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Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
7 months ago
Biologics
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
Hi - following on from my previous posts, has anyone been rejected for biologics due to their inhaled steroid dose being high? I have Seretide 250mcg x2 puffs twice daily and pulmicort nebs 2mg twice daily. They’re saying the high doses of inhaled steroids are the cause of my infections, but I’m colonised
LottieB36
in
Asthma Community Forum
7 months ago
increasing my prednisone
hello, I have reduced to 2mg from 12.5 october23 I have been ok, up until the last two weeks, my back pain has returned, and it’s getting worse, doctor gave me codine and paracetamol but I do not seam to be improving, could I take a higher dose of Pred to see if that would help and if so how much. I
hello, I have reduced to 2mg from 12.5 october23 I have been ok, up until the last two weeks, my back pain has returned, and it’s getting worse, doctor gave me codine and paracetamol but I do not seam to be improving, could I take a higher dose of Pred to see if that would help and if so how much. I
Startrek123
in
PMRGCAuk
15 days ago
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Rheumatology visit and prednisone reduction
Before I went to the doctor this morning, I knew how much better I felt. That was even though I sat up for two hours in the middle of last night listening to a book after my second 60 mg dose. I made myself go back to bed three hours before I had to rise, and rise I did! Wide-eyed... The doctor told
Before I went to the doctor this morning, I knew how much better I felt. That was even though I sat up for two hours in the middle of last night listening to a book after my second 60 mg dose. I made myself go back to bed three hours before I had to rise, and rise I did! Wide-eyed... The doctor told
Grammy80
in
PMRGCAuk
15 days ago
Chest pain
After 10 days of prednisone I am wheezing and coughing less but I find I have central chest pain. BP and pulse fine
After 10 days of prednisone I am wheezing and coughing less but I find I have central chest pain. BP and pulse fine
Msccruises
in
Asthma Community Forum
16 days ago
Well, I just took 60 mg of prednisone~Wednesday night in the States~
After five years, on June 27, I got to zero pred, though I am continuing Actemra. It was July 26 when I started having a headache, which over the next few days had progressed to sharp pain down the left forehead and was needle-like in my left eye, my blind eye. I had intermittent pain on the right side
After five years, on June 27, I got to zero pred, though I am continuing Actemra. It was July 26 when I started having a headache, which over the next few days had progressed to sharp pain down the left forehead and was needle-like in my left eye, my blind eye. I had intermittent pain on the right side
Grammy80
in
PMRGCAuk
17 days ago
Happy anniversary?
It was exactly 1 year ago that I got my first elevated PSA test that started my prostate cancer experience (I don’t like to say “Journey”). Details in my comic. (http://burnscomic.com) After that, I had another PSA test (still elevated a month later), a pelvic MRI (showing pi-rads 5 areas), then a
It was exactly 1 year ago that I got my first elevated PSA test that started my prostate cancer experience (I don’t like to say “Journey”). Details in my comic. (http://burnscomic.com) After that, I had another PSA test (still elevated a month later), a pelvic MRI (showing pi-rads 5 areas), then a
Jpburns
in
Advanced Prostate Cancer
17 days ago
GCA concerns
I have been on Prednisone since January for PMR, and GCA. 60 mg. x 6 weeks, and then at 40-45 mg. for four months. Recently tapered to 30 mg. three weeks ago. I have had 5 Actemra infusions of 400 mg. since February and began weekly Actemra SQ injections earlier this month. Five injections so far
I have been on Prednisone since January for PMR, and GCA. 60 mg. x 6 weeks, and then at 40-45 mg. for four months. Recently tapered to 30 mg. three weeks ago. I have had 5 Actemra infusions of 400 mg. since February and began weekly Actemra SQ injections earlier this month. Five injections so far
Bummed24
in
PMRGCAuk
18 days ago
Increase prednisone to help pain temporarily
as posted few times have to get MRI done on both hips this Sat, tried to get left hip done about a month ago, couldnt tolerate on MRI table , because if excrutiating pain in right groin, they had to stop process, I was in tears from pain, report to dr said patient needs sedation for pain , now ortho
as posted few times have to get MRI done on both hips this Sat, tried to get left hip done about a month ago, couldnt tolerate on MRI table , because if excrutiating pain in right groin, they had to stop process, I was in tears from pain, report to dr said patient needs sedation for pain , now ortho
arvine
in
PMRGCAuk
18 days ago
Med alert wording
I’m just starting a slow taper to 5.5mg prednisolone and aware my adrenals should be waking up but might not. I’m considering getting a medical alert bracelet but would appreciate advice on what wording I should have on it.
I’m just starting a slow taper to 5.5mg prednisolone and aware my adrenals should be waking up but might not. I’m considering getting a medical alert bracelet but would appreciate advice on what wording I should have on it.
Mfaepink1973
in
PMRGCAuk
7 months ago
Unsure about symptoms
Before I contact my doctor I would appreciate some advice. Presently on 9mg prednisone for 2 months, three weeks in. Not feeling well, headache, nausea, aches upper body. Thought perhaps it was fatigue so rested for two days and felt better. I sleep well and eat well but seem to be losing weight slowly
Before I contact my doctor I would appreciate some advice. Presently on 9mg prednisone for 2 months, three weeks in. Not feeling well, headache, nausea, aches upper body. Thought perhaps it was fatigue so rested for two days and felt better. I sleep well and eat well but seem to be losing weight slowly
FreeWolf
in
PMRGCAuk
19 days ago
COVID
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
I have Covid! I don't recommend it -- I feel terrible. I hope it doesn't cause a flare. I am down to zero prednisone and my adrenals suddenly caught up so I was feeling normal. Still on the Kevzara, however.
Paulagcl
in
PMRGCAuk
20 days ago
A question about exercise
I have a question for you all about exercise. I have read a lot of posts on the topic, and many people write that they exercise a lot. Today, someone wrote about doing cardio, yoga, and cycling while being on 9 mg of prednisone. I am wondering about this, as I am never in a condition to do that. I
I have a question for you all about exercise. I have read a lot of posts on the topic, and many people write that they exercise a lot. Today, someone wrote about doing cardio, yoga, and cycling while being on 9 mg of prednisone. I am wondering about this, as I am never in a condition to do that. I
krillemy
in
PMRGCAuk
20 days ago
No more prednisone.😕
My husband has been on watch and wait for the past three years. This year things changed after he’d been down with a cold flu in February. Two weeks ago we saw the oncologist and she put him on a two week period of prednisone, as he was so tired., as well as Calquence. In those two weeks he regained
My husband has been on watch and wait for the past three years. This year things changed after he’d been down with a cold flu in February. Two weeks ago we saw the oncologist and she put him on a two week period of prednisone, as he was so tired., as well as Calquence. In those two weeks he regained
janjuergen1
in
CLL Support
21 days ago
UTI and extra prednisone?
Hi, I’ve just been diagnosed with a UTI. I am currently at 3.75 mg of prednisone after reducing from 4 in the last week. I also just had a blood test and noticed that my C reactive protein count was at 11… slightly above normal values. Not sure if it is a reaction to the infection or that my inflammation
Hi, I’ve just been diagnosed with a UTI. I am currently at 3.75 mg of prednisone after reducing from 4 in the last week. I also just had a blood test and noticed that my C reactive protein count was at 11… slightly above normal values. Not sure if it is a reaction to the infection or that my inflammation
Fishtacoqueen
in
PMRGCAuk
22 days ago
headache update #2
I saw my primary Dr yesterday. He thinks the headaches are migraines. Current tally Instant Care: 2 visit 2 tension headache diagnosis ER: occipital neuralgia Primary Care: migraines Neutologist: has yet to respond My primary care did listen when I asked him how he knows it’s not occipital neuralgia
I saw my primary Dr yesterday. He thinks the headaches are migraines. Current tally Instant Care: 2 visit 2 tension headache diagnosis ER: occipital neuralgia Primary Care: migraines Neutologist: has yet to respond My primary care did listen when I asked him how he knows it’s not occipital neuralgia
StacyHayward
in
My MSAA Community
22 days ago
Aleve use for pain other than pmr
I have found the occasional use of an Aleve helps so much with pain when I am decreasing the prednisone. Most of my pain comes from my back fractures. As I reduce the pred. My back aches get worse. Does anyone know why an Aleve would be worse for me than some of the meds they suggest that have much
I have found the occasional use of an Aleve helps so much with pain when I am decreasing the prednisone. Most of my pain comes from my back fractures. As I reduce the pred. My back aches get worse. Does anyone know why an Aleve would be worse for me than some of the meds they suggest that have much
Linny3
in
PMRGCAuk
22 days ago
has anyone taken Kevzara for PMR
My Dr. wants me to start this medication for PMR and arthritis. I was surprised because I don't think there were any medications for pmr other than prednisone. As with all of these meds. the side effects listed are horrendous. If anyone knows anything about Kevzara please let me know. My last attempt
My Dr. wants me to start this medication for PMR and arthritis. I was surprised because I don't think there were any medications for pmr other than prednisone. As with all of these meds. the side effects listed are horrendous. If anyone knows anything about Kevzara please let me know. My last attempt
Linny3
in
PMRGCAuk
23 days ago
Exhausted
Hi everyone, after over a year of battling bilateral pleural/pericardial effusion’s that almost cleared up thanks to prednisone, it’s all came back only worse and with a nasty bacterial infection too. My doctor is fighting hard with antibiotics to keep me out of hospital and I’m awaiting the start of
Hi everyone, after over a year of battling bilateral pleural/pericardial effusion’s that almost cleared up thanks to prednisone, it’s all came back only worse and with a nasty bacterial infection too. My doctor is fighting hard with antibiotics to keep me out of hospital and I’m awaiting the start of
Numptybrain
in
Lung Conditions Community Forum
23 days ago
tapered recently from 3.5mg prednisone to 3. how long should i wait before going to 2.5?
This is going on year five. I've been between 3.5 and 2.5 mg over the past year. The last time I flared I went back up to 3.5 mg. At that level i have felt completely normal. I completed the slow taper two weeks ago to 3mg. I am experiencing some fatigue now but no pain. I sometimes wonder if I'm symptom
This is going on year five. I've been between 3.5 and 2.5 mg over the past year. The last time I flared I went back up to 3.5 mg. At that level i have felt completely normal. I completed the slow taper two weeks ago to 3mg. I am experiencing some fatigue now but no pain. I sometimes wonder if I'm symptom
Paperroses
in
PMRGCAuk
23 days ago
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