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Peginterferon side effects!
Hi all, I have ET Jak2+ since 2021 and have been injecting 45mg Peginterferon weekly for 6 months and doing relatively ok until just recently. I now am experiencing severe aching arms and legs radiating down from my neck to my knees. It is so bad that I have to take pain killers daily. My blood pressure
Hi all, I have ET Jak2+ since 2021 and have been injecting 45mg Peginterferon weekly for 6 months and doing relatively ok until just recently. I now am experiencing severe aching arms and legs radiating down from my neck to my knees. It is so bad that I have to take pain killers daily. My blood pressure
Fairbank
in
MPN Voice
1 year ago
Fatty pad atrophy (ball of foot)
Hello, I am hoping there might be someone here who has experience of coping with fatty pad atrophy. I have recently been told by a podiatrist that this is the cause of the pain in the balls of my feet. I feel like I'm walking on my bones and have nerve pain due to the reduction in the fatty pad.
Hello, I am hoping there might be someone here who has experience of coping with fatty pad atrophy. I have recently been told by a podiatrist that this is the cause of the pain in the balls of my feet. I feel like I'm walking on my bones and have nerve pain due to the reduction in the fatty pad.
Dorunrun61
Graduate
in
Couch to 5K
1 year ago
Off topic maybe.
Having a conversation about holidays with hubby this morning. With everything that's been going on with me it's been a no no since October. The sulfasalazine, 3rd med Ive tried, is killing my sleep. Im stopping it for a few days to see if sleep returns. I'm a walking zombie! Hubby, Garry, says he doesn't
Having a conversation about holidays with hubby this morning. With everything that's been going on with me it's been a no no since October. The sulfasalazine, 3rd med Ive tried, is killing my sleep. Im stopping it for a few days to see if sleep returns. I'm a walking zombie! Hubby, Garry, says he doesn't
Haz58
in
NRAS
1 year ago
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Alternating meds
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
I wonder if anyone else has experience with a RLS therapy method of alternating .375 mg Pramipexole and Methadone 20-30 mg every 10 days? I also use marijuana which helps maybe 40% for about an hour. My case is very severe with many previous pharmacologic failures including Alpha 2 Ligands, Buprenorphine
WelbyB
in
Restless Legs Syndrome
1 year ago
lap yesterday!
5 years and yesterday finally got the answers for my pain. Endometriosis found. My surgeon also mentioned adhesions? And my appendix was fused to scar tissue. Just wondering if anyone else has had this? What a mix of emotions I’m feeling today. It wasn’t just a bad period, can painkillers keep the pain
5 years and yesterday finally got the answers for my pain. Endometriosis found. My surgeon also mentioned adhesions? And my appendix was fused to scar tissue. Just wondering if anyone else has had this? What a mix of emotions I’m feeling today. It wasn’t just a bad period, can painkillers keep the pain
JAJ27
in
Endometriosis UK
1 year ago
Painkillers and afib
What painkillers are best suited to us afiiibbers? I recently took paracetamol and it turned my heartbeat irregular and fast ...although I think it may of been the caffeine in them I have bad toothache and taking antibiotics but so far have gone without painkillers for fear of having a af attack Any
What painkillers are best suited to us afiiibbers? I recently took paracetamol and it turned my heartbeat irregular and fast ...although I think it may of been the caffeine in them I have bad toothache and taking antibiotics but so far have gone without painkillers for fear of having a af attack Any
Sunnyann
in
AF Association
1 year ago
Headaches
Hello, I'm really fed up today. I've been getting headaches, the last 3 weeks, each time lasting around 3 days...the last 2 weeks I ploughed on through on pain killers, but this week I came home from work and took to my bed. I am hypothyroid, on 150 Levo and have booked a blood test with GP for next
Hello, I'm really fed up today. I've been getting headaches, the last 3 weeks, each time lasting around 3 days...the last 2 weeks I ploughed on through on pain killers, but this week I came home from work and took to my bed. I am hypothyroid, on 150 Levo and have booked a blood test with GP for next
GrowingVeg
in
Thyroid UK
1 year ago
Stopping Cerazette
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
First time poster, but I’ve taken many tips from this board so thank you all in advance. 2 years ago I doubled over in agony, eventually got sent to A&E via my GP with suspected appendicitis. Wasn’t appendicitis, it was a haemorrhaging ovarian cyst. Sent home with painkillers, had a couple of scans and
Bookworm3371
in
Endometriosis UK
1 year ago
Toothache and af
Am sitting here with painful toothache and I think I have an abbsess. Can anyone tell me if the numbing injections they give at rhe dentist trigger AF ? or anything else to watch for at rhe dentist. I have a huge fear of dentists and knowing the visit may cause af also is tipping me over the edge.
Am sitting here with painful toothache and I think I have an abbsess. Can anyone tell me if the numbing injections they give at rhe dentist trigger AF ? or anything else to watch for at rhe dentist. I have a huge fear of dentists and knowing the visit may cause af also is tipping me over the edge.
Sunnyann
in
AF Association
1 year ago
Postherpetic Neuralgia and B12
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
Not directly related to PA, but nonetheless of potential interest to those with PA as well as anyone with Postherpetic Neuralgia. (I currently have PHN and am taking methylcobalamin every day. Alongside capsaicin cream. Difficult to know if it is helping, but I think it is.) [i]
Patterns and Trends
helvella
in
Pernicious Anaemia Society
1 year ago
Topical Treatment for RA Joint Pain
My RA has been fairly well-managed with fortnightly 40ml adalimumab injections and weekly 20mg methotrexate injections for a few months. Since starting these meds together I still get some stiffness in a few joints, but not the pain I used to suffer and so I now consider my symptoms to be manageable.
My RA has been fairly well-managed with fortnightly 40ml adalimumab injections and weekly 20mg methotrexate injections for a few months. Since starting these meds together I still get some stiffness in a few joints, but not the pain I used to suffer and so I now consider my symptoms to be manageable.
Aporiac
in
NRAS
1 year ago
Gabapentin and fibromyalgia
Hi sorry am a bit behind on posting, I am in UK also, was diagnosed with fibro in 2008, although it took about 13years of rheumatology visits and tests for that to happen, I had a severe infection in my left leg and was told I had rheumatoid arthritis after that I was put on methotrexate and cyclosporin
Hi sorry am a bit behind on posting, I am in UK also, was diagnosed with fibro in 2008, although it took about 13years of rheumatology visits and tests for that to happen, I had a severe infection in my left leg and was told I had rheumatoid arthritis after that I was put on methotrexate and cyclosporin
lynn_lunn
in
Fibromyalgia Action UK
1 year ago
Migraines!
Anyone else suffer from these? Yesterday was horrendous. Honestly felt like someone was smashing me in the occipital region with a cricket bat. Of course I'd run out of pain killers. I felt so sick and wobbly, getting to the shop was out of the question. Fortunately a neighbour had some migraleve. I'm
Anyone else suffer from these? Yesterday was horrendous. Honestly felt like someone was smashing me in the occipital region with a cricket bat. Of course I'd run out of pain killers. I felt so sick and wobbly, getting to the shop was out of the question. Fortunately a neighbour had some migraleve. I'm
Blackberrywine
in
NRAS
1 year ago
pain deep in vagina after peeing
MY STORY hi everyone, So I have stage four endometriosis. Basically all of the organs within my pelvic area ugly together. I’ve had severe period pain since I started having periods at 11… I’m now 31. Had my first laparoscopy at 21, another at 24, which seem to really help my symptoms a lot. I was
MY STORY hi everyone, So I have stage four endometriosis. Basically all of the organs within my pelvic area ugly together. I’ve had severe period pain since I started having periods at 11… I’m now 31. Had my first laparoscopy at 21, another at 24, which seem to really help my symptoms a lot. I was
Cavapoochon7
in
Endometriosis UK
1 year ago
Ampyra
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
whwiechm
in
My MSAA Community
1 year ago
Not sure what to expect?
Hi all I’ve managed to get an appointment with the Rheumy nurse today f2f. I started on Sulfasalazine just over 2 years ago, I was slow to improve and had steroid injections to help along the way. I changed trusts after one year due to lack of appointments and just general mayhem prompted by my GP.
Hi all I’ve managed to get an appointment with the Rheumy nurse today f2f. I started on Sulfasalazine just over 2 years ago, I was slow to improve and had steroid injections to help along the way. I changed trusts after one year due to lack of appointments and just general mayhem prompted by my GP.
Akaka
in
NRAS
1 year ago
constant pain following hypoxia BI after cardiac arrest
hello all , looking for advice - my husband has a brain injury following cardiac arrest last spring. He has moderate impairment. He is home and slowly improving. But - He is suffering from constant pain in shoulders, arms and his armpits. We have tried everything- pain killers don’t touch it, heat/
hello all , looking for advice - my husband has a brain injury following cardiac arrest last spring. He has moderate impairment. He is home and slowly improving. But - He is suffering from constant pain in shoulders, arms and his armpits. We have tried everything- pain killers don’t touch it, heat/
Weloveajigsaw
in
Headway
1 year ago
drug induced muscle spasm
I’ve been on losartan one month and my muscle spasms are unbearable. Had this affected anyone else and do they use painkillers
I’ve been on losartan one month and my muscle spasms are unbearable. Had this affected anyone else and do they use painkillers
ninja1
in
High Blood Pressure Support
1 year ago
Missed miscarriage and endo
Hi warriors, Just wanted to share my story, because I feel so low and heartbroken, and I'm sure there are women here who can relate to my experience. The loss that comes with a miscarriage is hard enough, but then when I also have endo, it's that sinking feeling that my womb is just broken and it's
Hi warriors, Just wanted to share my story, because I feel so low and heartbroken, and I'm sure there are women here who can relate to my experience. The loss that comes with a miscarriage is hard enough, but then when I also have endo, it's that sinking feeling that my womb is just broken and it's
Meriel_Owen
in
Endometriosis UK
1 year ago
I'm 22, Male with no previous medical conditions apart from moderate shy bladder syndrome, yet this pain is so bad its ruined my life.
Hi,I’m a 22 year old student and need help. I apologize that this post has become more of a book but I believe it’s important to tell the story in its entirety and I’m desperate for help and to overcome this.So it all started in my second year of university just after Covid when pubs and clubs were reopening
Hi,I’m a 22 year old student and need help. I apologize that this post has become more of a book but I believe it’s important to tell the story in its entirety and I’m desperate for help and to overcome this.So it all started in my second year of university just after Covid when pubs and clubs were reopening
Hal_M
in
Pelvic Pain Support Network
1 year ago
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