This is my second post and I am hoping for some advice from those of you who have a lot more knowledge and experience with Lupus than I have.
My diagnosis is SLE/AS, Lupus Nephritis and Tumid Lupus. I have done really well on Hydroxy and at the beginning of Dec my Rheumy told me to reduce my dose from 400 to 200. I was happy to do so as I was felling much better. 3 weeks later I started with what seemed to be a cold that never fully developed but just sort of hung around for about 6 weeks. I am feeling somewhat less well than I wad and I started to get random joint pains. I also noticed that two of my fingers were turning white and blue. This week I have been plagued with dreadfully itchy toes which look red and swollen. About a week ago I phoned my rheumatology helpline and they sent me for blood tests. I haven't heard anything from them but out of the blue my GP surgery phoned and told me to pick up forms for a CPR test (in case I have got that wrong, it's for my kidneys) I don't know if I should assume that no news is good news regarding my blood results and I'm not sure whether or not I should tell someone about my blue fingers and red toes. Any advice?