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Vertigo and Venclexta?
My husband is starting cycle 12 of Venclexta, reduced to 200mg /day due to 2 bouts of Neutropenia, and has recently experienced Vertigo twice. The first time, I did not associate this with the treatment; however, it seemed peculiar when it happened a second time, only eight weeks later. He was advised
My husband is starting cycle 12 of Venclexta, reduced to 200mg /day due to 2 bouts of Neutropenia, and has recently experienced Vertigo twice. The first time, I did not associate this with the treatment; however, it seemed peculiar when it happened a second time, only eight weeks later. He was advised
lisakc1
in
CLL Support
11 months ago
waiting for a hearing test to check for acoustic neuroma
Hi, I’ve had hearing aids for 8 years due to tinnitus. Recently my left ear feels very different from my right. It feels blocked and very deaf. I’ve also had 2 episodes of really loud tinnitus that I’ve never had before. When the tinnitus calmed down I had a migraine later. I’ve been having more migraines
Hi, I’ve had hearing aids for 8 years due to tinnitus. Recently my left ear feels very different from my right. It feels blocked and very deaf. I’ve also had 2 episodes of really loud tinnitus that I’ve never had before. When the tinnitus calmed down I had a migraine later. I’ve been having more migraines
Dancenut
in
Acoustic Neuroma Support
11 months ago
Dry Matter in the corner of eyes.
Does anyone have problems with dry matter in the inside corner of their eyes? I know Glaucoma can be associated with dry eyes and fortunately, so far, I have not had too much of a problem.. However lately I have noticed an occasional sharp pain in the corner of my eye as a piece of matter comes out.
Does anyone have problems with dry matter in the inside corner of their eyes? I know Glaucoma can be associated with dry eyes and fortunately, so far, I have not had too much of a problem.. However lately I have noticed an occasional sharp pain in the corner of my eye as a piece of matter comes out.
Tschuggen
in
Glaucoma UK
11 months ago
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SIBO/IMO investigations
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
Hello, community. I have a putative diagnosis of SIBO-IMO and would like to know of other people's recent experience of SIBO testing /investigations. Thank you. I'm new to this forum but have been on HU for many years. I have Lupus, Raynaud's, Erythromelalgia; IBS-c and Muscular Dystrophy (FSHD-1
skylark15
in
IBS Network
8 months ago
Constant Pain
Hi I have constant pain,and have had for some years now,stomach pain that is . I was told I had IBS,then Perineal pain,now I’m being told I have Diverticulosis. I don’t understand it whatsoever all I know is my stomach pain is getting worse,and hard to cope with. Quite honestly I don’t think the health
Hi I have constant pain,and have had for some years now,stomach pain that is . I was told I had IBS,then Perineal pain,now I’m being told I have Diverticulosis. I don’t understand it whatsoever all I know is my stomach pain is getting worse,and hard to cope with. Quite honestly I don’t think the health
Breathless1943
in
IBS Network
8 months ago
Bubbling sensations in the rectum area and very low gurgling sounds, has anyone had the same?
I have had blood tests and a colonoscopy. Everything is fine apart from high iron levels. But I was just wondering if anyone has had the same sensations/symptoms in the subject line? Any advice or reply from someone that has had the same symptoms would be appreciated. I have also just had a FIT test
I have had blood tests and a colonoscopy. Everything is fine apart from high iron levels. But I was just wondering if anyone has had the same sensations/symptoms in the subject line? Any advice or reply from someone that has had the same symptoms would be appreciated. I have also just had a FIT test
DavidT565
in
IBS Network
8 months ago
MRI and injuries
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
ritaandscooter1
in
MPN Voice
11 months ago
Having Bladder or Bowel Challenges??
Hello! I am new to this Chat Room and I am excited to have been invited by a current participant, MrsMike9!! She asked me to share some information regarding overactive bladder and/or bowel (aka bladder and/or bowel incontinence). First, I have to say, I am NOT a medical professional but just a fellow
Hello! I am new to this Chat Room and I am excited to have been invited by a current participant, MrsMike9!! She asked me to share some information regarding overactive bladder and/or bowel (aka bladder and/or bowel incontinence). First, I have to say, I am NOT a medical professional but just a fellow
ByeByeMS
in
My MSAA Community
11 months ago
Ulcerative Colitis or Colon Cancer? (sorry for the nasty photos. 1 here & 1 below in reply!) (Couldn't figure out how to inc. 2 in my post)
I'm a 67 female with R.A. After several days having horrible cramping and gas and the strangest loose stool I have ever seen, my dr ordered two stool tests - the Fecal Occult Blood Immunochemical and the new test, the Microbiology Infectious Diarrhea Panel (which just came out two months ago and checks
I'm a 67 female with R.A. After several days having horrible cramping and gas and the strangest loose stool I have ever seen, my dr ordered two stool tests - the Fecal Occult Blood Immunochemical and the new test, the Microbiology Infectious Diarrhea Panel (which just came out two months ago and checks
12345Marie
in
Crohn's and Colitis Support
8 months ago
Dry mouth
Hi, I'm on Besremi, now at 150 every two weeks (down from 180 as WBC got too low). I have had dry eyes for awhile, but suddenly I'm noticing my mouth is really dry. I also have frequent urination, and have had for sometime which is driving me crazy. I do see urologist next week about that issue
Hi, I'm on Besremi, now at 150 every two weeks (down from 180 as WBC got too low). I have had dry eyes for awhile, but suddenly I'm noticing my mouth is really dry. I also have frequent urination, and have had for sometime which is driving me crazy. I do see urologist next week about that issue
Elizka
in
MPN Voice
11 months ago
Question for PCa patients using Estradiol transdermal patch for bone protection and SEs
As I noted in an earlier now deleted post, I've been using the lowest dose E2 patch and saw an unexpected reduction in my glucose level from a recent blood test. What I am trying to ask are there any PCa patients using E2 transdermally in the group who have seen their usually elevated above range glucose
As I noted in an earlier now deleted post, I've been using the lowest dose E2 patch and saw an unexpected reduction in my glucose level from a recent blood test. What I am trying to ask are there any PCa patients using E2 transdermally in the group who have seen their usually elevated above range glucose
NewPotatoCaboose
in
Advanced Prostate Cancer
11 months ago
serum Alkaline phospharase abnormally high
hi My SLT results are usually all over the pace and dance around the 200/300 mark, but recently had a reading of over 600! I started taking Colysterimine for the itch (which is still driving me to distraction) and I’m thinking it’s this that is affecting the SLT result. I’ve swapped how I take my dose
hi My SLT results are usually all over the pace and dance around the 200/300 mark, but recently had a reading of over 600! I started taking Colysterimine for the itch (which is still driving me to distraction) and I’m thinking it’s this that is affecting the SLT result. I’ve swapped how I take my dose
mrsreddave
in
PBC Foundation
11 months ago
warm eye masks
can anyone recommend a type of warm eye mask? I have dry tired eyes and would like to try a warm mask but have seen some to put in microwave and some usb ones, Can anyone recommend please. I had slt laser bout 3 months ago -not worked and totally regret it.Eyes not felt same since. - back on Monopost
can anyone recommend a type of warm eye mask? I have dry tired eyes and would like to try a warm mask but have seen some to put in microwave and some usb ones, Can anyone recommend please. I had slt laser bout 3 months ago -not worked and totally regret it.Eyes not felt same since. - back on Monopost
swanlady123
in
Glaucoma UK
11 months ago
Megacolon
After a bowel impaction that started over 9 weeks ago and continual laxido /senna treatment and passding loads of motions ( and I mean loads !) I have been experiencing pain and gas all day. Last Tuesday because of this I stopped taking Laxido and stopped all laxitives completely but virtually every
After a bowel impaction that started over 9 weeks ago and continual laxido /senna treatment and passding loads of motions ( and I mean loads !) I have been experiencing pain and gas all day. Last Tuesday because of this I stopped taking Laxido and stopped all laxitives completely but virtually every
Shopnow1
in
IBS Network
8 months ago
Short of breath
On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fractions of radiation tomorrow. I am short of breath most of the time. A walk up a flight of stairs leaves me gasping. I continue to workout including running (slower and shorter since radiation started), hiking and weights
On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fractions of radiation tomorrow. I am short of breath most of the time. A walk up a flight of stairs leaves me gasping. I continue to workout including running (slower and shorter since radiation started), hiking and weights
SLOJIM
in
Advanced Prostate Cancer
11 months ago
Gastroenterology tel appointment
Finally had my annual gastro appointment. It was a bad line and he talked very fast. Seemed like he was reading a script and was hardly listening to me as he had already made up his mind. He said all my tests were normal and I have IBS. I already know that! He said I have a healthy bowel. By now I
Finally had my annual gastro appointment. It was a bad line and he talked very fast. Seemed like he was reading a script and was hardly listening to me as he had already made up his mind. He said all my tests were normal and I have IBS. I already know that! He said I have a healthy bowel. By now I
Edgar77
in
IBS Network
8 months ago
microlax
As I have posted on here before I have had constipation for over 10 yrs and after a recent colonoscopy I was told there was no cancer but I had diverticulitis as well as IBS and there was still some blockages in my large and small bowel. I am now on holiday on a cruise and I am using one Microlax each
As I have posted on here before I have had constipation for over 10 yrs and after a recent colonoscopy I was told there was no cancer but I had diverticulitis as well as IBS and there was still some blockages in my large and small bowel. I am now on holiday on a cruise and I am using one Microlax each
Reindeer1
in
IBS Network
8 months ago
How do I manage?
Hi all I first experienced tinnitus in 2020/21. My experience is it only affects my right ear, and can only describe it as sounding high pitched and in morse code. It is not a constant sound, but as I say, is a long beep sound followed by a few short beeps all day long. I had my ears cleaned of earwax
Hi all I first experienced tinnitus in 2020/21. My experience is it only affects my right ear, and can only describe it as sounding high pitched and in morse code. It is not a constant sound, but as I say, is a long beep sound followed by a few short beeps all day long. I had my ears cleaned of earwax
Indiarose00
in
Tinnitus UK
11 months ago
checking T constantly
My tinnitus is bilateral and 24/7. Just started CBT & therapist has set me the task of not “checking” my T by putting my fingers in my ears. I’m struggling not to do this - but unfortunately as I know my T is persistent - it’s a battle - because when I yawn of clench my jaw tightly - I know the T is
My tinnitus is bilateral and 24/7. Just started CBT & therapist has set me the task of not “checking” my T by putting my fingers in my ears. I’m struggling not to do this - but unfortunately as I know my T is persistent - it’s a battle - because when I yawn of clench my jaw tightly - I know the T is
Sassyjax1
in
Tinnitus UK
11 months ago
3 weeks into disimpaction and no elusive rusty tea.
Hello, I started a disimpaction regime for my 3 year old, 21 days ago. After two weeks we added a Senna Stimulant to assist and he has been on 8 sachets along with the Senna now for 3 weeks. Last Sunday he had a huge gravy like BM and I thought we had turned a corner, then back to lumpy (slightly watery
Hello, I started a disimpaction regime for my 3 year old, 21 days ago. After two weeks we added a Senna Stimulant to assist and he has been on 8 sachets along with the Senna now for 3 weeks. Last Sunday he had a huge gravy like BM and I thought we had turned a corner, then back to lumpy (slightly watery
Twim_mamaSA89
in
ERIC
11 months ago
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