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Blindness
Morning all tazmoe here Just a quick one I’m still have my symptomatic vasculitis after 5 yrs off various treatments ahh but seem to ok to a certain degree, still medicated but it’s staysAway in its harshest form, but still get little flares Every now and then but I now seem to get side effects now
Morning all tazmoe here Just a quick one I’m still have my symptomatic vasculitis after 5 yrs off various treatments ahh but seem to ok to a certain degree, still medicated but it’s staysAway in its harshest form, but still get little flares Every now and then but I now seem to get side effects now
tazmoe
in
Vasculitis UK
4 years ago
New Airing Pain podcast - #124: Diabetic Neuropathy - OUT NOW!
Visit https://painconcern.org.uk/airing-pain-programme-124-diabetic-neuropathy/ to listen, or download from wherever you get your podcasts. According to the most recent Scottish Diabetes Survey in 2018, there are an estimated 304,000 people living with a diagnosis of diabetes in Scotland, around 5%
Visit https://painconcern.org.uk/airing-pain-programme-124-diabetic-neuropathy/ to listen, or download from wherever you get your podcasts. According to the most recent Scottish Diabetes Survey in 2018, there are an estimated 304,000 people living with a diagnosis of diabetes in Scotland, around 5%
PainConcernProjects
Pain Concern
in
Pain Concern
4 years ago
Neuropathy
I am new here. I am Irish and lived in Ireland till I retired 20 years ago to live in Thailand. About 7 years ago Non Diabetic Neuropathy was confirmed. Symptoms not severe in my feet. I was prescribed Neurontin 600 mg 3 times daily. This drug is a blessing. I do not understand why I have never heard
I am new here. I am Irish and lived in Ireland till I retired 20 years ago to live in Thailand. About 7 years ago Non Diabetic Neuropathy was confirmed. Symptoms not severe in my feet. I was prescribed Neurontin 600 mg 3 times daily. This drug is a blessing. I do not understand why I have never heard
Sam765
in
Foggy's "Invisible Illness" Support
4 years ago
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Thank you!
I don't say a lot but I try to view this sight briefly most days. I have to say you all are an inspiration and a true support group. My past experiences were rather depressing, always negative thoughts and comments. I have worked hard to remove drama and negativity from my world, what is happening in
I don't say a lot but I try to view this sight briefly most days. I have to say you all are an inspiration and a true support group. My past experiences were rather depressing, always negative thoughts and comments. I have worked hard to remove drama and negativity from my world, what is happening in
Smithnova
in
My MSAA Community
4 years ago
What’s been happening with me
I have successfully been doing my injections without any education on it except YouTube. Shared solutions won’t send a nurse out with Covid and I had minimal guidance from drs office. So far I have not had any bad reactions other that injection site discomfort and burning, which seems to be normal from
I have successfully been doing my injections without any education on it except YouTube. Shared solutions won’t send a nurse out with Covid and I had minimal guidance from drs office. So far I have not had any bad reactions other that injection site discomfort and burning, which seems to be normal from
Tulip77
in
My MSAA Community
4 years ago
Can Ubiquinol and other muscle supplements CAUSE muscle aches?
Hi All Tried 100 mgs Ubiquinol yesterday before my regular Sunday 60 m ride. And, unexpectedly, had the worst ride in a very long time! I've tried ubiquinol in the past, with nil effect, good or bad. Any ideas what caused this please? I have also (recently) had similar bad results with other supplements
Hi All Tried 100 mgs Ubiquinol yesterday before my regular Sunday 60 m ride. And, unexpectedly, had the worst ride in a very long time! I've tried ubiquinol in the past, with nil effect, good or bad. Any ideas what caused this please? I have also (recently) had similar bad results with other supplements
Hidden
in
Fibromyalgia Action UK
4 years ago
Balance
I thought it was just BPPV, but my morning vertigo and balance issues have stayed all morning. I brought out the Rollator and have taken Dramamine, but do you all have any other suggestions? I'm determined not to fall. If it's still with me by Monday, I'll call the neurologist. I do have a set of
I thought it was just BPPV, but my morning vertigo and balance issues have stayed all morning. I brought out the Rollator and have taken Dramamine, but do you all have any other suggestions? I'm determined not to fall. If it's still with me by Monday, I'll call the neurologist. I do have a set of
greaterexp
in
My MSAA Community
4 years ago
Does eating a diet rich in Vitamin B Complex slows down the progression of AMN?
What I understand is that eating foods rich in Vitamin B complex are good for the brain and the nervous system. I eat a low-fat healthy diet with a lot of red meat. Red meat has Vitamin B12. Here is more information about Vitamin B Complex and their benefits: https://www.medicalnewstoday.com/articles
What I understand is that eating foods rich in Vitamin B complex are good for the brain and the nervous system. I eat a low-fat healthy diet with a lot of red meat. Red meat has Vitamin B12. Here is more information about Vitamin B Complex and their benefits: https://www.medicalnewstoday.com/articles
artortega78
in
AMN EASIER
4 years ago
homeopathy treatment and diabetes
iam a diabetic from almost ten years, i take gluconorm sr 1 one tab each every day, i have been suggested to go for homeopathy treatment while continuing with the englisg medicine which i have been taking, your suggestions please
iam a diabetic from almost ten years, i take gluconorm sr 1 one tab each every day, i have been suggested to go for homeopathy treatment while continuing with the englisg medicine which i have been taking, your suggestions please
tvkd
in
Diabetes India
4 years ago
Cortisones used by NON demyelinating polyneuropathy
Anyone familliar with the use of cortisones by the non demyelating polyneuropathy ?. Ask this question since , due to Chrohn disease, I regulary need cortisone. In these periods my pain caused by the neuropathy is less .... I know its used by inflammatory demyelating neuropathy. That makes sense. Any
Anyone familliar with the use of cortisones by the non demyelating polyneuropathy ?. Ask this question since , due to Chrohn disease, I regulary need cortisone. In these periods my pain caused by the neuropathy is less .... I know its used by inflammatory demyelating neuropathy. That makes sense. Any
Micapathy
in
Neuropathy Support
4 years ago
answer to Jeromekjerome re Leflunomide
trying to answer JeromekJerome about Leflunomide but couldn't pull up the link so hope this helps: I've been on it for almost a year, but I did quit it for 6 weeks because my BP started climbing. The rheumatologist didn't think that was the culprit but let me stop it. Now I am back on it because
trying to answer JeromekJerome about Leflunomide but couldn't pull up the link so hope this helps: I've been on it for almost a year, but I did quit it for 6 weeks because my BP started climbing. The rheumatologist didn't think that was the culprit but let me stop it. Now I am back on it because
composition
in
PMRGCAuk
4 years ago
Wondering about Leflunomide side effects
Hi Everyone I started Leflunomide a week ago. I thought all was going well until yesterday. I hurt from head to toe and today is even worse, plus I have not slept in 3 nights as I am in so much pain. I am thinking this pain is from the med. and not pmr. I was wondering if anyone else has experienced
Hi Everyone I started Leflunomide a week ago. I thought all was going well until yesterday. I hurt from head to toe and today is even worse, plus I have not slept in 3 nights as I am in so much pain. I am thinking this pain is from the med. and not pmr. I was wondering if anyone else has experienced
Linny3
in
PMRGCAuk
4 years ago
New HU pages - please follow :)
Hi everyone, I would just like to let you know that Alex TLC have now set up two new pages on Health Unlocked that may be beneficial for you to be a part of (as well as this group). They are: Leukodystrophy Carriers: https://healthunlocked.com/leukodystrophy-carriers Leukodystrophy Support: https://
Hi everyone, I would just like to let you know that Alex TLC have now set up two new pages on Health Unlocked that may be beneficial for you to be a part of (as well as this group). They are: Leukodystrophy Carriers: https://healthunlocked.com/leukodystrophy-carriers Leukodystrophy Support: https://
Olivia_Bostock
in
AMN EASIER
4 years ago
B Vitamins and blood tests
Hi I’ve just had a blood test and realised I didn’t lay off my high strength B vitamins before hand and I’ve been taking a week and half how could affect the results? I’ve read B vits skew the results especially biotin and the tablet contains 100ug a tablet.
Hi I’ve just had a blood test and realised I didn’t lay off my high strength B vitamins before hand and I’ve been taking a week and half how could affect the results? I’ve read B vits skew the results especially biotin and the tablet contains 100ug a tablet.
Blackpanther46
in
Thyroid UK
4 years ago
Etanercept - anyone tried it?
I was diagnosed with PMR 4 years ago and have been travelling a rocky road ever since. I go through phases of being well and then something kicks off. Many of you here will have read my ramblings and as always everyone is helpful and supportive. The past 18 months it has been my knees - one at a time
I was diagnosed with PMR 4 years ago and have been travelling a rocky road ever since. I go through phases of being well and then something kicks off. Many of you here will have read my ramblings and as always everyone is helpful and supportive. The past 18 months it has been my knees - one at a time
Lochy
in
PMRGCAuk
4 years ago
Tapering
Hi. I was diagnosed with PMR in 2015 and was told it would burn out in 5 years. Well it hasn’t. I started on 30mg of Pred and am now on 4.5. But the pain is still bad in toes, heel, stiff painful fingers, shoulder and neck. Should I up my dosage? The rheumatologist says taper at 1/2 mg every 2 months
Hi. I was diagnosed with PMR in 2015 and was told it would burn out in 5 years. Well it hasn’t. I started on 30mg of Pred and am now on 4.5. But the pain is still bad in toes, heel, stiff painful fingers, shoulder and neck. Should I up my dosage? The rheumatologist says taper at 1/2 mg every 2 months
Insty
in
PMRGCAuk
4 years ago
Diluting blood plasma rejuvenates tissue, reverses aging in mice
https://medicalxpress.com/news/2020-06-diluting-blood-plasma-rejuvenates-tissue.html "In 2005, University of California, Berkeley, researchers made the surprising discovery that making conjoined twins out of young and old mice—such that they share blood and organs—can rejuvenate tissues and reverse
https://medicalxpress.com/news/2020-06-diluting-blood-plasma-rejuvenates-tissue.html "In 2005, University of California, Berkeley, researchers made the surprising discovery that making conjoined twins out of young and old mice—such that they share blood and organs—can rejuvenate tissues and reverse
Rhyothemis
in
Cure Parkinson's
4 years ago
Hiv test done result negative
Is it possible if a person already into aids and hiv antibodies test continously prove negative.i mean if he is into aids .surely there must be hiv antibody right..exposure in 2018.test is done recently.did twice
Is it possible if a person already into aids and hiv antibodies test continously prove negative.i mean if he is into aids .surely there must be hiv antibody right..exposure in 2018.test is done recently.did twice
Sansat443
in
HIV Partners
4 years ago
How to get GP to prescribe Tapentadol in the UK
How do I get my GP to prescribe me Tapentadol in the UK? He said he'd never heard of it. I've been on Tramadol for 10 years and it no longer works as I've built up a tolerance. I tried Tapentadol online (I was desperate) and its perfect for my muscle and nerve pain. Does anyone know its UK brand name
How do I get my GP to prescribe me Tapentadol in the UK? He said he'd never heard of it. I've been on Tramadol for 10 years and it no longer works as I've built up a tolerance. I tried Tapentadol online (I was desperate) and its perfect for my muscle and nerve pain. Does anyone know its UK brand name
taxi_maicon
in
Pain Concern
4 years ago
Alternative to Pentamidine
I am currently on Ibrutinib for my SLL. I am allergic to Septrin so I am having Pentamidine by nebuliser every 4 weeks. I am just wondering if there may be another alternative ?
I am currently on Ibrutinib for my SLL. I am allergic to Septrin so I am having Pentamidine by nebuliser every 4 weeks. I am just wondering if there may be another alternative ?
Grannajan
in
CLL Support
4 years ago
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