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Continue Forever on Low Dose Prednisone?
Hello PMR/GCA friends! I had GCA/PMR in 2017, and slowly tapered prednisone over 4 years to 0. Then after almost a full year off of prednisone, in 2021 I had a relapse. Started again on 60 mg prednisone and Actemra injections . Right now I’m taking 1.5 mg prednisone and Actemra every other
Hello PMR/GCA friends! I had GCA/PMR in 2017, and slowly tapered prednisone over 4 years to 0. Then after almost a full year off of prednisone, in 2021 I had a relapse. Started again on 60 mg prednisone and Actemra injections . Right now I’m taking 1.5 mg prednisone and Actemra every other
Pamk1949
in
PMRGCAuk
1 month ago
actemra
rheumatologist wants me to put me on Actemra since I’m not tolerating prednisone that well, what has everyone’s experience been?
rheumatologist wants me to put me on Actemra since I’m not tolerating prednisone that well, what has everyone’s experience been?
GivenUp24
in
PMRGCAuk
1 month ago
Taper after 2 weeks of prednisolone?
Hello, just wondered if anyone know if I need to ask to taper down prednisolone after having 12 days of 30mg prednisolone? I did have a 2 day gap within this of no prednisolone. Am I right it’s only if you’ve had 14 days you need to taper? Thanks very much for any advice. Previously felt very grim after
Hello, just wondered if anyone know if I need to ask to taper down prednisolone after having 12 days of 30mg prednisolone? I did have a 2 day gap within this of no prednisolone. Am I right it’s only if you’ve had 14 days you need to taper? Thanks very much for any advice. Previously felt very grim after
Ladypig8
in
Asthma Community Forum
7 months ago
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Finally, at zero prednisone...still Actemra~!
I've certainly been off the grid with my trip to Maine and then an eight-day visit from my 19-year-old granddaughter from Canada. My brain and heart are just full of wonderful memories. I am still doing weekly injections of Actemra and am certain my rheumatologist will continue that. I remained on .5
I've certainly been off the grid with my trip to Maine and then an eight-day visit from my 19-year-old granddaughter from Canada. My brain and heart are just full of wonderful memories. I am still doing weekly injections of Actemra and am certain my rheumatologist will continue that. I remained on .5
Grammy80
in
PMRGCAuk
1 month ago
anyone with Churg Strauss come off all medication?
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
hello I have a dilemma as I see 2 consultants from different hospitals- one is a rheumatologist from my local hospital and the other is a Vasculitis specialist from the rheumatology team at Manchester Royal. They both have very different opinions about whether I should come off my medication. I am
Katie18
in
Vasculitis UK
7 months ago
A new member
Hello there, I am Sunshine, 22 years old and this is my first post on the forum. I have had asthma in my genes and from childhood. But recently with recurrent respiratory infections and occasional blood in sputum brought me to the doctor. He ordered me an Xray which showed Bronchiectasis. To confirm
Hello there, I am Sunshine, 22 years old and this is my first post on the forum. I have had asthma in my genes and from childhood. But recently with recurrent respiratory infections and occasional blood in sputum brought me to the doctor. He ordered me an Xray which showed Bronchiectasis. To confirm
Sunshine404
in
Lung Conditions Community Forum
1 month ago
Metastatic Prostate Cancer
Just started Zytiga, prednisone and hormone shots for recurrent prostate cancer that has returned and spread to lungs. Just wondering if anyone else is taking these drugs and what their experience has been with side effects the first month or so. Thanks.
Just started Zytiga, prednisone and hormone shots for recurrent prostate cancer that has returned and spread to lungs. Just wondering if anyone else is taking these drugs and what their experience has been with side effects the first month or so. Thanks.
wpeebles
in
Advanced Prostate Cancer
1 month ago
Prednisolone Week 10 Update
Hi All, Been a while since I posted about my PMR/Prednisolone journey so here is an update for anyone who finds it useful and a few questions..... Quick reminder on who I am.....I'm Paul, 49, and I woke up last November with pain and stiffness in my shoulders which got progressively worse over a couple
Hi All, Been a while since I posted about my PMR/Prednisolone journey so here is an update for anyone who finds it useful and a few questions..... Quick reminder on who I am.....I'm Paul, 49, and I woke up last November with pain and stiffness in my shoulders which got progressively worse over a couple
Paulx222
in
PMRGCAuk
7 months ago
Lower back pain muscle or flare?
Hi everyone……Has anyone had lower back pain when tapering ….I was doing great Doctor lowered my prednisone by 1mg a month I’m down to 5 mg day wondering if I’m going too fast?……I had X-rays on my lower back didn’t show anything gave me some Naproxen I’m wondering should I treat this as flare and
Hi everyone……Has anyone had lower back pain when tapering ….I was doing great Doctor lowered my prednisone by 1mg a month I’m down to 5 mg day wondering if I’m going too fast?……I had X-rays on my lower back didn’t show anything gave me some Naproxen I’m wondering should I treat this as flare and
Januzzi
in
PMRGCAuk
1 month ago
Things My Doctor Said in Notes./Rant On
I am abandoning this woman! (From January9, one day after a disabling super flare.) "Prednisone dosing - she is currently on 9mg of prednisone daily. She is trying to cut back by one milligram per month. Using naltrexone 4.5mg daily for pain as well. She remains convinced that her symptoms are due to
I am abandoning this woman! (From January9, one day after a disabling super flare.) "Prednisone dosing - she is currently on 9mg of prednisone daily. She is trying to cut back by one milligram per month. Using naltrexone 4.5mg daily for pain as well. She remains convinced that her symptoms are due to
Sandmason
in
PMRGCAuk
1 month ago
Can’t catch a break.
Well I ended up on 40 mg of prednisone with suspected GCA…😩 I was talking to a friend of mine, who said he was on 40 mg of prednisone and he was only on it for three weeks his side effects from prednisone were so severe. But apparently his GCA went into remission in just three weeks. He said he had
Well I ended up on 40 mg of prednisone with suspected GCA…😩 I was talking to a friend of mine, who said he was on 40 mg of prednisone and he was only on it for three weeks his side effects from prednisone were so severe. But apparently his GCA went into remission in just three weeks. He said he had
GivenUp24
in
PMRGCAuk
1 month ago
Medication Change mid-Induction
Hello, I have renal limited vasculitis and am wondering if anyone has experience with a switch from Rituximab to Cyclophosphamide after 3 months of initial induction therapy? My first treatment that started almost 3 months ago was Rituximab with Prednisone. At first things were going well with eGFR
Hello, I have renal limited vasculitis and am wondering if anyone has experience with a switch from Rituximab to Cyclophosphamide after 3 months of initial induction therapy? My first treatment that started almost 3 months ago was Rituximab with Prednisone. At first things were going well with eGFR
Support_helps
in
Vasculitis UK
1 month ago
Fet ultrasounds and checkup?
Hi ladies I've started my period abd alerted my clinic to prep for my last transfer that is a 3 day blast. I started estradiol 2/day (6mg) and am also doing an immune protocol with 10mg prednisone and 150mg baby aspirin. They advised me to come in for an ultrasound at cd14 to check lining but that
Hi ladies I've started my period abd alerted my clinic to prep for my last transfer that is a 3 day blast. I started estradiol 2/day (6mg) and am also doing an immune protocol with 10mg prednisone and 150mg baby aspirin. They advised me to come in for an ultrasound at cd14 to check lining but that
Norregirl
in
Fertility Network UK
1 month ago
Slight PSA rise and MO discontinuing ADT due to fatigue
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Superbfloor
in
Advanced Prostate Cancer
1 month ago
The age thing...
I just read someone's issue with their rheumatologist denying PMR due to her age and that brings up something I've been wondering about. When I was going through a divorce at age 27, in an extreme amount of stress, I developed pain in neck, lower back and both hips. Over the years knee & shoulder pain
I just read someone's issue with their rheumatologist denying PMR due to her age and that brings up something I've been wondering about. When I was going through a divorce at age 27, in an extreme amount of stress, I developed pain in neck, lower back and both hips. Over the years knee & shoulder pain
79andCounting
in
PMRGCAuk
1 month ago
Ugh rheumatology visit.
hi. I just went to the rheumatologist for the first time. I have been happy with my Doc.. and this site. but he said after 7 years and stuck at 2mg. he wanted me to go to a rheumatologist who said she thought I might have RA but I said I just had tests for it ..negative markers (look in my chart maybe
hi. I just went to the rheumatologist for the first time. I have been happy with my Doc.. and this site. but he said after 7 years and stuck at 2mg. he wanted me to go to a rheumatologist who said she thought I might have RA but I said I just had tests for it ..negative markers (look in my chart maybe
yogabonnie
in
PMRGCAuk
1 month ago
Seronegative RA with OA in the Lumbar and Cervical Spine
I have a diagnosis of Seronegative Rheumatoid Arthritis with underlying Osteoarthritis in the lumbar and cervical spine. My question is one of exercise - The GP has made a referral to Physiotherapy - I'm expecting that this will take a while for an appointment to come through, in the meantime I'd love
I have a diagnosis of Seronegative Rheumatoid Arthritis with underlying Osteoarthritis in the lumbar and cervical spine. My question is one of exercise - The GP has made a referral to Physiotherapy - I'm expecting that this will take a while for an appointment to come through, in the meantime I'd love
Hopeful66
in
NRAS
7 months ago
I was diagnosed with GCA in November and was started on 40mg of prednisone.
I experienced really bad steroid induced diabetes which seems a bit more in control now. I am currently down to 8mg of Prednisone, then 120mg of Glyclazide and 500mg of Metformin for the diabetes In the last few days I have felt very depressed and anxious. I am not sure if this is related to my
I experienced really bad steroid induced diabetes which seems a bit more in control now. I am currently down to 8mg of Prednisone, then 120mg of Glyclazide and 500mg of Metformin for the diabetes In the last few days I have felt very depressed and anxious. I am not sure if this is related to my
Ambatu
in
PMRGCAuk
1 month ago
Introduction and asking for help interpreting latest scan results and thoughts on future treatment plan please.
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
Long time reader but first time posting.. I have just received my latest PSMA PET-CT scan results and would like some help interpreting the results and gain your thoughts about situation and treatment plan. My overall history: After slowly rising PSA scores to a relatively low peak of 6.1 at 59 years
APCFighter
in
Advanced Prostate Cancer
1 month ago
ACTH Stim test after stopping abiraterone & prednisone
Has anyone had an ACTH Stimulation test after stopping abiraterone and Prednisone to test for adrenal insufficiency? I ended 24 months of eligard, abiraterone, and Prednisone on June 4. My endocrinologist (who I had prior to prostate cancer) pushed me to have a cortisol test on June 6 even though I
Has anyone had an ACTH Stimulation test after stopping abiraterone and Prednisone to test for adrenal insufficiency? I ended 24 months of eligard, abiraterone, and Prednisone on June 4. My endocrinologist (who I had prior to prostate cancer) pushed me to have a cortisol test on June 6 even though I
Alturia
in
Advanced Prostate Cancer
1 month ago
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