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Hey Lupron, where's my side effects?
Hello everyone, I got my first Lupron shot about 9 weeks back. When I saw my Onc at 7 weeks I told him that I could not clearly identify any side effects. He wasn't surprised, but I sure am! He did say that I would have noticed by then, but I'm wondering if the bomb has yet to drop
Hello everyone, I got my first Lupron shot about 9 weeks back. When I saw my Onc at 7 weeks I told him that I could not clearly identify any side effects. He wasn't surprised, but I sure am! He did say that I would have noticed by then, but I'm wondering if the bomb has yet to drop
Lewellen
in
Advanced Prostate Cancer
2 years ago
paxlovid and lupron
just tested positive Covid. My doc has raised some question about coronary issues interacting with the two drugs. She’s researching. Anybody have any anecdotal experience or better yet, real science. I’m on 6 month lupron, abiraterone 1000 mg and 5 mg prednisone.
just tested positive Covid. My doc has raised some question about coronary issues interacting with the two drugs. She’s researching. Anybody have any anecdotal experience or better yet, real science. I’m on 6 month lupron, abiraterone 1000 mg and 5 mg prednisone.
Papa1
in
Advanced Prostate Cancer
2 years ago
Genetic testing recommendations
Just diagnosed with metastatic prostate cancer (M1B) and have started ADT: lupron + darolutamide (more details in profile). Looking for recommendations to insure I have the best genetic information available. Tumor was submitted for Decipher testing which came back as low risk (0.24). Submitted
Just diagnosed with metastatic prostate cancer (M1B) and have started ADT: lupron + darolutamide (more details in profile). Looking for recommendations to insure I have the best genetic information available. Tumor was submitted for Decipher testing which came back as low risk (0.24). Submitted
Heykm01
in
Advanced Prostate Cancer
2 years ago
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Liver Enzymes
Metastatic Prostate cancer for 10 months. On Lupron, Abiraterone and Prednisone. My Liver enzymes are starting to rise. Anyone else have this reaction and how was it handled?
Metastatic Prostate cancer for 10 months. On Lupron, Abiraterone and Prednisone. My Liver enzymes are starting to rise. Anyone else have this reaction and how was it handled?
Rusty31
in
Advanced Prostate Cancer
2 years ago
Endometriosis and Adenomyosis
any advice on how to prepare for a next transfer with endometrisos and Adenomyosis? I feel my issue has been implantation issue and related to my condition. the last cycle I took lupron before my transfer and it lead to a positive but chemical. any advice would be great
any advice on how to prepare for a next transfer with endometrisos and Adenomyosis? I feel my issue has been implantation issue and related to my condition. the last cycle I took lupron before my transfer and it lead to a positive but chemical. any advice would be great
Chantysal
in
Fertility Network UK
2 years ago
Brain metastasis treatment options?
Hi everyone, I’ve only written here once before about my dad’s (62) battle with prostate cancer (Stage 3, Gleason 9 at dx May 2019). Sadly we’ve had yet more bad news over these past two weeks. Last summer we learned that his cancer had spread to one isolated nodule on his lung (oligometastasis - very
Hi everyone, I’ve only written here once before about my dad’s (62) battle with prostate cancer (Stage 3, Gleason 9 at dx May 2019). Sadly we’ve had yet more bad news over these past two weeks. Last summer we learned that his cancer had spread to one isolated nodule on his lung (oligometastasis - very
Bradshawsl
in
Advanced Prostate Cancer
2 years ago
Tough Questions
I have never actually asked the MO how long, because I know the answer. Every patient is different, it’s in Gods hands, hard to say with new treatments coming out…but I feel like it is time. My husband has been through hell since diagnosis 18 months ago (advanced metastatic PC). He has gone through
I have never actually asked the MO how long, because I know the answer. Every patient is different, it’s in Gods hands, hard to say with new treatments coming out…but I feel like it is time. My husband has been through hell since diagnosis 18 months ago (advanced metastatic PC). He has gone through
Sipj
in
Advanced Prostate Cancer
2 years ago
SOC options have run out, PSMA negative, declining health - what's next?
My husband was diagnosed with high grade prostate cancer in 4/06 Gleason 4+3=7 in 12/12 cores with 90 to 100% involvement of the tissue cores. His original clinical staging was T2c versus T3. PSA at that time was 6.4. -First treatment was brachytherapy and IMRT. Undetectable PSA never reached. -Recurrance
My husband was diagnosed with high grade prostate cancer in 4/06 Gleason 4+3=7 in 12/12 cores with 90 to 100% involvement of the tissue cores. His original clinical staging was T2c versus T3. PSA at that time was 6.4. -First treatment was brachytherapy and IMRT. Undetectable PSA never reached. -Recurrance
Hidden
in
Advanced Prostate Cancer
2 years ago
TP53 missense mutation 11%
21 months in, still hormone sensitive Lupron and zytiga....PSA 0.1 Stage 4 metastatic innumerable mets no visceral. Oncologist told me I have 11% TP53 Missense mutation????What effect will that have on me. Also report says I have low tumor burden, I would assume that's good. Overall Doc say I am doing
21 months in, still hormone sensitive Lupron and zytiga....PSA 0.1 Stage 4 metastatic innumerable mets no visceral. Oncologist told me I have 11% TP53 Missense mutation????What effect will that have on me. Also report says I have low tumor burden, I would assume that's good. Overall Doc say I am doing
wolverine11
in
Advanced Prostate Cancer
2 years ago
PSMA scan results
Am I crazy to think this is better news than we could expect? Husband is 53, diagnosed at 50 with Gleason 8, PSA 16, mets to 20+ enlarged lymph nodes in pelvis and possible 2 bone mets to iliac (lymph nodes and bone did not show up on bone scan or ct, only on mri, and the bone ones were very inconclusive
Am I crazy to think this is better news than we could expect? Husband is 53, diagnosed at 50 with Gleason 8, PSA 16, mets to 20+ enlarged lymph nodes in pelvis and possible 2 bone mets to iliac (lymph nodes and bone did not show up on bone scan or ct, only on mri, and the bone ones were very inconclusive
User14952
in
Advanced Prostate Cancer
2 years ago
daughter of stage iv patient here
my mom called my 7/30/22 alerting me that my father wasn’t looking good, at all. I had seen him in March earlier that year and he was having hip and back pain, but otherwise, looked normal, if not a little tired. But some time late June/early July he lost a lot of weight, started walking weird, experiencing
my mom called my 7/30/22 alerting me that my father wasn’t looking good, at all. I had seen him in March earlier that year and he was having hip and back pain, but otherwise, looked normal, if not a little tired. But some time late June/early July he lost a lot of weight, started walking weird, experiencing
Shelboop
in
Advanced Prostate Cancer
2 years ago
New metastasis found
Well rats. C-11 Choline scan today. Last scan was 2/22. FWIW, Lupron vacation since March. PSA undetectable today, but the scan: 1. New choline avid marrow occupying lesion in the mid right humerus likely represents metastaticdisease. Additional focus of choline uptake in the sternum near the
Well rats. C-11 Choline scan today. Last scan was 2/22. FWIW, Lupron vacation since March. PSA undetectable today, but the scan: 1. New choline avid marrow occupying lesion in the mid right humerus likely represents metastaticdisease. Additional focus of choline uptake in the sternum near the
swwags
in
Advanced Prostate Cancer
2 years ago
Does Cabazitaxel decrease quality of life?
First time poster, been following along all of your journeys for a while now and find some of the information very helpful and hopeful given my dads condition. Short summary - he was diagnosed with advanced prostate cancer four years ago, PSA was in the 200s. Proceeded with Lupron (still receiving
First time poster, been following along all of your journeys for a while now and find some of the information very helpful and hopeful given my dads condition. Short summary - he was diagnosed with advanced prostate cancer four years ago, PSA was in the 200s. Proceeded with Lupron (still receiving
Imhereforhelp
in
Advanced Prostate Cancer
2 years ago
what side effects can I expect taking Zytiga?
I am about to begin treatment with Lupron and Zytiga. I pretty much understand the Lupron side effects but the doc wants me on Zytiga also because of bone involvement. Does anyone have any experience with this med? Thanks
I am about to begin treatment with Lupron and Zytiga. I pretty much understand the Lupron side effects but the doc wants me on Zytiga also because of bone involvement. Does anyone have any experience with this med? Thanks
OldGuysRule
in
Advanced Prostate Cancer
2 years ago
Can Acupuncture reduce hot flashes
I’m having 6-10 hot flashes per day/night on Lupron 3-month injections. They’re interfering with my sleep. Hot flashes are the only remaining side effect (of Lupron) after stopping Abiraterone and Hydrocortisone ADT in January 2022 when my MO said my PSA of 0.06 was “near undetectable.” Yippee, a bunch
I’m having 6-10 hot flashes per day/night on Lupron 3-month injections. They’re interfering with my sleep. Hot flashes are the only remaining side effect (of Lupron) after stopping Abiraterone and Hydrocortisone ADT in January 2022 when my MO said my PSA of 0.06 was “near undetectable.” Yippee, a bunch
happycamperguy
in
Advanced Prostate Cancer
2 years ago
"Stable but evolving"
Brief history: Husband 1st diagnosed 2014, age 67. PSA 18, robotic surgery. No follow up recommended. Recurrence 2018, PSA 17. Lupron, then Lupron+Bicalutamide unsuccessful. Lupron+Xtandi started early 2020, PSA undetectable but lots of side effects. July 2022, PSA first slight rise. August 2022 increased
Brief history: Husband 1st diagnosed 2014, age 67. PSA 18, robotic surgery. No follow up recommended. Recurrence 2018, PSA 17. Lupron, then Lupron+Bicalutamide unsuccessful. Lupron+Xtandi started early 2020, PSA undetectable but lots of side effects. July 2022, PSA first slight rise. August 2022 increased
Shamrock46
in
Advanced Prostate Cancer
2 years ago
Failing nubequa mono therapy follow up and salvage focal therapy options
Failing nubequa mono therapy with a doubling time of 8 months, Deciding what to do next with a Psa of 3,5. If adding lupron fails try orgovyx. Than what!, Recent f18 psma pet\ct scan showed local prostate reccurrence of 2cm tumor on left side of prostate non metastatic. R O said no salvage therapy on
Failing nubequa mono therapy with a doubling time of 8 months, Deciding what to do next with a Psa of 3,5. If adding lupron fails try orgovyx. Than what!, Recent f18 psma pet\ct scan showed local prostate reccurrence of 2cm tumor on left side of prostate non metastatic. R O said no salvage therapy on
rococo
in
Advanced Prostate Cancer
2 years ago
Lupron regimen, what happens if you stop!
What are the consequences of discontinuing a Lupron regimen? Can the body ever restore its previous levels of testosterone?
What are the consequences of discontinuing a Lupron regimen? Can the body ever restore its previous levels of testosterone?
Trinity101
in
Advanced Prostate Cancer
2 years ago
Guardant Liquid Biopsy - when is best to do this?
So, recently diagnosed with de novo high volume metastatic PC. On Lupron and 1/2 way thru 6 docetaxel chemo treatments. Had genomic testing of biopsy sample which showed MMR deficient and MSI high. MO suggested doing liquid biopsy, though unclear on timing. Curious as to what might be optimal timing;
So, recently diagnosed with de novo high volume metastatic PC. On Lupron and 1/2 way thru 6 docetaxel chemo treatments. Had genomic testing of biopsy sample which showed MMR deficient and MSI high. MO suggested doing liquid biopsy, though unclear on timing. Curious as to what might be optimal timing;
rsgdmd
in
Advanced Prostate Cancer
2 years ago
Testosterone - How low can it go?
Briefly, diagnosed in April with de novo high volume metastatic PC. Plan was to follow PEACE-1: Lupron, abiraterone & 6 rounds of docetaxel. Had to stop abiraterone first for irreg. heartbeat & then right before starting chemo as bilirubin went way up. Since chemo is hard on the liver, abiraterone is
Briefly, diagnosed in April with de novo high volume metastatic PC. Plan was to follow PEACE-1: Lupron, abiraterone & 6 rounds of docetaxel. Had to stop abiraterone first for irreg. heartbeat & then right before starting chemo as bilirubin went way up. Since chemo is hard on the liver, abiraterone is
rsgdmd
in
Advanced Prostate Cancer
2 years ago
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