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Shingles jab refused, ( immune suppressed )
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
I was 64 ( Oct 2023 ) i inquired about the shingles jab, but was refused ???
alast1959
in
NRAS
3 months ago
AFib after 2nd Shingles jab
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
I only occasionally get Afib now following an ablation in 2020, but I had my 2nd shingles jab 3 days ago and it seems to have kicked off my afib again albeit not constantly. I just wondered if anyone else has had the same effect from the 2nd jab (as it is supposedly worse than the 1st) or is it just
destiny234
in
Atrial Fibrillation Support
3 months ago
Update on Spinal nerve block
In the past, I asked if others had the spinal radio-frequency ablation procedure for back pain. I had bad back pain and was considering doing it and wonder if anyone had issues with it. Well, I'm happy to report that I had the procedure yesterday and have experienced immediate pain relief. . I have
In the past, I asked if others had the spinal radio-frequency ablation procedure for back pain. I had bad back pain and was considering doing it and wonder if anyone had issues with it. Well, I'm happy to report that I had the procedure yesterday and have experienced immediate pain relief. . I have
drmind
in
Kidney Dialysis
9 months ago
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filgotinib and shingles,
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
hi everyone Just getting over last 2 weeks of awful shingles ,my god painful or what!! As I am on filgotinib and it lists side effect can be reactivation of shingles virus,I can only assume it is that.Has anyone else had shingles while on any of the JAK meds? Pharmacist prescribed antivirals within
Doodlereggie
in
NRAS
4 months ago
vagus nerve stimulation machines and Afib
Has anyone with AFib got any experience of using one of these machines, such as Nurosym, Amofit, Sensate?
Has anyone with AFib got any experience of using one of these machines, such as Nurosym, Amofit, Sensate?
MTBCyclist
in
Atrial Fibrillation Support
4 months ago
anti NMDA encephalitis
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
Hi! My husband had HSV1 encephalitis in March-April 2023, then anti NMDA encephalitis May-August 2023. He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have
AntiNMDAWarriorWife
in
Headway
4 months ago
A Shingrix thank you
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Hi, I just wanted to thank so many of you who have spoken of your side effects with the second Shingrix, yet being worth it. It was when I recently read here that being only half vaccinated was still being open to Shingles that spurred me into getting the second one today, after 2 1/2 years. After
Schubert1870
in
CLL Support
4 months ago
Thanks for the replies to my previous post
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
Thanks for your replies to my first post everyone. Comforting to know I'm not alone in feeling overwhelmed by this, but I'm blown away by how many people are enduring this and find ectopics really debilitating. It's so sad that our feeling are dismissed as unimportant by people who have no idea what
dragonsinger
in
British Heart Foundation
5 months ago
Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
5 months ago
Vagal a fib
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
I listened to a cardiologist on utube. He mentioned vagal a fib. Does any one what this is? It seems to be a younger cohort but I presume it comes with the usual meds. How can you find out if you have it? I seem to be able to stop a fib attacks with vagal manoeuvres and sometimes my a fib is brought
TillyBoss
in
AF Association
5 months ago
Transcutaneous electrical nerve stimulation (TENS)
I would like to share my experience with transcutaneous (that means through the skin) electrical nerve stimulation (TENS), a method of pain relief using a mild electrical current. A TENS machine is a small inexpensive device with electrodes connected to sticky pads. I've been using it on my hands 3 times
I would like to share my experience with transcutaneous (that means through the skin) electrical nerve stimulation (TENS), a method of pain relief using a mild electrical current. A TENS machine is a small inexpensive device with electrodes connected to sticky pads. I've been using it on my hands 3 times
Michel0220
in
Cure Parkinson's
1 day ago
EMG and Afib?
has anyone had an EMG and if so did it trigger Afib? The doctor says it shouldn’t, but my first episode was the day after TENS on my feet at physical therapy… Thanks!
has anyone had an EMG and if so did it trigger Afib? The doctor says it shouldn’t, but my first episode was the day after TENS on my feet at physical therapy… Thanks!
Cabot
in
Atrial Fibrillation Support
2 days ago
Advice needed
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
Hi, my wife has endometriosis and I am wondering just how exactly I can convince a Dr about the level of pain she is in? Her journey started with very heavy and long periods on average between 10-20 days of very heavy bleeding, then she would have 3-5 days without and then again 10-20 days bleeding
bohica666
in
Endometriosis UK
13 days ago
19 year old daughter suffering
Since 14 desperately painful periods were diagnosed so enduring pain throughout the month and not just during her period. So here we are and some weeks ago we were offered on a free trial a groundbreaking new technique of diagnosing Endo without an invasive technique. Professor Amso at Oaktree clinic
Since 14 desperately painful periods were diagnosed so enduring pain throughout the month and not just during her period. So here we are and some weeks ago we were offered on a free trial a groundbreaking new technique of diagnosing Endo without an invasive technique. Professor Amso at Oaktree clinic
MissWilliams
in
Endometriosis UK
14 days ago
Shingles.
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
I have always posted about my Afib and cardioablation. And all you nice people have helped me immensely. But now I'm going through another matter. Thirteen days ago I came down with shingles. The rash started on my back around my left shoulder blade and moved under my arm and onto my left breast. I can
mlp3434
in
AF Association
5 months ago
Myoovi - has anyone tried this and what do you think?
I've looking at getting the myoovi tens machine for my awful endo pain - has anyone tried it and can share whether it's been useful for them? X
I've looking at getting the myoovi tens machine for my awful endo pain - has anyone tried it and can share whether it's been useful for them? X
AFC007
in
Endometriosis UK
22 days ago
Seeking Advice: Non-Medication Methods for Managing Hand Joint Pain Flare-Ups
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Hello everyone, I'm reaching out to this community for some advice and personal experiences. I have been living with lupus for six years now, and I've been dealing with joint pain in my hands for quite a while. I'm particularly interested in non-medication methods to manage flare-ups. I've heard
Sophieeeee
in
LUPUS UK
1 month ago
Travel vaccinations
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
Dorothy61
in
PMRGCAuk
5 months ago
struggling to get diagnosed
Since I was 13 I have been dealing with significant pain in my lower abdomen and back, particularly during my menstrual cycle. The intensity of the pain has been increasing, to the point where it is impacting my ability to carry out normal daily activities some days. Additionally, I have been experiencing
Since I was 13 I have been dealing with significant pain in my lower abdomen and back, particularly during my menstrual cycle. The intensity of the pain has been increasing, to the point where it is impacting my ability to carry out normal daily activities some days. Additionally, I have been experiencing
Ca1t7yn
in
Endometriosis UK
1 month ago
Curious about using the tens unit
Has anyone tried this for RLS? If so, where did you place the pads and how much did it help?
Has anyone tried this for RLS? If so, where did you place the pads and how much did it help?
Fleur29
in
Restless Legs Syndrome
1 month ago
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