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Anyone with kidney involvement and APS and CNS involvement???
I feel like I don't meet many lupus people who have
nephritis
and antiphospholipid syndrome. I have had lupus for 20 years, aps for 17 years and just recently it hit my brain. Just looking for people to commiserate with!! :)
I feel like I don't meet many lupus people who have
nephritis
and antiphospholipid syndrome. I have had lupus for 20 years, aps for 17 years and just recently it hit my brain. Just looking for people to commiserate with!! :)
Reinke
in
LUPUS UK
11 years ago
how to manage premenstrual symptoms in lupus nephritis
i'm on treatment with prednisolone,chloroquine and immunosuppressents for 8 months, but now i'm suffering out of terrible premenstrual symptoms,joint pains and wierd mood swings.sometimes i cant even sleep and i cant control stress.help!!
i'm on treatment with prednisolone,chloroquine and immunosuppressents for 8 months, but now i'm suffering out of terrible premenstrual symptoms,joint pains and wierd mood swings.sometimes i cant even sleep and i cant control stress.help!!
nica
in
LUPUS UK
11 years ago
how to reduce premenstrual symptoms while on lupus nephritis medications
this may sound weird but i'm sure someone has the same problem just like me and understands the gravity of my situation.i'm having terrible premenstrual symptoms-abdominal cramps,swelled up body,mood swings,inability to sleep, tremor and body pain.help!!
this may sound weird but i'm sure someone has the same problem just like me and understands the gravity of my situation.i'm having terrible premenstrual symptoms-abdominal cramps,swelled up body,mood swings,inability to sleep, tremor and body pain.help!!
nica
in
LUpus Patients Understanding and Support
11 years ago
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Hello all-new here! Just been diagnosed lupus nephritis
Anyone else out there got any experiences of lupus
nephritis
? Thanks
Anyone else out there got any experiences of lupus
nephritis
? Thanks
Heights69
in
LUPUS UK
11 years ago
lupus nephritis
how many episodes of
nephritis
have you had? ive had it once so far 2 years ago stage 4,will it always happen again with a flare?
how many episodes of
nephritis
have you had? ive had it once so far 2 years ago stage 4,will it always happen again with a flare?
poodlegal
in
LUPUS UK
11 years ago
Struggling emotionally - Counseling support needed
Hi all, I was diagnosed with Lupus
Nephritis
about 2 months ago and it has really changed a lot for me. I feel I have a whirlwind of emotions all the time and have so many things through my mind constantly.
Hi all, I was diagnosed with Lupus
Nephritis
about 2 months ago and it has really changed a lot for me. I feel I have a whirlwind of emotions all the time and have so many things through my mind constantly.
rooks1984
in
LUPUS UK
11 years ago
The Children with Edema, is That Childhood Nephritis
Lastly, kidney disease experts point out: Childhood
Nephritis
can induce children bloated eye. The parents exclude the above mentioned reason for the bloated eye, and then the bloated eye may be induced by Childhood
Nephritis
.
Lastly, kidney disease experts point out: Childhood
Nephritis
can induce children bloated eye. The parents exclude the above mentioned reason for the bloated eye, and then the bloated eye may be induced by Childhood
Nephritis
.
Hidden
in
Early CKD Support
11 years ago
Class 4 Lupus Nephritis - Similar experiences anyone?
Hi all, I am a 28yr old female who has was diagnosed with Lupus
Nephritis
(class 4) about a month ago. I wont lie it hasnt been an easy ride both physically or emotionally and it does feel like my whole life was turned upside down.
Hi all, I am a 28yr old female who has was diagnosed with Lupus
Nephritis
(class 4) about a month ago. I wont lie it hasnt been an easy ride both physically or emotionally and it does feel like my whole life was turned upside down.
rooks1984
in
LUPUS UK
11 years ago
Trip to GP for blood results
bleeding is thus due to vasculitis or was the erratic bleeding related to RA or my meds or a gynae issue (or more seriously for me - having investigated types of vasculitis I saw that the severe type causes problems to internal organs such as kidneys..... my mum died of kidney failure due to glomerula
nephritis
bleeding is thus due to vasculitis or was the erratic bleeding related to RA or my meds or a gynae issue (or more seriously for me - having investigated types of vasculitis I saw that the severe type causes problems to internal organs such as kidneys..... my mum died of kidney failure due to glomerula
nephritis
nottsexsportfanatic
in
NRAS
11 years ago
Lupus research study seeking participants for telephone interviews ***Applications Now Closed***
They are interested in speaking to patients who have been diagnosed with either SLE or Lupus
Nephritis
and are at the moderate or severe stage.
They are interested in speaking to patients who have been diagnosed with either SLE or Lupus
Nephritis
and are at the moderate or severe stage.
Paul_Howard
LUPUS UK
in
LUPUS UK
11 years ago
Water retention doesnt seem to be easing at all
I am a 28yr old female who has recently been diagnosed with class 4 Lupus
Nephritis
(only in the past month). .I am currently on 60mg of steroids and immunosupressents along with many other meds as you can all probably relate to.
I am a 28yr old female who has recently been diagnosed with class 4 Lupus
Nephritis
(only in the past month). .I am currently on 60mg of steroids and immunosupressents along with many other meds as you can all probably relate to.
rooks1984
in
LUPUS UK
11 years ago
Writing from my hospital bed
Forgetting who or where I was Even writng this is blog is so tough fr m Lumbar puncture was done Ct scan... nothing shown Lupus extremely active Lupus
nephritis
hittn hard...
Forgetting who or where I was Even writng this is blog is so tough fr m Lumbar puncture was done Ct scan... nothing shown Lupus extremely active Lupus
nephritis
hittn hard...
nass361
in
LUPUS UK
12 years ago
Possible new option for CNS lupus, lupus nephritis, and lupus polyarthritis
In addition to targeting CNS lupus and lupus
nephritis
, Tocilizumab is being considered as a possible therapy for SLE patients who have arthritis. An article on the National Institutes of Health website describes a patient who had a variety of symptoms, including "polyarthritis".
In addition to targeting CNS lupus and lupus
nephritis
, Tocilizumab is being considered as a possible therapy for SLE patients who have arthritis. An article on the National Institutes of Health website describes a patient who had a variety of symptoms, including "polyarthritis".
lupuswriter
in
LUPUS UK
12 years ago
stopping immunosurpressants
,i stopped taking them 5 weeks ago due to low white blood count,i have no signs of a flare and up to last weeks blood test my kidneys were ok(have pre
nephritis
) i go to hospital on thursday to see the doctors who say i will be put back on it,im confused about why they let me go 5 wks without it then
,i stopped taking them 5 weeks ago due to low white blood count,i have no signs of a flare and up to last weeks blood test my kidneys were ok(have pre
nephritis
) i go to hospital on thursday to see the doctors who say i will be put back on it,im confused about why they let me go 5 wks without it then
poodlegal
in
LUPUS UK
12 years ago
Lupus + Acupuncture
I had another little boy in April last year and unfortunately it seems that after i have given birth Lupus tends to kick in and i progessed to Lupus
Nephritis
and have to take lots of meds now, but i rarely get joint pain and i still have acupunture every couple of months.
I had another little boy in April last year and unfortunately it seems that after i have given birth Lupus tends to kick in and i progessed to Lupus
Nephritis
and have to take lots of meds now, but i rarely get joint pain and i still have acupunture every couple of months.
liesa
in
LUPUS UK
12 years ago
Has anyone claimed on life insurance policy of any kind regarding lupus?
I recently contacted them to see if they would pay out regarding my diagnosis SLE with class 4
nephritis
. They refused as SLE is not listed on my documentation as it was not generally recocnised when the policy was taken out.
I recently contacted them to see if they would pay out regarding my diagnosis SLE with class 4
nephritis
. They refused as SLE is not listed on my documentation as it was not generally recocnised when the policy was taken out.
pfoz88
in
LUPUS UK
12 years ago
Drinking, help...
Hi Guys I was diagnosed last year with Lupus
nephritis
, quitted treatment and doctors after three months and now I think I might be having a drinking problem. I’m depressed, I cannot handle my anxiety and my stress levels are up the roof. I feel like I’m dying.
Hi Guys I was diagnosed last year with Lupus
nephritis
, quitted treatment and doctors after three months and now I think I might be having a drinking problem. I’m depressed, I cannot handle my anxiety and my stress levels are up the roof. I feel like I’m dying.
SRamkin
in
LUPUS UK
12 years ago
anyone have Lupus and Fibromyalgia??
I've been diagnosed with SLE and Lupus
Nephritis
for some 10 years now and whilst my kidney problems have improved I have other symptoms which are getting worse such as not sleeping properly ( can't sleep longer than 4hours for about a year and a half!
I've been diagnosed with SLE and Lupus
Nephritis
for some 10 years now and whilst my kidney problems have improved I have other symptoms which are getting worse such as not sleeping properly ( can't sleep longer than 4hours for about a year and a half!
frizzylizzy1974
in
LUPUS UK
12 years ago
Weight gain without meds?
I was diagnosed with SLE
nephritis
last year and although I haven’t been on any meds other than Plaquenil since a year now, I feel like I am gaining weight by the minute. I do not go out so I don’t exercise but I’m a vegetarian and I consider myself to be a conscious eater.
I was diagnosed with SLE
nephritis
last year and although I haven’t been on any meds other than Plaquenil since a year now, I feel like I am gaining weight by the minute. I do not go out so I don’t exercise but I’m a vegetarian and I consider myself to be a conscious eater.
SRamkin
in
LUPUS UK
12 years ago
lots of medications and blood tests
I have just been diagnoised with lupus
nephritis
. it has been a roller coaster ride (loads of medication) i just started my first dose of cyclophosphomide and i have a six months old baby. Pls can anybody tell me how they coped with their illness.
I have just been diagnoised with lupus
nephritis
. it has been a roller coaster ride (loads of medication) i just started my first dose of cyclophosphomide and i have a six months old baby. Pls can anybody tell me how they coped with their illness.
ijeasike
in
LUPUS UK
12 years ago
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