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VNS Treatment
anyone have any success with VNS for treatment resistant depression?
anyone have any success with VNS for treatment resistant depression?
So_It_Goes
in
Major Depressive Disorder (MDD) Support
13 days ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
22 days ago
Shingles jab refused, ( immune suppressed )
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
alast1959
in
NRAS
28 days ago
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AFib after 2nd Shingles jab
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
destiny234
in
Atrial Fibrillation Support
28 days ago
filgotinib and shingles,
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
Doodlereggie
in
NRAS
1 month ago
Pinching pain in back during 2ww
I'm 8 days past 5 day embryo
transfer
and I have been experiencing
nerve
pain in my lower back it feels like I'm being pinched in my lower back and it's mainly on my left side, I've been experiencing that since day 4 and it's getting quite painful. Has anyone else experienced this?
I'm 8 days past 5 day embryo
transfer
and I have been experiencing
nerve
pain in my lower back it feels like I'm being pinched in my lower back and it's mainly on my left side, I've been experiencing that since day 4 and it's getting quite painful. Has anyone else experienced this?
Asha82
in
Fertility Network UK
9 months ago
vagus nerve stimulation machines and Afib
Has anyone with AFib got any experience of using one of these machines, such as Nurosym, Amofit, Sensate?
Has anyone with AFib got any experience of using one of these machines, such as Nurosym, Amofit, Sensate?
MTBCyclist
in
Atrial Fibrillation Support
1 month ago
anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
2 months ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
2 months ago
Thanks for the replies to my previous post
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
dragonsinger
in
British Heart Foundation
2 months ago
Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
2 months ago
Vagal a fib
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
TillyBoss
in
AF Association
3 months ago
Shingles.
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
mlp3434
in
AF Association
3 months ago
Travel vaccinations
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
Dorothy61
in
PMRGCAuk
3 months ago
Shingles pain
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
FinneUK
in
Thyroid UK
3 months ago
Is Low Dose Naltrexone (LDN) effective for Lyme disease?
Is Low Dose Naltrexone (LDN) effective for Lyme disease? Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/teTB13xQsq0?si=twYmXSvKO6YlNElO
Is Low Dose Naltrexone (LDN) effective for Lyme disease? Pharmacist Stephen Dickson, LDN Specialist https://youtu.be/teTB13xQsq0?si=twYmXSvKO6YlNElO
Shewulf
Administrator
in
LDN Research Trust
3 months ago
vaccinations
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Swanfull
in
NRAS
4 months ago
shingles vax
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
Knarllyknees
in
PMRGCAuk
4 months ago
Shingles
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
Anyone else ever had Shingles .First time ever..its so painful. I did contact the Gp straight away and they prescribed antiviral medication..I took this straight away ..suffering nerve pain as well and Dr prescribed me some gabapentin. So it's a few more meds to add to the tablets I'm.already taking
heathermc
in
MPN Voice
4 months ago
Hope at last
Hi well after five years of suffering with the most intense burning, agitation, painful genitalia, lack of sleep I finally have a diagnosis of neuropathy. I was referred to a Gynaecologist and after a month received a letter saying there would be a two year wait just to be seen. We decided that I should
Hi well after five years of suffering with the most intense burning, agitation, painful genitalia, lack of sleep I finally have a diagnosis of neuropathy. I was referred to a Gynaecologist and after a month received a letter saying there would be a two year wait just to be seen. We decided that I should
CecilyParsley
in
Pelvic Pain Support Network
9 months ago
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