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hrt/menopause and lupus
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
hi everyone. I've just joined and I'm desperate for advice or experience please. My diagnosed is lupus with overlap sjogrens, probably other mctd's too. I'm on low dose prednisone, hydroxychloroquine, arcoxia, cellcept etc and I also have a wound called pyoderma gangrenosum. Over the last 6 months or
Babycakes1971
in
LUPUS UK
10 months ago
Oar Gel and gold placements for beginners on this journey
I am a beginner on this PC journey but feel fortunate that I caught my cancer before it had spread beyond the prostate. I caught sepsis from my directed transrectal biopsy and spent a lovely few days in ICU flirting with the nurses and trying not to mess up the bed and floor too much. I have 9 weeks
I am a beginner on this PC journey but feel fortunate that I caught my cancer before it had spread beyond the prostate. I caught sepsis from my directed transrectal biopsy and spent a lovely few days in ICU flirting with the nurses and trying not to mess up the bed and floor too much. I have 9 weeks
Eadgbe
in
Prostate Cancer Network
10 months ago
I am livid, confused , worried and scared as hell that my ORGOVYX -ADT symptoms are mine for life.
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
I thought 20 tx imrt & 4 mos of Orgovyx from all the docs I talked to secured a pretty good chance of crushing my cancer AND a real good chance of having my T come back to Normal after " 4 mos". "
"
T " should be back to normal within the same time you were on the drug " that was the wishy
JWS13
in
Advanced Prostate Cancer
9 months ago
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Thyroid and the Menstrual Cycle?
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
JUUJOO
in
Thyroid UK
10 months ago
ART Favorable Prognosis Adjuvant Androgen Deprivation Therapy A-ADT after Radiotherapy
Additional information for PCa patients under AS (active surveillance) regarding the length of ADT and PSA nadir achieved, versus outcomes. Biochemical failure-free survival (BCFFS), clinical failure-free survival, distant metastasis-free survival, cancer-specific survival, and overall survival (OS)
Additional information for PCa patients under AS (active surveillance) regarding the length of ADT and PSA nadir achieved, versus outcomes. Biochemical failure-free survival (BCFFS), clinical failure-free survival, distant metastasis-free survival, cancer-specific survival, and overall survival (OS)
RMontana
in
Active Surveillance - Prostate Cancer
10 months ago
What age to start HRT
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Hi I just want to ask is 44 to young to start HRT ?? I had a hysterectomy a year ago (kept my ovaries) however my peri menopause symptoms are becoming worse and are affecting my daily life. Doctors has palmed me off with blood test and SSRI medication which am not taking, I explained to her when
Bassem1979
in
Menopause and Perimenopause Support
10 months ago
My son’s Testosterone results:
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Last week I posted my son’s three month PSA test and learned that it was the same as last time <0.10 and now I have the matching testosterone results of 7.0. How good or bad is that? I am unfamiliar with testosterone numbers after all the medicines he’s taken, and radiation. I don’t know what the previous
Cactus297
in
Advanced Prostate Cancer
9 months ago
Kratom anti-depressant, anti-psychotic, anti-anxiety herb!
I've recently come across an herbal suppliment that has realy helped me. If you research it you'll find that it has some potential for abuse. It effects opioid receptors. Just like opiod meds. For pain you take a large dose. In large doses it also has a sedating effect. That is were the addiction lays
I've recently come across an herbal suppliment that has realy helped me. If you research it you'll find that it has some potential for abuse. It effects opioid receptors. Just like opiod meds. For pain you take a large dose. In large doses it also has a sedating effect. That is were the addiction lays
PureOCDdude
in
My OCD Community
10 months ago
Weird 6 day Miracale
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
The weirdest thing one of my peeps . Multiple failed back surgeries spondylitis ,sciatica , severe RLS ,Menenigioma {brain cancer remisssion } She is drenched in sweat Hormone replacement ceased due to cancer RLS 24/7 Horrific Pain score 10 vomits daily from the pain ,can no longer eat lives on
Shumbah
in
Restless Legs Syndrome
10 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
10 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
10 months ago
Help! Hubby's PSA doubling time one week!
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
cancervictim
in
Advanced Prostate Cancer
10 months ago
Endo & HRT
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
Hi Please can you advise regarding someone who has had endometriosis rather badly can safely take any form of HRT? My daughter suffered from severe endo since she was 14 years old. After having many operations she was finally fitted with a Mirena Coil at the age of 40 and eventually this was quite
meme2
in
Endometriosis UK
10 months ago
degeralix vs lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Oatmeal2
in
Prostate Cancer Network
10 months ago
Thyroiditis
Hi, I am wondering any has had a similar running with painless thyroiditis. Nov 2021 I caught C-19. February 2022 I started feeling woozy a very strange feeling blood tests showed I was aneamic. So I was taking iron, but panic attacks, high heart rate were getting worse. In May 2022 I was unable to
Hi, I am wondering any has had a similar running with painless thyroiditis. Nov 2021 I caught C-19. February 2022 I started feeling woozy a very strange feeling blood tests showed I was aneamic. So I was taking iron, but panic attacks, high heart rate were getting worse. In May 2022 I was unable to
Dizzy2016
in
Thyroid UK
1 year ago
ART Intermittent HT, Quality of Life, and Testosterone Recovery
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
RMontana
in
Active Surveillance - Prostate Cancer
10 months ago
Gleason score 8 and lots of questions...
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Scuttfarkus
in
Prostate Cancer Network
10 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
10 months ago
Zoladex delay
Hi All, has anyone postponed one of their monthly Zoladex injections by a week? Any issues in that week? My situation is that I have a consultant appointment to review how I’ve got on with Zoladex (and, on the basis of my response, aid the decision making process on how much to do in surgery) booked
Hi All, has anyone postponed one of their monthly Zoladex injections by a week? Any issues in that week? My situation is that I have a consultant appointment to review how I’ve got on with Zoladex (and, on the basis of my response, aid the decision making process on how much to do in surgery) booked
Saffie123
in
Endometriosis UK
10 months ago
Panic and panic attacks
Hi I’ve had panic attacks this year (four full blown ones) and a few attacks that I managed to avoid by taking deep breaths until they passed I never suffered from these before despite suffering with anxiety all my life for which I take Setraline I’m wondering if it is because I am now taking Thyroid
Hi I’ve had panic attacks this year (four full blown ones) and a few attacks that I managed to avoid by taking deep breaths until they passed I never suffered from these before despite suffering with anxiety all my life for which I take Setraline I’m wondering if it is because I am now taking Thyroid
jaxie28
in
Thyroid UK
10 months ago
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