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Time to try some extended release?
I realize this comes up for discussion quite frequently, but I’m going to ask for some advice here for my particular situation. I was diagnosed January 14/ 2014 with idiopathic Parkinsons Disease, and purposefully avoided starting the C/L treatment as long as I felt I could. I don’t remember the exact
I realize this comes up for discussion quite frequently, but I’m going to ask for some advice here for my particular situation. I was diagnosed January 14/ 2014 with idiopathic Parkinsons Disease, and purposefully avoided starting the C/L treatment as long as I felt I could. I don’t remember the exact
Dpeachey
in
Cure Parkinson's
9 months ago
Steroids and Covid Vaccination
Covid vaccination is now due, am not sure whether to book or not. is it ok to have this whilst on steroids ?
Covid vaccination is now due, am not sure whether to book or not. is it ok to have this whilst on steroids ?
gillsky8
in
PMRGCAuk
10 months ago
Need help with results
Hi there! I have a sad story to tell about the last 6 months. I had a severe kidney stone infection (and UTI) in the spring. I was slowly doing better on my new thyroid medication (Erfa), but the infection caused bacteremia/urosepsis and I developed severe confusion. I had started taking my thyroid
Hi there! I have a sad story to tell about the last 6 months. I had a severe kidney stone infection (and UTI) in the spring. I was slowly doing better on my new thyroid medication (Erfa), but the infection caused bacteremia/urosepsis and I developed severe confusion. I had started taking my thyroid
The-Wasp
in
Thyroid UK
10 months ago
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Covid-19 jab - book now or wait
In the UK, the Government is rolling out its autumn Covid-19 vaccination programme and encouraging those eligible to book their appointment as soon as possible. However, there is some concern that the current vaccines being used may not offer protection against new Covid variants such as Pirola, and
In the UK, the Government is rolling out its autumn Covid-19 vaccination programme and encouraging those eligible to book their appointment as soon as possible. However, there is some concern that the current vaccines being used may not offer protection against new Covid variants such as Pirola, and
Beatirce
in
CLL Support
10 months ago
Calf Muscle Pain
Hi everybody I have a question re calf muscle pain My history - diagnosed with PMR & RA in April 23 - started 30 mg pred - tapered to 10.5 in August - experienced pain in buttocks, extreme fatigue and pain in left calf muscle - Rhumetologist put me back to 12.5 pred for 3 months as I’m travelling
Hi everybody I have a question re calf muscle pain My history - diagnosed with PMR & RA in April 23 - started 30 mg pred - tapered to 10.5 in August - experienced pain in buttocks, extreme fatigue and pain in left calf muscle - Rhumetologist put me back to 12.5 pred for 3 months as I’m travelling
MegfromOz
in
PMRGCAuk
10 months ago
Polite request to not post or comment on Covid vaccine unless it's specific to PMR or GCA
Dear forum members, please avoid comments or debates about the covid vaccine unless it's very specifically related to a PMR or GCA question. Comments that fall outside of this will be removed. If you want to discuss vaccines in general, covid or otherwise, please do so on another site. We don't have
Dear forum members, please avoid comments or debates about the covid vaccine unless it's very specifically related to a PMR or GCA question. Comments that fall outside of this will be removed. If you want to discuss vaccines in general, covid or otherwise, please do so on another site. We don't have
Fran_Benson
Partner
in
PMRGCAuk
10 months ago
Covid
Does a head cold stop you taking covid ? My husband and my son has covid they thought it was only cold , they had it several days before they tested . I've been testing every day since as I'm on methotrexate and remsima, my tests are clear so far . I have not had my covid vaccine yet, but I have
Does a head cold stop you taking covid ? My husband and my son has covid they thought it was only cold , they had it several days before they tested . I've been testing every day since as I'm on methotrexate and remsima, my tests are clear so far . I have not had my covid vaccine yet, but I have
Grounsel
in
NRAS
8 months ago
stopping aspirin temporarily
hi. I’m suffering from really bad sciatica. The orthopaedic surgeon wants to give me a branch block steroid injection (whatever that is) but only if I can come off aspirin (75mg) for a few days. This is because he’s afraid I might bleed into the sciatic nerve, which could be disastrous. I’m seeing my
hi. I’m suffering from really bad sciatica. The orthopaedic surgeon wants to give me a branch block steroid injection (whatever that is) but only if I can come off aspirin (75mg) for a few days. This is because he’s afraid I might bleed into the sciatic nerve, which could be disastrous. I’m seeing my
Harefieldfan
in
British Heart Foundation
10 months ago
Bronchitis
I have been coughing on and off for about a month, a few days ago I started feeling really ill. I phoned the surgery and was given an appointment with a nurse practitioner who confirmed it was bronchitis and not a chest infection and gave a prescription for a salbutamol inhaler. Should I be concerned
I have been coughing on and off for about a month, a few days ago I started feeling really ill. I phoned the surgery and was given an appointment with a nurse practitioner who confirmed it was bronchitis and not a chest infection and gave a prescription for a salbutamol inhaler. Should I be concerned
valwood
in
Vasculitis UK
7 months ago
Week 8 Run 1
I have had to put this run off because of a cold.But I have done it and even enjoyed it. Then met my hubby in the pub for a drink.
I have had to put this run off because of a cold.But I have done it and even enjoyed it. Then met my hubby in the pub for a drink.
GM11
in
Couch to 5K
7 months ago
Wary of covid autumn booster
Hi, You can read from my profile that I am aware that there COULD be a link between the Pfizer jab (Comirnaty) that I had in November 2021 and the onset of PMR soon after. I had had two AstraZenica jabs prior to this earlier in 2021 with no adverse effects whatsoever. While on 6mg prednisolone, in
Hi, You can read from my profile that I am aware that there COULD be a link between the Pfizer jab (Comirnaty) that I had in November 2021 and the onset of PMR soon after. I had had two AstraZenica jabs prior to this earlier in 2021 with no adverse effects whatsoever. While on 6mg prednisolone, in
kalgoorlie
in
PMRGCAuk
10 months ago
Pegasys --> Besremi and HCT
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Swede99
in
MPN Voice
11 months ago
Should I have a Covid booster?
Hi, I’m new to posting on this forum though I regularly read everything posted. I have been very grateful for what I have learned about AFib since it is not easy to find practical information about living with the condition. I am 99.9% certain my AFib was caused by the Pfizer covid vaccine and the electrophysiologist
Hi, I’m new to posting on this forum though I regularly read everything posted. I have been very grateful for what I have learned about AFib since it is not easy to find practical information about living with the condition. I am 99.9% certain my AFib was caused by the Pfizer covid vaccine and the electrophysiologist
Blackscottiedog
in
Atrial Fibrillation Support
10 months ago
Covid boosteer autumn 2023
How do others feel about having the autumn booster for Covid?
How do others feel about having the autumn booster for Covid?
Bennijax
in
PMRGCAuk
10 months ago
Covid vaccination brand
I was diagnosed with ANCA+ Vasculitis 15 years ago. Currently treated with rixathon every 7 -12 months. I used to be treated with rituximab but that affected my memory. My concern is the Pfizer Covid vaccination because it gives me a leg rash - Livedo reticularis, which worsens each time and never
I was diagnosed with ANCA+ Vasculitis 15 years ago. Currently treated with rixathon every 7 -12 months. I used to be treated with rituximab but that affected my memory. My concern is the Pfizer Covid vaccination because it gives me a leg rash - Livedo reticularis, which worsens each time and never
Rosie7may
in
Vasculitis UK
10 months ago
My precious daughter
***HELP NEEDED DESPERATELY*** My precious daughter was unfortunately diagnosed with Multiple Hepatic Adenomas in November 2021. She has currently got 12 of these tumours in her liver. In January 2022 she had a liver resection, as the largest tumour was hemorrhaging at the time. The right half of her
***HELP NEEDED DESPERATELY*** My precious daughter was unfortunately diagnosed with Multiple Hepatic Adenomas in November 2021. She has currently got 12 of these tumours in her liver. In January 2022 she had a liver resection, as the largest tumour was hemorrhaging at the time. The right half of her
Mami77
in
British Liver Trust
10 months ago
Taking so many drugs ...
Hi all - I posted on here recently as I had an asthma flare up whilst in India. Well, couldn't make it home without seeing a doctor 😕 He said it was pollution induced and gave me a short course of methylprednisolone, omeprazole, anti histamines, cough medicine and antibiotics!!! He also said he couldn't
Hi all - I posted on here recently as I had an asthma flare up whilst in India. Well, couldn't make it home without seeing a doctor 😕 He said it was pollution induced and gave me a short course of methylprednisolone, omeprazole, anti histamines, cough medicine and antibiotics!!! He also said he couldn't
Padders
in
Asthma Community Forum
7 months ago
just need a friend
hi everyone. based on my last posts you know I’ve been working on my anxiety. I recently did an IOP group which I found so helpful. This weekend on Friday I went out with my friends and drank more than I should have and had a panic attack about getting sick, but didn’t get sick. Yesterday I did a tasting
hi everyone. based on my last posts you know I’ve been working on my anxiety. I recently did an IOP group which I found so helpful. This weekend on Friday I went out with my friends and drank more than I should have and had a panic attack about getting sick, but didn’t get sick. Yesterday I did a tasting
Daisy425
in
Anxiety and Depression Support
10 months ago
it’s that Covid booster query time of year!
hello all Thank you once again for all your lovely support while I was going through the shingles horror show! This booster is my first on Rinvoq. Would love to hear from other people that have had Covid vaccines while taking it.Can anyone advise on how long to stop it for after the jab? I’m also
hello all Thank you once again for all your lovely support while I was going through the shingles horror show! This booster is my first on Rinvoq. Would love to hear from other people that have had Covid vaccines while taking it.Can anyone advise on how long to stop it for after the jab? I’m also
Bon1
in
NRAS
10 months ago
One Covid/Afib connection
I tested positive for Covid last week, and I was awakened the next night by a strong coughing attack for a few seconds that made me unable to catch my breath. My heart apparently responded the way its does to sleep apnea and jumped into arrhythmia before I could calm it with some deep nose breaths. This
I tested positive for Covid last week, and I was awakened the next night by a strong coughing attack for a few seconds that made me unable to catch my breath. My heart apparently responded the way its does to sleep apnea and jumped into arrhythmia before I could calm it with some deep nose breaths. This
fibnum
in
AF Association
10 months ago
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