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Fatigue
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Since being diagnosed with an inflammatory disorder three years ago I have suffered with various symptoms most of which are now well controlled and stable. The severe pain in my joints and other parts of my body and the excruciatingly painful headaches thankfully seem to be kept at bay by medication
Hightower62
in
NRAS
1 year ago
Mouth ulcers with GCA and prednisone?
Has anyone experienced problems with persistent mouth ulcers? These have become more frequent as I have reduced my prednisone dosage. I am now down to 6.5 mg prednisone (I have GCA) and have about five ulcers in my mouth right now which is quite painful. I am wondering if anyone has any advice as to
Has anyone experienced problems with persistent mouth ulcers? These have become more frequent as I have reduced my prednisone dosage. I am now down to 6.5 mg prednisone (I have GCA) and have about five ulcers in my mouth right now which is quite painful. I am wondering if anyone has any advice as to
Charkha
in
PMRGCAuk
1 year ago
overheating and PMR
I have had polymyalgia for 18 months, and at the beginning, there was a thought that I was developing GCA. However, the rheumy discounted this and after starting on steroids at 60 mg I quickly reduced to 10. I stayed on this for sometime because of stressful family issues. However, over the last six
I have had polymyalgia for 18 months, and at the beginning, there was a thought that I was developing GCA. However, the rheumy discounted this and after starting on steroids at 60 mg I quickly reduced to 10. I stayed on this for sometime because of stressful family issues. However, over the last six
Stargiver
in
PMRGCAuk
1 year ago
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GCA and Ear Swelling, Pressure
Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. My general practitioner couldn’t find any thing that would cause it, nor could an ear-nose-throat doctor. Even did a hearing test and all said everything is good. Would this be a flare? I’m on Actemra and 4 mg prednisone
Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. My general practitioner couldn’t find any thing that would cause it, nor could an ear-nose-throat doctor. Even did a hearing test and all said everything is good. Would this be a flare? I’m on Actemra and 4 mg prednisone
Pamk1949
in
PMRGCAuk
1 year ago
Is it PMR?
Diagnosed with PMR approximately 2019. Came off Prednisone in October 2020. Saw Rheumatologist who did repeat bloods. At the time I was discharged my ESR was 26. Fast forward to 2023. Severe pain in base of skull and neck (right side only) affecting shoulder, shoulder blade and upper muscles in arm.
Diagnosed with PMR approximately 2019. Came off Prednisone in October 2020. Saw Rheumatologist who did repeat bloods. At the time I was discharged my ESR was 26. Fast forward to 2023. Severe pain in base of skull and neck (right side only) affecting shoulder, shoulder blade and upper muscles in arm.
Purplelamp
in
PMRGCAuk
1 year ago
moving pain
I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Although I am experiencing less pain and stiffness than before the pain seems to vary where to attack. Yesterday it was only my shoulders and upper arms and today it’s only my left hip and thigh. Is this a thing??
I am on my 3rd day of prednisolone, 20 mg after being diagnosed with pmr. Although I am experiencing less pain and stiffness than before the pain seems to vary where to attack. Yesterday it was only my shoulders and upper arms and today it’s only my left hip and thigh. Is this a thing??
Nanatoo
in
PMRGCAuk
1 year ago
5 weeks to diagnose GCA
Hi. I started to get sick June 24, 2023. Progressively worse each week. Headache, sore temples, sleeping a lot. Week 2 fevers every 4/5 hours. Tylenol for that. Night sweats. Week 3 getting weaker, symptoms more severe. Glands in neck swollen. Week 5 jaw does not want to open much or chew. Painful
Hi. I started to get sick June 24, 2023. Progressively worse each week. Headache, sore temples, sleeping a lot. Week 2 fevers every 4/5 hours. Tylenol for that. Night sweats. Week 3 getting weaker, symptoms more severe. Glands in neck swollen. Week 5 jaw does not want to open much or chew. Painful
Groda
in
NRAS
1 year ago
Humidity and PMR
We have had very high humidity for some weeks and my pelvis is so rheumatic. Not my shoulders. I have upped my prednisone from 4 mg which it has been for months to eventually 10 mg. It is not holding it. I also have chromic back pain, but it is not a rheumatic pain and MS, so sorting things out is
We have had very high humidity for some weeks and my pelvis is so rheumatic. Not my shoulders. I have upped my prednisone from 4 mg which it has been for months to eventually 10 mg. It is not holding it. I also have chromic back pain, but it is not a rheumatic pain and MS, so sorting things out is
Jane424
in
PMRGCAuk
1 year ago
Is this PMR?
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Hello I'm new to this site and to the world of PMR. Hoping to get some guidance from this lovely community. My GP has diagnosed me with PMR at 42 and I'm not entirely convinced as I don't fit the symptoms of aches and stiffness in the shoulders and hips. This all started in March 23 where I woke
Evie1977
in
PMRGCAuk
1 year ago
Actemra; The elephant in the room. Is it working or not working for you?
GCA Feb 2018 Prednisone therapy only. Here I am 6 and half years later and still trying to find the sweet spot with prednisone--not too much/not too little---Just right. I am trying to reduce slowly using the DSNS program because it has always worked for me. I am, however, struggling now at 4.25/4.0
GCA Feb 2018 Prednisone therapy only. Here I am 6 and half years later and still trying to find the sweet spot with prednisone--not too much/not too little---Just right. I am trying to reduce slowly using the DSNS program because it has always worked for me. I am, however, struggling now at 4.25/4.0
Blurry62
in
PMRGCAuk
1 year ago
Heart Medicine Increased inhaled steroid absorption.
There is a drug interaction between inhaled steroids, and diltiazem I found out. I recently developed an arrhythmia and was placed on Arnuity after stopping Breo. Breo can contribute to a A fib/ A flutter which I developed. After being on Arnuity(Steroid inhaler) and diltiazem for several weeks
There is a drug interaction between inhaled steroids, and diltiazem I found out. I recently developed an arrhythmia and was placed on Arnuity after stopping Breo. Breo can contribute to a A fib/ A flutter which I developed. After being on Arnuity(Steroid inhaler) and diltiazem for several weeks
Karenjaninaz
in
PMRGCAuk
1 year ago
Alendronic acid
I have stopped taking weekly alendronic acid, as I have started getting sharp pains at the base of my oesophagus. I am on 4 and a half mg of prednisone and biweekly Actemra. No pain. Feel great. I eat calcium laden foods and take daily supplements. Any opinions as I feel guilty?!!
I have stopped taking weekly alendronic acid, as I have started getting sharp pains at the base of my oesophagus. I am on 4 and a half mg of prednisone and biweekly Actemra. No pain. Feel great. I eat calcium laden foods and take daily supplements. Any opinions as I feel guilty?!!
Strelitzia
in
PMRGCAuk
1 year ago
A positive move
I saw a rheumatologist yesterday and thanks to all the information gained from this site I am now taking prednisolone. I wanted a two week trial and he wanted a blood test showing positive markers first but I pointed out that many people don’t have that. He mentioned RA but I showed him that none of
I saw a rheumatologist yesterday and thanks to all the information gained from this site I am now taking prednisolone. I wanted a two week trial and he wanted a blood test showing positive markers first but I pointed out that many people don’t have that. He mentioned RA but I showed him that none of
Nanatoo
in
PMRGCAuk
1 year ago
Adrenal Tumor and Troublesome Prednisone Tapering
I was diagnosed with GCA Feb.2018 My relationship with prednisone has been rocky and unpleasant-Like most of you. I am currently tapering again; 4.25/4.0 I have taken a month to get from 4.5 to 4.25 and now working on the DSNS to 4.0 I wonder if anyone else experiences transient head pains; a sharp
I was diagnosed with GCA Feb.2018 My relationship with prednisone has been rocky and unpleasant-Like most of you. I am currently tapering again; 4.25/4.0 I have taken a month to get from 4.5 to 4.25 and now working on the DSNS to 4.0 I wonder if anyone else experiences transient head pains; a sharp
Blurry62
in
PMRGCAuk
1 year ago
Magnesium supplement - how much per day?
Until a few days ago I was taking soluble Magnellon 300 mg each day in the early evening, after food. I've been doing this since PMR diagnosis in August 2020. For the last 3 months or so I've been experiencing 'flutterings' in my legs and feet when I'm relaxing and in bed at night. Having read
Until a few days ago I was taking soluble Magnellon 300 mg each day in the early evening, after food. I've been doing this since PMR diagnosis in August 2020. For the last 3 months or so I've been experiencing 'flutterings' in my legs and feet when I'm relaxing and in bed at night. Having read
Pr0jection
in
PMRGCAuk
1 year ago
Does higher elevations enhance PMR symptoms?
Every time I visit my son in Colorado at a 5-6k feet elevation I seem to have difficulty after a couple days. On prednisone (5mg) I feel 5/10 lower extremity discomfort. Without predinisone I would rated it around 8/10. Always in the lower extremities.
Every time I visit my son in Colorado at a 5-6k feet elevation I seem to have difficulty after a couple days. On prednisone (5mg) I feel 5/10 lower extremity discomfort. Without predinisone I would rated it around 8/10. Always in the lower extremities.
SMH4CRNA
in
PMRGCAuk
1 year ago
Chest CT scan/Myositis bloods/MRI - right knee Quadricep Tendon Rupture Report update
Hello my dear Lupus warriors ❤️ Just to give an update, actually Tiggywoos wrote quick question about Anti-OJ autoantibodies 6 days ago. I thought to do new post to reach more people. I had CT chest scan last year which revealed lower right lung 🫁 inflammation. At this time, I was told that my lungs
Hello my dear Lupus warriors ❤️ Just to give an update, actually Tiggywoos wrote quick question about Anti-OJ autoantibodies 6 days ago. I thought to do new post to reach more people. I had CT chest scan last year which revealed lower right lung 🫁 inflammation. At this time, I was told that my lungs
Energy14
in
LUPUS UK
1 year ago
2 Years undetected
I have been on Zytiga 50gm daily taken an hour before breakfast + 5 gm prednisone with meal 3 monthy H T injection of Protrap for past 2 years with monthly blood tests resulting in PSA below 0.01 not been seen a consult in the 2 year only online call from pharmacy oncology. Should I insist
I have been on Zytiga 50gm daily taken an hour before breakfast + 5 gm prednisone with meal 3 monthy H T injection of Protrap for past 2 years with monthly blood tests resulting in PSA below 0.01 not been seen a consult in the 2 year only online call from pharmacy oncology. Should I insist
Chrisbaird
in
Advanced Prostate Cancer
1 year ago
Struggling with PMR and Pred
Hello, am newish in the group. Just updated my bio with my story and how I ended up where I am. I have had PMR like symptoms since around 2003, that seem to flare for a few months and then goes back to being just about liveable with for a while when self medicating with ibuprofen, before flaring
Hello, am newish in the group. Just updated my bio with my story and how I ended up where I am. I have had PMR like symptoms since around 2003, that seem to flare for a few months and then goes back to being just about liveable with for a while when self medicating with ibuprofen, before flaring
Gimme
in
PMRGCAuk
1 year ago
Diet and GCA
I have recently found this wonderful forum, it's so full of information I wish I had seen it before. I thought I would post this in case it is interesting to anyone. I was diagnosed with GCA just a year ago this weekend. I was nearly 77 when I suddenly became exhausted and overwhelmed with fatigue.
I have recently found this wonderful forum, it's so full of information I wish I had seen it before. I thought I would post this in case it is interesting to anyone. I was diagnosed with GCA just a year ago this weekend. I was nearly 77 when I suddenly became exhausted and overwhelmed with fatigue.
Toolie2
in
PMRGCAuk
1 year ago
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