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Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
2 months ago
Chemo or clinical trial?
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
rsgdmd
in
Advanced Prostate Cancer
2 months ago
UPDATE
UPDATE Hi folks, I havnt been very active recently - mostly because things were going slowly, but well with my PCA. Ive just had my latest bloodwork which confirms a PCA increase with a doubling time of about 6 months. This is all very standard and to be expected - I am 4.3 years out from PSA of 1000
UPDATE Hi folks, I havnt been very active recently - mostly because things were going slowly, but well with my PCA. Ive just had my latest bloodwork which confirms a PCA increase with a doubling time of about 6 months. This is all very standard and to be expected - I am 4.3 years out from PSA of 1000
Stoneartist
in
Advanced Prostate Cancer
2 months ago
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Poole Conference 14 March 2024
Theme Navigating Treatment Pathways beyond Chemotherapy. I am on watch and wait and fairly new to this site. I attended the conference to get a better insight into treatments available. As we all know we are all different and different treatments suit different people. I found it very informative
Theme Navigating Treatment Pathways beyond Chemotherapy. I am on watch and wait and fairly new to this site. I attended the conference to get a better insight into treatments available. As we all know we are all different and different treatments suit different people. I found it very informative
21Bedlam21
in
CLL Support
2 months ago
Alendronic Acid side effects
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
Hercules307
in
PMRGCAuk
2 months ago
Help for Appetite
My 84 year old Uncle is finishing chemotherapy (metastases to bones, brain, lungs). Was in excellent shape/health until he wasn't. Anyway, he is unable to eat and is losing weight daily, quite weak. Any suggestions for stimulating appetite? His history is irrelevant as he is going to UCSF (lives
My 84 year old Uncle is finishing chemotherapy (metastases to bones, brain, lungs). Was in excellent shape/health until he wasn't. Anyway, he is unable to eat and is losing weight daily, quite weak. Any suggestions for stimulating appetite? His history is irrelevant as he is going to UCSF (lives
JWPMP
in
Advanced Prostate Cancer
2 months ago
I’m still here!
It is 8 years today since I was told I had Epithelial Ovarian Cancer 2C. I had a full Hysterectomy and 6 Carbo/Taxol chemos. I do have some numbness and peripheral nerve pain from the chemo but No other treatment! I have been able to enjoy many things, seeing my grandchildren grow, look after my elderly
It is 8 years today since I was told I had Epithelial Ovarian Cancer 2C. I had a full Hysterectomy and 6 Carbo/Taxol chemos. I do have some numbness and peripheral nerve pain from the chemo but No other treatment! I have been able to enjoy many things, seeing my grandchildren grow, look after my elderly
Joanne59
in
My Ovacome
2 months ago
Ovarian cancer
Hi brave ladys cancer ovarian spead to bowel 2 years ago just after heart valve replacement surgery removed part bowel 6 chemo recurrence recently chemo 4 session's surgery hysterectomy omentom removed more bowel left with stoma bag devastated how long get over hysterectomy and any one else in this
Hi brave ladys cancer ovarian spead to bowel 2 years ago just after heart valve replacement surgery removed part bowel 6 chemo recurrence recently chemo 4 session's surgery hysterectomy omentom removed more bowel left with stoma bag devastated how long get over hysterectomy and any one else in this
PaumicB123
in
My Ovacome
2 months ago
Migraine and trimethoprim
I recently suffered a urinary infection and GP prescribed trimethoprim. Three days into course I developed severe migraine with aura, feeling generally very unwell and increasing neck pain and stiffness. I persevered with tablets but migraine aura recurred every few hours and the pain was unbearable
I recently suffered a urinary infection and GP prescribed trimethoprim. Three days into course I developed severe migraine with aura, feeling generally very unwell and increasing neck pain and stiffness. I persevered with tablets but migraine aura recurred every few hours and the pain was unbearable
Jelbea
in
National Migraine Centre
2 months ago
PSA rise after triplet therapy
Hi everyone, my dad was diagnosed with stage 4 metastatic prostate cancer in 2023. He commenced on Triplett therapy - Zoladex, Darolutamide & Docetaxel chemo. His PSA has started to rise measuring 0.9 in January, 1.6 in February & 2.1 in March. We saw the MO yesterday and she recommended we see her again
Hi everyone, my dad was diagnosed with stage 4 metastatic prostate cancer in 2023. He commenced on Triplett therapy - Zoladex, Darolutamide & Docetaxel chemo. His PSA has started to rise measuring 0.9 in January, 1.6 in February & 2.1 in March. We saw the MO yesterday and she recommended we see her again
wiirz
in
Advanced Prostate Cancer
2 months ago
NGS Test/Next-Generation Sequencing Important to have done.
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
2 months ago
Radiation after Docetaxel
My dad finished chemo Docetaxel in November 2023. In December his PSA was .61. In February it jumped to 2.3. He went for a PET scan. He went back to the doctor today his PSA jumped to 6. The scan showed that many of the metastasis in his bones shrunk are almost gone. There is one spot in his back that
My dad finished chemo Docetaxel in November 2023. In December his PSA was .61. In February it jumped to 2.3. He went for a PET scan. He went back to the doctor today his PSA jumped to 6. The scan showed that many of the metastasis in his bones shrunk are almost gone. There is one spot in his back that
Jshaw916
in
Advanced Prostate Cancer
2 months ago
Hi! I'm new and excited to meet others and learn about your journey
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Sueforshare
in
SHARE Metastatic Breast Cancer
2 months ago
A break from chemo
hello, I have MBC, essentially I have been on some form of chemotherapy for over 2.5 years. The most recent medication is working well. However, I am feeling burnt out mentally and emotionally with the chemo. I am considering taking a 3 month break from chemo. Has anyone done this? What were the pros
hello, I have MBC, essentially I have been on some form of chemotherapy for over 2.5 years. The most recent medication is working well. However, I am feeling burnt out mentally and emotionally with the chemo. I am considering taking a 3 month break from chemo. Has anyone done this? What were the pros
Warrio
in
SHARE Breast Cancer Support
2 months ago
Surgery was hugely succesful, thank the Lord! 😇🙏
Going into surgery with stage 4 clear cell cancer a week ago, I was advised they will take out all cancer they can see & will have a better understanding of spreading & the way forward.Woke up to better than that! They got it all out, easily & cleanly, full radical hysterectomy and appendix. Signs they
Going into surgery with stage 4 clear cell cancer a week ago, I was advised they will take out all cancer they can see & will have a better understanding of spreading & the way forward.Woke up to better than that! They got it all out, easily & cleanly, full radical hysterectomy and appendix. Signs they
Kazzh
in
My Ovacome
2 months ago
2Nd Biopsy in 3+ years of Bone Met
Greetings All, A question about biopsies: Upon PC-stage 4 diagnosis per discovery of pc lesions causing spinal compression in 2020, my husband had a biopsy taken during his back surgery-which showed his already metastatic pc not to be an inherited condition. He went on to radiation of the spinal
Greetings All, A question about biopsies: Upon PC-stage 4 diagnosis per discovery of pc lesions causing spinal compression in 2020, my husband had a biopsy taken during his back surgery-which showed his already metastatic pc not to be an inherited condition. He went on to radiation of the spinal
Lavender22
in
Advanced Prostate Cancer
2 months ago
Oral chemo in the near future for mCRPC?
The first data talks about similar results but with easier administration: https://www.sciencedirect.com/science/article/abs/pii/S0959804924001631
The first data talks about similar results but with easier administration: https://www.sciencedirect.com/science/article/abs/pii/S0959804924001631
Maxone73
in
Advanced Prostate Cancer
2 months ago
Needing a bit of inspiration
Been reading posts for quite a while and now looking for some inspiration! Husband has been on this journey for 8 yrs the last 4 with CRPC with extensive bone mets ( see lengthy bio). Nov 2023 ended 5 infusions of Luteium due to low platelets- went on to have 3 quarter strength doses of Docetaxel which
Been reading posts for quite a while and now looking for some inspiration! Husband has been on this journey for 8 yrs the last 4 with CRPC with extensive bone mets ( see lengthy bio). Nov 2023 ended 5 infusions of Luteium due to low platelets- went on to have 3 quarter strength doses of Docetaxel which
Wifeofgary
in
Advanced Prostate Cancer
2 months ago
Immunotherapy
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
I'm just starting out on immunotherapy and would like to share experiences with others on the same drug. - Pembrolizumab. I'm due my 2nd treatment tomorrow. For someone who avoids taking anything stronger than paracetamol, it's all a bit scary. I haven't met anyone with lung cancer yet, and other
Gingergus
in
The Roy Castle Lung Cancer Foundation
2 months ago
Starting Chemo
Starting Taxatere next week. Just got notified they want to put a port in. My MO said 18 weeks of weekly infusions. I thought the "Normal" was 18 weeks once very 3 weeks for infusions? Any comments on this and any tips to help tolerate the chemo. Thanks
Starting Taxatere next week. Just got notified they want to put a port in. My MO said 18 weeks of weekly infusions. I thought the "Normal" was 18 weeks once very 3 weeks for infusions? Any comments on this and any tips to help tolerate the chemo. Thanks
Joeym1040
in
Advanced Prostate Cancer
2 months ago
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