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Neomycin / Prednisolone
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First rheumatologist vist
Hi not been on for a while first got advised by a dr in early 2023 i had pmr also i have fm i fought like mad not to take meds purely selfish reasons like i didnt want to admit i needed help . In november my bloods were so high my dr gave me a good telling off and i started the prednisone
Hi not been on for a while first got advised by a dr in early 2023 i had pmr also i have fm i fought like mad not to take meds purely selfish reasons like i didnt want to admit i needed help . In november my bloods were so high my dr gave me a good telling off and i started the prednisone
loukh
in
PMRGCAuk
28 days ago
Tapering experience
Hi All, I haven’t posted for a couple of months but have been reading the site everyday and gaining valuable information while trying to come to terms with and manage this illness. In order to provide context to my questions I’ll quickly update you on my situation. I developed PMR symptoms in Dec
Hi All, I haven’t posted for a couple of months but have been reading the site everyday and gaining valuable information while trying to come to terms with and manage this illness. In order to provide context to my questions I’ll quickly update you on my situation. I developed PMR symptoms in Dec
Specialised
in
PMRGCAuk
28 days ago
Cough, chest pressure, GCA
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
I am being treated for GCA, but had a negative biopsy. I am now taking 40 mg of prednisone and will drop to 35 mg tomorrow. My first rheumatology appointment is May 16. I am in no pain but I am very fatigued and I continue to cough, especially when I speak, and have chest heaviness. My primary care
Moaningxcat
in
PMRGCAuk
28 days ago
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Is 5 mg Prednisone for life safe
My husband has had PMR for 18 months now. He is 65. He started on 40 mg predniprednisone daily and for the last 6 months he has been on 5 mg....and he feels great. He has lost in total 25 kg in weight and has had no adverse side effects from the use of Prednisone. All bloods are good, he has very
My husband has had PMR for 18 months now. He is 65. He started on 40 mg predniprednisone daily and for the last 6 months he has been on 5 mg....and he feels great. He has lost in total 25 kg in weight and has had no adverse side effects from the use of Prednisone. All bloods are good, he has very
Piglets1
in
PMRGCAuk
28 days ago
Is 5 mg Prednisone for life safe
My husband has had PMR for 18 months now. He is 65. He started on 40 mg predniprednisone daily and for the last 6 months he has been on 5 mg....and he feels great. He has lost in total 25 kg in weight and has had no adverse side effects from the use of Prednisone. All bloods are good, he has very
My husband has had PMR for 18 months now. He is 65. He started on 40 mg predniprednisone daily and for the last 6 months he has been on 5 mg....and he feels great. He has lost in total 25 kg in weight and has had no adverse side effects from the use of Prednisone. All bloods are good, he has very
Piglets1
in
PMRGCAuk
28 days ago
Another injury, wrist this time
Just the other day, for unknown reason, memory of an old acquaintance popped into my mind, specifically her frequent use of the expression, "What fresh hell is this?" Perhaps I alerted the demon in charge my fate when I wondered if I could find a reason to say it. Yesterday I'd just heard from my son
Just the other day, for unknown reason, memory of an old acquaintance popped into my mind, specifically her frequent use of the expression, "What fresh hell is this?" Perhaps I alerted the demon in charge my fate when I wondered if I could find a reason to say it. Yesterday I'd just heard from my son
HeronNS
in
PMRGCAuk
28 days ago
statins
Here again for some knowledge and benefit from your wisdom. In February I was told that I have a number of heart conditions. One is two partially blocked arteries. I am waiting for an Angiogram and stents if needed, semi urgent. I go to Europe the end of this month so no chance of getting in until July
Here again for some knowledge and benefit from your wisdom. In February I was told that I have a number of heart conditions. One is two partially blocked arteries. I am waiting for an Angiogram and stents if needed, semi urgent. I go to Europe the end of this month so no chance of getting in until July
Skier321
in
PMRGCAuk
29 days ago
Advice on medication
Over the last couple of weeks I have had pains in my stomach and for longer than that regular bladder problems. Always feeling I need to go to the toilet. I am on 3.5 mg of prednisolone and am wondering if it has anything to do with the other pills I am taking each day. 1 -20 mg omeprazole, 1 - 1000
Over the last couple of weeks I have had pains in my stomach and for longer than that regular bladder problems. Always feeling I need to go to the toilet. I am on 3.5 mg of prednisolone and am wondering if it has anything to do with the other pills I am taking each day. 1 -20 mg omeprazole, 1 - 1000
Callymac
in
PMRGCAuk
7 months ago
Inflammation and RLS redux
I've both queried and written about the possible roles that inflammation plays in RLS, but wanted to share what I recently learned, which again indicates that the relationship between the two is complicated. I was recently on methyl prednisone for a few days to calm down post-surgery inflammation
I've both queried and written about the possible roles that inflammation plays in RLS, but wanted to share what I recently learned, which again indicates that the relationship between the two is complicated. I was recently on methyl prednisone for a few days to calm down post-surgery inflammation
nocturne
in
Restless Legs Syndrome
1 month ago
Antibiotic and Actemra
Hello folks, I have an infection in my tooth and need to take an antibiotic for 10 days. If I'm understanding the guidelines for Actemra correctly, apparently, I am supposed to stop my Actemra injection (which is every two weeks) while I am on an antibiotic. My question is, is that really necessary
Hello folks, I have an infection in my tooth and need to take an antibiotic for 10 days. If I'm understanding the guidelines for Actemra correctly, apparently, I am supposed to stop my Actemra injection (which is every two weeks) while I am on an antibiotic. My question is, is that really necessary
ILbbHpmr
in
PMRGCAuk
1 month ago
update
Not sure what’s going on, I had blood tests because of headaches and temple pain but I’ve just had a call from rheumatologist now making an urgent appointment for this Friday and wanting me to increase prednisone from 10mg back up to 15 until I see him, very strange.
Not sure what’s going on, I had blood tests because of headaches and temple pain but I’ve just had a call from rheumatologist now making an urgent appointment for this Friday and wanting me to increase prednisone from 10mg back up to 15 until I see him, very strange.
Numptybrain
in
PMRGCAuk
1 month ago
GCA or Occipital Neauralgia
confused. I’ve seen a rheumatologist three times in the last year Re:Temporal Arteritis . I’ve had a biopsy which came back negative, because previously my doctor prescribed steroids for inflammation and head pain. Rheumatologist prescribed 50mg of prednisone after a while to be gradually reduced.
confused. I’ve seen a rheumatologist three times in the last year Re:Temporal Arteritis . I’ve had a biopsy which came back negative, because previously my doctor prescribed steroids for inflammation and head pain. Rheumatologist prescribed 50mg of prednisone after a while to be gradually reduced.
Qscrabble8
in
PMRGCAuk
1 month ago
Should go into the OMAHA2a ODM-208 (MK-5684-004): phase 3 trial?
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
LakeT
in
Advanced Prostate Cancer
1 month ago
Generic TCZ---is it available in the UK?
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
My friends, Without this forum, my GCA journey would have been entirely different. You have all been there to support me, educate me, and reinforce me when I thought I was sinking. It has always made me sad that TCZ is only available to GCA patients for one year, subject to review for an additional
Grammy80
in
PMRGCAuk
1 month ago
Alendronic Acid tablets
oncologist has started me on these tablets last 6 months for bone density 70mg once weekly 30 mins before food and to remain upright after taking them anyone else had problem with acid in stomach and very loose stool to a point of passing watered stool .had sample taken and no conclusion read on leaflet
oncologist has started me on these tablets last 6 months for bone density 70mg once weekly 30 mins before food and to remain upright after taking them anyone else had problem with acid in stomach and very loose stool to a point of passing watered stool .had sample taken and no conclusion read on leaflet
Chrisbaird
in
Advanced Prostate Cancer
1 month ago
Does Immunotherapy cause Vasculitis?
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
luggsey
in
Vasculitis UK
1 month ago
1mg Enteric Coated Prednisolone tablets
Does anybody get Enteric coated Pred in 1mg tablets prescribed?...My doctor just prescribed them to be gentler on my stomach and sent the prescription to the chemist and he said he's never known them in a 1mg tablet and he doubts they even do them ..he's given me the prescription to try somewhere else
Does anybody get Enteric coated Pred in 1mg tablets prescribed?...My doctor just prescribed them to be gentler on my stomach and sent the prescription to the chemist and he said he's never known them in a 1mg tablet and he doubts they even do them ..he's given me the prescription to try somewhere else
pammy_hyland
in
PMRGCAuk
7 months ago
Experiencing possible neuropathy in my trunk
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
4tunate1
in
Advanced Prostate Cancer
1 month ago
question
Does anyone get a pulsating sensation in their head on prednisone? I keep getting like my heartbeat really loud thumping in my head , sometimes it causes a headache but not always, yesterday I was just sitting and it started, I got dots all over my eyes then most mornings and evenings it starts. Thanks
Does anyone get a pulsating sensation in their head on prednisone? I keep getting like my heartbeat really loud thumping in my head , sometimes it causes a headache but not always, yesterday I was just sitting and it started, I got dots all over my eyes then most mornings and evenings it starts. Thanks
Numptybrain
in
PMRGCAuk
1 month ago
GCA Heart Issues
Hi, I was hospitalized with severe pain on my right side temporal artery and diagnosed with GCA. I am currently taking 50 mg prednisone and will taper to 40 on Monday. My pain is gone, but I am so fatigued and have an unproductive cough. My chest burns and a feeling of heaviness. I see the vascular
Hi, I was hospitalized with severe pain on my right side temporal artery and diagnosed with GCA. I am currently taking 50 mg prednisone and will taper to 40 on Monday. My pain is gone, but I am so fatigued and have an unproductive cough. My chest burns and a feeling of heaviness. I see the vascular
Moaningxcat
in
PMRGCAuk
1 month ago
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