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Macular Hole
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
doubtfully
in
PMRGCAuk
9 months ago
I am terminal
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Dearest, Yesterday during a consultation was told that I have 1 in 10 chances of the chemo be able to get rid of my cancer.Is in my tummy.Extremly painful, causing obstruction of the intestines. The word used was :"you are terminal".They don't know how long I have. I will still try next week one more
Pumpkininja
in
My Ovacome
3 months ago
Happy holiday post!
Quick catch up to give a boost if you're struggling right now starting your journey 😘 Basics Stage4b hgsc hrd+ brca negative with lymph nodes next to my heart and pelvis, started carbo/taxol June 2021 had 4 rounds then paid private for operation then 2 rounds. Finished 22 infusions of avastin in April
Quick catch up to give a boost if you're struggling right now starting your journey 😘 Basics Stage4b hgsc hrd+ brca negative with lymph nodes next to my heart and pelvis, started carbo/taxol June 2021 had 4 rounds then paid private for operation then 2 rounds. Finished 22 infusions of avastin in April
Newbery3
in
My Ovacome
3 months ago
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Stomach pain bam
Got diagnosed with bile acid malabsorption over a year ago terrible pain before and after bowel movements that lasts a good few hours seeing a different doctor at my surgery he said he could be the bile salts aggravating my colon so i have to up the colesevelam to 2 a day instead of 1 if that dont help
Got diagnosed with bile acid malabsorption over a year ago terrible pain before and after bowel movements that lasts a good few hours seeing a different doctor at my surgery he said he could be the bile salts aggravating my colon so i have to up the colesevelam to 2 a day instead of 1 if that dont help
Netbet22
in
IBS Network
3 months ago
Atorvastatin and Ibrutinib?
I asked the group about a month ago if it was OK to take Atorvastatin and Ibrutinib, several members came back and said they have been on the combination. However, my Haematologist has advised and I quote: "There may be an interaction and should not be given to prevent high cholesterol and if your
I asked the group about a month ago if it was OK to take Atorvastatin and Ibrutinib, several members came back and said they have been on the combination. However, my Haematologist has advised and I quote: "There may be an interaction and should not be given to prevent high cholesterol and if your
RobertCLL
in
CLL Support
9 months ago
What doesn't mix well with Coumadin?
Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take Coumadin/warfarin to keep my blood from becoming ragu...I've recently moved to the Philippines for obvious reasons and I have trouble falling asleep
Hello, my name is Chris from french part of Canada, please forgive my poor English... I have artificial heart from incident in Afghanistan. I need to take Coumadin/warfarin to keep my blood from becoming ragu...I've recently moved to the Philippines for obvious reasons and I have trouble falling asleep
Corporal_Canada
in
Hughes Syndrome APS Forum
9 months ago
Tinnitus and Cochlear implants
Hello .. I’m just enquiring if there is anyone out there who has a cochlear implant and tinnitus. I’ve had a lot of operations on my ear , and onto my second cochlear implant. I’m in pain still after these operations and still have awful tinnitus. Just trying to get on with things!
Hello .. I’m just enquiring if there is anyone out there who has a cochlear implant and tinnitus. I’ve had a lot of operations on my ear , and onto my second cochlear implant. I’m in pain still after these operations and still have awful tinnitus. Just trying to get on with things!
1Dar
in
Tinnitus UK
9 months ago
Is my Endo back?
Hi Everyone, Looking for some advice or anyone who's been through a similar experience. I had Endo 3 years ago some of my main symptoms where bowel issues bloating, gassy, stomach cramps and diarrhea whenever I ate to much. Initially the doctor put it down to IBS. Obviously that wasn't the case and it
Hi Everyone, Looking for some advice or anyone who's been through a similar experience. I had Endo 3 years ago some of my main symptoms where bowel issues bloating, gassy, stomach cramps and diarrhea whenever I ate to much. Initially the doctor put it down to IBS. Obviously that wasn't the case and it
mo222
in
Endometriosis UK
3 months ago
High dose Turmeric and links to low ferritin
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
My ferritin has dropped from 82ug/L (30-150) 4 months ago to 64ug/L (30-264) this week (both Medichecks- Inuvi lab). I’ve been scratching my head to find out why this could be, as my diet hasn’t changed. https://amzn.eu/d/bTWoF2o The only change I’ve made is to increase my usual turmeric dose (which
Buddy195
Administrator
in
Thyroid UK
3 months ago
hepatic Encephalopathy
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
Kingbilly3
in
British Liver Trust
3 months ago
Almost ready for phase 1: JHU083 (or JHU-083) a selective glutamine metabolism blocker
"The drug, JHU083, is a type of molecule called a prodrug that cells inside the body convert into an active drug. Specifically, JHU083 can only be turned into its active, glutamine-blocking form inside the tumor, preventing it from causing harmful side effects elsewhere in the body. " We all know that
"The drug, JHU083, is a type of molecule called a prodrug that cells inside the body convert into an active drug. Specifically, JHU083 can only be turned into its active, glutamine-blocking form inside the tumor, preventing it from causing harmful side effects elsewhere in the body. " We all know that
Maxone73
in
Advanced Prostate Cancer
3 months ago
The Dreaded MR
I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both elements of PIP down to standard rate on daily living only. To be honest I was evidently irate in the information I sent back. Igot them to send
I think I posted a comment on someone else's thread months ago about having to go through MR, because in my review, they had taken me from enhanced on both elements of PIP down to standard rate on daily living only. To be honest I was evidently irate in the information I sent back. Igot them to send
ArtfulLyricist
in
Fibromyalgia Action UK
9 months ago
Newly diagnosed. Looking for advice
Good morning. I've sadly recently been diagnosed with ulcerative colitis. I was suffering 5 years ago with calprotectin score 450 and had a urgent colonoscopy that found polyps and piles which were removed biopsied/ banded. Continued to have on off blood in stools for a few years each time I was blaming
Good morning. I've sadly recently been diagnosed with ulcerative colitis. I was suffering 5 years ago with calprotectin score 450 and had a urgent colonoscopy that found polyps and piles which were removed biopsied/ banded. Continued to have on off blood in stools for a few years each time I was blaming
Raerae2781
in
Crohn's and Colitis Support
3 months ago
Please Help Me.
Hello all! I'm a 29 year old guy from the UK. I've had diarrearh for nearly 6 weeks. I have severe bloating. I was admitted to Hospital last week, they've asked me to do a Bowel cancer sample test (which I've done) During the blood tests they've found my Liver Enzymes are elevated. They've ordered
Hello all! I'm a 29 year old guy from the UK. I've had diarrearh for nearly 6 weeks. I have severe bloating. I was admitted to Hospital last week, they've asked me to do a Bowel cancer sample test (which I've done) During the blood tests they've found my Liver Enzymes are elevated. They've ordered
Lmm4
in
British Liver Trust
3 months ago
Elmiron making nocturia worse?
Hello everyone, I have been prescribed Elmiron for Bladder Pain Syndrome as my cystoscopy showed glomurations and water fall bleeding. I've only been on it for 4 days and I'm now getting up every hour rather than 3 times a night. I'm so tired, I have a lot of other chronic pain conditions and 2 young
Hello everyone, I have been prescribed Elmiron for Bladder Pain Syndrome as my cystoscopy showed glomurations and water fall bleeding. I've only been on it for 4 days and I'm now getting up every hour rather than 3 times a night. I'm so tired, I have a lot of other chronic pain conditions and 2 young
Cat00
in
Bladder Health UK
9 months ago
Lactose intolerant
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
I am changing from Armour Thyroid to synthetic T4 and T3, due to cost and that a local Endo has agreed to this on the NHS. However I’m super sensitive to lactose and the hospital pharmacy are dithering about finding lactose free options. Does anyone know which brands are lactose free please?
Karen-Eleanor
in
Thyroid UK
7 months ago
Bloating for 2 months
Hi, does anyone suffer with bloating but all the time? For the last couple of months my stomach has felt bloated most days and more recently I have had a gurgling stomach, mucus in my poo, lower back pain, urgency and acid reflux. I am currently having bloods, stool samples etc to rule out other things
Hi, does anyone suffer with bloating but all the time? For the last couple of months my stomach has felt bloated most days and more recently I have had a gurgling stomach, mucus in my poo, lower back pain, urgency and acid reflux. I am currently having bloods, stool samples etc to rule out other things
Starshine83
in
IBS Network
3 months ago
Functional Gerd/Heartburn
Good day everyone, has anyone ever researched this topic ? I was diagnosed with AIG few months back, started EOD injections and recently developed what feels like heartburn, which I have never had before. The pain is usually in bottom chest area and is accompanied with flatulence and burping. I read
Good day everyone, has anyone ever researched this topic ? I was diagnosed with AIG few months back, started EOD injections and recently developed what feels like heartburn, which I have never had before. The pain is usually in bottom chest area and is accompanied with flatulence and burping. I read
Canadian77
in
Pernicious Anaemia Society
3 months ago
Upper left pain and soreness
Hi …. Does anyone else suffer from upper left quarter / centre pain and discomfort. Side almost feels sore (almost like muscular soreness). Constant belching and flatulence, sometimes loose or constipated. Been going on for 4 months. Had colonoscopy and Abdominal and Pelvic CT scan, all clear but symptoms
Hi …. Does anyone else suffer from upper left quarter / centre pain and discomfort. Side almost feels sore (almost like muscular soreness). Constant belching and flatulence, sometimes loose or constipated. Been going on for 4 months. Had colonoscopy and Abdominal and Pelvic CT scan, all clear but symptoms
Dh19
in
IBS Network
3 months ago
Confused about potential ibs c with overflow diagnosis
So after having a constant list of other symptoms unrelated to bowels i have finally spoke to a gastro who is assuming i have ibs c with overflow. I am on the waiting list for a colonoscopy so this potential diagnosis has been made on a 5 min phone call not an in person appointment. My confusion comes
So after having a constant list of other symptoms unrelated to bowels i have finally spoke to a gastro who is assuming i have ibs c with overflow. I am on the waiting list for a colonoscopy so this potential diagnosis has been made on a 5 min phone call not an in person appointment. My confusion comes
Confused1806
in
IBS Network
3 months ago
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