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Awaiting results of MRI
Hi, my consultant did an MRI back in May as I had Covid in December and still had nor regained my sense of smell or taste and was extremely lethargic and fatigued and felt like I had a fuzzy head a lot of the time. I have tinnitus and some hearing loss in they right ear. She said it was just going to
Hi, my consultant did an MRI back in May as I had Covid in December and still had nor regained my sense of smell or taste and was extremely lethargic and fatigued and felt like I had a fuzzy head a lot of the time. I have tinnitus and some hearing loss in they right ear. She said it was just going to
Sherwood
in
Acoustic Neuroma Support
2 years ago
Sternocleidomastoid muscle in neck/Tinnitus
I have come across a YouTube video explaining how the Sternocleidomastoid muscles either side of your neck can cause loud tinnitus. I’ve been suffering with tinnitus for many years, at the moment it’s very loud and has been for the last few months. I am also seeing a physiotherapist for pain in my
I have come across a YouTube video explaining how the Sternocleidomastoid muscles either side of your neck can cause loud tinnitus. I’ve been suffering with tinnitus for many years, at the moment it’s very loud and has been for the last few months. I am also seeing a physiotherapist for pain in my
bluebell71
in
Tinnitus UK
2 years ago
A PRACTICAL GUIDE TO UNDERSTANDING KAPLAN-MEIER CURVES
If you don't want to get a headache or confused (like me) don't read this post. I read it because I'm a masochist. And the reason I put it here is because I'm a sadist.👹👹 On the topic - most of us who like to read publications and dig deeper (according to our capabilities) constantly encounter data
If you don't want to get a headache or confused (like me) don't read this post. I read it because I'm a masochist. And the reason I put it here is because I'm a sadist.👹👹 On the topic - most of us who like to read publications and dig deeper (according to our capabilities) constantly encounter data
Yalokin
in
CLL Support
2 years ago
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excessive Eye Watering
Good morning, Everyone! My husband has been diagnosed with CBD he is now in about the 6th year of his battle just recently he has been complaining of his eyes watering, particularly his left eye it is almost like a slow leak with constant drainage . Has anyone else experienced this? Also, in the
Good morning, Everyone! My husband has been diagnosed with CBD he is now in about the 6th year of his battle just recently he has been complaining of his eyes watering, particularly his left eye it is almost like a slow leak with constant drainage . Has anyone else experienced this? Also, in the
Indiana-Girl
in
PSP Association
2 years ago
PA, vertigo, and gaming
This may be weird question, but I'm a gamer. I play video games. I suffer from vertigo but it never affected my gaming. Suddenly, I can't play certain games. I get very sick. I got vertigo so bad playing Mario Cart, I was in bed for 5 days. Dizzy, nauseous, sweating, lethargic. It was crazy
This may be weird question, but I'm a gamer. I play video games. I suffer from vertigo but it never affected my gaming. Suddenly, I can't play certain games. I get very sick. I got vertigo so bad playing Mario Cart, I was in bed for 5 days. Dizzy, nauseous, sweating, lethargic. It was crazy
EllaNore
in
Pernicious Anaemia Society
2 years ago
Coping with working full time with PMR
I've read many helpful suggestions on this site on how to manage a heavy workload and PMR. I have a demanding job with a lot of responsibility. I have sought to balance my symptoms (heavy, heavy harness, brain fog, fatigue and reduced confidence) with work for the past few months, with varying degrees
I've read many helpful suggestions on this site on how to manage a heavy workload and PMR. I have a demanding job with a lot of responsibility. I have sought to balance my symptoms (heavy, heavy harness, brain fog, fatigue and reduced confidence) with work for the past few months, with varying degrees
TooTiredTeacher
in
PMRGCAuk
2 years ago
Newbie awaiting an MRI
Hello, I have just had a consultation today (Audio Vestibular department) following a hearing test I booked last year due to worsening tinnitus and slight hearing loss at 37yrs young. I was confused when the consultant said he would like to do an MRI and a blood test. Me being me, I started googling
Hello, I have just had a consultation today (Audio Vestibular department) following a hearing test I booked last year due to worsening tinnitus and slight hearing loss at 37yrs young. I was confused when the consultant said he would like to do an MRI and a blood test. Me being me, I started googling
CG55
in
Acoustic Neuroma Support
2 years ago
Flying with flareup of GCA
I have planned a trip to England from the United States to England for several Months now. I am supposed to leave the U.S. on Monday 26th September. Now my right temporal vein has started to protrude and aches. Ihave had an ESR test nd CRP test but both are normal.I have been on a maintenance level of
I have planned a trip to England from the United States to England for several Months now. I am supposed to leave the U.S. on Monday 26th September. Now my right temporal vein has started to protrude and aches. Ihave had an ESR test nd CRP test but both are normal.I have been on a maintenance level of
DeliaGray
in
PMRGCAuk
2 years ago
Wondering about Betadine/Povidone-Iodine solution and Thyroid
Hello all, I am preparing for a vacation - something long overdue :-) In my preparations, I decided I needed to bring along a nasal "mist" that would essentially decontaminate my nose from any yucky stuff, viruses - covid or whatever else may be lurking. I just realized that this solution has iodine
Hello all, I am preparing for a vacation - something long overdue :-) In my preparations, I decided I needed to bring along a nasal "mist" that would essentially decontaminate my nose from any yucky stuff, viruses - covid or whatever else may be lurking. I just realized that this solution has iodine
Recon
in
Thyroid UK
2 years ago
What is CVS? (Has nothing too do with MS))
Because I can't seem to do anything half way, let me explain alittle bit what CVS is .1 st? It's Not the drug store! It's not 😂 it stands for Cyclic Vomiting Syndrome. It's horrible! I would not wish it on any one! I still sleep on the couch because of it... I wake up every morning panicked because
Because I can't seem to do anything half way, let me explain alittle bit what CVS is .1 st? It's Not the drug store! It's not 😂 it stands for Cyclic Vomiting Syndrome. It's horrible! I would not wish it on any one! I still sleep on the couch because of it... I wake up every morning panicked because
Jesmcd2
CommunityAmbassador
in
My MSAA Community
2 years ago
Medication PV advice please
Hi everyone, am newly diagnosed with PV and know at next appt will have discussion around meds, I am 60 no thrombosis events, I am finding it all so overwhelming especially around meds, currently venesection and asprin and antihistamine, is hydroxy always the first med given,I really don't want this
Hi everyone, am newly diagnosed with PV and know at next appt will have discussion around meds, I am 60 no thrombosis events, I am finding it all so overwhelming especially around meds, currently venesection and asprin and antihistamine, is hydroxy always the first med given,I really don't want this
Cityreach
in
MPN Voice
2 years ago
sulfasalazine & wrong med issued - Another update
hi everyone just a quickie in relation to the cockup boots made with my medication giving (me sulfadiazine instead of sulfasalazine) I arrive back from hols later tonight & have sulfasalazine at home,my question is,I'd only been on it 4 weeks before coming away & had to take 1 tablet a day
hi everyone just a quickie in relation to the cockup boots made with my medication giving (me sulfadiazine instead of sulfasalazine) I arrive back from hols later tonight & have sulfasalazine at home,my question is,I'd only been on it 4 weeks before coming away & had to take 1 tablet a day
Garnacha
in
NRAS
2 years ago
Hearing aids
I got hearing aids this week. I only have moderate hearing loss and the difference is amazing. However, when I'm not wearing them now my tinnitus has ramped up by about 50%. Has anyone had this before and does it settle back down or am I going to be suffering with my tinnitus even worse now without the
I got hearing aids this week. I only have moderate hearing loss and the difference is amazing. However, when I'm not wearing them now my tinnitus has ramped up by about 50%. Has anyone had this before and does it settle back down or am I going to be suffering with my tinnitus even worse now without the
Harveymum
in
British Tinnitus Association
2 years ago
How long before you are diagnosed?
I know I had symptoms in the late 1990's and never really took them seriously Yes I had brain fog, yes I was tired etc etc Saw the GP, suggested it was an ear infection.. Eventually got diagnosed in 2014.When I spike to my consultant two weeks ago, she said that most patients do not get diagnosed for
I know I had symptoms in the late 1990's and never really took them seriously Yes I had brain fog, yes I was tired etc etc Saw the GP, suggested it was an ear infection.. Eventually got diagnosed in 2014.When I spike to my consultant two weeks ago, she said that most patients do not get diagnosed for
shiftzz
in
MPN Voice
2 years ago
Motorbikes ,earplugs and Tinnitus
If you dont ride a motorbike then this is probably not of use to you other than explain how I unwittingly upped my T volume I had my first decent 4 hour bike ride since I developed T in August 2021 I tried all sorts of earplugs to drop the recorded 105 decibels of wind and engine noise to less than
If you dont ride a motorbike then this is probably not of use to you other than explain how I unwittingly upped my T volume I had my first decent 4 hour bike ride since I developed T in August 2021 I tried all sorts of earplugs to drop the recorded 105 decibels of wind and engine noise to less than
DR650SE
in
British Tinnitus Association
2 years ago
FEELING CONFUSED
hi everyone why my T sounds always change and spike. dr check my CT scan. they said it’s fine go home and cope with it. it’s for life . you have to live with. For hearing, they will give me hearing aid. I’m waiting for this. But what about my screaming tinnitus 😭. sometimes gets soft sometimes really
hi everyone why my T sounds always change and spike. dr check my CT scan. they said it’s fine go home and cope with it. it’s for life . you have to live with. For hearing, they will give me hearing aid. I’m waiting for this. But what about my screaming tinnitus 😭. sometimes gets soft sometimes really
sun_1234
in
Tinnitus UK
2 years ago
Given up on MTX
Hi, has anyone elected to stop Methotrixate due to the side effects and inconclusive RA diagnosis. Decided to stop as side effects outweigh benefits! Has anyone then moved on to controlling inflammation with alternatives like turmeric, devils claw or Chinese remedies. There has to be an alternative
Hi, has anyone elected to stop Methotrixate due to the side effects and inconclusive RA diagnosis. Decided to stop as side effects outweigh benefits! Has anyone then moved on to controlling inflammation with alternatives like turmeric, devils claw or Chinese remedies. There has to be an alternative
football64
in
NRAS
2 years ago
Pressure and ringing in my ears
Hi first time posting on here. I was involved in a light car crash eight weeks ago. 4 days later I started to receive dizziness and headaches and pressure & ringing in my ears. As the weeks have went on the ringing in my ears is constantly there over the last couple of weeks I’ve noticed when I’ve been
Hi first time posting on here. I was involved in a light car crash eight weeks ago. 4 days later I started to receive dizziness and headaches and pressure & ringing in my ears. As the weeks have went on the ringing in my ears is constantly there over the last couple of weeks I’ve noticed when I’ve been
LewisThomas
in
British Tinnitus Association
2 years ago
Sea water
Hi, I went swimming in the British sea a few weeks back and afterwards my PT temporarily stopped for 1 whole week! Now it has come on again since but is nowhere near as chronic as it was before. That said, I know from experience it will mostly likely increase again but I'm sure as any of you know, even
Hi, I went swimming in the British sea a few weeks back and afterwards my PT temporarily stopped for 1 whole week! Now it has come on again since but is nowhere near as chronic as it was before. That said, I know from experience it will mostly likely increase again but I'm sure as any of you know, even
Destructor
in
Tinnitus UK
2 years ago
Practical suggestions for PWP.....sweating...in "touchy" areas...
I sit on the couch more than i used to hahhahh....at the base of my spine in the top 3 inches of my rear end where the "crack" starts...i get a rash especially in summer. Keep a tube of desitin in your grabbag of remedies. Use it at first sign of chaffing or itching to avoid what can become a very painfull
I sit on the couch more than i used to hahhahh....at the base of my spine in the top 3 inches of my rear end where the "crack" starts...i get a rash especially in summer. Keep a tube of desitin in your grabbag of remedies. Use it at first sign of chaffing or itching to avoid what can become a very painfull
beehive23
in
Cure Parkinson's
2 years ago
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