My renal consultant and rheumatologist have been monitoring me for quite a while now but are concerned that my condition is still not controlled. I have SLE, lupus nephritis, raynauds phenomenon and a mixed connective tissue disorder, but it is obviously the lupus nephritis they are focusing on. They had put me on the following medication: hydroxychloroquinine, nifedipine, warfarin and mycophenalate, however due to the lack of change they want to change my treatment to cyclophosphamide.
Now, I googled (I always do, though I know I shouldn't) and the fact that it is also a chemotherapy has pretty much scared me straightaway! I know that may sound silly but still. So I was just wondering whether anyone else on here is having cyclophosphamide as treatment? if so how are you coping with it? one of my worries is hair loss and I know that really in comparison to my kidneys it should be the least of my worries but I am just a typical 18 year old girl and it is a concern for me.
So if anyone is willing to share how they've found it I'd be very grateful!
Thank you (: