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How do you find a good oncologist and how do you overcome the side effects of Lupron?
My dad is in his 70's and is taking Lupron shots every six months but it is negatively impacting his mental health to the point where he is going to stop taking it. He had his prostate removed and radiation about ten years ago when he was first diagnosed. I'm really worried about him because at this
My dad is in his 70's and is taking Lupron shots every six months but it is negatively impacting his mental health to the point where he is going to stop taking it. He had his prostate removed and radiation about ten years ago when he was first diagnosed. I'm really worried about him because at this
lulssunbonnet
in
Advanced Prostate Cancer
1 year ago
gleason score
first clue was psa 250 then 300 on re-check. Psma showed local mets to nodes and suspicious to nodes in back. Started lupron 2 weeks ago. Just had biopsy which showed gleason score of 4+3= 7. Im happily shocked, was prepared for a 10. i’m not sure what to even think about this. Any of you big brains
first clue was psa 250 then 300 on re-check. Psma showed local mets to nodes and suspicious to nodes in back. Started lupron 2 weeks ago. Just had biopsy which showed gleason score of 4+3= 7. Im happily shocked, was prepared for a 10. i’m not sure what to even think about this. Any of you big brains
pj1121
in
Advanced Prostate Cancer
1 year ago
Any ideas for hot flashes? Getting worse.
Dx in 8/2020 with Gleason 8. Had RP 11/2020. One lymph node involved so MO/RO at MGH recommended aggressive treatment. Went on Lupron and Abi for 2 years and 39 radiation treatments. All drug treatment ended in April of this year. Hot flashed started after a few months on Lupron and were bearable
Dx in 8/2020 with Gleason 8. Had RP 11/2020. One lymph node involved so MO/RO at MGH recommended aggressive treatment. Went on Lupron and Abi for 2 years and 39 radiation treatments. All drug treatment ended in April of this year. Hot flashed started after a few months on Lupron and were bearable
reichel
in
Advanced Prostate Cancer
1 year ago
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Two Qs: Benefits treatment; onset of bone pain
Greetings all. As my bio explains, I am 5 yrs since diagnosis. Had removal surgery, and then EB radiation. PSA kept climbing so I started Lupron 2 years ago. Worked until recently when PSA spiked. PETscan showed metastasis for first time into torso lymph nodes. Been on Aberiterone and Prednisone for
Greetings all. As my bio explains, I am 5 yrs since diagnosis. Had removal surgery, and then EB radiation. PSA kept climbing so I started Lupron 2 years ago. Worked until recently when PSA spiked. PETscan showed metastasis for first time into torso lymph nodes. Been on Aberiterone and Prednisone for
Sierra-Charlie
in
Advanced Prostate Cancer
1 year ago
Intro
All my life, since first fickle finger test at 16, I have had either an enlarged prostate or a VERY large prostate. Annual PSA for well over 20 years, always good. 18 months ago, 5, which they tell me for my advanced age is "good". Urologist followup due to a kidney stone previous year 3 months after
All my life, since first fickle finger test at 16, I have had either an enlarged prostate or a VERY large prostate. Annual PSA for well over 20 years, always good. 18 months ago, 5, which they tell me for my advanced age is "good". Urologist followup due to a kidney stone previous year 3 months after
Flathead
in
Advanced Prostate Cancer
1 year ago
I fired my oncologist
Almost a year ago I had radiation and started Lupron, Prednesone, and Abiraterone which immediately brought my PSA and T levels to undetectable. I also enrolled in a clinical trial of an experimental immunotherapy drug SD-101 along with infusions of Keytruda (pembrolizumab). I became extremely depressed
Almost a year ago I had radiation and started Lupron, Prednesone, and Abiraterone which immediately brought my PSA and T levels to undetectable. I also enrolled in a clinical trial of an experimental immunotherapy drug SD-101 along with infusions of Keytruda (pembrolizumab). I became extremely depressed
cageycruz
in
Advanced Prostate Cancer
1 year ago
Eligard Injection in Arm?!
My father has always received his Eligard shots in his abdomen. For whatever reason, the nurse who injected him gave it to him in his arm. Is this a cause for concern? I already asked his oncologist in an email but no response. I looked up that Lupron is given intramuscularly but Eligard is subcutaneous
My father has always received his Eligard shots in his abdomen. For whatever reason, the nurse who injected him gave it to him in his arm. Is this a cause for concern? I already asked his oncologist in an email but no response. I looked up that Lupron is given intramuscularly but Eligard is subcutaneous
ThisIsForMyDad
in
Advanced Prostate Cancer
1 year ago
After Zofigo, what next?
Posting an update. My husband just finished 6 sessions of Zofigo (Ra223), which his doctor (MO) recommended after he failed Lupron in 12/21, and then Xtandi in 11/22. He weathered it great, with only mild digestive issues and he continues to be asymptomatic. He meets with his oncologist in two weeks
Posting an update. My husband just finished 6 sessions of Zofigo (Ra223), which his doctor (MO) recommended after he failed Lupron in 12/21, and then Xtandi in 11/22. He weathered it great, with only mild digestive issues and he continues to be asymptomatic. He meets with his oncologist in two weeks
Tinuriel
in
Advanced Prostate Cancer
1 year ago
Irrational emotional mood swings on ADT
I have recently had some irrational emotional mood swings . I had a similar experience about 6 months ago, they went away within the week. I did not equate it then with my total lack of Testosterone but after seeing some discussions on this board I realized that it was my female side in full bloom. Thankfully
I have recently had some irrational emotional mood swings . I had a similar experience about 6 months ago, they went away within the week. I did not equate it then with my total lack of Testosterone but after seeing some discussions on this board I realized that it was my female side in full bloom. Thankfully
Scout4answers
in
Fight Prostate Cancer
1 year ago
Irrational emotional mood swings on ADT
I have recently had some irrational emotional mood swings . I had a similar experience about 6 months ago, they went away within the week. I did not equate it then with my total lack of Testosterone but after seeing some discussions on this board I realized that it was my female side in full bloom. Thankfully
I have recently had some irrational emotional mood swings . I had a similar experience about 6 months ago, they went away within the week. I did not equate it then with my total lack of Testosterone but after seeing some discussions on this board I realized that it was my female side in full bloom. Thankfully
Scout4answers
in
Advanced Prostate Cancer
1 year ago
xtandi Guys
I have been on xtandi now for 14 months PSA<0.1. How long have you been on xtandi or how long did it take for the drug too fail. Also I been on lupron continuously since 2016. Thanks for your opinions
I have been on xtandi now for 14 months PSA<0.1. How long have you been on xtandi or how long did it take for the drug too fail. Also I been on lupron continuously since 2016. Thanks for your opinions
Echotango51
in
Advanced Prostate Cancer
1 year ago
Treatment Options
Hi, Looking for some help with options presented by my MO. Below are my latest PSA results PSA TOTAL. 0.77. 07/10/2023 PSA TOTAL 0.67. 06/20/2023 PSA TOTAL 0.17. 03/21/2023 PSA TOTAL. 0.38. 12/20/2022 PSA TOTAL. 0.67. 11/15/2022 PSA TOTAL. 0.64. 10/25/2022 Been
Hi, Looking for some help with options presented by my MO. Below are my latest PSA results PSA TOTAL. 0.77. 07/10/2023 PSA TOTAL 0.67. 06/20/2023 PSA TOTAL 0.17. 03/21/2023 PSA TOTAL. 0.38. 12/20/2022 PSA TOTAL. 0.67. 11/15/2022 PSA TOTAL. 0.64. 10/25/2022 Been
Coachmy4
in
Advanced Prostate Cancer
1 year ago
Lupron from 3 to 6 months
Hi Fellow PC warriors, Since my PSA is undetectable, less than 0.01, and I’m otherwise in good health with stage 4 and mets throughout, my urologist suggests I go from 3 month injections intervals to every 6 months. He mentioned that the side effects are similar and the only change is going from
Hi Fellow PC warriors, Since my PSA is undetectable, less than 0.01, and I’m otherwise in good health with stage 4 and mets throughout, my urologist suggests I go from 3 month injections intervals to every 6 months. He mentioned that the side effects are similar and the only change is going from
Lslal
in
Advanced Prostate Cancer
1 year ago
PSMA PET and PSA
Hi, my Dad was diagnosed with PC 2 years ago, had Radiation and has been on Lupron, Abiraterone and Prednisone ever since. Recently he had a PSMA PET that reads: “The prostate gland has decreased in size from 6/6/2022, now spanning 3.6 cm in transverse dimension, previously spanning 4.1 cm in transverse
Hi, my Dad was diagnosed with PC 2 years ago, had Radiation and has been on Lupron, Abiraterone and Prednisone ever since. Recently he had a PSMA PET that reads: “The prostate gland has decreased in size from 6/6/2022, now spanning 3.6 cm in transverse dimension, previously spanning 4.1 cm in transverse
Simonapo
in
Advanced Prostate Cancer
1 year ago
update on Oncology appointment
hi everyone- I wrote in the group last week about my dads mixed response to treatment. He has been NED on treatment (Ibrance lupron letrozole) for about 10-12 months and then his scan in July showed some uptake in his right chest wall. 2 spots were very small SUV and there was another lymph node with
hi everyone- I wrote in the group last week about my dads mixed response to treatment. He has been NED on treatment (Ibrance lupron letrozole) for about 10-12 months and then his scan in July showed some uptake in his right chest wall. 2 spots were very small SUV and there was another lymph node with
Jenniferp2122
in
SHARE Metastatic Breast Cancer
1 year ago
How much exercise needed?
I know everybody’s body differs but … still I’d like some guidelines. Until a couple years ago I was pretty fit, running most days, going to gym 2x per week but then started having hip pain. I would’ve replaced hip but got Dx with PCa 6 months ago and so have postponed that. I’ve had HDR Brachy and
I know everybody’s body differs but … still I’d like some guidelines. Until a couple years ago I was pretty fit, running most days, going to gym 2x per week but then started having hip pain. I would’ve replaced hip but got Dx with PCa 6 months ago and so have postponed that. I’ve had HDR Brachy and
BobC1234
in
Advanced Prostate Cancer
1 year ago
My Bladder Cancer Update.
My latest flexy cystoscopy showed I had no tumour in my bladder, backing up what was said in Autumn 2023 and that was a complete turn-around. Seems my BCG has worked in as far as there si no tumour growth. I still have cancer cells because I have cancer in situ (CIS) but at moment is low grade. So
My latest flexy cystoscopy showed I had no tumour in my bladder, backing up what was said in Autumn 2023 and that was a complete turn-around. Seems my BCG has worked in as far as there si no tumour growth. I still have cancer cells because I have cancer in situ (CIS) but at moment is low grade. So
Ern007
in
Lung Conditions Community Forum
6 months ago
Wednesday The 14th.
I promised a painting for the 14 and being a heart shape canvas I could not use the easel. I ruined the picture with my sleeve going in paint on palate and it got onto painting - Ruined. I have done one not as good by painting the canvas black, and painted a picture ok for black canvas, Could not
I promised a painting for the 14 and being a heart shape canvas I could not use the easel. I ruined the picture with my sleeve going in paint on palate and it got onto painting - Ruined. I have done one not as good by painting the canvas black, and painted a picture ok for black canvas, Could not
Ern007
in
Lung Conditions Community Forum
6 months ago
Prednisone side effects
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
I've been on Lupron/Abi/Pred for about 13 months. Never had high blood pressure prior to this ADT treatment. Was warned that high BP was one of the primary side effects of my treatment plan. Pretty quickly, I developed elevated BP and I am on 50mg of Losartan daily. 25mg wasn't enough. I am also
jmarsh
in
Advanced Prostate Cancer
1 year ago
Can cancer grow while PSA stays undetectable ?
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
I am almost 2 years since my diagnosis MPC. I did not have radiation nor Surgery since cancer was in my pelvic bone already.I had ADT since they 1 and I responded quite well.I started with Firmagon and Abirateron and now get Lupron injections every 3 months and take half Dose Erleada daily (2x 60 mg
mynacho
in
Advanced Prostate Cancer
1 year ago
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