Hi everyone especially Dorsetlady who I promised to update. I seen my respiratory consultant today who is convinced the lowering of prednisone by rheumatologist to 10/5 daily ie 10 one day 5 the next has definitely caused my new right sided pleural effusion so he’s now increased prednisone to 30mg and I’m on a very slow taper as well as antibiotics, he now believes I definitely need immunotherapy asap . He’s sending email to my rheumatologist highlighting this as my recent CT scan of lungs is showing hardly any inflammation thanks to prednisone.
Thanks everyone
Wendy xx