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asking for a friend (really) oncologist referral Chicago or Mayo Rochester
I am an open book for people newly diagnosed with prostate cancer and often hear from friends of friends. Looking back on my journey, I feel that I too quickly went the surgery route after consulting with a very good urologist/surgeon/oncologist and I erred not consulting with a Medical Oncologist first
I am an open book for people newly diagnosed with prostate cancer and often hear from friends of friends. Looking back on my journey, I feel that I too quickly went the surgery route after consulting with a very good urologist/surgeon/oncologist and I erred not consulting with a Medical Oncologist first
darlingdb
in
Advanced Prostate Cancer
2 months ago
My PCa history
After rising PSA from 6.92 in March 2012 to 9.98 in April 2013 Uro performed Prostate Biopsy in April 2013. 12 samples were taken: worst sample 4+3 (30% involvement) and four samples 3+4 (5% involvement). Scheduled for robotic prostatectomy, but before it Uro gave me four shots of Fermagon. Uro
After rising PSA from 6.92 in March 2012 to 9.98 in April 2013 Uro performed Prostate Biopsy in April 2013. 12 samples were taken: worst sample 4+3 (30% involvement) and four samples 3+4 (5% involvement). Scheduled for robotic prostatectomy, but before it Uro gave me four shots of Fermagon. Uro
Maxi54
in
Advanced Prostate Cancer
2 months ago
Celebrex and Curcumin and Magnesium.
I recently received a question from a fellow warrior based on a comment I had made on an older post that he had started. The question was what I thought about Naproxen compered to Celebrex and I told him I had very limited experience with Naproxen. I then clicked on older posts about nsaids and prostate
I recently received a question from a fellow warrior based on a comment I had made on an older post that he had started. The question was what I thought about Naproxen compered to Celebrex and I told him I had very limited experience with Naproxen. I then clicked on older posts about nsaids and prostate
Professorgary
in
Advanced Prostate Cancer
2 months ago
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My experience with Docetaxel
I know everyone doesn’t respond the same but here is my experience and what I went through with 10 rounds of chemo. Before I started I had already been on Lupron for five years, I had radiation to multiple bone Mets, took zytiga/xtandi, had Provenge and did a clinical trial. October 26 2023 I started
I know everyone doesn’t respond the same but here is my experience and what I went through with 10 rounds of chemo. Before I started I had already been on Lupron for five years, I had radiation to multiple bone Mets, took zytiga/xtandi, had Provenge and did a clinical trial. October 26 2023 I started
Oct18
in
Advanced Prostate Cancer
2 months ago
What is a Healthy, low sugar shake or supplement to gain weight with prostate cancer spread to lymph nodes?
Husband has advanced prostate cancer mets to neck, chest, back, pelvis, femur. PSA is doubling rapidly. Currently on Zytiga, Lupron, Steroid, and Lyparza. 😞 Diagnosed in 2020 with tumor base of tongue (doctors said it was not related to PC) and aggressive prostate cancer at same time. Today, four years
Husband has advanced prostate cancer mets to neck, chest, back, pelvis, femur. PSA is doubling rapidly. Currently on Zytiga, Lupron, Steroid, and Lyparza. 😞 Diagnosed in 2020 with tumor base of tongue (doctors said it was not related to PC) and aggressive prostate cancer at same time. Today, four years
Bamagrad
in
Advanced Prostate Cancer
2 months ago
What comes after, what comes next?
I have posted a few times about my dad. Stage 4, mets to 8+ bones at time of diagnosis, PSA at 137 (10/22.) Lupron twice a year, Bicalutamide, failed at 7 months, Xtandi failed at 4 months, currently on Zytiga. We met with my dad’s oncologist on 4/24. My Dad’s PSA dropped from 2.47-1.46 and pain has
I have posted a few times about my dad. Stage 4, mets to 8+ bones at time of diagnosis, PSA at 137 (10/22.) Lupron twice a year, Bicalutamide, failed at 7 months, Xtandi failed at 4 months, currently on Zytiga. We met with my dad’s oncologist on 4/24. My Dad’s PSA dropped from 2.47-1.46 and pain has
lgutman
in
Advanced Prostate Cancer
2 months ago
Anemia on Abiraterone + Prednisone + Lupron
Since November 2023 I have been taking Abiraterone + Prednosone for castrate resistant metastatic prostate cancer. In November my PSA was 0.8. In the first three months it went down to 0.26. Yesterday, my PSA was 0.16. But my hemoglobin and hematocrit became low at 11.6 and 36% respectively.
Since November 2023 I have been taking Abiraterone + Prednosone for castrate resistant metastatic prostate cancer. In November my PSA was 0.8. In the first three months it went down to 0.26. Yesterday, my PSA was 0.16. But my hemoglobin and hematocrit became low at 11.6 and 36% respectively.
dac500
in
Advanced Prostate Cancer
2 months ago
ADT & Pluvicto
Is it common to continue ADT treatments, like Lupron or Eligard, while receiving Pluvicto therapy?
Is it common to continue ADT treatments, like Lupron or Eligard, while receiving Pluvicto therapy?
Shams_Vjean
in
Advanced Prostate Cancer
2 months ago
radiation treatment delayed
2 years since prostatectomy. Psa still non detectable. Will get it checked again in 6 months or 1 year depending on urologist suggestion. I feel blessed since standard protocol was radiation to the pelvic area had 6 Month Lupron shot since they found positive pc in limp nodes and tissue extracted.
2 years since prostatectomy. Psa still non detectable. Will get it checked again in 6 months or 1 year depending on urologist suggestion. I feel blessed since standard protocol was radiation to the pelvic area had 6 Month Lupron shot since they found positive pc in limp nodes and tissue extracted.
thansen535
in
Advanced Prostate Cancer
2 months ago
radiation treatment delayed
2 years since prostatectomy. Psa still non detectable. Will get it checked again in 6 months or 1 year depending on urologist suggestion. I feel blessed since standard protocol was radiation to the pelvic area had 6 Month Lupron shot since they found positive pc in limp nodes and tissue extracted.
2 years since prostatectomy. Psa still non detectable. Will get it checked again in 6 months or 1 year depending on urologist suggestion. I feel blessed since standard protocol was radiation to the pelvic area had 6 Month Lupron shot since they found positive pc in limp nodes and tissue extracted.
thansen535
in
Advanced Prostate Cancer
2 months ago
Advice - Surgery or Radiation?
Hi all, apologies for the long post, hoping to give as much info as possible. Background: Diagnosis: Unfavorable int-risk prostate cancer (T2a, Gleason 4+3, PSA 5.2) (I spoke to a surgeon today who said it was T3a so now I am confused) Age: 59 PSA 5.2 (H) 01/31/2024 PSA 4.4 (H) 11/06/2023 PSA
Hi all, apologies for the long post, hoping to give as much info as possible. Background: Diagnosis: Unfavorable int-risk prostate cancer (T2a, Gleason 4+3, PSA 5.2) (I spoke to a surgeon today who said it was T3a so now I am confused) Age: 59 PSA 5.2 (H) 01/31/2024 PSA 4.4 (H) 11/06/2023 PSA
Blue1320
in
Prostate Cancer Network
2 months ago
Xofigo anyone?
So my PSA is rising after Chemo, Lupron and NUBEQA (Darolutamide). It rose from 0.04 in June 2023 to 0.84 at the end on April 2024 with latest time of doubling about 5 weeks, 2.3 years after diagnosis. I don't have organ on lymph node metastasis yet. My oncologists team suggests Xofigo/Ra-223 as a next
So my PSA is rising after Chemo, Lupron and NUBEQA (Darolutamide). It rose from 0.04 in June 2023 to 0.84 at the end on April 2024 with latest time of doubling about 5 weeks, 2.3 years after diagnosis. I don't have organ on lymph node metastasis yet. My oncologists team suggests Xofigo/Ra-223 as a next
Oldie68
in
Advanced Prostate Cancer
2 months ago
Almost 3 years on ADT + Erleada
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
mynacho
in
Advanced Prostate Cancer
2 months ago
Gasoline?
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
VoxHope
in
Advanced Prostate Cancer
2 months ago
Long Term ADT HT
Edit to question...I failed to add that 3 months ago his MO prescribed Gabapentin 300mg for his hot flashes. He takes one pill at night. Thank you, and thank you for the tremendous responses Can anyone tell me if the SE from ADT HT plateau at some point??My husband is in year four of Lupron, Abi+Pred
Edit to question...I failed to add that 3 months ago his MO prescribed Gabapentin 300mg for his hot flashes. He takes one pill at night. Thank you, and thank you for the tremendous responses Can anyone tell me if the SE from ADT HT plateau at some point??My husband is in year four of Lupron, Abi+Pred
JWPMP
in
Advanced Prostate Cancer
2 months ago
Experiencing possible neuropathy in my trunk
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
4tunate1
in
Advanced Prostate Cancer
2 months ago
Perineum Irritation / Pain
I’m Stage 4A prostate cancer (spread outside prostate to lymph nodes only) in week 3 of treatment. I’m doing Lupron shots every 3months + Abiraterone with Prednisone daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling
I’m Stage 4A prostate cancer (spread outside prostate to lymph nodes only) in week 3 of treatment. I’m doing Lupron shots every 3months + Abiraterone with Prednisone daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling
Willie51
in
Prostate Cancer And Gay Men
2 months ago
Treatment options
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
mtechguy
in
Advanced Prostate Cancer
2 months ago
Are bone and CT scans required quarterly if PSA and testosterone are basically zero and no symptoms?
I have stage IV prostate cancer with a spot on my lung being the only known spread of my cancer. After my chemo regimen, my CT and bone scans have been clean for a year now. And my blood work is perfect at the moment. I am on Zytiga and getting a Lupron shot quarterly. My doc still wants
I have stage IV prostate cancer with a spot on my lung being the only known spread of my cancer. After my chemo regimen, my CT and bone scans have been clean for a year now. And my blood work is perfect at the moment. I am on Zytiga and getting a Lupron shot quarterly. My doc still wants
Wildfun44
in
Advanced Prostate Cancer
2 months ago
Positive medical check update April 2024
Last days I’ve had couple of blood tests, ultra sound, annual PSMA Pet/CT and a meeting with my urologist. My last Lupron shot was Oct 2023. Blood values are all very ok, PSA undetectable, Testo less 0.1 ng/ML and PSMA Pet/CT and ultra sound clean, no recurrence, no metastases. I’m more than thankful
Last days I’ve had couple of blood tests, ultra sound, annual PSMA Pet/CT and a meeting with my urologist. My last Lupron shot was Oct 2023. Blood values are all very ok, PSA undetectable, Testo less 0.1 ng/ML and PSMA Pet/CT and ultra sound clean, no recurrence, no metastases. I’m more than thankful
Nusch
in
Advanced Prostate Cancer
2 months ago
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