Search
Search
About
Log in
Join
Experiences with
Nuprin
Posts
Communities
4,099 public posts
Filter results
Can A Person Take a Break From Lupron?
My dad is on Lupron and Xgeva. He hates the shots and I don't why he has to receive them along with Xtandi and numerous horrible side effects. Why do doctors make you get the shots every month?
My dad is on Lupron and Xgeva. He hates the shots and I don't why he has to receive them along with Xtandi and numerous horrible side effects. Why do doctors make you get the shots every month?
Olivia007
in
Advanced Prostate Cancer
4 years ago
First chemo, just sharing...
After just one year my advanced PC that was being treated with Lupron and Apalutamide has now progressed to additional bone sites and lymph nodes. New sites are undifferentiated. PSA remains undetectable. Started docetaxel plus carboplatin at DFCI in Boston yesterday. I'm told I will be on chemo for
After just one year my advanced PC that was being treated with Lupron and Apalutamide has now progressed to additional bone sites and lymph nodes. New sites are undifferentiated. PSA remains undetectable. Started docetaxel plus carboplatin at DFCI in Boston yesterday. I'm told I will be on chemo for
PeakClimber
in
Advanced Prostate Cancer
4 years ago
Fast testosterone recovery after Zytiga mono-therapy.
I stopped Lupron June 2019 and remained on Zytiga alone. One 500mg dose with breakfast. Testosterone rose slowly, approximately 10-20 per month. My guess is 500mg Zytiga with breakfast and dinner might hold testosterone down but I didn't test this. My PSA continued undetectable. In June 2020 with PSA
I stopped Lupron June 2019 and remained on Zytiga alone. One 500mg dose with breakfast. Testosterone rose slowly, approximately 10-20 per month. My guess is 500mg Zytiga with breakfast and dinner might hold testosterone down but I didn't test this. My PSA continued undetectable. In June 2020 with PSA
andrew61
in
Advanced Prostate Cancer
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
14 year journey
I was diagnosed in Oct 2006. 14 years ago, just after I turned 51. My base PSA was 38.8, GS score was 4+3=7. I did the dual radiation thing with the seeds and the external beam (IMRT). Then after 5 years I started Lupron intermittently. 1 yr on 1 yr off. Next I did the immunotherapy treatment Provenge
I was diagnosed in Oct 2006. 14 years ago, just after I turned 51. My base PSA was 38.8, GS score was 4+3=7. I did the dual radiation thing with the seeds and the external beam (IMRT). Then after 5 years I started Lupron intermittently. 1 yr on 1 yr off. Next I did the immunotherapy treatment Provenge
ZackD
in
Advanced Prostate Cancer
4 years ago
Xtandi side effects
Hello my dad has been on Xtandi for about 3-4 months yes it brought down his PSA level magically but he is having some side effects to the pills we think. He is 82 has been on most treatments like Provange, Zytiga, on currently and since this battle started Lupron and Xgeva but now he’s on xtandi. Numbers
Hello my dad has been on Xtandi for about 3-4 months yes it brought down his PSA level magically but he is having some side effects to the pills we think. He is 82 has been on most treatments like Provange, Zytiga, on currently and since this battle started Lupron and Xgeva but now he’s on xtandi. Numbers
Olivia007
in
Advanced Prostate Cancer
4 years ago
Castrate resistant?
Does anybody know if you fail Lupron or ADT drug which I think their called. Does this mean you’re castrate resistant? If so does this make your cancer much more harder to treat and lessen your life expectancy?
Does anybody know if you fail Lupron or ADT drug which I think their called. Does this mean you’re castrate resistant? If so does this make your cancer much more harder to treat and lessen your life expectancy?
Fight11
in
Advanced Prostate Cancer
4 years ago
Orchiectomy--any considerations that might be overlooked?
It has been suggested to me that I reconsider an orchiectomy (versus first-line ADT) after opting for degarelix, then lupron for the last few years. Of course the decision depends in part on my own situation, but I am asking for opinions as to the following: –might an orchiectomy preclude participation
It has been suggested to me that I reconsider an orchiectomy (versus first-line ADT) after opting for degarelix, then lupron for the last few years. Of course the decision depends in part on my own situation, but I am asking for opinions as to the following: –might an orchiectomy preclude participation
cigafred
in
Advanced Prostate Cancer
4 years ago
Shout out for my stage 4, post-chemo, Gleason 9 road warrior husband of mine
Last week was my guy's 76th birthday. He's out on a 30-mile bike ride in 90 degree humidity. He left a couple hours ago, so when I saw his cell number, a tiny part of me thought: "Uh oh, collapsed on the road." Not at all. He wanted to know whether to pick up blueberries at a farmstand! I'm posting
Last week was my guy's 76th birthday. He's out on a 30-mile bike ride in 90 degree humidity. He left a couple hours ago, so when I saw his cell number, a tiny part of me thought: "Uh oh, collapsed on the road." Not at all. He wanted to know whether to pick up blueberries at a farmstand! I'm posting
spouse21
in
Advanced Prostate Cancer
4 years ago
It’s back and I’m scared to death!
I was lucky to have an appointment at the VA on July 21..because The day before a small bump on my left rib appeared suddenly..like what seemed overnight...it WAS small and now they are everywhere! The VA oncologist wants to wait until August 4th to get a CAT scan and biopsy before he starts chemotherapy
I was lucky to have an appointment at the VA on July 21..because The day before a small bump on my left rib appeared suddenly..like what seemed overnight...it WAS small and now they are everywhere! The VA oncologist wants to wait until August 4th to get a CAT scan and biopsy before he starts chemotherapy
DeanNelson
in
Advanced Prostate Cancer
4 years ago
Zytiga
Can Zytiga shrink bone Mets? How long is Zytiga usually good for months a couple years? Have any of you had good results with it? My husband starts it on Monday!!! Lupron is working psa is rising he is a Gleason 9 with some mets
Can Zytiga shrink bone Mets? How long is Zytiga usually good for months a couple years? Have any of you had good results with it? My husband starts it on Monday!!! Lupron is working psa is rising he is a Gleason 9 with some mets
Fight11
in
Advanced Prostate Cancer
4 years ago
9 Gleason Score
My name is Tim and am currently 63. When I had my PSA checked in January of 2019 it was 19. I made the decision to go to Mayo in Rochester for my diagnosis and treatment. Was told I had a Gleason score of 9 and aggressive cancer. Had surgery in June of 2019 for radical prostatectomy and removal of 19
My name is Tim and am currently 63. When I had my PSA checked in January of 2019 it was 19. I made the decision to go to Mayo in Rochester for my diagnosis and treatment. Was told I had a Gleason score of 9 and aggressive cancer. Had surgery in June of 2019 for radical prostatectomy and removal of 19
Haberdasher
in
Prostate Cancer Network
4 years ago
Castrate resistant
I want to share my husband story with you. He was diagnosed with a Gleason score of nine and a psa of 27! They try to remove the prostate it was fused to the rectum so he had 42 rounds of radiation which was last September they had finished. He just had a six month follow-up in February his PSA was 0.1
I want to share my husband story with you. He was diagnosed with a Gleason score of nine and a psa of 27! They try to remove the prostate it was fused to the rectum so he had 42 rounds of radiation which was last September they had finished. He just had a six month follow-up in February his PSA was 0.1
Fight11
in
Advanced Prostate Cancer
4 years ago
What do we do now?
OK....on Casodex, PSA has gone from 7+ to almost 9 now ove 11 during a 5 week period. My profile details his journey, including prostatectomy 2009, radiation 2010, chemo 2016, Lupron started at same time till now, added Casodex 5 weeks ago. Doc suggesting Zytiga with Prednisone. Joe wants to check with
OK....on Casodex, PSA has gone from 7+ to almost 9 now ove 11 during a 5 week period. My profile details his journey, including prostatectomy 2009, radiation 2010, chemo 2016, Lupron started at same time till now, added Casodex 5 weeks ago. Doc suggesting Zytiga with Prednisone. Joe wants to check with
Cateydid
in
Advanced Prostate Cancer
4 years ago
PSA Lowered after stopping CASODEX
Interesting experience. PSA While on Lupron and Casodex 12/6/19 PSA 4.78 2/17/20 PSA 4.78 3/6/20 PSA 6.17 Stop Casodex 6/8/20 PSA 1.95 I have been on intermittent ADT with Lupron and Casodex since 9/2011. Recently my PSA seems to becoming insensitive to the treatment and my MO said we
Interesting experience. PSA While on Lupron and Casodex 12/6/19 PSA 4.78 2/17/20 PSA 4.78 3/6/20 PSA 6.17 Stop Casodex 6/8/20 PSA 1.95 I have been on intermittent ADT with Lupron and Casodex since 9/2011. Recently my PSA seems to becoming insensitive to the treatment and my MO said we
Joeym1040
in
Advanced Prostate Cancer
4 years ago
ADT therapy
My Dad has stage 4 prostate cancer. He was diagnosed in late 2019. He is currently taking Lupron and Zytiga. His PSA has been steadily increasing each month. Has anyone else tried a different type of ADT therapy after there PSA increased? I’ve read that normally you would not try another ADT after one
My Dad has stage 4 prostate cancer. He was diagnosed in late 2019. He is currently taking Lupron and Zytiga. His PSA has been steadily increasing each month. Has anyone else tried a different type of ADT therapy after there PSA increased? I’ve read that normally you would not try another ADT after one
bluline
in
Advanced Prostate Cancer
4 years ago
Took 250 mg of Casodex instead of 100mg of sildenafil ???
Done with Radiation 3 weeks ago today. Will get PSA and Testosterone test in October By accident I took 5 50mg of casodex instead of 5 20 mg of sildenafil With all that is going on I somehow mixed this up Called my Dr's office but no one has gotten back to me I have been off casodexc since midway
Done with Radiation 3 weeks ago today. Will get PSA and Testosterone test in October By accident I took 5 50mg of casodex instead of 5 20 mg of sildenafil With all that is going on I somehow mixed this up Called my Dr's office but no one has gotten back to me I have been off casodexc since midway
sharpcut
in
Advanced Prostate Cancer
4 years ago
ADT vacation nearing an end
Just an update...recap: been on an ADT vacation since early December 2019 when PSA had been at 0.000 for the previous 8 months after having been on Lupron & Zytiga for 16 months (since August 18). My previous PSA check was April 2020 and PSA was still holding at 0.000...however, last week it came back
Just an update...recap: been on an ADT vacation since early December 2019 when PSA had been at 0.000 for the previous 8 months after having been on Lupron & Zytiga for 16 months (since August 18). My previous PSA check was April 2020 and PSA was still holding at 0.000...however, last week it came back
Ron53
in
Advanced Prostate Cancer
4 years ago
Update on PC
Sorry for waiting so long to update everyone. I have been on ADT for a year now . Still on lupron and Zytiga. Test results Friday showed that psa is still undetectable. Dr. changed my visits to every 2 months. I got a treadmill for Christmas and have lost 25 pounds. Enjoying life and family. I would
Sorry for waiting so long to update everyone. I have been on ADT for a year now . Still on lupron and Zytiga. Test results Friday showed that psa is still undetectable. Dr. changed my visits to every 2 months. I got a treadmill for Christmas and have lost 25 pounds. Enjoying life and family. I would
gamemaster34
in
Advanced Prostate Cancer
4 years ago
Wants to end treatment
My husband had RP i. 4/2018, at 54. He was stage 3. He then had radiation (8 weeks) in 2018. His PSA was good for a few months 1/2019 his PSA started going up. In 3/2019- he was PSA 49. 5/2019 they started giving him Lupron monthly and zytega in the form of pills. He’s still on it. He’s very fatigued
My husband had RP i. 4/2018, at 54. He was stage 3. He then had radiation (8 weeks) in 2018. His PSA was good for a few months 1/2019 his PSA started going up. In 3/2019- he was PSA 49. 5/2019 they started giving him Lupron monthly and zytega in the form of pills. He’s still on it. He’s very fatigued
Walts_wife
in
Advanced Prostate Cancer
4 years ago
I've been thinking about my PCa and have some questions - would be glad for any thought or input
Hello I have been on this site for a couple of years - always interested in where men are on their journeys and what they are doing for treatments. Diagnosed Feb 2017 - PSA 340 with mets Immediately started Lupron and bicalutamide . Oncologist - who I trust sent me to an Urologist
Hello I have been on this site for a couple of years - always interested in where men are on their journeys and what they are doing for treatments. Diagnosed Feb 2017 - PSA 340 with mets Immediately started Lupron and bicalutamide . Oncologist - who I trust sent me to an Urologist
pjd55d
in
Prostate Cancer Network
4 years ago
1
...
99
100
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3451 results
Prostate Cancer Network
187 results
Endometriosis UK
110 results
View top 10 communities
Sort by
Most Relevant
Newest