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Oral chemotherapy
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Think I can share my success story now
I want to preface this by saying that I do not intend to minimise or downplay others’ suffering. There are lots of people on here with cases far worse than mine is and I am all too aware of this. Also what worked for me may potentially not help you at all or in a worst case scenario make your own tinnitus
I want to preface this by saying that I do not intend to minimise or downplay others’ suffering. There are lots of people on here with cases far worse than mine is and I am all too aware of this. Also what worked for me may potentially not help you at all or in a worst case scenario make your own tinnitus
Masterfox66
in
Tinnitus UK
10 months ago
Issues with foreign generic chemo drugs
2 articles: https://www.washingtonpost.com/business/2023/06/27/cancer-drug-shortage-generics/ https://www.theguardian.com/society/2023/jul/07/patient-dies-hospitalised-sciensus-chemotherapy-incident?mc_cid=039af4c534&mc_eid=1dd817aa42
2 articles: https://www.washingtonpost.com/business/2023/06/27/cancer-drug-shortage-generics/ https://www.theguardian.com/society/2023/jul/07/patient-dies-hospitalised-sciensus-chemotherapy-incident?mc_cid=039af4c534&mc_eid=1dd817aa42
garyjp9
in
Advanced Prostate Cancer
10 months ago
Venetoclax for dummies
Venetoclax owes its origin to a lady named Eliza Hall, I bet AussieNeil has heard of her. Eliza was a lady from Melbourne Australia who married an Englishman named Walter Hall in 1874. Walter Hall and his two brothers arrived almost penniless in Australia in 1852, coming from England to search for
Venetoclax owes its origin to a lady named Eliza Hall, I bet AussieNeil has heard of her. Eliza was a lady from Melbourne Australia who married an Englishman named Walter Hall in 1874. Walter Hall and his two brothers arrived almost penniless in Australia in 1852, coming from England to search for
cajunjeff
in
CLL Support
10 months ago
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Prostatectomy 2012, Oligometastatic 2021. Metabolic approach ,no ADT, no chemo. Interested in Lutetium 177, Dr. Kwon Mayo patient
Born in 1947. As a1969 college graduation present, complements of a low draft number, I served a tour in Vietnam, on river patrol duty. I was surrounded by defoliated trees due to the use of Agent Orange and I imagine I drank a lot of AO contaminated water. Fast forward to 2012 to discover I had
Born in 1947. As a1969 college graduation present, complements of a low draft number, I served a tour in Vietnam, on river patrol duty. I was surrounded by defoliated trees due to the use of Agent Orange and I imagine I drank a lot of AO contaminated water. Fast forward to 2012 to discover I had
roman44
in
Advanced Prostate Cancer
10 months ago
My Journey - Breast Cancer
So far - I'm Lucky. On March 8th - my husband found a lump on my right breast. He was so sweet - Honey - when was your last Mamo. July 2023 - Why. And then he showed me what he felt. After a sleepless night - right to the Gyno - no worries about apts. I needed to see them. They got me a Mamo
So far - I'm Lucky. On March 8th - my husband found a lump on my right breast. He was so sweet - Honey - when was your last Mamo. July 2023 - Why. And then he showed me what he felt. After a sleepless night - right to the Gyno - no worries about apts. I needed to see them. They got me a Mamo
lovemydad
in
SHARE Breast Cancer Support
10 months ago
Post op update.
Right the ongoing rush continues, this one is more information than a laugh.My appointment was for 12.30 at the day unit in Telford the princess royal hospital. Went to the pre op ward for the usual ob's and stuff. The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then
Right the ongoing rush continues, this one is more information than a laugh.My appointment was for 12.30 at the day unit in Telford the princess royal hospital. Went to the pre op ward for the usual ob's and stuff. The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then
Rogo23
in
British Heart Foundation
10 months ago
getting through
2nd chemo over Coming to the 5th day Rough few days anyone else in the lonquex injection, I did get pain meds a bit better this time , first round I had bone pain in a scale of 10 this time a 5 Does everyone else suffer with it at some degree. Also I’m not a big drinker but I went for dinner last
2nd chemo over Coming to the 5th day Rough few days anyone else in the lonquex injection, I did get pain meds a bit better this time , first round I had bone pain in a scale of 10 this time a 5 Does everyone else suffer with it at some degree. Also I’m not a big drinker but I went for dinner last
Le-gra143
in
My Ovacome
10 months ago
My Experience with Chemo/Radiotherapy
I was diagnosed with a brain tumour back in December 2012. At that time it was misdiagnosed as a GBM4 but a recurrence in 2019 sent me to hospital again where it was finally rediagnosed as an AO3. Like the GBM4, an AO3 is still terminal but gives one plenty more time on this earth. I never had radiotherapy
I was diagnosed with a brain tumour back in December 2012. At that time it was misdiagnosed as a GBM4 but a recurrence in 2019 sent me to hospital again where it was finally rediagnosed as an AO3. Like the GBM4, an AO3 is still terminal but gives one plenty more time on this earth. I never had radiotherapy
Stewpotb
in
The Brain Tumour Charity
10 months ago
Thought I would never say this but I’m struggling!!!!
I’m 7.5 years into the journey aged 57 yrs old. I have done chemo, (x3) radiation and Pluvicto. It feels like the Pluvicto accelerated the disease into the whole right side of my pelvis. Scans were ugly and for some reason I have agreed to jevtana as I live for my family. Trouble is I'm miserable and
I’m 7.5 years into the journey aged 57 yrs old. I have done chemo, (x3) radiation and Pluvicto. It feels like the Pluvicto accelerated the disease into the whole right side of my pelvis. Scans were ugly and for some reason I have agreed to jevtana as I live for my family. Trouble is I'm miserable and
db1966
in
Advanced Prostate Cancer
10 months ago
Pluvicto works but at what cost
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
70 yo with Stage 4, multiple bone mets, on Orgovyx daily and Xgeva every 3 months. DaVinci in past. Previously on Firmagon, Xtandi worked for awhile, nothing with Xofigo and a few rounds of Jevtana didn’t help and caused problems, also had localized XRT - but had to have chemo to qualify for Pluvicto
Beach18
in
Advanced Prostate Cancer
10 months ago
PTH and aggressive PCa? I need guidance
Hello, everyone! I can really use some guidance. My husband’s PTH (Parathyroid hormone) has been elevated since his Dx (pre & post treatments) Being that his blood calcium is at normal levels, his MO ruled out Secondary Hyperparathyroidism, and moved on. But that never sat right with me. Why the elevated
Hello, everyone! I can really use some guidance. My husband’s PTH (Parathyroid hormone) has been elevated since his Dx (pre & post treatments) Being that his blood calcium is at normal levels, his MO ruled out Secondary Hyperparathyroidism, and moved on. But that never sat right with me. Why the elevated
K-xo
in
Advanced Prostate Cancer
10 months ago
Sore leg muscles
Hi....I had a double mastectomy in Jan 2023 and finished my 4th and final chemo treatment one month ago. Since my 3rd treatment I have experienced extremely sore leg muscles 24/7 with no improvement. Has anyone else had this side effect?
Hi....I had a double mastectomy in Jan 2023 and finished my 4th and final chemo treatment one month ago. Since my 3rd treatment I have experienced extremely sore leg muscles 24/7 with no improvement. Has anyone else had this side effect?
lakeliving22
in
SHARE Breast Cancer Support
10 months ago
SCT update
I went into hospital today to start my chemo, only to be told there is an issue with the donor! Obviously don’t know if there’s a family issue or they’ve changed their mind. I knew it could happen, but doesn’t make it any easier. Thanks for all your love & support, best wishes. Shirley
I went into hospital today to start my chemo, only to be told there is an issue with the donor! Obviously don’t know if there’s a family issue or they’ve changed their mind. I knew it could happen, but doesn’t make it any easier. Thanks for all your love & support, best wishes. Shirley
SRH55
in
MPN Voice
10 months ago
CT Scan with New Liver spots😪, next treatment? (Ibrance & Letrozole 18 mths 1st line)
Hello all,I'm feeling down now, another bump in the road sadly. CT scan this week showing 3 new liver spots (previously only bone mets, but many). Looking for some inspiration and knowledge from you fellow thrivers. I have been on Ibrance & Letrozole for 18 mths. The Ibrance was lowered from 125 to
Hello all,I'm feeling down now, another bump in the road sadly. CT scan this week showing 3 new liver spots (previously only bone mets, but many). Looking for some inspiration and knowledge from you fellow thrivers. I have been on Ibrance & Letrozole for 18 mths. The Ibrance was lowered from 125 to
Smokeyd
in
SHARE Metastatic Breast Cancer
10 months ago
My brother has advanced prostate cancer
Hi everyone. I hope all of you are doing well. My brother diagnosed Aug 2022 with stage 4 prostate cancer at age 53. PSA was 44 and he had some mets in his bones(Pelvic). After that he had triplet therapy(every 3 month hormone therapy+ Docetaxol+ Nubeqa), but unfortunately his PSA rising right after
Hi everyone. I hope all of you are doing well. My brother diagnosed Aug 2022 with stage 4 prostate cancer at age 53. PSA was 44 and he had some mets in his bones(Pelvic). After that he had triplet therapy(every 3 month hormone therapy+ Docetaxol+ Nubeqa), but unfortunately his PSA rising right after
rasher1
in
Advanced Prostate Cancer
10 months ago
injections
had my 3rd round of chemo after a delay again , been given 5days worth of tummy injection (filgrastim) has anybody had them and do they work !! I know they are to boost white blood cell
had my 3rd round of chemo after a delay again , been given 5days worth of tummy injection (filgrastim) has anybody had them and do they work !! I know they are to boost white blood cell
Cazy1010
in
My Ovacome
10 months ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
Maddie_TBTC
Administrator
in
Meningioma Support
10 months ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
Maddie_TBTC
Administrator
in
The Brain Tumour Charity
10 months ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
Maddie_TBTC
Administrator
in
Glioblastoma Support
10 months ago
Have you/your loved one had chemotherapy or radiotherapy treatment?
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s experiences differ across the UK. Help improve treatment and care in the UK by sharing your experiences of Radiotherapy and/or Chemotherapy in our
Maddie_TBTC
Administrator
in
Acoustic Neuroma Support
10 months ago
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