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Co-morbidity issues
As if the unknowns about PMR weren't enough ! My recent flare happened as I was actually doing physical therapy for some lower back pain related to disc / nerve problems. And the PT was quite helpful, so the condition seemed to be resolving. But one morning my hips and low back were suddenly so
As if the unknowns about PMR weren't enough ! My recent flare happened as I was actually doing physical therapy for some lower back pain related to disc / nerve problems. And the PT was quite helpful, so the condition seemed to be resolving. But one morning my hips and low back were suddenly so
Bahba
in
PMRGCAuk
8 months ago
Hi! I just joined. CIDP: Is anyone like me?
My neurologist thinks I might have chronic inflammatory demyelinating polyneuropathy (CIDP), despite the fact that, apart from the occasional shooting pain, cramp, or twinge, I don't have any motor-control, spasm or electric-shock-like symptoms. What I do have is longstanding, progressive, bilateral
My neurologist thinks I might have chronic inflammatory demyelinating polyneuropathy (CIDP), despite the fact that, apart from the occasional shooting pain, cramp, or twinge, I don't have any motor-control, spasm or electric-shock-like symptoms. What I do have is longstanding, progressive, bilateral
AtopicGuy
in
Neuropathy Support
8 months ago
Reducing Effects
I just read DL’s very helpful article, Reducing Steroids & Activating the Adrenal Glands. So grateful for all the information and support here. It would’ve felt like walking through a dark and threatening forest without you all. I guess I’m reaching out for the usual reassurance and encouragement regarding
I just read DL’s very helpful article, Reducing Steroids & Activating the Adrenal Glands. So grateful for all the information and support here. It would’ve felt like walking through a dark and threatening forest without you all. I guess I’m reaching out for the usual reassurance and encouragement regarding
Lenore58
in
PMRGCAuk
4 months ago
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Prolia and prednisone together = higher infection risk
https://www.drugs.com/drug-interactions/prednisone-with-prolia-1936-0-3238-14600.html From the "we never stop learning angles about APCa and related treatments" zone Wear a mask etc
https://www.drugs.com/drug-interactions/prednisone-with-prolia-1936-0-3238-14600.html From the "we never stop learning angles about APCa and related treatments" zone Wear a mask etc
Derf4223
in
Advanced Prostate Cancer
4 months ago
decrease in Pred after hospital admission
I had been admitted via A&E to hospital with a small rupture to the large intestine and diverticulitis flare, it was a rough time and on lots of meds to correct-was in hospital for 10 days. I am now back home under the care of GP. Whilst in hospital one of the meds, and I was on an enormous amounts
I had been admitted via A&E to hospital with a small rupture to the large intestine and diverticulitis flare, it was a rough time and on lots of meds to correct-was in hospital for 10 days. I am now back home under the care of GP. Whilst in hospital one of the meds, and I was on an enormous amounts
Crwbin1
in
PMRGCAuk
4 months ago
GCA dizziness
hello , I am asking this question to help my brother who has just been diagnosed with GCA. He had the classic symptoms so was put on 50 prednisone daily. He is looking to me for help as I have had GCA for 4 years myself. His CRP was 145 and down to 12 already after about 10 days. His problem is severe
hello , I am asking this question to help my brother who has just been diagnosed with GCA. He had the classic symptoms so was put on 50 prednisone daily. He is looking to me for help as I have had GCA for 4 years myself. His CRP was 145 and down to 12 already after about 10 days. His problem is severe
Chopin002
in
PMRGCAuk
4 months ago
GCA-Diagnosis
So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with no flare. Has anyone gotten of Actemra as well as Prednisone with no problems?
So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with no flare. Has anyone gotten of Actemra as well as Prednisone with no problems?
LRevell
in
PMRGCAuk
4 months ago
EPIX: Updated Data From Phase 1 Trial Of Masofaniten And Enzalutamide Expected
Source link : https://scr.zacks.com/news/news-details/2024/EPIX-Updated-Data-from-Phase-1-Trial-of-Masofaniten-and-Enzalutamide-Expected-in-2H24-article/default.aspx The median PSA baseline for this study was 3.2 ng/mL, which on the surface may look like it is quite different from the other studies
Source link : https://scr.zacks.com/news/news-details/2024/EPIX-Updated-Data-from-Phase-1-Trial-of-Masofaniten-and-Enzalutamide-Expected-in-2H24-article/default.aspx The median PSA baseline for this study was 3.2 ng/mL, which on the surface may look like it is quite different from the other studies
God_Loves_Me
in
Advanced Prostate Cancer
4 months ago
Hair loss
I am at 8.5 mg of prednisone after starting on 20 mg on September 2023. I have lost half the volume of my hair. (gauged by the thickness of my pony tail now and the fact that barrettes and elastics used previously just fall out now) Has anyone else experienced this and is there anything that can be
I am at 8.5 mg of prednisone after starting on 20 mg on September 2023. I have lost half the volume of my hair. (gauged by the thickness of my pony tail now and the fact that barrettes and elastics used previously just fall out now) Has anyone else experienced this and is there anything that can be
proactive
in
PMRGCAuk
4 months ago
Flares trying to get from 9 mg to 8 mg
I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and have tapered down to 9 with just one flare. I did a 5 week taper March 1st, trying to get from 9 to 8 mg, but at the end of the 5 week plan on an 8 mg dose, I started getting groin and hip pain and morning stiffness. I tried
I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and have tapered down to 9 with just one flare. I did a 5 week taper March 1st, trying to get from 9 to 8 mg, but at the end of the 5 week plan on an 8 mg dose, I started getting groin and hip pain and morning stiffness. I tried
proactive
in
PMRGCAuk
4 months ago
GP has suggested an increase in prednisone
As I had requested this it seems that the GP is willing to give it a try., Am up now to 15mg from 10mg. Been on now for 6 days cannot say much improvement as yet. To be honest, I am however not in a great amount of pain but heavily limping towards the bad right leg and flat footed when walking Just
As I had requested this it seems that the GP is willing to give it a try., Am up now to 15mg from 10mg. Been on now for 6 days cannot say much improvement as yet. To be honest, I am however not in a great amount of pain but heavily limping towards the bad right leg and flat footed when walking Just
gillsky8
in
PMRGCAuk
4 months ago
How soon to resume taper after cardiac ablation?
I was on 7mg prednisone, easing into 6.75, when I had my cardiac ablation on April 15. Went back to 7 mg however, upped it with cardiac inflammation, 5 mgs for 5 days and resumed 7. Then I developed a chest cold with fever and put on abx. Used sick day rules and now back to 7. It takes 3 months for
I was on 7mg prednisone, easing into 6.75, when I had my cardiac ablation on April 15. Went back to 7 mg however, upped it with cardiac inflammation, 5 mgs for 5 days and resumed 7. Then I developed a chest cold with fever and put on abx. Used sick day rules and now back to 7. It takes 3 months for
Karenjaninaz
in
PMRGCAuk
4 months ago
GCA starting again?
Started with GCA 2016, had a couple of flares but got down to 3 mg. Then a couple of years after that started with PMR up with the steroids. Had a couple of flares, arthritis too now in knees and shoulders. About 3 years ago started with vertigo which hasn’t been bad. For two days have had really bad
Started with GCA 2016, had a couple of flares but got down to 3 mg. Then a couple of years after that started with PMR up with the steroids. Had a couple of flares, arthritis too now in knees and shoulders. About 3 years ago started with vertigo which hasn’t been bad. For two days have had really bad
Susanmod
in
PMRGCAuk
8 months ago
is this what CR looks like?
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
lokibear0803
in
Advanced Prostate Cancer
4 months ago
Are we on the right track?
Hi All, My husband, Pat (61) was diagnosed in late February with low grade metastatic PC. Gleason 9 grade 5. PSA 32. In a few small pelvic lymph nodes and a couple pelvic lesions. No other spread. PSMA pet scan detected this. We are working with a team and when we were told his diagnosis from his
Hi All, My husband, Pat (61) was diagnosed in late February with low grade metastatic PC. Gleason 9 grade 5. PSA 32. In a few small pelvic lymph nodes and a couple pelvic lesions. No other spread. PSMA pet scan detected this. We are working with a team and when we were told his diagnosis from his
Kathyford
in
Advanced Prostate Cancer
4 months ago
Quite the CLL journey
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
FiArt12X
in
CLL Support
4 months ago
not pmr again
Well much to my surprise my pmr symptoms appear to have been caused by the Covid vaccination that I had last week. As I posted, my GP suggested that I hold off taking prednisone over the weekend to see if the symptoms disappeared. And they did!
Well much to my surprise my pmr symptoms appear to have been caused by the Covid vaccination that I had last week. As I posted, my GP suggested that I hold off taking prednisone over the weekend to see if the symptoms disappeared. And they did!
Crowsfeet
in
PMRGCAuk
4 months ago
8years PMR this week
hi Thought I would share my 8year journey with you all. Sorry it’s a bit long x It was the day before my visit to the Chelsea show 2016 that I was diagnosed with PMR I was wondering how I would walk around all day. After taking my first 20mg of prednisone the day before, that my GP prescribed I woke
hi Thought I would share my 8year journey with you all. Sorry it’s a bit long x It was the day before my visit to the Chelsea show 2016 that I was diagnosed with PMR I was wondering how I would walk around all day. After taking my first 20mg of prednisone the day before, that my GP prescribed I woke
9lives
in
PMRGCAuk
4 months ago
Do Apalutamide and Darolutamide go alongside prednisone?
Appreciate you whether Apalutamide and Darolutamide must go alongside Prednisone when taken. A million thanks.
Appreciate you whether Apalutamide and Darolutamide must go alongside Prednisone when taken. A million thanks.
tarzantass
in
Advanced Prostate Cancer
4 months ago
Eyesight and Steroids
I'll be posting this across two sites. Last summer I went for a check up with the optician - I have worn glasses for reading for about 20 years, but this summer was told I needed them for driving, watching tv etc. I had the prescription filled and wore the glasses as directed - however about a week
I'll be posting this across two sites. Last summer I went for a check up with the optician - I have worn glasses for reading for about 20 years, but this summer was told I needed them for driving, watching tv etc. I had the prescription filled and wore the glasses as directed - however about a week
Hopeful66
in
PMRGCAuk
8 months ago
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