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PMR,RA and diabetes.
I’ve just had a great appointment with my rheumatologist. My PMR started April 2019 due to stress. I’ve had the usual ups and downs, with a couple of flares. I’m now on 3mg prednisone and 40mg Leflonamide. This last was doubled 6 weeks ago following what seems to be a Rhuematoid arthritis episode in
I’ve just had a great appointment with my rheumatologist. My PMR started April 2019 due to stress. I’ve had the usual ups and downs, with a couple of flares. I’m now on 3mg prednisone and 40mg Leflonamide. This last was doubled 6 weeks ago following what seems to be a Rhuematoid arthritis episode in
HelenDaisy
in
PMRGCAuk
1 month ago
advice for forth coming endescope investigation
Hi, first of, thank you to the people running this site , it has been so helpful and supportive. I have a question which I would be grateful for guidance on. I have an endescope procedure booked for the end of the month (30th). I am currently on 18 mg of Prednisone. I have requested a sedative when
Hi, first of, thank you to the people running this site , it has been so helpful and supportive. I have a question which I would be grateful for guidance on. I have an endescope procedure booked for the end of the month (30th). I am currently on 18 mg of Prednisone. I have requested a sedative when
Crwbin1
in
PMRGCAuk
1 month ago
Update
Hi everyone especially Dorsetlady who I promised to update. I seen my respiratory consultant today who is convinced the lowering of prednisone by rheumatologist to 10/5 daily ie 10 one day 5 the next has definitely caused my new right sided pleural effusion so he’s now increased prednisone to 30mg and
Hi everyone especially Dorsetlady who I promised to update. I seen my respiratory consultant today who is convinced the lowering of prednisone by rheumatologist to 10/5 daily ie 10 one day 5 the next has definitely caused my new right sided pleural effusion so he’s now increased prednisone to 30mg and
Numptybrain
in
PMRGCAuk
1 month ago
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Groin pain
I have been holding off starting a taper from 8.5 mg of Prednisone daily to 8 mg after two unsuccessful attempts this spring and lingering groin pain. 8 days ago, I had a fall off a landing onto a hard surface and broke 3 ribs, (left side) ,bruised kidneys (blood in urine) and pelvis. X-rarys show
I have been holding off starting a taper from 8.5 mg of Prednisone daily to 8 mg after two unsuccessful attempts this spring and lingering groin pain. 8 days ago, I had a fall off a landing onto a hard surface and broke 3 ribs, (left side) ,bruised kidneys (blood in urine) and pelvis. X-rarys show
proactive
in
PMRGCAuk
1 month ago
Low cortisol
rheumatologist referred me to endocrinologist as Cortisol levels low He booked me in for a synacthen test. Which I had 3 weeks ago. I havnt got an appointment with him till end of August. I contacted his secretary who spoke to him and he said that level was inadequate and to continue with 5 mg of
rheumatologist referred me to endocrinologist as Cortisol levels low He booked me in for a synacthen test. Which I had 3 weeks ago. I havnt got an appointment with him till end of August. I contacted his secretary who spoke to him and he said that level was inadequate and to continue with 5 mg of
Creamtea
in
PMRGCAuk
1 month ago
Weakened hip flexor muscles
After moving to Scotland last year, I asked for referral to a Rheumatologist as I had been having pain in left hip on standing and walking.Was told they didn't deal with PMR left that to Drs. After an X ray of pelvis and hips I was told nothing wrong with hip joint, but my pelvis was tilted and lower
After moving to Scotland last year, I asked for referral to a Rheumatologist as I had been having pain in left hip on standing and walking.Was told they didn't deal with PMR left that to Drs. After an X ray of pelvis and hips I was told nothing wrong with hip joint, but my pelvis was tilted and lower
Marcy47
in
PMRGCAuk
7 months ago
Breathing worries, copd
First time posting here ,this last week I've been so breathless I've not been able to look after myself ,need to know if I can take carbosistein with prednisolone feeling to poorly to get to doctors
First time posting here ,this last week I've been so breathless I've not been able to look after myself ,need to know if I can take carbosistein with prednisolone feeling to poorly to get to doctors
Pipperama300
in
Lung Conditions Community Forum
7 months ago
On hydrocortisone after being on prednisone for close to 5 years
Anyone else had experience with going on hydrocortisone from prednisone after symptoms of adrenal insufficiency? Endocrinologist saying maybe she can get me off medication when I reach 10 mg.
Anyone else had experience with going on hydrocortisone from prednisone after symptoms of adrenal insufficiency? Endocrinologist saying maybe she can get me off medication when I reach 10 mg.
Dancer98
in
PMRGCAuk
1 month ago
Prednisone and heart disease
A post made by another patient prompted me to do a bit of reading and almost immediately I stumbled upon this: https://evidence.nihr.ac.uk/alert/low-doses-steroids-increase-cardiovascular-risks-in-inflammatory-diseases/ They do state that to lower the risks one should do all the usual (don't smoke,
A post made by another patient prompted me to do a bit of reading and almost immediately I stumbled upon this: https://evidence.nihr.ac.uk/alert/low-doses-steroids-increase-cardiovascular-risks-in-inflammatory-diseases/ They do state that to lower the risks one should do all the usual (don't smoke,
HeronNS
in
PMRGCAuk
1 month ago
scared and ready to give up
I have medicine anxiety, and I’m afraid I’m developing GCA! I can’t take it anymore, after 2 years…I’ve only taken ibuprofen from time to time, I have a high pain threshold, but it’s the severe possibilities I can’t handle! I’m an artist and fear blindness, but my anxiety about meds is freaking me out
I have medicine anxiety, and I’m afraid I’m developing GCA! I can’t take it anymore, after 2 years…I’ve only taken ibuprofen from time to time, I have a high pain threshold, but it’s the severe possibilities I can’t handle! I’m an artist and fear blindness, but my anxiety about meds is freaking me out
GivenUp24
in
PMRGCAuk
1 month ago
Travel and timezones - timing of Prednisone
Hello I checked FAQs. not sure if this topic has been discussed. what is the recommendation for the timing of taking Prednisone when traveling from the US to Europe (7 hour time difference). so for example, if I take Prednisone at 12pm daily in the US., how do I adjust to taking the Prednisone
Hello I checked FAQs. not sure if this topic has been discussed. what is the recommendation for the timing of taking Prednisone when traveling from the US to Europe (7 hour time difference). so for example, if I take Prednisone at 12pm daily in the US., how do I adjust to taking the Prednisone
Italybound62
in
PMRGCAuk
1 month ago
Sweating on Abi, Prednisone and Lupron
Perhaps it is related to the night sweats and my body's inability to control it's temperature while I am on these drugs. Between working out more and these hot summer days I find that I sweat FAR more than I used to. I figure it's another drug side effect but wanted to ask if anyone has the same experience
Perhaps it is related to the night sweats and my body's inability to control it's temperature while I am on these drugs. Between working out more and these hot summer days I find that I sweat FAR more than I used to. I figure it's another drug side effect but wanted to ask if anyone has the same experience
4tunate1
in
Advanced Prostate Cancer
1 month ago
Update on Treatment
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
Sushupthi
in
Advanced Prostate Cancer
1 month ago
Help for PMR relapse?
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
Karenjaninaz
in
PMRGCAuk
1 month ago
Cautious Optimism
Update: using very slow reductions of ¼ mg per week while taking 100mg of hydroxychloroquine I was able to stop prednisone on June 15, 2024 after 2 years and 3 months with PMR. I continue to take this low dose of hydroxy intermittently several days a week. So far all is well. It’s a far cry from starting
Update: using very slow reductions of ¼ mg per week while taking 100mg of hydroxychloroquine I was able to stop prednisone on June 15, 2024 after 2 years and 3 months with PMR. I continue to take this low dose of hydroxy intermittently several days a week. So far all is well. It’s a far cry from starting
MikeVanBC
in
PMRGCAuk
1 month ago
GCA flair?
Hello, I have been dealing with GCA for over a year. For the last few months things have been great and I was able to reduce my prednisone, very slowly to 4 1/2 mg a day. I am also on Actemra infusions once a month. This past week, on two occasions I was eating and my jaw made hard cracking sound. I
Hello, I have been dealing with GCA for over a year. For the last few months things have been great and I was able to reduce my prednisone, very slowly to 4 1/2 mg a day. I am also on Actemra infusions once a month. This past week, on two occasions I was eating and my jaw made hard cracking sound. I
Plains
in
PMRGCAuk
1 month ago
Treatment update-is SBRT missing the lesions ?
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
alperk
in
Advanced Prostate Cancer
1 month ago
prednisone reduction advice.
DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I should stay with this level.
DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I should stay with this level.
Tamla1964
in
PMRGCAuk
1 month ago
prednisone reduction advice.
DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I should stay with this level.
DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I should stay with this level.
Tamla1964
in
PMRGCAuk
1 month ago
MTX addition. Too early?
New to group. Thanks in advance to all trying to educate. Diagnosed withPMR with GCA components. 18 weeks on Prednisone. Starting at 15mg weaned to 10 mg within 9 weeks. Tried to go to 7.5 but Headache symptoms returned . Resolved going back to 10 mg. After another 3 weeks attempted to alternate 10
New to group. Thanks in advance to all trying to educate. Diagnosed withPMR with GCA components. 18 weeks on Prednisone. Starting at 15mg weaned to 10 mg within 9 weeks. Tried to go to 7.5 but Headache symptoms returned . Resolved going back to 10 mg. After another 3 weeks attempted to alternate 10
THClover
in
PMRGCAuk
1 month ago
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