Good day fellow brothers and sufferers. This is my first post and my story. I am in the UK, so all of my treatment, whatever it entails is totally free of charge, so cost has no part to play in my treatment choice. I am 68 years old. In February 2018 I had a routine PSA – came back at 4.8ng/ml UK units. I was offered a DRE by my GP, or the option of a proper hospital investigation. I took the latter because I had seen my father die horribly from prostate cancer, and I know the trajectory all too well. The hospital routine is a full investigation and diagnosis in 1 day – DRE, mpMRI, and biopsy. I had a DRE – nothing there. I am no fan of biopsy up the bum, so I decided to have the mpMRI, and go home. To get the results of the MRI, all the guys were lined up in the backless gowns for a chat with the consultant, have the biopsy, take the pack of antibiotics and go home. I was the only one in civvies....
When my turn for the chat came, I got a 'look', which I ascribed to my attire. Unfortunately I was wrong. I was shown a nice clear scan of a 12mm diameter tumour on the posterior lobe, and was told that this looks like the sort we worry about. Ah – then I think I'll go home and regroup, and have a think. I dived into the internet to see what my options looked like. Hyperthermia was top of my list, but only available in private clinics in Germany. Did I say cost was no consideration? I lied. Joint second on my list was Cyberknife, and HIFU. I contacted my friends daughter who is a GP (mine is useless), and she recommended a urologist to me in Southampton. A long way from home. I sent an Email and forgot about it. My primary care hospital sent me the preliminary scan diagnosis in the post and invited me back for a chat. The system moves no further without a biopsy. The German clinics recommended NO BIOPSY prior to treatment. Oh. Against my gut, I took the offer of a Template biopsy. It took 3 months to happen. Gleeson 3+4 across 2 large areas anterior and posterior lobes, assessed as T2. And PIN. Lots of PIN. We don't like HIFU across 2 lesions, we don't like HIFU on large lesions. We can put you on ADT for a few months and then put your prostate in the bin. Do you want the injection right now? Mmmm. NO thanks! I'll go away and regroup. I read. I crash dieted, at one point eating NOTHING for 5 days, dropping from a trim 82kg to a Belson like 68g. I have ribs. Herxheimer is real! Trust me.
I looked for clinical trials. Saw one for HIFU in London. Sent the scan and biopsy, and went for a chat. Sorry – 2 large lesions, and we assess the data as T3a. Not suitable for HIFU. Nerve sparing only possible on one side. Oh. T3a... I think I'll panic then. I saw another clinical trial for Cyberknife. Sent the scan and biopsy report. 2 lesions, too big, T3a, go for whole gland radiation NOW! I asked my original centre for a scan reassessment – still T2 they said. Who is right? What to do? And why did I have to do a 400 mile round trip when they could have phoned or Emailed to say that? Where I live we have phones, and electric lights!
By September my PSA was 8.1. Bugger. Saw another Consultant. I suggest whole gland radiation, soon... I didn't like that! Of course he was a Radiotherapist. I'll go home and regroup... Bugger bugger bugger.
Then I got a letter from Southampton (I had sent the scan and the biopsy report), agreeing T2, and because I had refused conventional treatment, offered HIFU. I bit off his hand. We went on a long holiday, involving lots of food and drink (it was included in the price and it would have been rude to refuse). LOTS...
When my PSA hit 8.1 I started on intermittent LDN 4.5mg/d (2 days then a day off). I started vitamin D3, magnesium, and Hymecromone (4-MU), aspirin, and green tea extract. Even on holiday. In October I was called to Southampton for a pre-op assessment, including PSA. Yes. I was worried. Very. Would it be 10? Or worse? No sleep that night following a 250 mile drive home. The result came in. PSA 4.4. FOUR POINT BLOODY FOUR. RESULT!! I'm doing something right – the lowest value for a year.
Extensive HIFU destroyed 40% of my prostate in November, leaving me with a supra-pubic catheter and a leg bag for my train journey home the next day. At least I had the choice which way to pee. Or both at once. The SPC was there for many weeks, and was not nice, but a God-send because after 2 months the debris of necrotic tissue started with a vengeance. Impossibly big lumps – some as big as small peas. I had the dubious pleasure of self catheterisation lessons so I could rod out the debris. Do people do this for fun!!! By this time I had added the Care Oncology protocol – Atorvastatin, Metformin, Mabendazole, and Doxycycline, and also Silibinin. 3 months after HIFU my first PSA test. ONE point FOUR!! And at 6 months, my latest PSA is ONE point TWO. I think that is a RESULT!! I have to thank Tim Dudderidge in Southampton for taking the challenge, and for remarkable work with the Sonic Screwdriver. I am building on the foundation of his work.
The best money I have ever spent in my life is the book 'How to Starve Cancer' by Jane McLelland. 4 quid – 6 bucks as a download from Amazon. I owe Jane a huge Thank You for an amazing piece of work, and for making it available at a low price. Don't wait – buy it NOW! I am about to add Berberine, Hydroxycitrate, Oleanic acid, alpha Lipoic Acid, and Ursolic Acid to my protocol. I have experimented with THC/ CBDa but I don't like it a bit. Sublingual. It is FOUL. And it makes me feel pessimistic, and physically close to paraplegia for a very long time. Do people do this for fun?
So there it is. If your Urologist is a surgeon, he will want to put your prostate in the bin. If he is a radiotherapist he will want to make your prostate glow in the dark. Outside of their own specialism most don't know their arses from their elbows, and don't want to know, which is worse. You have to take charge, read, learn, listen, be brave, and Never Stop. Read Tom Seyfried, Travis Kristofferson, listen to George Yu, and get The Book by Jane McLelland. I believe strongly that we are dealing with a metabolic disease of the mitochondria, and a multi level attack is necessary. And if you are wondering – I have all of my faculties (well BOTH my faculties). This thing thrives on complacency. Beat it then beat it again, then kill it and kill it some more. Then do it all again. Kill the fox by killing the rabbits, the chickens, the rats and mice, and lock down the bin lids, and maintain Nuclear War. Maybe forever. Never stop. Live in hope and leave no turd unstoned.... Good luck to you all
PSMA - how is this?
Watching and waiting
My Introduction - elevated psa, unconfirmed prostate cancer
