sometimes I feel like its just me with this extreme T

[surviveT]

I have very severe reactive tinnitus which reacts to noise

hearing aids and sound therapy push up the volume - so are almost impossible to use

everyday sounds like traffic , car journey , tv, can also push up the T volume and even change the sound of it . I avoid walking along main roads and also avoid shops and restaurants because of the music ( which causes my T to react badly

I cant travel anymore - i havent been more than 40 mins from where i live in 2 and half years because of the effect of travelling on the T

Does anyone else on here , have a restricted and debilitated life because of their T??

[Deena6]

I do. I am mostly homebound these days. Had to stop working, can't listen to music. I watch TV on mute with subtitles. I have hyperacusis plus reactive T.Very depressed about the situation I find myself in. The restrictions are driving me crazy.

[surviveT in reply to Deena6]

hi ~Deena - thank you for yr reply .

My T started after a head bump ( at top back of head) and some mild concussion

do u have any idea how yr severe T could have happened ?

[Deena6 in reply to surviveT]

surviveT my tinnitus worsening was caused by the covid vaccine and then a dental procedure. As time passed, it continued to get worse and this is where I am now unfortunately.

[surviveT in reply to Deena6]

yes - u are restricted with it - sounds very much like my situation . My T has become gradually worse , driving me crazy and I am depressed as well

I cant do sound therapy as it pushes up the T . Does sound therapy work for you ( or hearing aids)

[Deena6 in reply to surviveT]

I wouldn't dare try sound therapy. I know it has helped some people but I'd be too afraid it would make mine worse.

[rabbits65]

does sound like you have hyperacusis too, when my mother was alive she had this condition and couldn’t go out and had to have no sound on her television.

[surviveT in reply to rabbits65]

thnx , yes , I have hyperacusis as well. The T has destroyed my life

[Hidden in reply to surviveT]

Hi surviveT have you been to see and ent consultant

[rabbits65 in reply to surviveT]

Try not to believe that T has ruined your life, there really are much worse health issues. I go for walks out in the fresh air with my poodles.. it helps , eventually your brain will adjust to the tinnitus and you won’t notice it. The hyperacussis too should settle down within time. My mother had this and after a year hers went away the hyperacussis that is, she didn’t have tinnitus. I’m the one with tinnitus and I’ve habituated after 4 years, yes I do get some bad days but it’s not dominating me anymore, ai keep busy. Don’t get stressed. Tinnitus loves stress. Good luck

[surviveT in reply to rabbits65]

thank you R65

[Deena6]

I understand how you feel about T destroying your life. I will never downplay or trivialise your experience. I know the hell you're going through. Perhaps the post above is what you prefer to hear. Maybe those words make you feel better. I don't know. In any case, I do hope you improve, in whatever way that improvement comes about. Take care.

[surviveT in reply to Deena6]

yes I know what u mean Deena - people can be supportive , but those disabled with it can really understand

[bournville]

Hi yes I’m in the same situation. Reactive T which narrows what I can and can’t do. Despite exacerbating my T i don’t let it stop me doing the essentials like traveling & shopping (plugs for both), I have accepted over the years that due to the condition it goes up but always comes down again. I have noticed that both tinnitus and hyperacusis are exacerbated when triggered.

Many non essential triggers I try to avoid unfortunately music is one of them. I have found I can listen extremely quietly to music with my bad ear plugged up. I am lucky that it’s only one ear that’s affected with T&H

I have found workarounds socially like meeting in pubs and places to eat that are reasonably quiet and don’t play background music (all weatherspoons pubs re music)

it’s interesting that the 3 of us in this thread with reactive T all have hyperacusis too. I have often read that the reactive aspect is due to the hyperacusis. The theory seems to be treat the hyperacusis and solve the reactivity. The puzzle is how do we do that with sound therapy when our tinnitus reacts to sound. Possibly we go super gently and build up who knows ….

Anyway Just wanted to let you know you are not alone in this. 🙂