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Neomycin / Prednisolone
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1mg prednisolone….. 0mg
hi I have managed to get down to taking just 1mg pred from 20mg over 18mths . Now I am taking just 1mg a few times a week… when can I stop completely and how will I know if my adrenal glands are coping please?
hi I have managed to get down to taking just 1mg pred from 20mg over 18mths . Now I am taking just 1mg a few times a week… when can I stop completely and how will I know if my adrenal glands are coping please?
Tayzee
in
PMRGCAuk
1 year ago
Severe Itching
Thank you for all your kind responses. So after 2 days on prednisone and hydroxyzine, the itch is lessening. Herb's oncologist thinks this is a side effect of the Keytruda treatments for cancer that Herb started monthly this year. So now we gave to decide whether to discontinue the treatments or face
Thank you for all your kind responses. So after 2 days on prednisone and hydroxyzine, the itch is lessening. Herb's oncologist thinks this is a side effect of the Keytruda treatments for cancer that Herb started monthly this year. So now we gave to decide whether to discontinue the treatments or face
Trower
in
Kidney Disease
1 year ago
STILL ON THE BED...MOSTLY..10TH WEEK
As some are aware, my back issues have been ongoing, but yesterday morning I woke with what feels like a cracked rib. Left side, bottom rib, tenderest spot being about 3 inches to left of the clavicle. Extremely painful. This rib was broken many years ago. Could also be as spasmed muscle, as it reaches
As some are aware, my back issues have been ongoing, but yesterday morning I woke with what feels like a cracked rib. Left side, bottom rib, tenderest spot being about 3 inches to left of the clavicle. Extremely painful. This rib was broken many years ago. Could also be as spasmed muscle, as it reaches
Missus835
in
PMRGCAuk
1 year ago
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Scalp pain
I am getting so frustrated. I have now seen 3 primary care doctors and one rheumatologist. I've had possible diagnoses of either PMR or fibromyalgia None of the 4 can tell me why I have scalp pain, pink scalp and very sore, itchy scalp. None can tell me why I have constant hot flashes. I can't take
I am getting so frustrated. I have now seen 3 primary care doctors and one rheumatologist. I've had possible diagnoses of either PMR or fibromyalgia None of the 4 can tell me why I have scalp pain, pink scalp and very sore, itchy scalp. None can tell me why I have constant hot flashes. I can't take
Dazy2008
in
Fibromyalgia Action UK
1 year ago
tapering problem
hi, I am hoping for some advice I have PMR and been on prednisolone for approx 18 months. After a few ups and downs with tapering from15 gms originally, I had got down to 10 , then after 4 weeks to 9, another 4 weeks to 8, then again four weeks to 7 but have been in so much pain since reducing to
hi, I am hoping for some advice I have PMR and been on prednisolone for approx 18 months. After a few ups and downs with tapering from15 gms originally, I had got down to 10 , then after 4 weeks to 9, another 4 weeks to 8, then again four weeks to 7 but have been in so much pain since reducing to
Sukian
in
PMRGCAuk
1 year ago
Not fair!
I woke up this morning with crushing fatigue and mind-boggling pain. It took me a little bit before I realized that my PMR is back. I put a call into my rheumatologist for a prescription for 20 mg prednisone. Can anyone tell me about how long it took for the pain to subside after starting prednisone.
I woke up this morning with crushing fatigue and mind-boggling pain. It took me a little bit before I realized that my PMR is back. I put a call into my rheumatologist for a prescription for 20 mg prednisone. Can anyone tell me about how long it took for the pain to subside after starting prednisone.
Amkoffee
in
PMRGCAuk
1 year ago
Severe itching
We went to ER today because rash and itching are escalating. They gave him a cortisone shot and a benedryl shot. So far, it has not made a difference. They gave him script for prednisone and hydroxyzine. We have appt to see oncologist tomorrow. Something has to give. He is getting no sleep.
We went to ER today because rash and itching are escalating. They gave him a cortisone shot and a benedryl shot. So far, it has not made a difference. They gave him script for prednisone and hydroxyzine. We have appt to see oncologist tomorrow. Something has to give. He is getting no sleep.
Trower
in
Kidney Disease
1 year ago
good morning
I am currently being treated for latent TB with Rifampin and on prednisone 6mg. I was doing so so well before this new med and it seems rifampin decreases the effects of prednisone which I’ve noticed so much lately! Ugh! I feel as if I’m back to square 1 with the PMR. Is anyone aware of how much I
I am currently being treated for latent TB with Rifampin and on prednisone 6mg. I was doing so so well before this new med and it seems rifampin decreases the effects of prednisone which I’ve noticed so much lately! Ugh! I feel as if I’m back to square 1 with the PMR. Is anyone aware of how much I
Curry_girl
in
PMRGCAuk
1 year ago
Do I have PMR? This is getting ridiculous.
Hi everyone, None of my doctors can give me a definitive diagnosis. I have two rheumatologists and a GP. One of my rheumys is at the Mayo clinic. My diagnosis has changed from myositis to PMR to an "mRNA vaccine-induced myalgia" and then back to myositis, which was ruled out by an MRI. Then it was
Hi everyone, None of my doctors can give me a definitive diagnosis. I have two rheumatologists and a GP. One of my rheumys is at the Mayo clinic. My diagnosis has changed from myositis to PMR to an "mRNA vaccine-induced myalgia" and then back to myositis, which was ruled out by an MRI. Then it was
sferios
in
PMRGCAuk
1 year ago
delaying Prednisolone by a few hours
hello, back again for some advice. I was diagnosed with PMR/GCA three and a half years ago and after a relapse I am now on 4mg. Next week I will have an abdominal and urinary tract ultrasound at 11am. I was instructed not to eat or drink for 6 hours before and to drink one litre of water one hour before
hello, back again for some advice. I was diagnosed with PMR/GCA three and a half years ago and after a relapse I am now on 4mg. Next week I will have an abdominal and urinary tract ultrasound at 11am. I was instructed not to eat or drink for 6 hours before and to drink one litre of water one hour before
Dolcelatte
in
PMRGCAuk
1 year ago
Stuck in the bath
Well fibro folks... today I got stuck in the bath. Got back from urgent Gp appt for an asthma escalation..survived the 'we want you to go to hospital" by having nebuliser, ECG and prescription for yet more prednisolone. I can't shower when I i have asthma flares..steam exacerbates prob. But a warm bath
Well fibro folks... today I got stuck in the bath. Got back from urgent Gp appt for an asthma escalation..survived the 'we want you to go to hospital" by having nebuliser, ECG and prescription for yet more prednisolone. I can't shower when I i have asthma flares..steam exacerbates prob. But a warm bath
Merrrm
in
Fibromyalgia Action UK
1 year ago
PMR Update
Visited yet another Rheumatologist this past week. The last Rheumatologist wanted me off the prednisone without taper to see how bad I can get so he can order yet another PET scan. Needless to say, I went to get a second opinion. Yes, this Rheumatologist stated I was to young to have PMR. However,
Visited yet another Rheumatologist this past week. The last Rheumatologist wanted me off the prednisone without taper to see how bad I can get so he can order yet another PET scan. Needless to say, I went to get a second opinion. Yes, this Rheumatologist stated I was to young to have PMR. However,
SMH4CRNA
in
PMRGCAuk
1 year ago
update on leg pain with rheumatology nurse
thought I’d update you all. Rheumatology nurse called, and says if prednisolone is helping the pains, it’s not AS. I challenged her saying if AS is flaring it’s due to inflammation, and prednisolone is prescribed specifically to reduce inflammation, and would be expected to improve symptoms. To which
thought I’d update you all. Rheumatology nurse called, and says if prednisolone is helping the pains, it’s not AS. I challenged her saying if AS is flaring it’s due to inflammation, and prednisolone is prescribed specifically to reduce inflammation, and would be expected to improve symptoms. To which
Runrig01
in
NRAS
1 year ago
Neutrophils Crash
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg Leflunomide was added and since then I’ve had several issues. Most recently over a couple of months my WBC and neutrophils has crashed (0.8 for latter) resulting in bad mouth ulcers
I have been on 25mg Mtx with 5mg Prednisolone and folic acid daily - largely successfully for a couple of years. 10mg Leflunomide was added and since then I’ve had several issues. Most recently over a couple of months my WBC and neutrophils has crashed (0.8 for latter) resulting in bad mouth ulcers
Fiona0664
in
NRAS
1 year ago
chemo
I was diagnosed last fall with limited GPA (in my ears). Was on methotrexate and low dose prednisone until a few weeks ago. Diagnosed with breast cancer in may so taken off the methotrexate when I started chemo last week. One of my chemo drugs is cytoxan. My question is, has anyone else had this
I was diagnosed last fall with limited GPA (in my ears). Was on methotrexate and low dose prednisone until a few weeks ago. Diagnosed with breast cancer in may so taken off the methotrexate when I started chemo last week. One of my chemo drugs is cytoxan. My question is, has anyone else had this
BellaSarge
in
Vasculitis UK
1 year ago
Flare after vaccine
Good morning dear people. Ten days ago I received the new RSV vaccine. My husband is undergoing treatment for stage three cancer so we were advised to get the RSV, Flu and new Covid booster when it comes out. We both had body aches, low grade fever and fatigue for two days after getting the RSV vaccine
Good morning dear people. Ten days ago I received the new RSV vaccine. My husband is undergoing treatment for stage three cancer so we were advised to get the RSV, Flu and new Covid booster when it comes out. We both had body aches, low grade fever and fatigue for two days after getting the RSV vaccine
Blackcatlover
in
PMRGCAuk
1 year ago
Prednisolone
Hi all, I have yet again been prescribed a new medication, (Above) this time for 'Bells Palsy' . 12 pills per day for 5 days, then 10,8,6,4,2 daily thereafter. In all a 10 day course. I note that a side effect is being susceptible to infections as it weakens the' Immune System' Given that CLL'ers
Hi all, I have yet again been prescribed a new medication, (Above) this time for 'Bells Palsy' . 12 pills per day for 5 days, then 10,8,6,4,2 daily thereafter. In all a 10 day course. I note that a side effect is being susceptible to infections as it weakens the' Immune System' Given that CLL'ers
Vindicatrix
in
CLL Support
1 year ago
steroid injection
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
I have inflammatory arthritis and started methotrexate having been on Prednisolone for 5 years - for PMR which seems to have flipped to arthritis My knees are v swollen,stiff and have difficulty walking- have had 2 lots of steroid inj into my r knee- Rheumy wants to try a third inj when I have enough
bakingD
in
NRAS
1 year ago
severe leg pain with leg buckling
I recently had a lovely holiday in Devon, where I probably pushed myself too much, and ended up with my ankylosing spondylitis flaring. 12 days ago, I started getting moderate pain n my thigh and knee, and the thigh would suddenly feel like jelly and buckle under me. This resulted in me falling in the
I recently had a lovely holiday in Devon, where I probably pushed myself too much, and ended up with my ankylosing spondylitis flaring. 12 days ago, I started getting moderate pain n my thigh and knee, and the thigh would suddenly feel like jelly and buckle under me. This resulted in me falling in the
Runrig01
in
NRAS
1 year ago
PMR 15 Years On
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Has anybody experienced PMR 15 years after first diagnosis. Have tapered properly a few times but always seemed to come back. Have tapered from 10mg of Prednisolone over 18 months and arrived at zero two months ago. Have osteoarthritis of hip and one knee and scheduled for hip procedure. The hip pain
Pred5
in
PMRGCAuk
1 year ago
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