Search
Search
About
Log in
Join
Experiences with
Organ transplant
Posts
Communities
3,428 public posts
Filter results
My husband hasCKD. I’m so scared
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Dianamillo
in
Early CKD Support
3 years ago
Mom with 11 yr old son that had Kidney Transplant at 18 months old.
Hello, I’m new to this community so grateful to have found this. Wish it was around 10 yrs ago when we were dealing with my sons transplant… Just looking for parents with children that may have gone through a transplant. My son is 11 now and just going through a huge change physically, emotionally,
Hello, I’m new to this community so grateful to have found this. Wish it was around 10 yrs ago when we were dealing with my sons transplant… Just looking for parents with children that may have gone through a transplant. My son is 11 now and just going through a huge change physically, emotionally,
Tulip00
in
Parents of Children with Kidney Disease
3 years ago
Help make a drug to treat post-transplant CMV available to patients in Canada
If you have experienced Cytomegalovirus (CMV) following your Allogeneic Stem-Cell Transplant, you can help Canadian patients gain access to this treatment by completing our survey! You do not need to live in Canada to complete this survey. CLL Canada is working with a coalition of blood cancer patient
If you have experienced Cytomegalovirus (CMV) following your Allogeneic Stem-Cell Transplant, you can help Canadian patients gain access to this treatment by completing our survey! You do not need to live in Canada to complete this survey. CLL Canada is working with a coalition of blood cancer patient
CLL_Canada_Group
in
CLL Support
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
6 monthly assessment
Quick update regarding a question I had a couple of months ago. I was worried that I would not be able to perform the walk test at my my 6 monthly check up for my lung transplant. I took your advise, gritted my teeth and increased my oxygen. I managed 4 minutes of slow walking, rested and then completed
Quick update regarding a question I had a couple of months ago. I was worried that I would not be able to perform the walk test at my my 6 monthly check up for my lung transplant. I took your advise, gritted my teeth and increased my oxygen. I managed 4 minutes of slow walking, rested and then completed
mary1956
in
Lung Conditions Community Forum
3 years ago
Covid-19
Has anyone with kidney transplant and Covid shots caught Covid? If so how did you do? This is my fear as I don’t know how my body will react. I am very scared to go out for fear of losing my donated kidney.
Has anyone with kidney transplant and Covid shots caught Covid? If so how did you do? This is my fear as I don’t know how my body will react. I am very scared to go out for fear of losing my donated kidney.
Beachvibe
in
Kidney Disease
3 years ago
Confused
I have pf for the last 6 and half Yr its really confusing me or maybe I'm in denial my dr says I'm in the end stages and put me on 2.5ml of morphine, I havnt had a infection for ages now touch wood,I'm on oxygen wise 6lt and 2lt at rest ,I can't really read my breathing test but I think my last one was
I have pf for the last 6 and half Yr its really confusing me or maybe I'm in denial my dr says I'm in the end stages and put me on 2.5ml of morphine, I havnt had a infection for ages now touch wood,I'm on oxygen wise 6lt and 2lt at rest ,I can't really read my breathing test but I think my last one was
Dion50
in
Lung Conditions Community Forum
3 years ago
Covid -19, still a big risk for some - 2.
I posted this tread up some three months ago just as a warning to others who like me are immunosuppressed. At this time, there are estimated to be around 44% of organ transplanted people who still didn't produce any Covid antibodies. Some of you will remember Jenny who use to frequent this forum, Jenny
I posted this tread up some three months ago just as a warning to others who like me are immunosuppressed. At this time, there are estimated to be around 44% of organ transplanted people who still didn't produce any Covid antibodies. Some of you will remember Jenny who use to frequent this forum, Jenny
Richard-Allen
in
British Liver Trust
3 years ago
Until what age can someone be qualified to have a kidney transplant? My nephro told me until 70 and takes 8 yrs on the waiting list?
How long does one have to be on the waiting list for a deceased donor kidney transplant?
How long does one have to be on the waiting list for a deceased donor kidney transplant?
Dina0210
in
Kidney Disease
3 years ago
Night sweats
Hello I had a liver transplant 5 years ago next April I've been grand since but 7 or 8 weeks ago my tac level shot up to 25.5 so the QE reduced my medication down from 5mg daily to 2 mg daily it is coming down slowly last time it was 9 so getting better no reason for it to shoot up like that so a bit
Hello I had a liver transplant 5 years ago next April I've been grand since but 7 or 8 weeks ago my tac level shot up to 25.5 so the QE reduced my medication down from 5mg daily to 2 mg daily it is coming down slowly last time it was 9 so getting better no reason for it to shoot up like that so a bit
Treeclimber62
in
British Liver Trust
3 years ago
Hernia and Liver
I have been off my work for last couple of days because of my umbilical hernia giving me pain I was at GP with it she gave me phone number for the liver transplant referral at hospital I phoned them and got phoned back saying I could go to them ans there was a cancellation this where I found out reason
I have been off my work for last couple of days because of my umbilical hernia giving me pain I was at GP with it she gave me phone number for the liver transplant referral at hospital I phoned them and got phoned back saying I could go to them ans there was a cancellation this where I found out reason
Delboytrotter
in
British Liver Trust
3 years ago
Jaw spasm & neck muscle problems?
Hi, I am new to this forum which I am now following on behalf of my husband. He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post stem cell transplant. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving
Hi, I am new to this forum which I am now following on behalf of my husband. He has scleroderma primarily upper body, as a result of Chronic Graft vs Host Disease post stem cell transplant. He has had and still has many issues with c GvHD. This year he has developed 2 more problems which are proving
AnnW22
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Rambler 64
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Rambler64
in
Restless Legs Syndrome
3 years ago
LVH / HCM After Renal Transplant
Hi - I’m 55. I had a kidney transplant in 2014. Transplanted kidney has done amazingly well. However, almost immediately after I starting prograf I complained of rapid heart rate and have consistently done so for years. Fast forward to 2021, a physician’s assistant finally listened and I was referred
Hi - I’m 55. I had a kidney transplant in 2014. Transplanted kidney has done amazingly well. However, almost immediately after I starting prograf I complained of rapid heart rate and have consistently done so for years. Fast forward to 2021, a physician’s assistant finally listened and I was referred
Denise-80
in
Kidney Disease
3 years ago
CDC advisers to consider additional coronavirus dose for immunocompromised patients. Meeting scheduled for July 22
The advisory panel next week plans to focus on the 2 to 4 percent of U.S. adults who have suppressed immunity, a population that includes
organ
transplant
recipients, people on cancer treatments and people living with rheumatologic conditions, HIV and leukemia.
The advisory panel next week plans to focus on the 2 to 4 percent of U.S. adults who have suppressed immunity, a population that includes
organ
transplant
recipients, people on cancer treatments and people living with rheumatologic conditions, HIV and leukemia.
WinJ3
in
CLL Support
3 years ago
Sudden Lymph Node Enlargement
I am a 58 year old female and was diagnosed a year ago. I have great bloodwork and have been without symptoms until a month ago & now have an enlarged lymph node that will require surgical removal for biopsy. The PET scan results are “worrisome for advanced lymphoma” and its hard not to mentally go
I am a 58 year old female and was diagnosed a year ago. I have great bloodwork and have been without symptoms until a month ago & now have an enlarged lymph node that will require surgical removal for biopsy. The PET scan results are “worrisome for advanced lymphoma” and its hard not to mentally go
StrengthHopeLove
in
CLL Support
3 years ago
Post Kasai and Need for Liver Transplant
My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mgdl and after 2months of Kasai it is 4.7mgdl. GGT was around 3000 earlier and come down around 1400 now. His stool is pigmented yellow, orange and sometimes pale yellow. Surgeon told liver was hard while kasai but all Ultrasound
My 5month old son undergone Kasai at 81days and Direct Bilirubin was around 13mgdl and after 2months of Kasai it is 4.7mgdl. GGT was around 3000 earlier and come down around 1400 now. His stool is pigmented yellow, orange and sometimes pale yellow. Surgeon told liver was hard while kasai but all Ultrasound
manhealth
in
Children's Liver Disease Foundation
3 years ago
Dr. Ondo have an appt with this dr in December. Can anyone tell me if they have seen him or had any experience with him and their thoughts
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
I have rls that originally started years ago in my legs. I developed renal failure and went on dialysis for 5 and 1/2 years which caused my rls to go off the charts. I have now had a kidney transplant as of July 2020 and with all the meds I take for anti rejection meds I have developed rls in my abdomen
ESRDRLS
in
Restless Legs Syndrome
3 years ago
I need the rest
You sound exactly like a mirror of myself. I agree, the augmentation and withdrawal are horrible. I take Gabapentin, 600 mg. about 7 p.m. and 900 mg. at 9 p.m. About 8:30 I take 100 mg. Tramadol. I am weaning off my last .5 mg. Ropinirole and usually take that at 7:15 p.m. I had about 1 week of beautiful
You sound exactly like a mirror of myself. I agree, the augmentation and withdrawal are horrible. I take Gabapentin, 600 mg. about 7 p.m. and 900 mg. at 9 p.m. About 8:30 I take 100 mg. Tramadol. I am weaning off my last .5 mg. Ropinirole and usually take that at 7:15 p.m. I had about 1 week of beautiful
Agent54
in
Restless Legs Syndrome
3 years ago
7 months post kidney transplant. I’m up to 40 minutes of walking 3-4 times a week. Day after exercise tired , useless. Any others?
Tired day after exercise
Tired day after exercise
3KMa
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant
3 years ago
1
...
37
38
39
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
717 results
Lung Conditions Community Forum
459 results
Kidney Transplant
453 results
View top 10 communities
Sort by
Most Relevant
Newest