Experiences with

Nephritis

Also have SLE, SCLE, Lupus nephritis, diagnosed 2016 (hopefully now 2025 in permanent remission?), also have primary hypothyroidism and am on 50mcg Levothyroxine daily. Many daily insulin injections +tablets to take.😥☝️Anyone else self-managing/coping with multiple autoimmune disorders?

. • ILCs trigger an avalanche of effects that cause harmful kidney inflammation, also known as lupus nephritis. • The research, published in "Nature," challenges the conventional wisdom that autoantibodies are primarily responsible for lupus nephritis. • The team found that a subgroup of ILCs with a

Then, an unexpected lupus and lupus nephritis diagnosis flipped her world upside down. Instead of letting it get her down, Shae embraced life with lupus. This is her story. https://www.kidney.org/newsletter/staying-positive-lupus-and-lupus-nephritis

She had no idea that these systems foreshadowed future lupus, lupus nephritis, and kidney failure diagnosis. Learn more about Ewo's story: https://www.kidney.org/news-stories/how-community-and-family-support-made-two-life-saving-kidney-donations-possible

“Although M1-like macrophages play a greater role in pediatric [lupus nephritis] patients than in adult [lupus nephritis] patients, M2-like macrophages appear to be key players [in the disease],” the researchers wrote.

Hi I've had two rituximab infusions and on mycophenolate due to SLE lupus nephritis my hair is starting to thin due to lupus and probably the medication has anyone got any recommendations on what to use to make hair thicker and longer again as I'm starting uni in September and am trying to maintain and

CB-010 is being developed to treat both lupus nephritis and extrarenal lupus, a form of the disease in which other organs are affected.

And they've doubled my prednisone 😫 Is the severity of this uti a consequence of the meds changes needed for my surgery , taking the tacrolimus which comes with an increased risk of utis or my lupus nephritis? Who knows 🤷‍♀️ At least I have a view ...... Keep smiling ...I'm trying too 🙂

A research team are planning a study and want to get the views of people with lupus nephritis so they can make sure they are meeting patients’ needs in the study design.

Also years ago I had nephritis a few times and was peeing pure blood. However my egfr is always in normal range. I think I've been diagnosed with fibro but thinking it's actually something else.

The top eight altered proteins between lupus nephritis patients and those with inactive disease were then measured in a separate group of patients, with all eight again showing significant elevations in the lupus nephritis group.

I ended up with a diagnosis of SLE, Lupus Nephritis and RA. 3 years of high dose steriod, Rituximab and all the other lovely drugs, going through hell... going from a size 10 to 20 and as I'm sure you all know the sheer hopelessness of it all... Then lockdown and the nightmare that was.

I have lupus nephritis too and am taking immune suppressants for it. I’m really scared for my CT scan results because they want to see if the cancer has spread elsewhere. I’m worried about my lupus and now this. Is there anybody else in the same or similar position please?

I feel very alone and would just like to hear other people's stories and see what everyone has to say and how they deal with and treat their Lupus or nephritis. Thanks all,,,, 😢

I feel very alone and would just like to hear other people's stories and see what everyone has to say and how they deal with and treat their Lupus or nephritis. Thanks all,,,, 😢

lupus nephritis.

In lupus nephritis, which can affect up to 60% of adults and 80% of children with lupus, the disease targets the kidneys, so patients are advised to undergo routine kidney evaluations.

And now I’ve been told I have Lupus Nephritis I haven’t a clue who my clinic/doctor/consultant will be. At such an early stage of this in my journey I don’t expect anyone can help me right now. It’s just so very scary😢

Other: Immune-mediated hepatitis, colitis, nephritis, and pneumonitis can occur. 14. Provenge (Sipuleucel-T) Toxicity Profile: Low. Side effects are primarily infusion-related (fever, chills). Cardiovascular: Minimal risk.

Some nephritis seems to have attacked me a few years ago and left me with some problems resulting in signs of being in stage 3 kidney failure.