Experiencing possible neuropathy in m... - Advanced Prostate...

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Experiencing possible neuropathy in my trunk

4tunate1 profile image
6 Replies

I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May.

This past Wednesday I started feeling some discomfort in my front and back. It's hard to explain. It feels a little like muscle soreness but my skin feels very tingly and my clothes touching my skin make me feel chilled/shivers. It doesn't extend to arms/legs. It's not painful, but it certainly isn't normal.

Has anyone experienced similar? I am assuming it's an ADT side-effect but I haven't seen thus far anyone write about it. Would love to hear if anyone has had a similar side effect/sensation. What causes it? How long does it last? Does it require treatment?

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4tunate1
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6 Replies
Yzinger profile image
Yzinger

Since starting Radiation to my my spine, prostate and pubic bone I have consistent pain in and around my hips. I am hoping it was radiation but only completed last week so wont know until a few weeks i reckon.

4tunate1 profile image
4tunate1 in reply toYzinger

I hope your pain subsides soon. Has your RO provided any feedback of therapy on your pain?

It's been very strange, this experience recently, and none of my doctor's really offers up anything as to what it might be. I'm pretty disappointed in the response I'm getting. I'm going back on Gabapentin to see if it helps which doesn't make me happy.

Best to you!

Yzinger profile image
Yzinger in reply to4tunate1

Yes good point on the RO - I bring it up each session and the response is it may be the radiation but they cant say for sure. I am heading into 2nd week post radiation so fingers crossed.

4tunate1 profile image
4tunate1 in reply toYzinger

I worked out on Saturday a bit and my torso feels better. It's that or the Gabapentin, or maybe the accupuncture kicking in!

Seasid profile image
Seasid

Could you see a neurologist?

God_Loves_Me profile image
God_Loves_Me

I think I had similar things and I called to triage line of radiations center. They prescribe me magical mouthwash that num entire my stomach and food pipeline. I think it help me a lot.

I was not able to drink 2 sip water

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