Night sweats

[Treeclimber62]

Hello I had a liver transplant 5 years ago next April I've been grand since but 7 or 8 weeks ago my tac level shot up to 25.5 so the QE reduced my medication down from 5mg daily to 2 mg daily it is coming down slowly last time it was 9 so getting better no reason for it to shoot up like that so a bit of a mystery I didnt feel quite right but continued working in a pretty physical job I'm 67 i get a bit of angina but I'm not bad .however I've been getting the odd night when I've woke up drenched in sweat i feel ok and my stomach is ok just wondering if anyone else has had this and any ideas if it's just one of them things .thanks

[PeterP54]

You should get this checked out. I suffered the same night sweats together with painful cramp in my leg. I didn't do anything until one of my legs swelled to twice the size of the other. Turned out I had PTLD. At the time I was taking Tac and Azathioprine. PTLD is a rare side effect of Azathioprine. I was treated with Chemo (R-CHOP) and thankfully have been "cured" (at least I was told that no further follow up was necessary seven years later).

Hopefully there is some less serious problem for you, and I stress PTLD is a rare complication, but please do consult a doctor.

[Treeclimber62 in reply to PeterP54]

Thanks for reply I'm not on asa I was up to about 2 years ago but I've spoken to one of the nurses at the QE so hopefully will get sorted

[Hidden]

Do you have a post transplant clinic appointment coming up soon? Speak to your liver transplant coordinators and tell them about your night sweats so that you can get checked out. Chances are, hopefully, that it won't be anything too much to worry about but it is wise to be proactive in checking it out.

regards

[Treeclimber62 in reply to Hidden]

Thanks for reply I've spoken today with one of the nurses at the QE today

[shooli]

Hi,I'm 3 years post TX, and I've been having those dreaded night sweats for the past couple of years. I always figured it was just one of those with being immunosuppressed. However I recently had a bad reaction to a general anaesthetic and Major day sweats with atrial fib. So now I suspect my night sweats may be night-time a-fib. Sooo you may want to rule that out for you. Good luck and BTW we'll done on 7 years.

Steve

[Treeclimber62 in reply to shooli]

Thanks not had any sweats for a couple of days now so I suppose it could of been just a one off fingers crossed good luck to you