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Neomycin / Prednisolone
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Methotrexate Confusion
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
I was diagnosed with PMR and GCA in 2015! I naively thought that these conditions would have “burned themselves out” some time ago, but I am still waiting! In the meantime I have a question about Methotrexate… On the suggestion of my Rheumatologist I started taking 10mg of Methotrexate a week in 2017
LizMitchell
in
PMRGCAuk
11 months ago
Could this be the start of neuropathy?
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
I had my first Docetaxel infusion 6 days ago. Due to the Dexamethasone before and the Prednisone since, I have been really well. In the gym most days, and eating really well. I have had no side effects - until today. It's a minor thing, but both thumbs are a little sore. It's not a tingling sensation
CrocodileShoes
in
Advanced Prostate Cancer
11 months ago
prolia and Actemra.
Hi everyone. I recently had an X-ray on my hip as I am having hip pain which causes my leg to give way when I transfer from my wheelchair. I have MS and GCA. The result of the X-ray was Osteoarthritis and “probable demineralization.” So when I saw my rheumatologist today I asked if I should have a DEXA
Hi everyone. I recently had an X-ray on my hip as I am having hip pain which causes my leg to give way when I transfer from my wheelchair. I have MS and GCA. The result of the X-ray was Osteoarthritis and “probable demineralization.” So when I saw my rheumatologist today I asked if I should have a DEXA
Charkha
in
PMRGCAuk
11 months ago
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low Immunoglobulins
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Hello Everyone, My CLL is actually under control with normal labs, except low immunoglobulins. IGA and IGM basically nothing, IGG 401. Taken off Zanubrutinib when I got Covid in July 2022, been off since then. Continually tired, some days exhausted. With lower extremity pain, feels like inflammation
Davidcara
in
CLL Support
11 months ago
73, RP 2021, BCR peaked PSA 2.2 2023, scrambling
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
jackwfrench
in
Advanced Prostate Cancer
11 months ago
Struggling to accept/deal with pain and decreased range of movement
Hi, I was encouraged by medics to wean off and stop prednisone after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well. I have pain in outer
Hi, I was encouraged by medics to wean off and stop prednisone after 2 yrs on them due to osteopenia and inflammatory markers "normal". I did so in July 23 I am trying to continue to work as a nurse and occasionally take one dose of 400 mg ibuprofen a day/night which works well. I have pain in outer
wakinguptolife
in
PMRGCAuk
11 months ago
timing of taking prednisolone
the best time to take prednisolone when down to 4.5 mg
the best time to take prednisolone when down to 4.5 mg
Buster1610
in
PMRGCAuk
1 year ago
Homeopathy to treat Fibromyalgia
I have recently seen a Homeopath for treatment for my Fibromyalgia . I was diagnosed last November and have also been suffering with Polymyalgia Rheumatica since January 2021 and have gradually reduced my steroid treatment for that and am now on 3.5 mg of Prednisolone. I am waiting to get an appt for
I have recently seen a Homeopath for treatment for my Fibromyalgia . I was diagnosed last November and have also been suffering with Polymyalgia Rheumatica since January 2021 and have gradually reduced my steroid treatment for that and am now on 3.5 mg of Prednisolone. I am waiting to get an appt for
Jomaur
in
Fibromyalgia Action UK
1 year ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
11 months ago
confused
I had my second appointment with the rheumatologist and left feeling confused. I’ve been taking 20mg prednisolone for two weeks and the improvement has been amazing. I no longer waddle when I walk and I’m not being kept awake every time I move in bed. I can reach up to open a window when I wake up and
I had my second appointment with the rheumatologist and left feeling confused. I’ve been taking 20mg prednisolone for two weeks and the improvement has been amazing. I no longer waddle when I walk and I’m not being kept awake every time I move in bed. I can reach up to open a window when I wake up and
Nanatoo
in
PMRGCAuk
1 year ago
Hair loss- PMR- Prednisolone
A while back my hair was coming out quite a lot, I was wearing it long but had it cut which seemed to help quite a bit, but now it has started to get worse again. Is this due to steroids or PMR? Does anyone have the same experience? I find it quite distressing to have so much coming out every time I
A while back my hair was coming out quite a lot, I was wearing it long but had it cut which seemed to help quite a bit, but now it has started to get worse again. Is this due to steroids or PMR? Does anyone have the same experience? I find it quite distressing to have so much coming out every time I
Claremont2023
in
Foggy's "Invisible Illness" Support
1 year ago
facial hair
Has anybody noticed a lot of “peach fuzz” on their faces since being on Prednisone? I have developed quite a bit!
Has anybody noticed a lot of “peach fuzz” on their faces since being on Prednisone? I have developed quite a bit!
Holycow2
in
PMRGCAuk
11 months ago
Sore Throat
I’m currently down to 4mg of prednisolone and have a constant sore throat and dry mouth during the night . Is this normal ? What can I do to relieve the soreness and will it eventually improve as I reduce my steroids?
I’m currently down to 4mg of prednisolone and have a constant sore throat and dry mouth during the night . Is this normal ? What can I do to relieve the soreness and will it eventually improve as I reduce my steroids?
Conwy_wales
in
PMRGCAuk
1 year ago
Getting Ready to Start Abiraterone
I am getting ready to start abiraterone (1000) mg with 5 mg prednisone once daily. I have been thoroughly instructed on taking the abiraterone with no food two hours before and one hour after as well as taking prednisone with food but was wondering when you guys take yours. Morning before breakfast or
I am getting ready to start abiraterone (1000) mg with 5 mg prednisone once daily. I have been thoroughly instructed on taking the abiraterone with no food two hours before and one hour after as well as taking prednisone with food but was wondering when you guys take yours. Morning before breakfast or
Professorgary
in
Advanced Prostate Cancer
11 months ago
I am down to 2mg prednisone. Not noticing typical PMR symptoms
After I got on Methotrexate and Hydroxychloroquine, the right hand wrist and finger swelling went away, and I was able to start dropping pred from 5 to 4 to 3 to 2 now. While I am glad for this, I am mad that only a rheumy was smart-experienced enough to think of it, I likely could have saved months
After I got on Methotrexate and Hydroxychloroquine, the right hand wrist and finger swelling went away, and I was able to start dropping pred from 5 to 4 to 3 to 2 now. While I am glad for this, I am mad that only a rheumy was smart-experienced enough to think of it, I likely could have saved months
sdowney717
in
PMRGCAuk
11 months ago
Lung x ray scare
I had covid in April so I was sent to specialist to have breathing tests.Now I had another lung x ray and got a call from my family dr for a dye x ray.Could the prednisone caused lung damage?Scared to death now.
I had covid in April so I was sent to specialist to have breathing tests.Now I had another lung x ray and got a call from my family dr for a dye x ray.Could the prednisone caused lung damage?Scared to death now.
Hunter134
in
PMRGCAuk
11 months ago
Need help understanding Enzalutamide
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
I’m a wife of a PCa fella, 75 yrs old…married 53 yrs. I do all the research, then give info to him. He decides what he (we) will do with treatments. His history…diagnosed with biopsy in 2009…1 of 12 core samples with small amount of cancer. 3+3 with a PSA of 8. He decided to watch and wait. Reality
Hidden
in
Advanced Prostate Cancer
1 year ago
Fecal Microbiota Transplantation (FMT) For PD And Much Much More
While many of us are aware of the potential that FMT has shown for PD, Clostridium difficile (C. diff) and IBS that has not responded to standard therapy, I wrote this to highlight the fact that FMT has shown the potential to also help a multitude of other diseases and health issues that are often seen
While many of us are aware of the potential that FMT has shown for PD, Clostridium difficile (C. diff) and IBS that has not responded to standard therapy, I wrote this to highlight the fact that FMT has shown the potential to also help a multitude of other diseases and health issues that are often seen
chartist
in
Cure Parkinson's
1 year ago
PMR and chronic fatigue syndrome- is there a link?
Hi everyone, I haven’t posted before but read all posts and comments daily and find the information very helpful Here’s my story…sorry if it’s too long… - PMR started in February 2023 - diagnosed PMR April 2023 after a week in hospital with a specialist and put on 25 mg of prednisone - appointment
Hi everyone, I haven’t posted before but read all posts and comments daily and find the information very helpful Here’s my story…sorry if it’s too long… - PMR started in February 2023 - diagnosed PMR April 2023 after a week in hospital with a specialist and put on 25 mg of prednisone - appointment
MegfromOz
in
PMRGCAuk
1 year ago
Does or Has Anyone heard or read that PCA can Morp into Neuroendocrine Cancer while on Lupron or Orgovyx, Nubeqa or any other medication?
I’m on Firmagon every 28 days, Zytiga, ( Abiraterone) and Prednisone since 07/2022. I have concerns if Anyone had their PCA Morp into Neuroendocrine Cancer or Small Cell Carcinoma while on Lupron or Orgovyx, Nubeqa etc, or any other medication prescribed.
I’m on Firmagon every 28 days, Zytiga, ( Abiraterone) and Prednisone since 07/2022. I have concerns if Anyone had their PCA Morp into Neuroendocrine Cancer or Small Cell Carcinoma while on Lupron or Orgovyx, Nubeqa etc, or any other medication prescribed.
Shorehousejam
in
Advanced Prostate Cancer
1 year ago
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