I was diginosed
Jackie213
in
British Heart Foundation
6 years ago
Getting Listed on the Lung Transplant List
After almost one and a half years of referrals, tests, minor operations and consultations with surgeons I can confirm that I have now been finally listed to go on the list for a Double Lung Transplant at Wythenshawe Hospital in Manchester, UK. A new chapter of hope begins. I would like to say a huge
After almost one and a half years of referrals, tests, minor operations and consultations with surgeons I can confirm that I have now been finally listed to go on the list for a Double Lung Transplant at Wythenshawe Hospital in Manchester, UK. A new chapter of hope begins. I would like to say a huge
Joseph260268
in
Lung Conditions Community Forum
6 years ago
Stem Cell Transplants
https://mpnforum.com/nicrev Hope this link works. Interesting interview about Stem Cell Transplant risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by
https://mpnforum.com/nicrev Hope this link works. Interesting interview about Stem Cell Transplant risk:reward and timing. I thought quite reassuring, especially since odds improving all the time. Five year survival rates are based on transplants pre 2013. The odds and risks should be even better by
Paul123456
in
MPN Voice
6 years ago
Tattoo health warning for people with weakened immune systems
Tattoo health warning for people with weakened immune systems - The Guardian article written by Nicola Davis @NicolaKSDavis Mon 18 Jun 2018 18.30 EDT Last modified on Mon 18 Jun 2018 18.31 EDT https://www.theguardian.com/fashion/2018/jun/18/tattoo-health-warning-for-people-with-weakened-immune-systems
Tattoo health warning for people with weakened immune systems - The Guardian article written by Nicola Davis @NicolaKSDavis Mon 18 Jun 2018 18.30 EDT Last modified on Mon 18 Jun 2018 18.31 EDT https://www.theguardian.com/fashion/2018/jun/18/tattoo-health-warning-for-people-with-weakened-immune-systems
lankisterguy
Volunteer
in
CLL Support
6 years ago
Hi all 😊
I wanted to see if anyone on here has ever been diagnosed with fatty liver? I got diagnosed with pcos when I was 33 after a few years of testing... Even though I had all the obvious signs, anyway 2 years after I was diagnosed with liver cirrhosis, my gyno was convinced it was through the fatty liver
I wanted to see if anyone on here has ever been diagnosed with fatty liver? I got diagnosed with pcos when I was 33 after a few years of testing... Even though I had all the obvious signs, anyway 2 years after I was diagnosed with liver cirrhosis, my gyno was convinced it was through the fatty liver
jojokarak
in
PCOS UK (Verity)
6 years ago
Post Kidney Transplant, Creatine levels go up and down?
Hi! My sister 4 weeks ago had a double transplant kidney and liver. Her Creatine levels go up and down, and today it went to 90! Has anyone else had this issue, post kidney transplant? Look forward in hearing your feedback! Regards, Concerned Sister
Hi! My sister 4 weeks ago had a double transplant kidney and liver. Her Creatine levels go up and down, and today it went to 90! Has anyone else had this issue, post kidney transplant? Look forward in hearing your feedback! Regards, Concerned Sister
bt72
in
Kidney Transplant Patient Support
6 years ago
Creatine level at 90 it’s seems to go up and down from post kidney transplant!
Hi! My sister 4 weeks ago had a double transplant kidney and liver. Her Creatine levels go up and down, and today it went to 90! Has anyone else had this issue, post kidney transplant? Look forward in hearing your feedback! Regards, Concerned Sister
Hi! My sister 4 weeks ago had a double transplant kidney and liver. Her Creatine levels go up and down, and today it went to 90! Has anyone else had this issue, post kidney transplant? Look forward in hearing your feedback! Regards, Concerned Sister
bt72
in
Kidney Transplant
6 years ago
PBC and Life Expectancy
I read with interest the previous thread with a similar title and so I decided to start a separate thread. I have much to say on this topic that might be helpful to patients, new and old, and for it to be lost in the body of another thread might limit its reach. Where to begin... I have lived knowingly
I read with interest the previous thread with a similar title and so I decided to start a separate thread. I have much to say on this topic that might be helpful to patients, new and old, and for it to be lost in the body of another thread might limit its reach. Where to begin... I have lived knowingly
PBCRobert
Administrator
in
PBC Foundation
6 years ago
Pills
Good morning is there anyone out there after having a kidney transplant a good amount of years and taking pills having health problems that the doctor is putting down to taking these pills I would love to communicate with someone in same position Thank you
Good morning is there anyone out there after having a kidney transplant a good amount of years and taking pills having health problems that the doctor is putting down to taking these pills I would love to communicate with someone in same position Thank you
Rusty8
in
Kidney Transplant
6 years ago
Kidney Transplant Chain 46 Donors Long And Counting!
Meet Members Of A Kidney Transplant Chain 46 Donors Long And Counting https://www.youtube.com/watch?v=X9txVyqUMn0&feature=youtu.be
Meet Members Of A Kidney Transplant Chain 46 Donors Long And Counting https://www.youtube.com/watch?v=X9txVyqUMn0&feature=youtu.be
KelliC_NKF
in
Kidney Donation
6 years ago
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