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Treatment plan / second opinions
hi everyone! first time poster - probably won’t be my last !! Just at the start of this journey, mums getting her Treatment Plan for first line treatment on Friday and I’d love any thoughts on what questions we should be asking? And would this be the stage for getting a second opinion (and is it
hi everyone! first time poster - probably won’t be my last !! Just at the start of this journey, mums getting her Treatment Plan for first line treatment on Friday and I’d love any thoughts on what questions we should be asking? And would this be the stage for getting a second opinion (and is it
georgiageorgia182
in
My Ovacome
6 months ago
what have I joined?
I have a Brian tumour had the surgery now going to treatment radio chemo etc… Been told exercise is good Any advice on how much? Or little? any tips on best diets
I have a Brian tumour had the surgery now going to treatment radio chemo etc… Been told exercise is good Any advice on how much? Or little? any tips on best diets
Ppmoorman65
in
Glioblastoma Support
6 months ago
Rechallenge Docetaxel - more than 6?
My husband has just finished his rechallenge of Docetaxel on 2/29x He did 6 rounds and while things are shrinking it didn’t have the significant change I think they wanted. So his MO at Mayo now wants him to do more chemo until he can no longer tolerate. It’s the standard 75g and my wrestle is why
My husband has just finished his rechallenge of Docetaxel on 2/29x He did 6 rounds and while things are shrinking it didn’t have the significant change I think they wanted. So his MO at Mayo now wants him to do more chemo until he can no longer tolerate. It’s the standard 75g and my wrestle is why
mdiaz76
in
Advanced Prostate Cancer
6 months ago
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Discoloured teeth
Has anyone had trouble with discolouration of their teeth? I have been cleaning regularly but was told to rinse with corsodyl which I think is the cause of the problem. Of course, I haven't been to a hygienist in ages as still having chemotherapy. I know this is a cosmetic thing but it is really getting
Has anyone had trouble with discolouration of their teeth? I have been cleaning regularly but was told to rinse with corsodyl which I think is the cause of the problem. Of course, I haven't been to a hygienist in ages as still having chemotherapy. I know this is a cosmetic thing but it is really getting
Swimbuddy
in
My Ovacome
6 months ago
Confused
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
6 months ago
CLL survival times ARE improving, thanks to BTK and BCL-2 inhibitors
Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. [u]Hopefully[/u] we subsequently read that search engine information from Google, Bing, etc., is way out of date, due to the fact that with CLL being a chronic disease, the relatively long survival times with this
Many of us were shocked after our CLL/SLL diagnosis when we googled for survival times. [u]Hopefully[/u] we subsequently read that search engine information from Google, Bing, etc., is way out of date, due to the fact that with CLL being a chronic disease, the relatively long survival times with this
AussieNeil
Partner
in
CLL Support
6 months ago
Living day by day
I have small Cell lung cancer received chemo and radiation ended treatment March 2023 all clear, restaged cat scan in Sept of 2023 and it was back started immunotherapy opdiva starting end of Sept 2023 the tumor didn't leave but wasn't spreading. In jan was diagnosed with a numerological issue and can't
I have small Cell lung cancer received chemo and radiation ended treatment March 2023 all clear, restaged cat scan in Sept of 2023 and it was back started immunotherapy opdiva starting end of Sept 2023 the tumor didn't leave but wasn't spreading. In jan was diagnosed with a numerological issue and can't
Watermelon67
in
The Roy Castle Lung Cancer Foundation
6 months ago
Bone pain, what next?
For over 2 years my scans show no radiographic progression despite a rising PSA, now at 43. However I am now experiencing periodic bone pain in the left hip area, mainly when I climb stairs. Tolerable but a worrying development. Even with lack of visible progression I think we need to change something
For over 2 years my scans show no radiographic progression despite a rising PSA, now at 43. However I am now experiencing periodic bone pain in the left hip area, mainly when I climb stairs. Tolerable but a worrying development. Even with lack of visible progression I think we need to change something
Ian99
in
Advanced Prostate Cancer
6 months ago
Second Line Hormonal
I am still only receiving Zoladex injections every three months. I did try Abiraterone 2022/2023 and it failed after a few months. I have been trying to get my Oncologist to prescribe Enzalutamide. I have been treated with docetaxel again and thought it might re-sensitize me for another hormonal drug
I am still only receiving Zoladex injections every three months. I did try Abiraterone 2022/2023 and it failed after a few months. I have been trying to get my Oncologist to prescribe Enzalutamide. I have been treated with docetaxel again and thought it might re-sensitize me for another hormonal drug
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
Spot Radiation before Pluvicto?
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
spouse21
in
Advanced Prostate Cancer
6 months ago
Feeling like Chemo is too Hard
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now am having carboplatin alone for second recurrence. My oncologist said this would be relatively easy. Also I haven’t had some of the worst complications
delia2
in
My Ovacome
6 months ago
Is it needed and safe for my mom to supplement with folate or B12?
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Hi all! I haven't posted before but I've been reading for a few months and find everything really helpful. My mom has had both chemotherapy and radiation this last year, and now has many overlapping symptoms with b12 and folate deficiencies (fatigue, mild neuropathy for years, mild memory loss/confusion
Jr499
in
Pernicious Anaemia Society
6 months ago
Colds and epilepsy
My husband has passed on his cold to me. I started with a tickly cough, now nose is bunged up, coughing is rattly, more so on the right side and head feels dizzy constantly. Ears also feel blocked. Im worried incase it triggers a seizure, as epilepsy nurse told me that viruses can trigger seizures. In
My husband has passed on his cold to me. I started with a tickly cough, now nose is bunged up, coughing is rattly, more so on the right side and head feels dizzy constantly. Ears also feel blocked. Im worried incase it triggers a seizure, as epilepsy nurse told me that viruses can trigger seizures. In
Dawn43
in
Epilepsy Action
6 months ago
My first COVID positive test ever came up twice positive
I thought I had a cold coming Wednesday night while at work at the local hospital, then yesterday had my rutuximab at the local chemo unit told them about my cold, they were happy to carry on , I did test on Wednesday evening at work negative Tested today twice both positive Been aching a lot especially
I thought I had a cold coming Wednesday night while at work at the local hospital, then yesterday had my rutuximab at the local chemo unit told them about my cold, they were happy to carry on , I did test on Wednesday evening at work negative Tested today twice both positive Been aching a lot especially
Stewie_1968
in
CLL Support
6 months ago
I've Dodged the Big Bullet, Again!
One of my good friends came in to my hospital. room and said that I used another one of my many (nine) lives. I'm not in the hospital, now. I am in my very comfortable home on a lake, hopefully getting better from the recent really scary diagnosis of acute liver failure. Even I was worried. The cancerous
One of my good friends came in to my hospital. room and said that I used another one of my many (nine) lives. I'm not in the hospital, now. I am in my very comfortable home on a lake, hopefully getting better from the recent really scary diagnosis of acute liver failure. Even I was worried. The cancerous
jersey-jazz
in
SHARE Metastatic Breast Cancer
6 months ago
Experience Taking Xeloda
I was diagnosed in 2019 with breast cancer, in 2020 with uterine, and this February with colon. I am NED with breast and uterine, and am now being treated for the colon cancer. I had a successful bowel resection, and am now about to start chemo. I would like to know how you tolerated Xeloda. Any tips
I was diagnosed in 2019 with breast cancer, in 2020 with uterine, and this February with colon. I am NED with breast and uterine, and am now being treated for the colon cancer. I had a successful bowel resection, and am now about to start chemo. I would like to know how you tolerated Xeloda. Any tips
RIGJ1
in
SHARE Uterine Cancer Support
6 months ago
Anecdotal, but running could boost immunity
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a high
PeggySusi
Graduate
in
Couch to 5K
6 months ago
Anecdotal, but indicates that exercise boosts immunity
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a
I am reading a lovely book of essays called These Precious Days by Ann Patchett. In the title essay a friend of the author is taking part in a clinical trial, having chemotherapy for pancreatic cancer. As you will know, Chemo destroys white blood cells which provide immunity, so you have to have a
PeggySusi
in
Active 10
6 months ago
Chemo Update March 27, 2024
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
In vivo: nanocarriers to deliver precision chemotherapy
A bit premature, but... Tests verified the ATP-modified PLGA nanoparticles were well tolerated in mice upon multiple systemic injections. They were able to recruit dendritic cells, the immune cells that recognize tumor antigens and bring specialized immune cells to fight off tumors. "Moreover, the
A bit premature, but... Tests verified the ATP-modified PLGA nanoparticles were well tolerated in mice upon multiple systemic injections. They were able to recruit dendritic cells, the immune cells that recognize tumor antigens and bring specialized immune cells to fight off tumors. "Moreover, the
Maxone73
in
Advanced Prostate Cancer
6 months ago
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