Search
Search
About
Log in
Join
Experiences with
Nuprin
Posts
Communities
3,987 public posts
Filter results
What is Your Opinion on Docetaxel Added to Doublet Therapy for Early Oligorecurrent Metaststic M1a Prostate Cancer?
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
Hello, I have touched on this subject before, but it is something that is nagging at me and giving me some sleepless nights. My husband’s bio is updated for reference. At one year post prostatectomy with Stage 3b, he rose from 0.06 to 0.273 in three mos. At psa of 0.16 , a PSMA scan showed three sub
103532
in
Advanced Prostate Cancer
1 month ago
Why do MO's continue to prescribe Lupron ADT for Castrate-Resistant men?
I've never understood why MO's continue to prescribe Lupron ADT (or equivalent ) for men who are
castrate-resistant (CRPC
). Isn't that the definition of CRPC, namely, that ADT is no longer working for those men? Why continue to prescribe a drug that no longer works and that causes such suffering
I've never understood why MO's continue to prescribe Lupron ADT (or equivalent ) for men who are
castrate-resistant (CRPC
). Isn't that the definition of CRPC, namely, that ADT is no longer working for those men? Why continue to prescribe a drug that no longer works and that causes such suffering
janebob99
in
Advanced Prostate Cancer
1 month ago
question for those who have stopped Lupron after many years of ADT
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
Chugach
in
Advanced Prostate Cancer
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
lupron 4th shot strong reaction
just had my fourth Lupron shot, three months. Also on Zytiga and finished radiation in December. Everything has been great. I feel excellent physically and mentally. But this Monday after my fourth Lupron shot I became very depressed pissed off and side effects such as hot flashes came back much more
just had my fourth Lupron shot, three months. Also on Zytiga and finished radiation in December. Everything has been great. I feel excellent physically and mentally. But this Monday after my fourth Lupron shot I became very depressed pissed off and side effects such as hot flashes came back much more
pj1121
in
Advanced Prostate Cancer
1 month ago
Waiting for me to die
Just wondering if anyone else has experienced this. Sometimes i get the feeling that friends and family members are waiting for me to die. I was diagnosed stage 4b metastasis in January 2021 and have been on treatment Lupron and Xtandi since April 2021 3 years now. From an outward appearance I don't
Just wondering if anyone else has experienced this. Sometimes i get the feeling that friends and family members are waiting for me to die. I was diagnosed stage 4b metastasis in January 2021 and have been on treatment Lupron and Xtandi since April 2021 3 years now. From an outward appearance I don't
rogerandme
in
Advanced Prostate Cancer
1 month ago
ADT IS DONE. NEXT?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
rfgh20
in
Advanced Prostate Cancer
1 month ago
Urinary incontinence in mCRPC
I am looking for help for my 81-year-old father who is mCRPC. He was diagnosed at stage 4 about 18 months ago with mets to 8+ bones including the skull. Summary of the following treatments: Bicalutamide this drug failed in July 2023 and the patient transitioned to Xtandi started in September 2023.
I am looking for help for my 81-year-old father who is mCRPC. He was diagnosed at stage 4 about 18 months ago with mets to 8+ bones including the skull. Summary of the following treatments: Bicalutamide this drug failed in July 2023 and the patient transitioned to Xtandi started in September 2023.
lgutman
in
Advanced Prostate Cancer
1 month ago
Cancer takes another brave man
My wonderful husband passed away yesterday after fighting the beast for 15 years. Gleason 8 all but one core positive. He was so strong tried so hard, 2 clinical trials radiation, Zytiga, Xofigo, lupron for the entire time. Finally at age 65 his body could take no more, he lost over 40 pounds, no energy
My wonderful husband passed away yesterday after fighting the beast for 15 years. Gleason 8 all but one core positive. He was so strong tried so hard, 2 clinical trials radiation, Zytiga, Xofigo, lupron for the entire time. Finally at age 65 his body could take no more, he lost over 40 pounds, no energy
Judymin
in
Advanced Prostate Cancer
1 month ago
Update May 15, 2024
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
Hoping all is well with others on this site. UPDATE May 15 2024 I am concerned about results of the Right frontal skull SUV 5.3 previously 0.75. I have researched and really can't find any information that I can understand. Any replies would be greatly appreciated My husband had his PSMA PET/
MsHope
in
Advanced Prostate Cancer
2 months ago
Zytiga vs Nubeqa for Triple Therapy
Hi, I've recently received a diagnosis of Stage 4 prostate cancer, which is high volume and hormone-sensitive. I've consulted with 3 oncologist and all recommend triple therapy: Lupron alongside 6 rounds of Docetaxel, plus an ARPI. While two oncologists recommend Nubeqa, one strongly advocates for Zytiga
Hi, I've recently received a diagnosis of Stage 4 prostate cancer, which is high volume and hormone-sensitive. I've consulted with 3 oncologist and all recommend triple therapy: Lupron alongside 6 rounds of Docetaxel, plus an ARPI. While two oncologists recommend Nubeqa, one strongly advocates for Zytiga
littleCar
in
Advanced Prostate Cancer
2 months ago
Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
maley2711
in
Prostate Cancer Network
2 months ago
PSA following Lupron and question on scans
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
hi all, I am so happy to report that my dad has really improved following terrible side effects with his radiation treatment. I have posted before -he was having awful GI side effects which seemed to get worse following radiation completion. But this is all subsided which we are grateful for. dad
alysona828
in
Advanced Prostate Cancer
2 months ago
PSMA Scans and False Positives
So I saw my MO yesterday to review my ongoing treatment of Xtandi and Lupron. Been 3 months so far with no real side effects except hot flashes. My PSMA scan showed prostate and one met to sacrum. Prostate treated with 28 rounds of EBRT. MO says since sacrum is so close to prostrate it might have
So I saw my MO yesterday to review my ongoing treatment of Xtandi and Lupron. Been 3 months so far with no real side effects except hot flashes. My PSMA scan showed prostate and one met to sacrum. Prostate treated with 28 rounds of EBRT. MO says since sacrum is so close to prostrate it might have
Jeffdanger
in
Advanced Prostate Cancer
2 months ago
Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the
maley2711
in
Advanced Prostate Cancer
2 months ago
EBRT - Is it the right thing and what to expect?
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
After DX in November 2018 with Stage IV and Gleason of 5+4 and 4+5, and 5 years of ADT of Lupron (then Orgovyx), prednisone 5mg, and Zytiga 250mg with low fat breakfast, my PSA stayed stable at 0.4 or 0.5. At end of 2013, PSA started rising to latest value of 0.84. Had PSMA PET Scan March 5, 2024
JazzMan42
in
Advanced Prostate Cancer
2 months ago
Platelets Dropping
Is this “normal” or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Is this “normal” or any advice? Undergoing radiation since March, have 22 sessions done, 6 to go. Started Casodex in December to prepare to start Eligard in January. Radiation started in March. My platelets have been dropping. MO said could be due to Lupron and/or radiation. IMRT targets Gleason 9
Hope49823
in
Advanced Prostate Cancer
2 months ago
Any experience with Xtandi (enzolutamide).
The long story is in another post. Short story is the PC metastasized to the brain and they added Xtandi to the Lupron shots , as it's the only drug that will go to the brain. It seems to be working, Scans and PSA are where they should be and symptoms are more discouraging than debilitating. The
The long story is in another post. Short story is the PC metastasized to the brain and they added Xtandi to the Lupron shots , as it's the only drug that will go to the brain. It seems to be working, Scans and PSA are where they should be and symptoms are more discouraging than debilitating. The
bcskibdy
in
Prostate Cancer And Gay Men
2 months ago
Lupron
If you have any heart related issues, my advice would be to stay away from Lupron. Years ago I had my mitral valve in my heart replaced, which is doing good... now. I was on Lupron with a shot every three months for 15 months. At the 15-month time, I noticed that I had a really rough time waling up
If you have any heart related issues, my advice would be to stay away from Lupron. Years ago I had my mitral valve in my heart replaced, which is doing good... now. I was on Lupron with a shot every three months for 15 months. At the 15-month time, I noticed that I had a really rough time waling up
Teddski
in
Prostate Cancer And Gay Men
2 months ago
Still Frustrated
My prostrate cancer struggle continues. As I’ve posted, it began 5 months ago with higher PSA numbers in an annual physical. I live in San Diego where there is world class medical facilities and I’ve seen the most highly recommended doctors. Yet now , I’m diagnosed with a very aggressive (Gleason 9)
My prostrate cancer struggle continues. As I’ve posted, it began 5 months ago with higher PSA numbers in an annual physical. I live in San Diego where there is world class medical facilities and I’ve seen the most highly recommended doctors. Yet now , I’m diagnosed with a very aggressive (Gleason 9)
Willie51
in
Prostate Cancer And Gay Men
2 months ago
Confused
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
2 months ago
1
...
3
4
5
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3360 results
Prostate Cancer Network
177 results
Endometriosis UK
110 results
View top 10 communities
Sort by
Most Relevant
Newest