I am new here. However have had a heart problem since 2013. I was told I had cardiomyopathy and after 2 weeks in hospital had an ICD fitted. I went home he day after my operation. I struggled to come to terms with what had happened (only being 44 at that time).
The following year 2014 I was diginosed with sleep apnea. Things started to go good. I returned to work, got married to my partner (who had been with me only a month prior to me having my hear problem). We were having holidays and life was brilliant.
In March 17 I started to get very out of breath, was off work for 2 weeks with a chest infection. This turned to pneumonia. I was treated with antibiotics, and returned to work after 6 weeks. 2 days after returning to work my ICD fired. Due to DVLA rules I was unable to drive for 6 months, hence I lost my job.
This was a big shock for us, and we had to change things quite a lot. In September 17, I suffered another chest infection. I was taken to hospital, where they told me I had COPD. The infection was bad. After 10 days I was sent home, however I had very bad fluid retention. 5 days later I was rushed back to hospital where I was told I had pneumonia again. I was again placed on even more antibiotics. Fluid retention was a problem, I was given water tablets, which helped till November 17, when it go that bad I was having daily infusions to reduce the fluid. This was ongoing till the 4 December when I collapsed. I was rushed to hospital blue lights.
I was in a critical situation. After lots of tests ( I was totally out of it) my wife was told I had contracted Sepsis. The family were all called to the hospital as they had only given me hours to live. I was transferred to end of life treatment, thus wad due to the heart failure, and then not going to treat me for the sepsis, as they said my heart would not cope. My ICD was deactivated.
My wife and daughter were not happy, and my wife asked what my heart consultants were doing, only to be told they had not been informed. My wife went to heart failure ward (where I had been having daily treatment). They advised her to go back to me and leave it with them. Well to cut a long story short, 20 mins later I was moved to CCU and treatments started. It was touch and go for 13 days, but I made it.
I am no way well. I have just been referred for a heart transplant. Have post Sepsis shock syndrome, get chest infections all the time, and struggling every day.
I have depression, and find it hard to come to terms what has happened. I have very bad flash backs, unable to do anything for myself. My wife is my career, and she is also finding things difficult. I am at a stage where I think I can no longer go on, I don't want a life like this, feeling so low all the time. I am 49 years old and feel 90.
I would love to feel normal again but something tells me this may not happen again.
Sorry for such a long message, but need to see if anyone else going through this as I feel very alone. My wife deals with enough...