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PK protocol
Patricia Kane protocol Share The Patricia Kane protocol (PK protocol) is an experimental treatment for neurological disease involving intravenous infusion of phospholipids and methylation factors, along with dietary changes and supplements. It is based on the theory that in diseases Kane classes as
Patricia Kane protocol Share The Patricia Kane protocol (PK protocol) is an experimental treatment for neurological disease involving intravenous infusion of phospholipids and methylation factors, along with dietary changes and supplements. It is based on the theory that in diseases Kane classes as
akgirlsrock
in
Cure Parkinson's
5 years ago
Agitated sleep
Hi everyone, I need ideas/advice to cope with my husband’s agitated sleep. He clasps and unclasps his hand and rubs constantly and rocks the boat which wakes me up. Or he rubs his face so hard he has red marks in the morning. I’m not sure about giving him a sleep aid or cbd oil: what have you experienced
Hi everyone, I need ideas/advice to cope with my husband’s agitated sleep. He clasps and unclasps his hand and rubs constantly and rocks the boat which wakes me up. Or he rubs his face so hard he has red marks in the morning. I’m not sure about giving him a sleep aid or cbd oil: what have you experienced
Caro2132
in
PSP Association
5 years ago
Newbie to this forum
Hi everyone just a little intro on myself I am 57 years old female was 5’3”now 5’1” Was diagnosed osteoporosis in 2013 after my eldest brother diagnosed real bad was advised his siblings get tested I drew the next short straw so as to speak. My T score as of Dec 2018 is 3.8 I been on calcium 2 x daily
Hi everyone just a little intro on myself I am 57 years old female was 5’3”now 5’1” Was diagnosed osteoporosis in 2013 after my eldest brother diagnosed real bad was advised his siblings get tested I drew the next short straw so as to speak. My T score as of Dec 2018 is 3.8 I been on calcium 2 x daily
Babyr1996
in
Bone Health and Osteoporosis UK
5 years ago
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Bone scan
Today I have been for a bone scan. I expected it to be ok. Unfortunately it wasn't. I have osteoporosis score of minus 3.4. I have been refusing alendronic acid as it is contraindicated for people with barrets esophagus my gp did not accept this. So again hand in pocket I am seeing someone privately
Today I have been for a bone scan. I expected it to be ok. Unfortunately it wasn't. I have osteoporosis score of minus 3.4. I have been refusing alendronic acid as it is contraindicated for people with barrets esophagus my gp did not accept this. So again hand in pocket I am seeing someone privately
Healthworrier
in
PMRGCAuk
5 years ago
Alendronic Acid
Do you know if it’s ok just to stop taking alendronic acid or should that be tapered too? I’ve been on it for a couple of years and the latest advice seems to be that two years is enough. My GP and rheum is may not agree!
Do you know if it’s ok just to stop taking alendronic acid or should that be tapered too? I’ve been on it for a couple of years and the latest advice seems to be that two years is enough. My GP and rheum is may not agree!
Thelmarina
in
PMRGCAuk
5 years ago
Dad 60 years young, Advance stage, Multiple Mets, Had first round of chemotherapy. Need help and guidance on what to expect.
Dear All, Thank you for your support and guidance. My Dad is 60 years young with 59.6 kg body weight. He is based in India and currently getting his treatment in Medanta The Medcity hospital in Gurugram (Near New Delhi). I forgot to mention that he is diabetic as well. Diabetes was also diagnosed at
Dear All, Thank you for your support and guidance. My Dad is 60 years young with 59.6 kg body weight. He is based in India and currently getting his treatment in Medanta The Medcity hospital in Gurugram (Near New Delhi). I forgot to mention that he is diabetic as well. Diabetes was also diagnosed at
Shahbazahmedazmi
in
Advanced Prostate Cancer
5 years ago
HIFU and Metabolic Control
Good day fellow brothers and sufferers. This is my first post and my story. I am in the UK, so all of my treatment, whatever it entails is totally free of charge, so cost has no part to play in my treatment choice. I am 68 years old. In February 2018 I had a routine PSA – came back at 4.8ng/ml UK units
Good day fellow brothers and sufferers. This is my first post and my story. I am in the UK, so all of my treatment, whatever it entails is totally free of charge, so cost has no part to play in my treatment choice. I am 68 years old. In February 2018 I had a routine PSA – came back at 4.8ng/ml UK units
TFBUNDY
in
Advanced Prostate Cancer
5 years ago
Bone protecting medication
After being on prednisolone since December my GP has decided to give me some medication to protect my bones one being alendronic acid to be taken one day a week she said I need to sit up straight for 30 mins after taking because I can cause acid problems with stomach I have already got gastric reflux
After being on prednisolone since December my GP has decided to give me some medication to protect my bones one being alendronic acid to be taken one day a week she said I need to sit up straight for 30 mins after taking because I can cause acid problems with stomach I have already got gastric reflux
Emerlad_70
in
PMRGCAuk
5 years ago
Bone & Liver Metastatis
Hello Doctor, My mom had been detected breast cancer in 2015 and had been successfully operated in January 2016 and was on tamoxifen 20 mg, But in May 2018 we got to know that the cancer had come back in the bones, it had spread to her bones in the left ala of the Sacrum, now a year after receiving
Hello Doctor, My mom had been detected breast cancer in 2015 and had been successfully operated in January 2016 and was on tamoxifen 20 mg, But in May 2018 we got to know that the cancer had come back in the bones, it had spread to her bones in the left ala of the Sacrum, now a year after receiving
shiviangels
in
Breast Cancer India
5 years ago
What options do I have left?
Good evening everyone, So after many emails and phone calls to PALS, they have finally given me an appointment for this Friday compared to waiting till July for my follow up regarding Zoladex treatment. I have been struggling the last 3 months on this injection so today I decided to stop anyways I am
Good evening everyone, So after many emails and phone calls to PALS, they have finally given me an appointment for this Friday compared to waiting till July for my follow up regarding Zoladex treatment. I have been struggling the last 3 months on this injection so today I decided to stop anyways I am
princessk09
in
Endometriosis UK
5 years ago
Dizziness
The past couple weeks have been great. I dare say most of my anxiety symptoms are gone but the dizziness persists. I’m left wondering if it’s my Zoloft or the anxiety. I didn’t have dizziness until I upped my dose to 150 since then I’ve gone back down to 125 but it hasn’t subsided much. Anyone have
The past couple weeks have been great. I dare say most of my anxiety symptoms are gone but the dizziness persists. I’m left wondering if it’s my Zoloft or the anxiety. I didn’t have dizziness until I upped my dose to 150 since then I’ve gone back down to 125 but it hasn’t subsided much. Anyone have
Mongea
in
Anxiety Support
5 years ago
Update - 8 weeks of injections and some new symptoms
Hi, I am having injections from last 8 weeks and have seen improvements in some areas. Blurred vision has improved and so does night vision. But shimmering effect is still there. Eyes try to move around the focused object and it feels like words have slight to and fro motion. This is probably the strangest
Hi, I am having injections from last 8 weeks and have seen improvements in some areas. Blurred vision has improved and so does night vision. But shimmering effect is still there. Eyes try to move around the focused object and it feels like words have slight to and fro motion. This is probably the strangest
TACCT
in
Pernicious Anaemia Society
5 years ago
Calcium Vit D
Came across this in the Daily Mail today. https://www.dailymail.co.uk/health/article-6899133/Nutritional-supplements-dont-work.html GCA since December 2015 and now down to 4.5mg of Pred. Stopped taking Alendronic Acid ages ago and only take 1 tablet of Calcium VitD a day. Do I need to be taking it anymore
Came across this in the Daily Mail today. https://www.dailymail.co.uk/health/article-6899133/Nutritional-supplements-dont-work.html GCA since December 2015 and now down to 4.5mg of Pred. Stopped taking Alendronic Acid ages ago and only take 1 tablet of Calcium VitD a day. Do I need to be taking it anymore
AnthonyH
in
PMRGCAuk
5 years ago
Pain relief query
Hi everyone - I’m currently taking the mini pill which is keeping the pain at a pretty nonexistent level which is amazing! However without the mini pill, the endo is debilitating, mefanamic acid does nothing, I can’t leave th house and it really impacts my bowels too! My question is there will be a
Hi everyone - I’m currently taking the mini pill which is keeping the pain at a pretty nonexistent level which is amazing! However without the mini pill, the endo is debilitating, mefanamic acid does nothing, I can’t leave th house and it really impacts my bowels too! My question is there will be a
Pinkblossom1
in
Endometriosis UK
5 years ago
Walsh protocol
Have you ever read about Walsh protocol? It’s interesting and if you are against any medication, maybe this is something you can try. This is about our chemicals in the body, vitamins, minerals, amino acids, nutrients, etc. My son is suffering for so many years of depression, anxiety, OCD, and many more
Have you ever read about Walsh protocol? It’s interesting and if you are against any medication, maybe this is something you can try. This is about our chemicals in the body, vitamins, minerals, amino acids, nutrients, etc. My son is suffering for so many years of depression, anxiety, OCD, and many more
SGV66
in
Anxiety and Depression Support
5 years ago
Infusion Reaction Now What...?
Hi In January this year 2019 I had my 1st (and last!!) Infusion of Zoledronic Acid, I was told that I could have flu type symptoms for a week and my joints may ache more, (I have Hypomobility Ehlers Danlos Syndrome hEDS, & Gut Dismortility GD) but I wasn't prepared for the awful reaction that I had,
Hi In January this year 2019 I had my 1st (and last!!) Infusion of Zoledronic Acid, I was told that I could have flu type symptoms for a week and my joints may ache more, (I have Hypomobility Ehlers Danlos Syndrome hEDS, & Gut Dismortility GD) but I wasn't prepared for the awful reaction that I had,
Charlie50
in
Bone Health and Osteoporosis UK
5 years ago
When to stop Co-Q10/ubiquinone/ubiquinol?
Hello lovely ladies, I am due to start my priming in three days, and stimming in about 15-20 days. This time, along with the preconception multivitamin and the extra Vitamin D, I have also been taking omega-3 and Co-Q10 (in the ubiquinone form). On "It starts with the egg" the author seems to say to
Hello lovely ladies, I am due to start my priming in three days, and stimming in about 15-20 days. This time, along with the preconception multivitamin and the extra Vitamin D, I have also been taking omega-3 and Co-Q10 (in the ubiquinone form). On "It starts with the egg" the author seems to say to
MofM
in
Fertility Network UK
5 years ago
Newly diagnosed
Hi ,about a month ago I had a dexa scan because I had a bad fall and broke both bones in my wrist .I was offered surgery which I rejected as I was off to Lapland the following Friday.Bit silly you might say but the guy who put my cast on reckoned that a lot of surgery is unnecessary.Well I went off in
Hi ,about a month ago I had a dexa scan because I had a bad fall and broke both bones in my wrist .I was offered surgery which I rejected as I was off to Lapland the following Friday.Bit silly you might say but the guy who put my cast on reckoned that a lot of surgery is unnecessary.Well I went off in
New-Osti
in
Bone Health and Osteoporosis UK
5 years ago
Temazepan or OTC sleep aid?
Hey everyone. Last three nights I slept three hours yet I don't feel sleepy in the morning which is concerning. I do have anxiety and panic disorder but I'm not sure if my sleep problem triggered it this time or of my disorder triggered insomnia. I have Temazepan prescription but scared to use it. Even
Hey everyone. Last three nights I slept three hours yet I don't feel sleepy in the morning which is concerning. I do have anxiety and panic disorder but I'm not sure if my sleep problem triggered it this time or of my disorder triggered insomnia. I have Temazepan prescription but scared to use it. Even
Clarita83
in
Sleep Matters
5 years ago
Newly diagnosed with pmr and Gp has suggested alendronate to preserve bone density while taking prednisone. Would prefer diet & excercise.
Having read all I can on the topic it seems the research points to biphosphonates as being superior to diet (including extra calcium & vit D) & excercise for preventing bone loss in post menopausal women. Would love to know if anyone can show evidence this may not be true as would much prefer to try
Having read all I can on the topic it seems the research points to biphosphonates as being superior to diet (including extra calcium & vit D) & excercise for preventing bone loss in post menopausal women. Would love to know if anyone can show evidence this may not be true as would much prefer to try
Ann-1
in
PMRGCAuk
5 years ago
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