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At the crossroads (again)
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
My profile is up to date, but, briefly, have failed chemo, ADT (am castrate resistant), failed Keytruda and now Pluvicto. Scans yest. & today show progression along with PSA rise. All my mets are in bone. So, my SOC choices are cabazataxel or radium 223. Other options are trial, which are a crapshoot
rsgdmd
in
Advanced Prostate Cancer
4 months ago
Dry-Needling and Low Level Laser Therapy By Physios: Does this really work and can it worsen tinnitus?
I triggered tinnitus and hyperacusis over 7 years ago now. Luckily it always went eventually but as of about 4 months ago it seems as if it is here to stay and a lot worse. An otologist told me that areas I said gave me pain could be consistent with TMJ issues and that he worked with a physio who could
I triggered tinnitus and hyperacusis over 7 years ago now. Luckily it always went eventually but as of about 4 months ago it seems as if it is here to stay and a lot worse. An otologist told me that areas I said gave me pain could be consistent with TMJ issues and that he worked with a physio who could
PuddingChipsAndGravy
in
Tinnitus UK
11 months ago
Is This Normal??
Is it normal after nearly 5 years on ADT + Zytig, Prednisone, and Xgeva, to have constant "Flu-Like" symptoms, (sans a fever)? Some days, everything hurts, legs hurt at night , feel like my blood is boiling while I try to sleep. Are these "side effects" or just part of the advanced cancer? Excruciating
Is it normal after nearly 5 years on ADT + Zytig, Prednisone, and Xgeva, to have constant "Flu-Like" symptoms, (sans a fever)? Some days, everything hurts, legs hurt at night , feel like my blood is boiling while I try to sleep. Are these "side effects" or just part of the advanced cancer? Excruciating
TommyCarz2
in
Advanced Prostate Cancer
4 months ago
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Patches (I'm depending on you, son)
Dated pop reference - sorry. While my research has continued, my oncologist has nothing to give me within the SOC to keep the PSA in check. Now I've witnessed another unwelcome visitor: facial hair (it only took me 70 yrs to start shaving....) Joking aside however, that means the T is on the rise.
Dated pop reference - sorry. While my research has continued, my oncologist has nothing to give me within the SOC to keep the PSA in check. Now I've witnessed another unwelcome visitor: facial hair (it only took me 70 yrs to start shaving....) Joking aside however, that means the T is on the rise.
CrocodileShoes
in
Advanced Prostate Cancer
4 months ago
Hypogonadal - 4 months Orgovyxx- 1 year later- No recovery to baseline 286 only at 98- No libido- TRT?
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
JWS13
in
Advanced Prostate Cancer
1 month ago
Gynecomastia from ADT - how much?
Gynecomastia from ADT - how much? I am considering asking my oncologist for transdermal estrogn (TDE) therapy instead of Orgovyx to combat my prostate cancer. Since gynecomastia and breast pain are pretty much the only bad side effects from TDE and less troubling to me than metabolic disturbance,
Gynecomastia from ADT - how much? I am considering asking my oncologist for transdermal estrogn (TDE) therapy instead of Orgovyx to combat my prostate cancer. Since gynecomastia and breast pain are pretty much the only bad side effects from TDE and less troubling to me than metabolic disturbance,
Lost_Sheep
in
Prostate Cancer Network
4 months ago
Restless legs
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Morning hun. Iv had it for around 20 years iv always managed okBut Last Tuesday it started really bad and its day and night. Drs have given me some tablets for Parkinson they ste Not working. I'm just in the lounge walking all night 1-3 ,hour sleep a night Went to hospital Saturday they done bloods
Frenhies
in
Restless Legs Syndrome
9 months ago
Help and Advice
I have been suffering some time now ( years perhaps ) with debilitating symptoms such as exhaustion, puffy face, coldness, constipation, dry skin, hair shedding, muscle aches and more recently severe numbness and pins and needles in my hands. I thought this may be the onset on menopause as I am now
I have been suffering some time now ( years perhaps ) with debilitating symptoms such as exhaustion, puffy face, coldness, constipation, dry skin, hair shedding, muscle aches and more recently severe numbness and pins and needles in my hands. I thought this may be the onset on menopause as I am now
Sarageorge1971
in
Thyroid UK
4 months ago
OS versus Testosterone Nadir - 5
This plot shows the Overall Survival Probability after RT and ADT, for Advance Prostate Cancer men, comparing two different ranges of testosterone nadir (< 10 ng/dL, and 10-20 ng/dL) after 11 years. The
best
outcomes
are significantly associated with a
lower testosterone nadir ( <
This plot shows the Overall Survival Probability after RT and ADT, for Advance Prostate Cancer men, comparing two different ranges of testosterone nadir (< 10 ng/dL, and 10-20 ng/dL) after 11 years. The
best
outcomes
are significantly associated with a
lower testosterone nadir ( <
janebob99
in
Advanced Prostate Cancer
4 months ago
OS versus Testosterone Nadir - 4
This plot shows the Overall Survival Probability after RT and ADT, for Advance Prostate Cancer men, comparing different levels of testosterone nadir (< 10 ng/dL, 10-20, and 20-50, The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 10 ng/dL).
[b
This plot shows the Overall Survival Probability after RT and ADT, for Advance Prostate Cancer men, comparing different levels of testosterone nadir (< 10 ng/dL, 10-20, and 20-50, The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 10 ng/dL).
[b
janebob99
in
Advanced Prostate Cancer
4 months ago
PSA relapse rate vs testosterone nadir - 3
This plot shows the PSA relapse rate after RT and ADT, for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 20 ng/dL),
and the relationship
This plot shows the PSA relapse rate after RT and ADT, for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 20 ng/dL),
and the relationship
janebob99
in
Advanced Prostate Cancer
4 months ago
PSA Survival vs Testosterone Nadir - 2
This plot shows the Biochemical Relapse Free Survival after RT and ADT, after 10 years , for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 20
This plot shows the Biochemical Relapse Free Survival after RT and ADT, after 10 years , for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone nadir ( < 20
janebob99
in
Advanced Prostate Cancer
4 months ago
PSA Survival vs Testosterone Nadir - 1
This plot shows the Biochemical Relapse Free Survival after RT and ADT, versus time for up to 18 years, for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone
This plot shows the Biochemical Relapse Free Survival after RT and ADT, versus time for up to 18 years, for Intermediate and High Risk men, comparing different levels of testosterone nadir ( 50 nd/dL). (ref: 2019) The
best
outcomes
are significantly associated with a
lower testosterone
janebob99
in
Advanced Prostate Cancer
4 months ago
radiation or no radiation
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
I Just updated my profile and am G-9 with PNI, IDC and lymphovascular invasion. Check 2 mutation as well but Decipher at .41. RP Dr V Patel march 2020 (T3b, negative margins and negative lymph nodes) and PSA undetectable until Sept 2023. Started at 0.021 and now Feb 22nd 2024 at 0.052. Seeing Dr
Peppertree602
in
Advanced Prostate Cancer
4 months ago
Early Results from Transdermal Estrogen PATCH trial - 2
Here's some charts comparing Lupron ADT to transdermal estrogen (TDE) therapy for High Risk and Very High Risk men with prostate cancer. The upper chart shows the percentage of men that have been castrated to a testosterone level < 50 ng/dL after 1 month of treatment. For Lupron, only 65% of HR/VHR
Here's some charts comparing Lupron ADT to transdermal estrogen (TDE) therapy for High Risk and Very High Risk men with prostate cancer. The upper chart shows the percentage of men that have been castrated to a testosterone level < 50 ng/dL after 1 month of treatment. For Lupron, only 65% of HR/VHR
janebob99
in
Prostate Cancer Network
4 months ago
Early Results from Transdermal Estrogen PATCH trial - 2
Here's some charts comparing Lupron ADT to transdermal estrogen (TDE) patch therapy for High Risk and Very High Risk men with prostate cancer. The upper chart shows the percentage of men that have been castrated to a testosterone level < 50 ng/dL after 1 month of treatment. For Lupron, 65% of HR/
Here's some charts comparing Lupron ADT to transdermal estrogen (TDE) patch therapy for High Risk and Very High Risk men with prostate cancer. The upper chart shows the percentage of men that have been castrated to a testosterone level < 50 ng/dL after 1 month of treatment. For Lupron, 65% of HR/
janebob99
in
Advanced Prostate Cancer
4 months ago
Early Results from Transdermal Estrogen PATCH trial
Here are some Early Results from the first year of the Transdermal Estrogen PATCH trial. References are available on their website at: http://patch.mrcctu.ucl.ac.uk. The cohort was men with High or Very High Risk prostate cancer. Stage T3 (73%) and Stage T4 (14%), baseline PSA = 35 ng/mL. The upper
Here are some Early Results from the first year of the Transdermal Estrogen PATCH trial. References are available on their website at: http://patch.mrcctu.ucl.ac.uk. The cohort was men with High or Very High Risk prostate cancer. Stage T3 (73%) and Stage T4 (14%), baseline PSA = 35 ng/mL. The upper
janebob99
in
Advanced Prostate Cancer
4 months ago
Early Results of Estrogen PATCH trial - 1
Here are some Early Results from the first year of the Transdermal Estrogen PATCH trial. References are available on their website at: http://patch.mrcctu.ucl.ac.uk. The cohort was men with High or Very High Risk prostate cancer. Stage T3 (73%) and Stage T4 (14%), baseline PSA = 35 ng/mL. The upper
Here are some Early Results from the first year of the Transdermal Estrogen PATCH trial. References are available on their website at: http://patch.mrcctu.ucl.ac.uk. The cohort was men with High or Very High Risk prostate cancer. Stage T3 (73%) and Stage T4 (14%), baseline PSA = 35 ng/mL. The upper
janebob99
in
Prostate Cancer Network
4 months ago
Results
Hi everyone I posted a couple of weeks ago and was advised to have bloods done. These are my results so hoping for further advice in supplementing or adjusting doseage. I currently take 50mcg Levothyroxine and 25mcg T3 daily. I also have B12 injections every 12wks. Latest B12 injection given day after
Hi everyone I posted a couple of weeks ago and was advised to have bloods done. These are my results so hoping for further advice in supplementing or adjusting doseage. I currently take 50mcg Levothyroxine and 25mcg T3 daily. I also have B12 injections every 12wks. Latest B12 injection given day after
Pixie50
in
Thyroid UK
4 months ago
here again needing advice!!
Had a private blood test with medicheck a few weeks ago. Here are the results: TSH 1.23 mu/L Normal range 0.27-4.2 mu/L Thyroxine 16.9 pmol/L Normal FT4 levels 12-22 pmol/L Triiodothyronine 4.2 pmol:L Normal levels FT3 3.1-6.8 pmol/L I am still feeling really rubbish on 100 microgram levothyroxine
Had a private blood test with medicheck a few weeks ago. Here are the results: TSH 1.23 mu/L Normal range 0.27-4.2 mu/L Thyroxine 16.9 pmol/L Normal FT4 levels 12-22 pmol/L Triiodothyronine 4.2 pmol:L Normal levels FT3 3.1-6.8 pmol/L I am still feeling really rubbish on 100 microgram levothyroxine
Vorney
in
Thyroid UK
4 months ago
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