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Neomycin / Prednisolone
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Licorice
I know we are supposed to avoid licorice while on prednisolone as it supposedly increases the steroid in our body. I've even heard it described as a steroid saver. Why then, do we not use it as such when tapering off pred? I'd happily eat some!
I know we are supposed to avoid licorice while on prednisolone as it supposedly increases the steroid in our body. I've even heard it described as a steroid saver. Why then, do we not use it as such when tapering off pred? I'd happily eat some!
Wheelygood99
in
PMRGCAuk
8 months ago
Alendronic Acid tablets
oncologist has started me on these tablets last 6 months for bone density 70mg once weekly 30 mins before food and to remain upright after taking them anyone else had problem with acid in stomach and very loose stool to a point of passing watered stool .had sample taken and no conclusion read on leaflet
oncologist has started me on these tablets last 6 months for bone density 70mg once weekly 30 mins before food and to remain upright after taking them anyone else had problem with acid in stomach and very loose stool to a point of passing watered stool .had sample taken and no conclusion read on leaflet
Chrisbaird
in
Advanced Prostate Cancer
5 months ago
Does Immunotherapy cause Vasculitis?
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
luggsey
in
Vasculitis UK
5 months ago
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Various questions, sorry 🥹
I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively appreciated. I have also, attached a photo of my kitten to put a smile on all your faces, as she does mine on a daily basis 🥹 (scroll to the bottom for
I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively appreciated. I have also, attached a photo of my kitten to put a smile on all your faces, as she does mine on a daily basis 🥹 (scroll to the bottom for
JLAR01
in
LUPUS UK
8 months ago
Experiencing possible neuropathy in my trunk
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
4tunate1
in
Advanced Prostate Cancer
5 months ago
best way to reduce Prednisolone
I have tried to come off Prednisolone for PMR for the last 8 years by slow reduction. However, my diagnosis has recently been changed to MS and advised to definitely come of Steroids. Fatigue is a massive problem for me. I am currently on 5mg of Pred daily but have just had opposite views from 2 Doctors
I have tried to come off Prednisolone for PMR for the last 8 years by slow reduction. However, my diagnosis has recently been changed to MS and advised to definitely come of Steroids. Fatigue is a massive problem for me. I am currently on 5mg of Pred daily but have just had opposite views from 2 Doctors
Linnetbird
in
PMRGCAuk
8 months ago
question
Does anyone get a pulsating sensation in their head on prednisone? I keep getting like my heartbeat really loud thumping in my head , sometimes it causes a headache but not always, yesterday I was just sitting and it started, I got dots all over my eyes then most mornings and evenings it starts. Thanks
Does anyone get a pulsating sensation in their head on prednisone? I keep getting like my heartbeat really loud thumping in my head , sometimes it causes a headache but not always, yesterday I was just sitting and it started, I got dots all over my eyes then most mornings and evenings it starts. Thanks
Numptybrain
in
PMRGCAuk
5 months ago
Dexamethasone
My cousin has a brain tumour and is receiving radiotherapy. In addition, she has been prescribed 2mg daily dexamethasone steroids. I'm wondering what is the difference between this drug and prednisolone?
My cousin has a brain tumour and is receiving radiotherapy. In addition, she has been prescribed 2mg daily dexamethasone steroids. I'm wondering what is the difference between this drug and prednisolone?
Broseley
in
PMRGCAuk
8 months ago
GCA Heart Issues
Hi, I was hospitalized with severe pain on my right side temporal artery and diagnosed with GCA. I am currently taking 50 mg prednisone and will taper to 40 on Monday. My pain is gone, but I am so fatigued and have an unproductive cough. My chest burns and a feeling of heaviness. I see the vascular
Hi, I was hospitalized with severe pain on my right side temporal artery and diagnosed with GCA. I am currently taking 50 mg prednisone and will taper to 40 on Monday. My pain is gone, but I am so fatigued and have an unproductive cough. My chest burns and a feeling of heaviness. I see the vascular
Moaningxcat
in
PMRGCAuk
5 months ago
Perineum Irritation / Pain
I’m Stage 4A prostate cancer (spread outside prostate to lymph nodes only) in week 3 of treatment. I’m doing Lupron shots every 3months + Abiraterone with Prednisone daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling
I’m Stage 4A prostate cancer (spread outside prostate to lymph nodes only) in week 3 of treatment. I’m doing Lupron shots every 3months + Abiraterone with Prednisone daily, will start radiation in a couple weeks. I was tested on day 8 and my PSA had already fallen from 8.7 to 2.78. I had been feeling
Willie51
in
Prostate Cancer And Gay Men
5 months ago
New, A Bit Scared, Would Appreciate Advice.
For background I've got Ehlers Danlos, a genetic connective tissue disorder which causes stretchy joints, skin, dislocations and a whole host of other fun things. Also underactive thyroid and B12 deficiency/ pernicious anemia and asthma. In spite of my issues I've always loved exercise, keeping fit
For background I've got Ehlers Danlos, a genetic connective tissue disorder which causes stretchy joints, skin, dislocations and a whole host of other fun things. Also underactive thyroid and B12 deficiency/ pernicious anemia and asthma. In spite of my issues I've always loved exercise, keeping fit
Sparklingsunshine
in
British Heart Foundation
5 months ago
17.5 mg prednisolone
Tapered down to 17.5 mg but getting shoulder pain and head twinges. I've noticed at 20 mg I feel better. Wondering if I should taper back up to 20 mg.
Tapered down to 17.5 mg but getting shoulder pain and head twinges. I've noticed at 20 mg I feel better. Wondering if I should taper back up to 20 mg.
Helliwelli12
in
PMRGCAuk
8 months ago
Myasthenia Gravis
I have been on prednisolone for almost 2 years for Polymyalgia Rheumatica (GP Diagnosis) but over the last year I have been losing strength and other neuromuscular issues. I have seen Neurologists but EMG and blood test always came back inconclusive. Until Last week! A blood test for AChR (Serum) came
I have been on prednisolone for almost 2 years for Polymyalgia Rheumatica (GP Diagnosis) but over the last year I have been losing strength and other neuromuscular issues. I have seen Neurologists but EMG and blood test always came back inconclusive. Until Last week! A blood test for AChR (Serum) came
opentuned
in
PMRGCAuk
8 months ago
From Prednisone to Morphine
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s questioning my diagnosis of PMR & suggests the pain is due to “wear & tear”. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
I was wondering if anyone had been offered Morphine as an alternative to Prednisone? It’s been suggested to me by my new Rheumatologist recently. He’s questioning my diagnosis of PMR & suggests the pain is due to “wear & tear”. My pain is symmetrical, in all the usual places (knees, hips, shoulders,
Chelseadog
in
PMRGCAuk
5 months ago
Measles outbreak
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Hi, not sure if I'm being silly so looking for abit of reassurance. I'm on rituximab, azathioprine and prednisolone. I'm up-to-date with vaccinations bit concerned about the measles outbreak in my area. Am I at risk due to being immunocompromised?
Vqueen
in
Vasculitis UK
8 months ago
Pain and when to increase prednisolone?
I've reduced carefully since 2018 on 15mg to 1mg pred since Jan 2023. Since September 23, I've had increasing pain and stiffness in my intercostals but crucially in muscles in my hip area. At first it was annoying stiffness with a wee bit of pain for maybe 20 mins on waking and I could walk it off.
I've reduced carefully since 2018 on 15mg to 1mg pred since Jan 2023. Since September 23, I've had increasing pain and stiffness in my intercostals but crucially in muscles in my hip area. At first it was annoying stiffness with a wee bit of pain for maybe 20 mins on waking and I could walk it off.
Q-owl
in
PMRGCAuk
8 months ago
Starting the journey Interested in comments Gleason 5+4 Met to Lymph and Maybe ribs
I have just started this journey, and am deciding on treatments now. 60 years young with a Gleason 5+4 PSA hovering around 7. My PSMA PET showed one lymph near pelvis for sure, and possibly a rib neat top on left side. My medical oncologist ordered a bone scan, which showed nothing on the left side
I have just started this journey, and am deciding on treatments now. 60 years young with a Gleason 5+4 PSA hovering around 7. My PSMA PET showed one lymph near pelvis for sure, and possibly a rib neat top on left side. My medical oncologist ordered a bone scan, which showed nothing on the left side
Saladman50
in
Advanced Prostate Cancer
5 months ago
split dose of prednisolone
please can you tell me any experience you have of splitting a pred dose between evening and morning. I know some people have found it beneficial, using enteric coated at night and non enteric coated in the morning, but is there a downside? Any research?I did a search and found an article about PMR taking
please can you tell me any experience you have of splitting a pred dose between evening and morning. I know some people have found it beneficial, using enteric coated at night and non enteric coated in the morning, but is there a downside? Any research?I did a search and found an article about PMR taking
Freshairfiend
in
PMRGCAuk
8 months ago
Mixing plain and gastro Pred
I have just requested 2.5mg Prednisolone from my surgery as I am down to 4.5mg and it’s much easier to get a correct dose without splitting pills. I see that they will be giving me gastro resistant tabs so I will be taking 1 of these together with 2x1mg plain Prednisolone. Is this going to create
I have just requested 2.5mg Prednisolone from my surgery as I am down to 4.5mg and it’s much easier to get a correct dose without splitting pills. I see that they will be giving me gastro resistant tabs so I will be taking 1 of these together with 2x1mg plain Prednisolone. Is this going to create
jaycee444
in
PMRGCAuk
8 months ago
Adrenal insufficiency
After 3.5 years on Prednisolone and 1 year of Toccilizumab for GCA including sight loss (late diagnosis), starting at 60mg, I got down to 2mg following a Synacthen test in June 23 which apparently proved my adrenal glands were capable of working. However I couldn’t function at all, extreme fatigue,
After 3.5 years on Prednisolone and 1 year of Toccilizumab for GCA including sight loss (late diagnosis), starting at 60mg, I got down to 2mg following a Synacthen test in June 23 which apparently proved my adrenal glands were capable of working. However I couldn’t function at all, extreme fatigue,
Forestlady
in
PMRGCAuk
8 months ago
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