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Itchy toes
My diagnosis is SLE/AS, Lupus
Nephritis
and Tumid Lupus. I have done really well on Hydroxy and at the beginning of Dec my Rheumy told me to reduce my dose from 400 to 200.
My diagnosis is SLE/AS, Lupus
Nephritis
and Tumid Lupus. I have done really well on Hydroxy and at the beginning of Dec my Rheumy told me to reduce my dose from 400 to 200.
maurice1
in
LUPUS UK
10 years ago
ITP was accute, but then something else happened
They immediately took blood, blood pressure and a urine sample. after a few hours we got the diagnosis:
Nephritis
Syndrome. Yet again a rare auto immune problem....
They immediately took blood, blood pressure and a urine sample. after a few hours we got the diagnosis:
Nephritis
Syndrome. Yet again a rare auto immune problem....
Kimmeke
in
ITP Support Association
10 years ago
TUMID LUPUS
I am 62 yr old female and 18 months ago I was diagnosed with SLE/AS overlap, and Lupus
Nephritis
. As well as Malaria rash I had a strange ugly rash on my thigh which both my GO and my dermatologist could not identify. After biopsy the pathologist reported that it was Tumid Lupus.
I am 62 yr old female and 18 months ago I was diagnosed with SLE/AS overlap, and Lupus
Nephritis
. As well as Malaria rash I had a strange ugly rash on my thigh which both my GO and my dermatologist could not identify. After biopsy the pathologist reported that it was Tumid Lupus.
maurice1
in
LUPUS UK
10 years ago
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Can Kidney Function fluctuate in the early stages of Lupus Nephritis treatment with Mycophenolate?
I am nearly 22 now this has been my only flare since my first flare at diagnosis at 17 in 2010 my initial treatment involved IV pred and then a combination of MMF and oral pred which helped the lupus
nephritis
very quickly.
I am nearly 22 now this has been my only flare since my first flare at diagnosis at 17 in 2010 my initial treatment involved IV pred and then a combination of MMF and oral pred which helped the lupus
nephritis
very quickly.
marni04
in
LUPUS UK
10 years ago
Lupus nephritis? Wish me luck..
Hi my symptoms started in winter numb fingers toes.then red blotches on fingers and toes then swelling. Then facial swelling.then flares . fever tiredness nausea. Went to doctors numerous times. They only took me seriously when I had a major discoid flare over body. Dermatologist was good but I insisted
Hi my symptoms started in winter numb fingers toes.then red blotches on fingers and toes then swelling. Then facial swelling.then flares . fever tiredness nausea. Went to doctors numerous times. They only took me seriously when I had a major discoid flare over body. Dermatologist was good but I insisted
loopylewis
in
LUPUS UK
10 years ago
October's Blog (Part 1) - Christina's experience of pregnancy with lupus
I also had protein in my urine but this was ‘normal’ for me as I had lupus
nephritis
in 2001 which left scarring in my kidneys. The midwife had me admitted to hospital straight away which confused me as I felt fine. I just put the tiredness down to being pregnant and having lupus.
I also had protein in my urine but this was ‘normal’ for me as I had lupus
nephritis
in 2001 which left scarring in my kidneys. The midwife had me admitted to hospital straight away which confused me as I felt fine. I just put the tiredness down to being pregnant and having lupus.
Paul_Howard
LUPUS UK
in
LUPUS UK
10 years ago
Reductions in meds!
Hello all Was diagnosed with lupus
nephritis
a year ago and my blood are finally stable. I am still leaking a bit of protein but the docs have decided to reduce by steriods from 5mg to 4mg and hopefully go down from there.
Hello all Was diagnosed with lupus
nephritis
a year ago and my blood are finally stable. I am still leaking a bit of protein but the docs have decided to reduce by steriods from 5mg to 4mg and hopefully go down from there.
Heights69
in
LUPUS UK
10 years ago
August's Blog - Anna's experience of travelling with lupus
And even after coming back to work in the UK, losing my job due to
nephritis
, 8 months of chemotherapy last year and days where I feel tired and sick of being sick I’ll always know I did something good and challenging, had amazing adventures and met wonderful people.
And even after coming back to work in the UK, losing my job due to
nephritis
, 8 months of chemotherapy last year and days where I feel tired and sick of being sick I’ll always know I did something good and challenging, had amazing adventures and met wonderful people.
Paul_Howard
LUPUS UK
in
LUPUS UK
10 years ago
any men on here with lupus I have lupus and lupus nephritis and lupus epilepsy. suffered since early 20,s had rheumatoid arth. from toddler
don't seem to see any other males with it
don't seem to see any other males with it
Andrewc
in
LUPUS UK
10 years ago
Does anyone have any experience of being treated with cyclophosphomide for lupus nephritis please?
largesse
in
LUPUS UK
10 years ago
I have early stages of membranous glomorulae nephritis, which is a condition of the kidneys, Is there a cure for nephritis ?
dragonfly54
in
Vasculitis UK
10 years ago
cyclophosphamide?
I have SLE, lupus
nephritis
, raynauds phenomenon and a mixed connective tissue disorder, but it is obviously the lupus
nephritis
they are focusing on.
I have SLE, lupus
nephritis
, raynauds phenomenon and a mixed connective tissue disorder, but it is obviously the lupus
nephritis
they are focusing on.
Priya_S
in
LUPUS UK
10 years ago
Pregnancy and SLE, Nephritis
Would really appreciate any comments about your experiences, particularly from those with Lupus
Nephritis
. Thank you x
Would really appreciate any comments about your experiences, particularly from those with Lupus
Nephritis
. Thank you x
Anne2012
in
LUPUS UK
11 years ago
Applying for a blue badge
I have SLE , lupus
nephritis
& Hughes syndrome ...
I have SLE , lupus
nephritis
& Hughes syndrome ...
Ischky
in
LUPUS UK
10 years ago
So, how did people here get their diagnosis?
I also have, according to thrombotologist and GP probable lupus
nephritis
. Are they really going to insist on +ve bloods for sle or can I push for plaquinel which could also help aps too. Sorry for rant. I have been ferling awful for so long, my body is falling apart, and I am fed up.
I also have, according to thrombotologist and GP probable lupus
nephritis
. Are they really going to insist on +ve bloods for sle or can I push for plaquinel which could also help aps too. Sorry for rant. I have been ferling awful for so long, my body is falling apart, and I am fed up.
Bonnie39
in
LUPUS UK
10 years ago
Is Lupus Nephritis fatal?
My younger sisters coach was diagnosed just a few days ago and my family is very worried about her. Shes 20. Her syptoms which made her get checked quick was she was vomitting profusely and judt overall wasnt feeling good
My younger sisters coach was diagnosed just a few days ago and my family is very worried about her. Shes 20. Her syptoms which made her get checked quick was she was vomitting profusely and judt overall wasnt feeling good
jennyjust90
in
LUpus Patients Understanding and Support
11 years ago
Lupus nephritis?
Can anyone tell me if lupus
nephritis
would be unclear from these tests or if there is some other cause? She suggested that my kidneys may not be working at a more microscopic than gross level. I'm back at my GP Tuesday and would like to have some ideas of things we may discuss.
Can anyone tell me if lupus
nephritis
would be unclear from these tests or if there is some other cause? She suggested that my kidneys may not be working at a more microscopic than gross level. I'm back at my GP Tuesday and would like to have some ideas of things we may discuss.
Bonnie39
in
LUPUS UK
11 years ago
I have copd ostuctive+restrictive sreroid induced diabetes bilateral oedema nephritis anyone similiar or ANY advice please.
gadwally
in
Lung Conditions Community Forum
11 years ago
Is St Thomas' discharging patients a lot at the moment?
nephritis
, hypothyroidism etc etc. I am really concerned now that I will have more events if he is discharging me particularly if I am made to come off warfarin, and upset that it may be due to numbers or funding rather than my clinical need :-(
nephritis
, hypothyroidism etc etc. I am really concerned now that I will have more events if he is discharging me particularly if I am made to come off warfarin, and upset that it may be due to numbers or funding rather than my clinical need :-(
Bonnie39
in
Hughes Syndrome APS Forum
11 years ago
Does anyone here have kidney problems, I'm nervous about tomorrow's results...
If this turns out to be Lupus
Nephritis
(the kidney type) then it's the worst sort to have.
If this turns out to be Lupus
Nephritis
(the kidney type) then it's the worst sort to have.
Hidden
in
Fibromyalgia Action UK
11 years ago
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