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New SLE disease definition: a points tally based on 'ever had' criteria, without need for dsDNA (and maybe ANA) or overlapping symptoms!!!
(8) Renal biopsy with Class III or IV lupus
nephritis
(10) Antiphospholipid Domain Present (anti-cardiolipin antibody positive with medium or high units, or anti-β2-GP1 positive or lupus anticoagulant positive) (2) Complement Proteins Domain Low C3 or Low C4 (3) Low C3 and Low C4 (
(8) Renal biopsy with Class III or IV lupus
nephritis
(10) Antiphospholipid Domain Present (anti-cardiolipin antibody positive with medium or high units, or anti-β2-GP1 positive or lupus anticoagulant positive) (2) Complement Proteins Domain Low C3 or Low C4 (3) Low C3 and Low C4 (
eekt
in
LUPUS UK
6 years ago
Lupus nephritis
I’m not sure if it’s Lupus
nephritis
. It’s not a cyst or any thing strange what the ultrasound didn’t show up not stones. Anyone experienced this before? I have mixed connective tissue.
I’m not sure if it’s Lupus
nephritis
. It’s not a cyst or any thing strange what the ultrasound didn’t show up not stones. Anyone experienced this before? I have mixed connective tissue.
Jess_doyle
in
LUPUS UK
6 years ago
Hair loss with lupus
Hi, I have been diagnosed with lupus
nephritis
this summer and started my treatment. Two months ago my hair starting rapidly falling out. I can’t stop it, I started developing bold patches. I have spoken to my rheumatologist but he didn’t seem concerned ir done anything about it.
Hi, I have been diagnosed with lupus
nephritis
this summer and started my treatment. Two months ago my hair starting rapidly falling out. I can’t stop it, I started developing bold patches. I have spoken to my rheumatologist but he didn’t seem concerned ir done anything about it.
Ole_Vol
in
LUPUS UK
6 years ago
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Seen a great Nephrologist today
This is the first time that I was told that I have Interstitial
Nephritis
. Inflammation happens when blood pressure is uncontrolled.
This is the first time that I was told that I have Interstitial
Nephritis
. Inflammation happens when blood pressure is uncontrolled.
htnckd3
in
Kidney Disease
6 years ago
Kidney Disease?
My cause of FSGS was from strep/
nephritis
that I had when I was a child. It was 40 years later that I was diagnosed with FSGS. I had a transplant in 1999.
My cause of FSGS was from strep/
nephritis
that I had when I was a child. It was 40 years later that I was diagnosed with FSGS. I had a transplant in 1999.
WYOAnne
NKF Ambassador
in
Kidney Disease
6 years ago
Did anyone posting here start their lupus journey with positive blood results without clinical symptoms?
I already knew that the presence of positive levels of anti-dsDNA is supposed to indicate more serious sle ( i.e lupus
nephritis
). The results of an American study in 2001 found that in 74.2% of cases, the presence of these antibodies preceded clinical symptoms on average by 2.3 years!
I already knew that the presence of positive levels of anti-dsDNA is supposed to indicate more serious sle ( i.e lupus
nephritis
). The results of an American study in 2001 found that in 74.2% of cases, the presence of these antibodies preceded clinical symptoms on average by 2.3 years!
Hidden
in
LUPUS UK
6 years ago
Diagnostic Criteria for SLE: ACR’97 vs SLICC’12
Noteworthy differences in the SLICC’12 criteria include a wider spectrum of clinical manifestations; sufficiency of biopsy-proven
nephritis
and positive serology for diagnosis; reorganization of mucocutaneous manifestation items; and merging of photosensitivity and malar rash.
Noteworthy differences in the SLICC’12 criteria include a wider spectrum of clinical manifestations; sufficiency of biopsy-proven
nephritis
and positive serology for diagnosis; reorganization of mucocutaneous manifestation items; and merging of photosensitivity and malar rash.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
How to stop being seen as an illness?
Hello, I've just gone back to work after being ill with a chest infection; I have Lupus, Lupus
nephritis
, interstitial lung disease, bronchiectasis. This is my second time off this year and I'm just wondering if anyone feels like they have lost their old self?
Hello, I've just gone back to work after being ill with a chest infection; I have Lupus, Lupus
nephritis
, interstitial lung disease, bronchiectasis. This is my second time off this year and I'm just wondering if anyone feels like they have lost their old self?
Lil-Miss
in
LUPUS UK
6 years ago
Iga nephritis - gluten free diet
Hello, I was just wondering if anyone else had heard or knew of a strong link between iga
nephritis
and gluten intolerance or other digestive issues? I'm receiving treatment to fix my immune system attacking my kidneys and have been reading up on the mechanism of activation of the iga in the body.
Hello, I was just wondering if anyone else had heard or knew of a strong link between iga
nephritis
and gluten intolerance or other digestive issues? I'm receiving treatment to fix my immune system attacking my kidneys and have been reading up on the mechanism of activation of the iga in the body.
kc4t
in
Kidney Disease
6 years ago
Lupus Nephritis
I was diagnosed with SLE and Lupus
Nephritis
in Feb. I've started on 60mg steroids and MMf straight away, last month I had Rituximab but my Nephrologist has said that early signs are it may not have put the
Nephritis
into remmission..
I was diagnosed with SLE and Lupus
Nephritis
in Feb. I've started on 60mg steroids and MMf straight away, last month I had Rituximab but my Nephrologist has said that early signs are it may not have put the
Nephritis
into remmission..
MOOG144
in
LUPUS UK
6 years ago
Recently flare up and new diagnosis
The doctors found out I have
nephritis
caused by the lupus which I was diagnosed in 1993 when I was 14 years old. Now the steroids that were given to me in higher dosis have given me diabetes.
The doctors found out I have
nephritis
caused by the lupus which I was diagnosed in 1993 when I was 14 years old. Now the steroids that were given to me in higher dosis have given me diabetes.
Cubiche
in
LUPUS UK
6 years ago
asking for help finding a doctor in Reading
I have lupus
Nephritis
. I have plans on visiting UK this coming July, I just wanted to know if you guys have idea how much this medicines will cost in UK? I am taking Cycloposporine, medrol, and hydroxycloquine, and I wanted to ask if you can recommend where I can see a doctor for Lupus in Reading?
I have lupus
Nephritis
. I have plans on visiting UK this coming July, I just wanted to know if you guys have idea how much this medicines will cost in UK? I am taking Cycloposporine, medrol, and hydroxycloquine, and I wanted to ask if you can recommend where I can see a doctor for Lupus in Reading?
jessa08
in
LUPUS UK
6 years ago
Medical help
I living with Lupus
Nephritis
, Discoid lupus, Subcutaneous Lupus erythematosus, Hypokalemia, Anemia, PERICARDITIS, Foot neuralgia, VENOUS INSUFFICIENCY LE Bilateral-with other complications/pos for saphenous reflux), Sjogren syndrome-(Uveitis), Proteinuria, Schatzki's Ring, Arthroplasty of both large
I living with Lupus
Nephritis
, Discoid lupus, Subcutaneous Lupus erythematosus, Hypokalemia, Anemia, PERICARDITIS, Foot neuralgia, VENOUS INSUFFICIENCY LE Bilateral-with other complications/pos for saphenous reflux), Sjogren syndrome-(Uveitis), Proteinuria, Schatzki's Ring, Arthroplasty of both large
VALUPIE
in
LUpus Patients Understanding and Support
6 years ago
Serologic features of cohorts with variable genetic risk for systemic lupus erythematosus
Paradoxically, West Africans in sub-Saharan Africa appear to have a low incidence of SLE, and some studies suggest a milder disease with less
nephritis
.
Paradoxically, West Africans in sub-Saharan Africa appear to have a low incidence of SLE, and some studies suggest a milder disease with less
nephritis
.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Pip points for deafness caused by acoustic neuroma surgery
I have many other health problems , lupus , osteoporosis , blood clots , lupus
nephritis
, I am on immunosuppressants because of my lupus which makes me prone to infections . I was on DLA and have just had to apply for PIP instead as everyone has to .
I have many other health problems , lupus , osteoporosis , blood clots , lupus
nephritis
, I am on immunosuppressants because of my lupus which makes me prone to infections . I was on DLA and have just had to apply for PIP instead as everyone has to .
Buffy14
in
Acoustic Neuroma Support
6 years ago
Levels of Specific Antibodies Linked to Clinical Characteristics of Lupus, Study Reports
One of the major complications of SLE, lupus
nephritis
, or inflammation of the kidney, was significantly correlated with anti-dsDNA levels and anti-Sm antibodies.
One of the major complications of SLE, lupus
nephritis
, or inflammation of the kidney, was significantly correlated with anti-dsDNA levels and anti-Sm antibodies.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
One for the ladies
Hi all I'm going on holiday and want to delay my period I have taken the hormone tablet years ago to prevent my period before lupus dx However 7 years into dx 2 flares of
nephritis
4 Migraines and 2 miscarriages when it came to birth control my dr insisted on the copper coil I said why and she said
Hi all I'm going on holiday and want to delay my period I have taken the hormone tablet years ago to prevent my period before lupus dx However 7 years into dx 2 flares of
nephritis
4 Migraines and 2 miscarriages when it came to birth control my dr insisted on the copper coil I said why and she said
poodlegal
in
LUPUS UK
6 years ago
Antiplatelet Therapy May Protect Renal Function in Some Lupus Patients
Lupus
nephritis
(LN) contributes to morbidity and mortality in patients with systemic lupus erythematosus (SLE). Patients who are positive for antiphospholipid antibodies (aPL) are especially vulnerable to LN.
Lupus
nephritis
(LN) contributes to morbidity and mortality in patients with systemic lupus erythematosus (SLE). Patients who are positive for antiphospholipid antibodies (aPL) are especially vulnerable to LN.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Lupus Nephritis - steroids and imnunosuppresants
Hi Diagnoised with stage 4 Lupus
Nephritis
2 months ago currently on masses of drugs but the main one being 50mg prednisolone and 1.5mg MMF. So apart from the expcted bloating I was doing ok until I caught an upper respiratory tract infection at work.
Hi Diagnoised with stage 4 Lupus
Nephritis
2 months ago currently on masses of drugs but the main one being 50mg prednisolone and 1.5mg MMF. So apart from the expcted bloating I was doing ok until I caught an upper respiratory tract infection at work.
MOOG144
in
LUPUS UK
6 years ago
Creatinine levels going up after 4 weeks on cellcept and prednisone and 3 iv infusions...anyone with similar experience?
Hi my husband has been diagnosed with Lupus
nephritis
class 3 after a kidney biopsy last month. His creatinine levels as he started his meds were down to 130 from 168.
Hi my husband has been diagnosed with Lupus
nephritis
class 3 after a kidney biopsy last month. His creatinine levels as he started his meds were down to 130 from 168.
C17ley
in
LUPUS UK
7 years ago
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