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Jaw and Shoulder Pain
Did anyone have jaw and/or shoulder pain that was eventually relieved once they found their sweetspot? I am 24 days on 100mcg T4 and 5mcg T3. I have the jaw and shoulder pain, plus still very tired. I think the brain fog is somewhat better. It is hard to sort out brain fog and fatigue at times. I can
Did anyone have jaw and/or shoulder pain that was eventually relieved once they found their sweetspot? I am 24 days on 100mcg T4 and 5mcg T3. I have the jaw and shoulder pain, plus still very tired. I think the brain fog is somewhat better. It is hard to sort out brain fog and fatigue at times. I can
HeartWoman
in
Thyroid UK
10 months ago
Presentation by Dr Yusuf (JP) Saleeb on LDN, Long Covid, and Chronic Lyme Disease
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Shewulf
Administrator
in
LDN Research Trust
6 months ago
Recurrent meningitis
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
Hi, I'm looking to connect or share experiences with anyone who has had multiple cases of meningitis and is currently at risk of meningitis due to a csf leak? My csf leak is from a traumatic injury and I've had 3 surgical attempts to fix the leak. I've had 2 cases of meningitis, and both were before
SunflowerGirl
in
Meningitis Now
2 months ago
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Travel vaccinations
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
I’m travelling to Bali in April and been recommended to have Typhoid, Tetanus and Hepatitis A boosters. Has anyone experienced any issues following these vaccinations please? Currently on 0.5mg Pred and no intention of reducing further until after the holiday!
Dorothy61
in
PMRGCAuk
3 months ago
Shingles pain
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
I've had shingles with continuing pain. Wounds like a burn and a scratch are taking ages to heal. I am older, 66, and I know this can happen. Any suggestions for tests I could ask for and is there any point asking for them. Best wishes Fiona
FinneUK
in
Thyroid UK
3 months ago
November Webinar
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
We hope you will join us and ask your questions during the November Live Webinar with Dr Yusuf (JP) Saleeby with a presentation on LDN, Long Covid and Lyme Disease Update. Register here https://form.ldnresearchtrust.org/232812335487964 for a $5 donation.
Shewulf
Administrator
in
LDN Research Trust
6 months ago
vaccinations
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Hi advice from anyone please? I’m on holiday in Egypt the End of the month and wondered if anyone had there vaccinations ie. Tetanus booster, hepatitis A, Typhoid booster. Just not sure if I should go ahead and have them any help I would appreciate? 😊 also I’m on Benapali drug.
Swanfull
in
NRAS
4 months ago
internal shingles
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
hi, I’ve been diagnosed with internal shingles and it’s the most painful thing I have ever experienced. I’m on my last day of Aciclovir, I’m taking paracetamol and codeine during the day and 3 amitriptyline at night, this has been going on for over a week. Is this normal? Any advice gladly accepted
Mongoose123
in
PMRGCAuk
4 months ago
Not sure what to do!
Had shingles about a month ago, it’s cleared up now, started after taking abatacept first injection, had anti virals, not sure now if I should go back on it, also take MTX which wasn’t working good after being on it for 16 years, funny thing is my crp came back at 3 after having shingles and anti
Had shingles about a month ago, it’s cleared up now, started after taking abatacept first injection, had anti virals, not sure now if I should go back on it, also take MTX which wasn’t working good after being on it for 16 years, funny thing is my crp came back at 3 after having shingles and anti
Kate2628
in
NRAS
11 months ago
Shingles injection
Hi iam on peggasy and have p v having shingles jab soon any problems with this thank you
Hi iam on peggasy and have p v having shingles jab soon any problems with this thank you
baggies
in
MPN Voice
5 months ago
Fever for 5 weeks (viral meningitis)
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Roosvanderv
in
Meningitis Now
5 months ago
Post meningitis
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Lovehope2
in
Meningitis Now
5 months ago
Am I at risk of shingles
Hello - i'm about to go and spend a weekend with my in laws and they have just announced they have shingles. Am I at risk of this having ET?
Hello - i'm about to go and spend a weekend with my in laws and they have just announced they have shingles. Am I at risk of this having ET?
Fjdjdjdjd
in
MPN Voice
6 months ago
GCA-Lyme Disease Connection?
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
montebello
in
PMRGCAuk
6 months ago
Shingles - to vacc or not to vacc
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Wolfie_at_the_door
in
LUPUS UK
6 months ago
Tetanus booster while on prednisone?
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Has anyone had the tetanus booster (I'm due for a 10-year one) while on prednisone? Am I correct in understanding that we should not have "live" vaccines? And I can't find any information that mentions if it's live or not. Thank you so much for any insights!
Spartans1
in
PMRGCAuk
7 months ago
Rheumatoid Meningitis Recovery
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
Has anyone out there had rheumatoid meningitis? I was recently treated for it and am looking for others who have had this experience or just experience with recovering from aseptic meningitis in general. I was diagnosed with RF positive RA in 2012. My disease has been stable on Cimzia for 6+ years.
ChiChiCo
in
Meningitis Now
1 year ago
Shingles jab
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shot👍
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shot👍
Ovingite
in
MPN Voice
7 months ago
Shingles vaccine
Hi, has anyone had the shingles vaccine, I have had shingles 5 times over the years and have been advised to have the vaccine, bit worried about possible reaction?Thanx
Hi, has anyone had the shingles vaccine, I have had shingles 5 times over the years and have been advised to have the vaccine, bit worried about possible reaction?Thanx
Den73
in
PMRGCAuk
7 months ago
Shingles vaccine
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Has anyone on methotrexate and infliximab had the shingles vaccine ? Do you have to get it every year ?
Grounsel
in
NRAS
7 months ago
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