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Proton therapy finally starts
After a failed Space OAR gel placement back in October 2022 I finally started my proton therapy today (4-17-2023). Twenty proton treatments scheduled. Onward!
After a failed Space OAR gel placement back in October 2022 I finally started my proton therapy today (4-17-2023). Twenty proton treatments scheduled. Onward!
BB_1
in
Advanced Prostate Cancer
1 year ago
IDH2 R172 Linked With Improved Survival in Myeloid Neoplasms from April 14, 2023 Hematology Advisor- More r/t AML than MPNs- look below it..
Among patients with myeloid neoplasms
including
acute myeloid leukemia (AML), IDH2 R172 mutations (mR172) appear to be linked with improved overall survival, and moreover represent a distinct clinical disease subtype, according to research published in the American Journal of Clinical Pathology
Among patients with myeloid neoplasms
including
acute myeloid leukemia (AML), IDH2 R172 mutations (mR172) appear to be linked with improved overall survival, and moreover represent a distinct clinical disease subtype, according to research published in the American Journal of Clinical Pathology
PhysAssist
in
MPN Voice
1 year ago
Prednisone side effects
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
jmarsh
in
Advanced Prostate Cancer
1 year ago
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Bowel irrigation (Not "colonic irrigation")
I have obstructed defecation (anismus) which has not responded to biofeedback etc. The next step is at home bowel irrigation and I am just waiting for an appointment with the bowel nurse to issue me with the equipment. It would be helpful to hear of anyone`s experience with this. I don`t know which
I have obstructed defecation (anismus) which has not responded to biofeedback etc. The next step is at home bowel irrigation and I am just waiting for an appointment with the bowel nurse to issue me with the equipment. It would be helpful to hear of anyone`s experience with this. I don`t know which
janke
in
IBS Network
1 year ago
HRT and cirrhosis
I have heard conflicting opinions as to the safety of HRT and cirrhosis. I have cirrhosis. UKELD score 48. KPA score 37.5. My GP has changed my (low dose) HRT to a gel and tablet: Gel = Oestrogel 80g . Tablet = Medroxyprogesterone 5mg. The enclosed leaflets, however, say ‘do not take’ if you have
I have heard conflicting opinions as to the safety of HRT and cirrhosis. I have cirrhosis. UKELD score 48. KPA score 37.5. My GP has changed my (low dose) HRT to a gel and tablet: Gel = Oestrogel 80g . Tablet = Medroxyprogesterone 5mg. The enclosed leaflets, however, say ‘do not take’ if you have
Turvy
in
British Liver Trust
1 year ago
Discrepancy in test results on same dose
I’ve recently had two blood tests - one at the GP surgery, and one at home fingerprick test with Monitor My Health. They’ve come back with quite different results (for FT4, at least) despite being on the same dose, tests done at the same time of day under the same conditions (24 hrs after levo, T3 dose
I’ve recently had two blood tests - one at the GP surgery, and one at home fingerprick test with Monitor My Health. They’ve come back with quite different results (for FT4, at least) despite being on the same dose, tests done at the same time of day under the same conditions (24 hrs after levo, T3 dose
Smorzando
in
Thyroid UK
1 year ago
Overweight with a high BMI
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries.My consultant is really good, however he has specified that I need to get my BMI down to 35 or below before I'd be considered for a full hysterectomy (I've already waited over three years for one)
I have stage 4 endometriosis and adenomyosis with bowel and bladder adhesions and cyst's on both ovaries.My consultant is really good, however he has specified that I need to get my BMI down to 35 or below before I'd be considered for a full hysterectomy (I've already waited over three years for one)
Em_46
in
Endometriosis UK
1 year ago
Still no period
hello everyone, first time writing on here😊 So basically I’ve got severe stage 4 Endo, I’ve had a lap done last year which showed the severe endo in vagina, bladder and bowel along with cysts and a blocked fallopian tube. This year i had that fallopian tube removed. I was on the Zoladex injection
hello everyone, first time writing on here😊 So basically I’ve got severe stage 4 Endo, I’ve had a lap done last year which showed the severe endo in vagina, bladder and bowel along with cysts and a blocked fallopian tube. This year i had that fallopian tube removed. I was on the Zoladex injection
Devongirl2022
in
Endometriosis UK
1 year ago
Can cancer grow while PSA stays undetectable ?
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
mynacho
in
Advanced Prostate Cancer
1 year ago
Menopause alternative to HRT
I am looking for advice regarding Black Cohosh. Has anyone successfully taken this for Menopause? I am worried if I try it it may effect Levo.
I am looking for advice regarding Black Cohosh. Has anyone successfully taken this for Menopause? I am worried if I try it it may effect Levo.
Noodibranks-7
in
Thyroid UK
1 year ago
Inspiration
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
This is a photo of me after 9 months on ADT, age 70. I’ve always tried to stay in good shape. Jack LaLane inspired me as a kid in the early 1960’s. Later inspired by Larry Scott, Arnold, Lou and others. I built muscle naturally, no steroids. As my testosterone naturally decreased in my late 50’
Gym-rat
in
Advanced Prostate Cancer
1 year ago
Xgeva side effects?????
I started ADT a little over a year ago. I'm on Trelstar and my PSA is < 0.04. In March of this year I started taking Erleada. The side effects from both drugs have been minimal, some hot flashes and fatigue. Two months ago my doctor started me on Xgeva. The first dose I felt no ill effects, but
I started ADT a little over a year ago. I'm on Trelstar and my PSA is < 0.04. In March of this year I started taking Erleada. The side effects from both drugs have been minimal, some hot flashes and fatigue. Two months ago my doctor started me on Xgeva. The first dose I felt no ill effects, but
MydogisTed
in
Advanced Prostate Cancer
1 year ago
SBRT to Prostate and Lymph node ?
Hi All, My Father was diagnosed as stage 4 PCa with widespread bone mets in Nov 2021. Since then he has been on ADT + Enza + Denosumab regimen (details on my profile) His PSA had increased slightly in the last few readings but he has largely been asymptomatic 12/22 - 0.81 03/23 - 0.83 06/23 -
Hi All, My Father was diagnosed as stage 4 PCa with widespread bone mets in Nov 2021. Since then he has been on ADT + Enza + Denosumab regimen (details on my profile) His PSA had increased slightly in the last few readings but he has largely been asymptomatic 12/22 - 0.81 03/23 - 0.83 06/23 -
dudubaya
in
Advanced Prostate Cancer
1 year ago
Just needing a vent
I am feeling really fed up right now. I got diagnosed about 2 weeks ago with pots and then 2 days later was in hospital with kidney stones. Got released just on time to make a family trip to London so had lots of painkillers to get through it but still managed to enjoy it. I came home and went to gp
I am feeling really fed up right now. I got diagnosed about 2 weeks ago with pots and then 2 days later was in hospital with kidney stones. Got released just on time to make a family trip to London so had lots of painkillers to get through it but still managed to enjoy it. I came home and went to gp
Elizahl
in
Fibromyalgia Action UK
1 year ago
Are You F...n' kidding me!
I just got turned down for the second time for disability. "though you may be sad and forgetful"... SAD ?, SAD! REALLY- THE HOSPITALIZATIONS AND MAXIMUM DOSES OF MULTIPLE ANTIDEPRESSANTS, 21 ROUNDS OF OLD SCHOOL ELECTRO SHOCK THERAPY AND SUICIDE ATTEMPTS = SAD! REALLY! I can't remember large parts of
I just got turned down for the second time for disability. "though you may be sad and forgetful"... SAD ?, SAD! REALLY- THE HOSPITALIZATIONS AND MAXIMUM DOSES OF MULTIPLE ANTIDEPRESSANTS, 21 ROUNDS OF OLD SCHOOL ELECTRO SHOCK THERAPY AND SUICIDE ATTEMPTS = SAD! REALLY! I can't remember large parts of
Raggedy-Ann
in
Major Depressive Disorder (MDD) Support
1 year ago
Far Infrared Heat Mat with Bone Mets
Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MBC with bone mets in spine. A friend let me use her mat and I found it really soothing and felt great afterwards. I would like to buy one myself but wonder if it would be OK for regular use with the bone mets, I don't want
Has anyone used a Far Infrared Heat Mat that is filled with crystals? I have MBC with bone mets in spine. A friend let me use her mat and I found it really soothing and felt great afterwards. I would like to buy one myself but wonder if it would be OK for regular use with the bone mets, I don't want
Hidden
in
SHARE Metastatic Breast Cancer
1 year ago
Metastatic PC
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
saniku
in
Advanced Prostate Cancer
1 year ago
? Ashwagandha and Maca Root If Hypo
Hi.If anyone who regularly uses Ashwagandha and/or Maca Root, I would love to hear of their experience taking these. I have recently read that both Ashwagandha and Maca Root are natural ways to help rebalance hormones in menopausal women. I am not sure though, if they adversely affect thyroid meds.
Hi.If anyone who regularly uses Ashwagandha and/or Maca Root, I would love to hear of their experience taking these. I have recently read that both Ashwagandha and Maca Root are natural ways to help rebalance hormones in menopausal women. I am not sure though, if they adversely affect thyroid meds.
Hidden
in
Thyroid UK
1 year ago
Weight LOSS on ADT
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
Hey all. I was diagnosed with PCa Oct. 2018. After radiation, Zytiga and Lupron, my PSA dropped to no-detect, where it has stayed for the past 3+ years. All very good news, right? Yes....mostly. Though I've dealt with continuing hot flashes and fatigue, my big concern right now is weight loss. I'm normally
LessPaul
in
Advanced Prostate Cancer
1 year ago
Hrt - 1st try at 60 plus year olds
Advice from ladies in mid 60's first time on hrt purely for anxiety. Side effects, to risk going on it in later life
Advice from ladies in mid 60's first time on hrt purely for anxiety. Side effects, to risk going on it in later life
Chi1504
in
Anxiety and Depression Support
1 year ago
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