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Anyone w Xofigo experience?
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
JDN0415
in
Advanced Prostate Cancer
10 months ago
Does pee urgency get worse after radiation?
I had IMRT 60 Gy circa August 2022. Since then sometimes it is very hard to hold a pee back. I'm concerned it might be getting worse. This is probably going to get a lot of responses -- please bring them on!
I had IMRT 60 Gy circa August 2022. Since then sometimes it is very hard to hold a pee back. I'm concerned it might be getting worse. This is probably going to get a lot of responses -- please bring them on!
Derf4223
in
Advanced Prostate Cancer
9 months ago
ADT/Exercise and QoL thanks
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
LongevityAT
in
Advanced Prostate Cancer
10 months ago
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Possible SBRT on prostate and lymph nodes?
Hello again. Gleason 4+3+7, Grade 3, Stage IIc cancer, Tumor cT1c, N0M0, PSA 7.4 (5 weeks ago on biopsy; 10.4 last week). Prostate volume 52 cc. Neither MRI nor ultrasound detected a tumor. Enlarged prostate is pressing on urethral area. Calcifications throughout. Unfavorable. Will have PSMA/PET in
Hello again. Gleason 4+3+7, Grade 3, Stage IIc cancer, Tumor cT1c, N0M0, PSA 7.4 (5 weeks ago on biopsy; 10.4 last week). Prostate volume 52 cc. Neither MRI nor ultrasound detected a tumor. Enlarged prostate is pressing on urethral area. Calcifications throughout. Unfavorable. Will have PSMA/PET in
conchjoe
in
Advanced Prostate Cancer
1 year ago
Amitriptyline! Treatment for nerve damage.Anyone had this for nerve damage?
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
Hi, Just come back from my first consultation since MTD surgery for deep infiltrating Endo and mass around ureters.Bowel ,bladder worked on and total hysterectomy .The consultant had warned me of nerve damage , by my symptoms that I explained to him today he said it is nerve damage and accept it as
K2023
in
Endometriosis UK
10 months ago
abiraterone first line use in high risk in U.K. debate after stampede research results
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
SimMartin
in
Advanced Prostate Cancer
9 months ago
Oligomets and SBRT: "Whack a Mole"?
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
FrankyB4
in
Advanced Prostate Cancer
10 months ago
When to introduce ADT after RP failure
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
LakeT
in
Advanced Prostate Cancer
10 months ago
pBAT update after two cycles.
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
KocoPr
in
Fight Prostate Cancer
10 months ago
perimenopause and heart stuff!
at 49 I’ve finally realised the not sleeping and feeling head fog for the past years is not having a late child (7 now) and a stent (1.5 now), it’s perimenpause as I’m now getting a lot of hot flushes (heat not helping here!). Periods still normal if closer together. But I’ve also being having more
at 49 I’ve finally realised the not sleeping and feeling head fog for the past years is not having a late child (7 now) and a stent (1.5 now), it’s perimenpause as I’m now getting a lot of hot flushes (heat not helping here!). Periods still normal if closer together. But I’ve also being having more
Mangojamontoast
in
British Heart Foundation
10 months ago
3rd time hair loss in 2 years
Hi all, I'm coming up on my 2 year anniversary of BC diagnosis. Just over 1 years since I was diagnosed stage 4. This last week I started a new chemo for targeted therapy. This is my 3rd med switch in a year due to progression. I knew it was possible that I could lose my hair again. (1st time with
Hi all, I'm coming up on my 2 year anniversary of BC diagnosis. Just over 1 years since I was diagnosed stage 4. This last week I started a new chemo for targeted therapy. This is my 3rd med switch in a year due to progression. I knew it was possible that I could lose my hair again. (1st time with
Warrio
in
SHARE Breast Cancer Support
1 year ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
10 months ago
Zoladex and HRT
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Spoke to surgeonSo my surgeon rang yesterday and explained why they aborted the hysterectomy on Tuesday. He said my cervix was fused to my bowel and possibly left ovary and my rectum had been pulled down too. He said it looked to be endometriosis that had been there a long, long time and they wouldn't
Sunset-lady
in
Endometriosis UK
10 months ago
coming off oxicodone
Despite the victorious stopping of my RLS, i am still struggling with sleep. I have been taking 10mg of oxicodone. One dose at night. But it had been making me dog tired and zombie like during day. I have read lots on here about spreading the dose but i want to come off it. I am starting to cut it down
Despite the victorious stopping of my RLS, i am still struggling with sleep. I have been taking 10mg of oxicodone. One dose at night. But it had been making me dog tired and zombie like during day. I have read lots on here about spreading the dose but i want to come off it. I am starting to cut it down
Jukebox55
in
Restless Legs Syndrome
10 months ago
Aetna appeal for Firmagon denial
My husband was diagnosed with high risk aggressive prostate cancer, Gleason 9. Plus one para rectal node positive. The doctor prescribed 2 years of ADT plus 5 weeks of IMRT. Had first 240 mg dose of firmagon on September 14 with no major side effects so far. Doctor used firmagon to avoid testosterone
My husband was diagnosed with high risk aggressive prostate cancer, Gleason 9. Plus one para rectal node positive. The doctor prescribed 2 years of ADT plus 5 weeks of IMRT. Had first 240 mg dose of firmagon on September 14 with no major side effects so far. Doctor used firmagon to avoid testosterone
Oatmeal2
in
Prostate Cancer Network
10 months ago
Does anyone know of a connection between undermedication and histamine intolerance, or if there are histamines in Armour thyroid?
My histamine intolerance symptoms have gone crazy of late, to the extent I've had to significantly change my diet. Histamine intolerance is something I have suffered with on and off for years, but nothing like it is now. I have 2 theories, namely one I am undermedicated or two Armour may be behind
My histamine intolerance symptoms have gone crazy of late, to the extent I've had to significantly change my diet. Histamine intolerance is something I have suffered with on and off for years, but nothing like it is now. I have 2 theories, namely one I am undermedicated or two Armour may be behind
Reefseeker
in
Thyroid UK
1 year ago
ADT for a year?
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Photographerhere
in
Prostate Cancer Network
10 months ago
Cortisone Injections?
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
jfoesq
in
Advanced Prostate Cancer
10 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
10 months ago
Acupuncture and Hot Flashes
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Huzzah1
in
Advanced Prostate Cancer
10 months ago
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