asking for a friend (really) oncologi... - Advanced Prostate...

Advanced Prostate Cancer

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asking for a friend (really) oncologist referral Chicago or Mayo Rochester

darlingdb profile image
7 Replies

I am an open book for people newly diagnosed with prostate cancer and often hear from friends of friends. Looking back on my journey, I feel that I too quickly went the surgery route after consulting with a very good urologist/surgeon/oncologist and I erred not consulting with a Medical Oncologist first. Had a call from someone diagnosed last week (Chicago) being pressured to have surgery immediately (Gleason 3 + 3). Two questions, at time of diagnosis prior to surgery, would you recommend consulting medical oncologist and radiation oncologist or other path? Second question referral for either specialists in Chicago or traveling to Rochester Mayo Clinic?

Just as an FYI, am 11 years into this journey, mets in lung and spine but managed with Lupron and Erleada my team is based at University of Texas SW in Dallas and I am very pleased with my care level.

Appreciate any thoughts regarding correct path for freshly diagnosed person. Thanks

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darlingdb
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Tall_Allen profile image
Tall_Allen

He may find this useful:

prostatecancer.news/2017/12...

If your friend is low risk, active surveillance is his best option. Northwestern and U of Chicago have good AS programs. If your friend is intermediate risk (by stage and/or PSA) he should talk to a few radiation oncologists (Arica Hirsch for SBRT at Advocate Lutheran, Brian Moran at Chicago Prostate Center for brachytherapy). There is no need to talk to a medical oncologist who will only confuse things and has no relevant expertise.

NanoMRI profile image
NanoMRI

The correct path seems convoluted with disparities. My path nine years ago for my initial 3+3 was second and third pathology options, multiparametric MRI with second opinion and genomic testing (Oncotype DX only at that time).  Took the investigative findings to many cross-discipline consultations focused on mpMRI and cancer deemed not indolent. Today, I would add a blood biopsy, PSMA imaging and genetic testing (yes ahead of common practice). I chose RP based on on mpMRI findings, final G was 4+3 and the beast was out and about. I remain grateful for my decision to have the main tumor burden removed.

Scout4answers profile image
Scout4answers

Stanley Liauw @ U of Chicago - very experienced radiologist, I was his 1200th+ patient. I spoke with 5 ROs from all over the country and could not find a better one. 2 years after treatment no side effects.

classicbman profile image
classicbman in reply toScout4answers

Scout, I have the same RO. Great guy, really on top of things, especially trials. Last name is spelled Liauw.

Scout4answers profile image
Scout4answers in reply toclassicbman

Thanks I corrected it.

How are you doing?

fourputt profile image
fourputt

Dr Oliver Sartor at Mayo if he's accepting new patients.

Apisdorsata profile image
Apisdorsata

No doubt there are many good Chicago medical oncologists, I see Dr. Sartor at Mayo. He is excellent in every way. I'd advise your friend to see a good medical oncologist before doing any treatment.

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